Autism Talk TV Ep. 3: Allison Singer at IMFAR

Page 4 of 4 [ 57 posts ]  Go to page Previous  1, 2, 3, 4

BoringAl
Pileated woodpecker
Pileated woodpecker

User avatar

Joined: 26 Oct 2008
Age: 119
Gender: Male
Posts: 182

31 May 2010, 7:11 am

I don't think that anyone should be able to edit the front page. With the number of users WP has and the touchiness of issues like the search for genetic markers I imagine the front page would be anarchy.

My observation about the ASAN article was against Singer before was merely an observation not an attack. I am in favor of dialog between so called "curebies" and the neurodiversity crowd. I think that there are too much misunderstanding and both sides often won't listen.



alex
Administrator
Administrator

User avatar

Joined: 13 Jun 2004
Age: 34
Gender: Male
Posts: 10,159
Location: Beverly Hills, CA

31 May 2010, 9:32 am

i think the article was appropriate at the time although in hindsight, I think it could have been written more tastefully. I was merely clarifying something that was posted.

And interviewing members of autism speaks is a lot different than creating "articles of understanding" in my opinion. Doing an interview is not the same thing as saying "i support everything this person is saying and I agree to stuff like that." I think ASAN would agree with me on this.



alex
Administrator
Administrator

User avatar

Joined: 13 Jun 2004
Age: 34
Gender: Male
Posts: 10,159
Location: Beverly Hills, CA

31 May 2010, 10:41 am

sinsboldly wrote:
alex wrote:
she doesn't work for them anymore. although i did get to interview the current vice president of autism speaks. I confronted him about the cure issue.


and? what happened when you 'confronted him'.

inquiring minds want to know. . .
[youtube]http://www.youtube.com/watch?v=isLawfXj6RM[/youtube]



BoringAl
Pileated woodpecker
Pileated woodpecker

User avatar

Joined: 26 Oct 2008
Age: 119
Gender: Male
Posts: 182

31 May 2010, 10:41 am

Fair enough. Thank you.



lau
Veteran
Veteran

User avatar

Joined: 17 Jun 2006
Age: 71
Gender: Male
Posts: 9,608
Location: Somerset UK

01 Jun 2010, 9:10 am

In case anyone is unclear on who Peter Bell is...
http://www.autismspeaks.org/leadership.php#peter
http://www.autismspeaks.org/inthenews/c ... r_bell.php
http://www.autismspeaks.org/annual_report.php (2008, p.8)
http://www.autism-insar.org -> Membership -> Committees


_________________
"Striking up conversations with strangers is an autistic person's version of extreme sports." Kamran Nazeer


zen_mistress
Veteran
Veteran

User avatar

Joined: 11 Jun 2007
Age: 43
Gender: Female
Posts: 6,033

01 Jun 2010, 5:58 pm

To me, I think it isabout more than the cure issue. Its the view of a number of people who view ASD people as impaired, damaged, defective- which I see as an attack on my personality, and self.


_________________
"Caravan is the name of my history, and my life an extraordinary adventure."
~ Amin Maalouf

Taking a break.


Sparrowrose
Veteran
Veteran

User avatar

Joined: 11 Oct 2009
Age: 53
Gender: Female
Posts: 1,682
Location: Idaho, USA

05 Jun 2010, 4:23 am

zen_mistress wrote:
To me, I think it isabout more than the cure issue. Its the view of a number of people who view ASD people as impaired, damaged, defective- which I see as an attack on my personality, and self.


Ironic that you use "ASD" since that (as far as I know) stands for "Autism Spectrum Disorders."

When I'm trying to be careful not to offend people by referring to autism as a disorder, a disease, etc., I call it Autism Spectrum Conditions. Condition still isn't perfect, but it is better than disorder, I think.

(Although I, personally, feel that my autism has been a hindrance in my life and I do, personally, experience it as a deficit.)


_________________
"In the end, we decide if we're remembered for what happened to us or for what we did with it."
-- Randy K. Milholland

Avatar=WWI propaganda poster promoting victory gardens.


zen_mistress
Veteran
Veteran

User avatar

Joined: 11 Jun 2007
Age: 43
Gender: Female
Posts: 6,033

05 Jun 2010, 5:15 am

I dont really know what to call it. I dont bother being PC anymore, as I figure someone will always be offended, not matter what I write. I see AS for me as being a difference, but also a disorder.. to me it is anyway.


_________________
"Caravan is the name of my history, and my life an extraordinary adventure."
~ Amin Maalouf

Taking a break.


zen_mistress
Veteran
Veteran

User avatar

Joined: 11 Jun 2007
Age: 43
Gender: Female
Posts: 6,033

05 Jun 2010, 5:32 am

I dont advise anyone to read the IMSAR research journals, unless you want to feel strange.

http://www3.interscience.wiley.com/jour ... 9/abstract

That is only the abstract and already I have learned that there are "low risk families" and "high-risk families" - a risky business, this autism... also much mentions of "mutation"...

I dont like being thrown into the "mutation" category like this but I do have a disorder after all... still creeps me out though...


_________________
"Caravan is the name of my history, and my life an extraordinary adventure."
~ Amin Maalouf

Taking a break.