I just wanted to share my recent amazing discovery....

Page 1 of 1 [ 16 posts ] 

alexi
Deinonychus
Deinonychus

User avatar

Joined: 25 Dec 2010
Age: 42
Gender: Female
Posts: 374
Location: Australia

04 Jun 2011, 7:07 pm

I just wrote this in the thread "Academic difficulties with autism" but I wanted to share it with you all because I can't express what an amazing and positive experience this discovery has been for me. And maybe someone else will find their answer too.

I only discovered recently that I have Irlen Syndrome (or Scotopic Sensitivity Syndrome) which is very common with ASD. It is characterized mainly by difficulty reading, light/contrast sensitivity and poor depth/distance perception.

I've always LOVED learning but hated reading because it was just SO tiring trying to keep the words from sliding off the pages. I knew I didn't have dyslexia (my spelling is awesome and I wasn't missing words/letters) but entire sections of text would disappear when I looked directly at it, or move up and down making it impossible to follow a line.

I have always been a very slow reader and so had trouble keeping up with school text deadlines and reading aloud in classes. The cognitive exhaustion from reading more than a couple of pages at a time was immense.

Last month I got a pink transparency to put over my pages as I read books, and for the first time in my life I am reading books by choice. Its amazing and exciting and now I can't stop :lol: Hello new special interest :lol:



Verdandi
Veteran
Veteran

User avatar

Joined: 7 Dec 2010
Age: 54
Gender: Female
Posts: 12,275
Location: University of California Sunnydale (fictional location - Real location Olympia, WA)

04 Jun 2011, 7:10 pm

That's excellent! It sounds like a dramatic improvement.



rabidmonkey4262
Veteran
Veteran

User avatar

Joined: 8 Mar 2011
Gender: Female
Posts: 864

04 Jun 2011, 8:00 pm

Good for you! Now you can experience the immense pleasure in hoarding information. Yikes, an aspie who can't research. That seems like it could've been rough.


_________________
Here's to the crazy ones. The misfits. The rebels. The troublemakers. The round pegs in the square holes. The ones who see things differently.


pensieve
Veteran
Veteran

User avatar

Joined: 18 Nov 2008
Age: 38
Gender: Female
Posts: 8,204
Location: Sydney, Australia

04 Jun 2011, 8:09 pm

I was like that without my glasses and meds. I probably need some tinted lenses but then again...Bono. Do not want to look like Bono.


_________________
My band photography blog - http://lostthroughthelens.wordpress.com/
My personal blog - http://helptheywantmetosocialise.wordpress.com/


Jory
Veteran
Veteran

Joined: 2 Jun 2011
Gender: Male
Posts: 17,520
Location: Tornado Alley

04 Jun 2011, 8:18 pm

To quote myself from another topic ("Do you ever find it hard to concentrate on reading?" in the "Art, Writing, and Music" forum):

Quote:
If I'm interested in something, I can focus on it. If I'm not interested in it, it may as well be written in Chinese. I also can't focus on the same thing for too long even if it's something of interest. I have to get up and do something else and come back. I also have problems with listlessness, where I'll lose interest in everything, even things I'm normally interested in and can't focus at all. And then there's my problem with distracting sounds and racing thoughts. I'm surprised I manage to read more than a page a day, and sometimes I only manage that much.


My problems with concentration are nothing new, but some of your descriptions exactly mirror what happens with me. Specifically:

Quote:
it was just SO tiring trying to keep the words from sliding off the pages


Quote:
entire sections of text would disappear when I looked directly at it, or move up and down making it impossible to follow a line.


I somehow doubt that a transparency would help, but I'd be willing to try it.



androbot2084
Veteran
Veteran

User avatar

Joined: 23 Mar 2011
Age: 62
Gender: Male
Posts: 3,447

04 Jun 2011, 8:29 pm

I used to have a lot of trouble reading text on those old flickering analog televisions but now with the new flat panel TV's and computer moniters reading text is a lot easier for me.



katzefrau
Veteran
Veteran

User avatar

Joined: 11 Apr 2010
Gender: Female
Posts: 1,835
Location: emerald city

04 Jun 2011, 8:39 pm

i must, must have this. everything with high color contrast that i look at moves .. and sometimes it's nearly impossible to read. is there any way to get assessed inexpensively?

i have tried to read with variously colored clear file folders (cheap at office stores) over the page but the glare interferes so much they aren't a help.


