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Blue Jay
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05 Jul 2006, 6:25 am

Imagine it.
One day you find an article about Asperger's in a newspaper/magazine/internet.
You read it and you are surprised, because it is all about you.
You search for more information on Internet, and it almost all fits you.
You become obsessed with Asperger's.
You go to wrongplanet, and read the topics. There are questions, that you have been trying to answer all your life. And most people here tell about themselves, and this is EXACTLY how you feel.
You were never able to fin in, anywhere. And you think, you FINALLY found people like you.
You think you're an aspie. But you don't have a diagnosis. You can't be sure, if you are or not. If you're not an aspie, that means that you're alone in the world, and you can't fit in anywhere. This thought bothers you, you have to find out if you're an aspie or not.
You go to the doctor. You tell him/her all about yourself, all your aspie traits, sure you don't use the word "aspergers". He/she examines you. And he/she says:
- You have mild form of depression/anxiety/psychological problems (something that can be cured or smth that you can overcome, and isn't a part of you).
And doctor doesn't mention Aspergers.
Thats all.
You're not an aspie anymore. And your obsessions doesn't make sense anymore.

How would you feel? What would you think? What would you do?



Vinzer
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05 Jul 2006, 6:37 am

I'd think that the doctor sucks and I need a second opinion.



Raph522
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05 Jul 2006, 8:23 am

Doctors are not always right. like you did, they read a list of symptoms. Some doctors think you need the most common aspergers symptom to be in the AS grouping. my mom, she found aspergers in one of her med books. we switched psychs, i got DXed.

if you were to ask my first Psych, i am still PDD-nos.

you also have to realize that doctors have a lot of different DX's to deal with and may give you the wrong one, or fail to find anything different about you.

and vinzer i'll be the second opinion



wobbegong
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05 Jul 2006, 8:24 am

I keep thinking it would be amusing to start a thread with collected misdiagnoses from professionals.

You've done the research, your doctor hasn't.

Anxiety and depression are commonly associated with Aspergers. They're commonly associated with the stress of trying to fit into an NT world and not being accepted for who you are by yourself or others or both.

To get a real diagnosis, you need a referal to a specialist familiar with Asperger's syndrome". This will typically be a psychologist or psychiatrist but there are some other specialities that also diagnose. If you are over 18 or there abouts, you will need to find not only an Asperger's syndrome specialist, but one who specialises in diagnosing adults.

The specialist will want to talk to your parents or anyone who knew you well when you were small, because Aspergers is easier to identify in children who haven't learnt "proper social behaviour" than in adults who have learnt some rules.

If your parents are not available, arranging for your diagnositician to see you in a social situation like shopping where you have to deal with shop keepers and queues or a party might help.

Sometimes it does help to prime your doctor with detailed information about Aspergers too. But, it has been known that they will tell you that you're not because your voice sounds normal or you don't walk funny, or you're not rocking in the corner, or you can make eye contact.



Litguy
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05 Jul 2006, 8:52 am

A diagnosis of a syndrome is always subjective because it is basead upon observed and self-reported behavior. Plenty of people have received conflicting diagnoses from different professionals. Since there is nothing physical to examine or biopsy, the diagnosis is just a judgement.

The benefit of the diagnosis is that it is being made by an experienced and objective professional who should know what he/she is looking at.

If you want, pursue it further with another doctor.

If not, don't concern yourself with the doctor. You know yourself much better than he or she does. Some doctors look for things they can cure with a pill. AS is not such a thing.



Mork
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05 Jul 2006, 9:01 am

That's my story almost word for word. Not fitting in, feeling different and alone. Discovered A/S and "OMG if that isn't me i don't know what is" kind of feeling plus I actually cried when i started to read about A/S.

When i went to my doctor, i did say that i want to know if i had A/S or not. He looked at me and said "I don't think you have it"

not feeling very happy, I saw another doctor a couple of weeks later. This time, he referred me to a specialist who i saw a few months later.

I still don't have a firm diagnosis one way or another yet, I'm still wating to hear from him.

If he says that i don't have it, I'll still be content here on Wrongplanet in the knowledge that I fit in more here than I do anywhere else. It's good that sites like this exist so that help can be offered and ideas shared.



MrMark
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05 Jul 2006, 9:38 am

Indeed, get a second opinion, and a third and a fourth if necessary. If you see enough doctors you will eventually get the opinion you want. I'm being refered to a specialist next week for an official diagnosis. If she doesn't find an AS disorder, then the specialist will simply be mistaken. I think other aspies are probably the best specialists to make such a diagnosis. Hey, let's start a Jeff Foxworthyish list, "You might be an aspie if..." I'm sure nobody will think it's funny but us. ; ) -Hope this helps, Mark



Aeriel
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05 Jul 2006, 11:55 am

Litguy wrote:
A diagnosis of a syndrome is always subjective because it is basead upon observed and self-reported behavior. Plenty of people have received conflicting diagnoses from different professionals. Since there is nothing physical to examine or biopsy, the diagnosis is just a judgement.

