AS/Autism, Prosopagnosia (face blindness), and Epilepsy

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pgd
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06 Sep 2010, 10:18 am

capriwim wrote:
My understanding is that epilepsy and autism are linked, as they commonly co-occur. I don't have epilepsy myself, although I do zone out, and experience difficulty with flashing lights, which could potentially be epilepsy according to my doctor.

I do have prosopagnosia though, and this does seem to often co-occur with autism, although not all people on the spectrum have it, and there are plenty of prosopagnosics who aren't on the spectrum. To me, though, my own prosopagnosia seems related to my Aspergers, because it's about seeing all the tiny details of a face, but not seeing or recognising the face as a whole. Seeing the details but not the big picture seems to be an ASD trait, and it certainly applies in all kinds of other areas of my life as well as faces.


---

Words - Ideas

Whole vs Parts
Forest vs Trees

Lateralization of the brain

http://en.wikipedia.org/wiki/Lateraliza ... n_function

Regarding this idea of whole vs parts/forest vs trees, recall reading a How To book (1981) about ADHD by C. Thomas Wild where he reported that his cognition surprisingly temporarily shifted from parts to more of a whole (not a cure) due to using a FDA approved medicine (Tirend - contains caffeine - 100 mg/14 other ingredients) for ADHD Inattentive. His book discussed a number of FDA approved medicines such as: Tirend, NoDoz, Bonine, Ritalin, and Dilantin. (None of the meds are cures). He also addressed the idea of apraxia/constructional apraxia. This idea of whole vs parts is mirrored in sketches/other materials he's made (Before - no med - vs After - using the effective med - Tirend) which shows aspects of the same subject (Before - no med - lacking details/incomplete - After - using Tirend - containing details, more complete, showing more of a whole - forest - vs - parts - trees). It's the only resource I am aware of which directly addresses this whole vs parts idea which shows a FDA approved medicine (Tirend) being able to temporarily make more connections (not a cure) in the brain mirroring the idea of more of whole (forest) vs simply random parts (trees)(not a cure).



hayesy
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28 Dec 2010, 8:54 am

Hi everyone,
I have been reading through all your posts and find all this very interesting!

We have a three year old with a chromosome 6p25.1 deletion and also a 7q21.13 duplication.

He has epilepsy (drug resistant) aspergers, and has been just newly diagnosed with faceblindness.

I am more than interested in talking to anyone who has information on these subjects!!



wavefreak58
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28 Dec 2010, 9:27 am

Inuit wrote:
Thanks for the replies everyone. Had the results of my last EEG and MRI - both show nothing - so I'm not sure what this means (whether or not I have or have not got Epilepsy? somthing is clearly wrong though).

Good to see I'm not the only one with this facial blindness thing.


AN EEG or MRI will often show nothing. The EEG especially since it will only show something if you happen to have a seizure during or shortly before the test. The MRI will only show structural features and not all seizure disorders have readily apparent differences.

Did they do a sleep deprivation test? There is a higher likelihood of finding EEG abnormalities the longer you go without sleep. They make you stay awake for 24 hours then run a series of tests while you are hooked up to the EEG.


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Inuit
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28 Dec 2010, 3:21 pm

I'm going to be sent for a sleep deprived EEG sometime in the new year. I also had a lumber puncture CSF test (spinal tap) because of extreme sudden-onset headaches that I have been having. This showed high protein levels. I did not ask whist that meant (never do at the time). I'm going to have a repeat lumber puncture test within the new year to. I have googled high protein in CSF and scared myself a bit as it all points to things like MS (with which you also suffer from seizures). Hopefully it won't be anything serious like that - serves me right for googling stuff.



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02 Jan 2011, 5:14 am

I have all three. Also I had atonic and myoclonus seizures on meds that lowered the seizure threshold. The atonic one's were weird because I would feel a blip and an instant (not a second, I mean in no time at all whatsoever as far as I was concerned) I would either have already hit the floor, or be right in the process of hitting the floor. My dad said it looked like someone cutting the strings on a puppet and then increasing gravity. Myoclonus was also weird because I would be holding something then my arm would jerk out and whatever I held would go flying. Including forks. My TLE was mistaken for dissociation or psychosis by doctors who documented but didn't understand the pattern where I would be put on neuroleptics (they lower the seizure threshold) and immediately get worse, and be put on anticonvulsants (including one's most people don't think of as such like Ativan) and suddenly be miraculously better. (facepalm)

I take Lyrica and Trileptal and am having fewer seizures than ever. They also treat my trigeminal neuralgia and other nerve/brain-based pain so it's perfect for me.


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hayesy
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02 Jan 2011, 6:23 am

Hayes takes Lamictal and zarontin. He was not diagnosed with TLE, but generalized epilepsy. He has atonic, myoclonic, and absence seizures. Wondering what the best meds really are for him!! He also has Aspergers and just newly diagnosed face blindess!
He is only three years old!!



Inuit
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02 Jan 2011, 3:41 pm

Poor lad. My four year old Son has inherrited AS from me. Luckely he does not seem to have face blindness that I do, and I really hope he never gets seizures. That must be so frightening to whitness in a little one.



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02 Jan 2011, 8:52 pm

I have epilepsy as well. All my EEGs showed nothing, yet I kept having the seizures. Except one they did less than a year ago. For that one, they kept me in the hospital, hooked up to the EEG for a week and a half without my meds and until I had the seizure. That was the first and so far only time I saw a seizure myself. They also had a camera in my room to record any seizures, and I asked if I could see myself have the seizure. It was so odd. I'm looking and it's like my face, I'm making the oddest expressions, and then I'm just moving in the oddest way. :?


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02 Jan 2011, 9:05 pm

anbuend wrote:
My TLE was mistaken for dissociation or psychosis by doctors who documented but didn't understand the pattern where I would be put on neuroleptics (they lower the seizure threshold) and immediately get worse, and be put on anticonvulsants (including one's most people don't think of as such like Ativan) and suddenly be miraculously better. (facepalm)

My doctor would probably thinks the same thing about me. Or he may think it's all in my mind. Idiot. I really am giving him one last chance.
I get myoclonic seizures from strobe lights as well as stress, along with TLE.
I'm also getting a blotchy red spot under my eye as if someone has punched me there. But it's from these seizures. My eyes just start burning.


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