_________________
Now a penguin may look very strange in a living room, but a living room looks very strange to a penguin.


Bloodheart
Veteran
Veteran

User avatar

Joined: 17 Jan 2011
Age: 40
Gender: Female
Posts: 2,194
Location: Newcastle, England.

04 Jun 2011, 8:45 pm

I've heard this sort of thing used with dyslexia, cool something that simple can help.

I do wonder if I have something 'wrong' with me in terms of issues like dyslexia, I'm no where near as bad as others, but certainly their are issues with missing out letters when writing or getting letters mixed-up when reading words, poor balance and depth perception, and I have some issues with reading...I do wonder if something like this could be helpful for me.


_________________
Bloodheart

Good-looking girls break hearts, and goodhearted girls mend them.


blackcat
Veteran
Veteran

User avatar

Joined: 16 Nov 2006
Age: 33
Gender: Female
Posts: 1,142
Location: 10 miles south of sanity.

04 Jun 2011, 9:07 pm

wordsten d t o l o o k likethiswhen I read. I also see read spaces in between.

But it has always looked like that and I am very good at dealing with it. It would be nice to be able to read without having to deal with that and the nausea (sometimes the shift from normal text to that train wreck above makes me feel sick). I have wanted to see if tinted lenses would help. Even if it ends up doing nothing, at least I will have tried something, right? I have noticed that reading in dim light or turning the brightness and contrast down on my laptop help.


_________________
I think I know. I don't think I know. I don't think I think I know. I don't think I think.


vermontsavant
Veteran
Veteran

Joined: 7 Dec 2010
Gender: Male
Posts: 6,110
Location: Left WP forever

04 Jun 2011, 9:41 pm

i have heard of irline filters but have wondered where to get them


_________________
Forever gone
Sorry I ever joined


thewrll
Veteran
Veteran

User avatar

Joined: 10 May 2009
Age: 37
Gender: Male
Posts: 10,619

04 Jun 2011, 9:55 pm

I wonder what they are. Anyone have a link? And is it just for books or also computers?



vermontsavant
Veteran
Veteran

Joined: 7 Dec 2010
Gender: Male
Posts: 6,110
Location: Left WP forever

04 Jun 2011, 10:13 pm

thewrll wrote:
I wonder what they are. Anyone have a link? And is it just for books or also computers?
irlen filters are glasses that can be worn anytime one experiences sensory overload.a lot of autistic people wear them


_________________
Forever gone
Sorry I ever joined


AngelKnight
Veteran
Veteran

User avatar

Joined: 3 May 2011
Age: 47
Gender: Male
Posts: 749
Location: This is not my home; I'm just passing through

05 Jun 2011, 1:28 am

Very nice! Enjoy your steps into a world where written words aren't trying to punish you.



katzefrau
Veteran
Veteran

User avatar

Joined: 11 Apr 2010
Gender: Female
Posts: 1,835
Location: emerald city

05 Jun 2011, 1:54 am

thewrll wrote:
I wonder what they are. Anyone have a link? And is it just for books or also computers?


http://irlen.com/index.php

if you find some web pages unreadable, this might help:

https://www.readability.com/

i just discovered on the Irlen site they sell colored overlays for four bucks per. you just have to figure out what color is best which might be difficult without an assessment.


_________________
Now a penguin may look very strange in a living room, but a living room looks very strange to a penguin.


Wallourdes
Veteran
Veteran

User avatar

Joined: 24 Jul 2010
Age: 36
Gender: Male
Posts: 4,589
Location: Netherlands

05 Jun 2011, 8:53 am

Damn! This is me 8O!

Always had photosensitivity, but never linked it to my troubles reading!


_________________
"It all start with Hoborg, a being who had to create, because... he had to. He make the world full of beauty and wonder. This world, the Neverhood, a world where he could live forever and ever more!"


-froggo-
Veteran
Veteran

User avatar

Joined: 25 Oct 2010
Age: 28
Gender: Female
Posts: 628

05 Jun 2011, 9:38 am

I can't read words on glossed pages, especially if the light is on them. Or, normal pages if it's light. My classmates don't seem to have the same problem.