The benefit of the diagnosis is that it is being made by an experienced and objective professional who should know what he/she is looking at.

If you want, pursue it further with another doctor.

If not, don't concern yourself with the doctor. You know yourself much better than he or she does. Some doctors look for things they can cure with a pill. AS is not such a thing.


*points up* What he said.

I'd like to add that to me, it seems likely that an older person would be diagnosed than a young person. Most people get more adept at mimicing NT behavior as life progresses; there's just more data we can utilize.

Also, it seems likely that a doctor would tend to diagnose in the direction of his/her specialty. Someone who hasn't dealt with Aspergers much might miss the diagnosis.



alexa232
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05 Jul 2006, 2:26 pm

dx or no dx – you'll always be, well, YOU, and no doctor's opinion can change that.

Asperger's is a part of your personality. No doctor will ever know you better than you know yourself.



adversarial
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05 Jul 2006, 2:28 pm

There already is a ...You might be an Aspie if... thread on here somewhere.

I went to Cambridge University's Autism Research Centre web site, downloaded and printed off the AQ, FQ, EQ and SQ screening tests, then the spreadsheet that you put the answers for the AQ and EQ test into.

I had one of my brothers complete all the tests according to how he saw me as I had already done my own, but not shown him the results. When I put the answers he had made into the spreadsheet, it seemed that I met all the criteria for AS, but of course, I could not put in any 'Clinical Observations', as I am not qualified to make clinical observations.

I have written to a specialist at a research centre directly to see what they had to say about my supposition though I have not heard anything back yet.


_________________
"The power of accurate observation is called cynicism by those who have not got it." - George Bernard Shaw (Taken from someone on comp.programming)


wobbegong
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05 Jul 2006, 9:21 pm

You might be an aspie if (YMBAAI) list

http://www.geocities.com/autistry/YMBAAI.html

I don't know where the wrong planet list is.



itfits
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06 Jul 2006, 12:14 am

For personal reasons I most likly will never seek a professional Dx. this however has nothing to do with who I am. I am not worried about a lable I fit in here at wrong planet aspie or no. I understand that some feel that you MUST have a Dx. to know if you are Asperger's positive.
The last time I was in a phycologist office he told me that I was intellegent enought to influence the tests and observation he was making. I am not hypersmart but he was right I could deduce that reason for a specific question an could have anwsered anyway I saw fit . I anwsered honestly because I truly want to know why I am the way I am. I dont have an agenda I will problly never tell anyone that I belong at wrongplanet.net I will probably never mention to anyone that I have Asperger's or I am autistic.
Would a professional opinion on wheather I have Asperger's change me. No I don't think so I would still be obcessed I would still post and read your posts. I would still join in in the chatroom and I still would quite simply be me, as always.



Aspie_Chav
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06 Jul 2006, 7:10 am

I have not been diagnosed officially but I don’t imagine myself as an NT, I am not even borderline, even though some people, who don’t know about AS, think I am because they think AS is more like a general learning difficulties.



JulieArticuno
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06 Jul 2006, 7:25 am

When I went to my doctor to ask to be referred to testing, I was dreading him labelling me a self-diagnosing hypoochondriac, (which would be wrong for a start becauseI have NEVER self-diagnosed till now) and had written up stuff to counter that.

As it happened, I didn't need it. He was happy to refer me (just waiting for the referral now.) I put this down to two things.

1) He is way over his head, knows it, and is happy to hand me over to someone who knows what he may or may not be dealing with/looking for.

2) He has some specialist knowledge on the subject (or is very well-read) and thinks that the info I sent him and my reasonings are sound, so thinks it's worth a shot.

3) As 2), buthaving seen me do things in his office (wave my hands, jiggle my leg ETC) and thinks it's woth investigating (unlikely as I've seen him like 3 times in as many years)


4) There's something in my notes that I don't know aboit that supports my own suspicions.Whichever it might be, I want to know. I'm convinced in myself, but I'm a knowledge-hound. I'd like to know by being officially diagnosed.

Julie



SkippyP
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06 Jul 2006, 11:24 am

Litguy wrote:
...don't concern yourself with the doctor. You know yourself much better than he or she does.


This has kind of been my reasoning lately, especially after reading about people experiencing so much difficulty getting a diagnosis. I mean, who really knows me better than me?