How much easier did being diagnosed make your life?

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28 May 2010, 1:13 pm

A light bulb lit up and everything became clear, I understood who I was and why I was that person. Everyone around me benefitted (self diagnosed though, so for some people this means I don't have AS).



Assembly
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28 May 2010, 1:17 pm

I'm ok with doctors and social service workers to know, I don't want others to know (relatives/family/university /employer etc.). They just look down on me, think of them self as superior and feel pity. I just want help to get on my own feet - I don't want to go party, 'learn' empathy or be in a relationship. It's never been a goal, never will be - I just want to be independent and pursue my interests. I don't want others to tell me what I should want, what I should feel - I'm not stupid, I know what I want, how I can acchieve it - I just need help with practical issues to get ahead in life. If you can't help me with that, back off - I don't need your sympathy or input on how I should live my life. I don't want 'special treatment' at university - I'm a straight A student, my work should speak for itself. I needed the diagnosis to receive the help, so that I won't have to depend on others, what I don't need is for a bunch of hobby psychologists (read: relatives /aquaintances) to think they know me based on something they read on the internet. About other people being understanding? Don't get your hopes up, cuz they're not - atleast not the people I know. They're just as clueless (perhaps even more), yet now they've convinced themselves that you're unable to think for yourself.



Last edited by Assembly on 28 May 2010, 1:43 pm, edited 2 times in total.

Bowser
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28 May 2010, 1:22 pm

Just the awareness of what AS is and the possibility that I might have it already is giving me hope. I've always been distant from others, unable to form close bonds with anyone, and ridiculed to no end. It answers questions, and I may be able to get some help/advice catered more to a specific issue.



PlatedDrake
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28 May 2010, 1:45 pm

Bowser wrote:
Just the awareness of what AS is and the possibility that I might have it already is giving me hope. I've always been distant from others, unable to form close bonds with anyone, and ridiculed to no end. It answers questions, and I may be able to get some help/advice catered more to a specific issue.


I was about the same way, feeling out of touch with the rest of humanity . . . and not really wanting to. I guess it makes one's perception of life easier when you know that how you see life is due to a different "brain wiring" than the other 99% of the human population. I've been getting help now for about a year and a half and its been a breath of fresh air. There are still some things i have to work out, but I at least know there are ways around a lot of the issues Ive had rather than beating my head against a proverbial social wall.



nick007
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28 May 2010, 3:47 pm

SeaMonkey wrote:
nick007 wrote:
Quote:
How much easier did being diagnosed make your life?


I 1st heard about AS after I graduated high-school when my mom mentioned how a psych I saw suspected it. I've done some research after & a couple years latter I had another docs mention it to me as well. I was officially tested & it got ruled out but I really think I do have it & I say I do. Having a diagnoses or not having it makes little difference to me. My entire life I felt like I was an outsider & my mom suspected I was autistic when I was a toddler. Now that I know about AS; I still feel like an outsider & I still have the same other issues/problems that I did before. Aspergers is a label to explain things about me but most people do not understand AS or care so having the label doesn't seem to matter. If I could of been officially diagnosed years ago maybe I could of had some extra help with school & stuff but sense I'm an adult now & there are no social programs or help for adults with AS here; having a diagnoses doesn't matter. What does matter however is finding people who I can relate to who are having similar issues


Yeah you probably do have it. Thats the same thing that happened to me, I went to 2 psychologists in my life years before I ever saw a psychiatrist and both of them kept asking me if I'd ever been tested for autism. First time I heard of it was when my brother told me he described me to his psychologist and his psychologist told him it sounds like I had aspergers. The psychiatrist I went to happened to be a specialist on autism and ADHD so maybe you should see a psychiatrist whos expertise involves autism. I don't care if other people understand what autism is, the diagnosis makes it a lot easier for me to accept my own blatant differences so in that sense it has made my life a whole lot better.


I've saw other docs after for other mental things & they also thought I didn't have AS either because I communicated to well verbally amongst other rezones. I got diagnoses of about 10 other mental things instead including 4 personality disorders. At this point I know I can not be like everyone else & I have an idea of what my problems/issues are. I don't think having an official diagnoses would change the way I feel about myself & as for as how others treat me; my mom believes I have AS regardless of what the docs said so I don't think having paperwork saying I have AS will make a difference to me


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Ferdinand
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28 May 2010, 4:06 pm

Me finding this site :)


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caligirl
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30 May 2010, 7:59 pm

I haven't been officially diagnosed by a Dr. but I have been diagnosed by people who have told us that they know I am an Aspie. this has been going on alot for about 6 years.

I am 36 and asked my mother if it would be good for a diagnoses and she said it probably wouldn't do any good in real life. since there's no programs for adults.



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30 May 2010, 8:06 pm

caligirl wrote:
I haven't been officially diagnosed by a Dr. but I have been diagnosed by people who have told us that they know I am an Aspie. this has been going on alot for about 6 years.

I am 36 and asked my mother if it would be good for a diagnoses and she said it probably wouldn't do any good in real life. since there's no programs for adults.


You can get disability checks, right?


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persian85033
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30 May 2010, 8:07 pm

I know I'm not insane.


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zer0netgain
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31 May 2010, 7:53 am

dyingofpoetry wrote:
It answered a lot of questions, but made it easier? No.


Ditto.

Well, to be fair, once I understood AS, I found it easier to try and compensate for it.

Before I knew about AS, it was a guessing game at what I was doing wrong and what my options were. Learning the specifics about AS was very helpful in that regard.



poppyx
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31 May 2010, 8:34 am

Wait a second--

how does knowing about your AS help you compensate?