Inside Out: A Documentary About My Life With Asperger's

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pensieve
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24 Nov 2011, 5:17 am

Tambourine-Man wrote:
Surfman wrote:
I dont like the way you always sell for big pharma, and promote commercial interests over people, so I stopped watching it after 90 seconds

Its always like an infomercial advertisement from autism speaks.....


I've been fighting big pharma (Shire in particular) every day for the last month. Check out this thread on the ADHD forum...

http://www.addforums.com/forums/showthread.php?t=112488

I HATE big pharma right now. However, that doesn't change the fact that medication has saved my life. If you don't need it, by all means don't take it. With all the shortages going around the last thing I need is someone buying up my meds who doesn't need them.


Don't worry, he's critical of people taking ADHD medication. Would rather we all smoke cannabis.

By the way when you talk about your interests you remind me a bit of Adam (from the movie Adam). I hope you don't mind me saying that.

I love it how you just put yourself out there and contact all these people and actually get to interview them. I met you before you blogged for Autism Speaks, wrote articles for WP, got your videos on sites, and even before you got your articles posted to (and then deleted) on AFF. You know how to sell yourself and I wish I knew how to do that.

You need to learn to not let the criticism get to you. It's been happening a lot and it's just going to happen more. Keep doing what you're doing and stay strong.


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24 Nov 2011, 10:56 am

This video is hilarious however very enjoyable to watch.



Tambourine-Man
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25 Nov 2011, 2:26 pm

Az29 wrote:
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I had to stop watching after a minute, because the vocal was out of sync with the video and it was messing with my head. I'm pretty sure it's a problem my computer and not the production of the vid, though.


I had problems with the audio too, it sounds very tinny (is that even a word?) to me and made me feel a little ill but I persevered.

Also Tambourine man one thing I found odd was the conversation which was supposed to be with a stranger, is that how you would interact with a real stranger? or were you able to talk so easily because of your already close relationship? I find I talk like that with family, my husband often points out that I'm changing subject too rapidly or talking too fast or not talking in context (usually because my brain is either 3 steps ahead or behind the conversation). Wheras with actual strangers I would be very awkward/nervous and would be very much one word answers / get out of there as fast as possible.


Unfortunately, I'm pretty much that outgoing with everyone I meet. I'm a loud Aspie boy. Very ADHD! I'm outgoing to a fault. I know that many Aspies are shy. I'm not... at all! I'm really, really obnoxious. Some people find my personality refreshing, others find it annoying. Oh well...


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Tambourine-Man
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25 Nov 2011, 2:56 pm

pensieve wrote:
Tambourine-Man wrote:
Surfman wrote:
I dont like the way you always sell for big pharma, and promote commercial interests over people, so I stopped watching it after 90 seconds

Its always like an infomercial advertisement from autism speaks.....


I've been fighting big pharma (Shire in particular) every day for the last month. Check out this thread on the ADHD forum...

http://www.addforums.com/forums/showthread.php?t=112488

I HATE big pharma right now. However, that doesn't change the fact that medication has saved my life. If you don't need it, by all means don't take it. With all the shortages going around the last thing I need is someone buying up my meds who doesn't need them.


Don't worry, he's critical of people taking ADHD medication. Would rather we all smoke cannabis.

By the way when you talk about your interests you remind me a bit of Adam (from the movie Adam). I hope you don't mind me saying that.

I love it how you just put yourself out there and contact all these people and actually get to interview them. I met you before you blogged for Autism Speaks, wrote articles for WP, got your videos on sites, and even before you got your articles posted to (and then deleted) on AFF. You know how to sell yourself and I wish I knew how to do that.

You need to learn to not let the criticism get to you. It's been happening a lot and it's just going to happen more. Keep doing what you're doing and stay strong.


Cannabis makes me lazy and melancholy. Also, it is illegal.

Your writing is SO good, and you should not hesitate to shamelessly promote it like crazy.


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25 Nov 2011, 4:20 pm

I'd like to congratulate you on the excellent choice of the I'm No Angel window card - a superb choice for spending $1000 of your parent's money on at such a young age. They should be proud. I have been obsessed with Cary Grant since I was 10 years old.


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25 Nov 2011, 4:50 pm

Not only are you good looking but you are quite charming as well. Maybe someone like you will decrease the negative stigma, but I think if you have aspergers and you stim alot, awkward amongst most of the other stereotypical traits, people aren't going to be okay with that still.

I am one of those aspies that you can tell by looking at me that I don't belong. Will there ever be someone that represents that?

What about people who stim alot really do incorporate interests in everyday speech and are treated badly and there is obvious prejudism over it?

Someone who is as normal as you appear will not be judged as harshly. When people watch this video they are going to assume all aspies just appear normal and the same prejudism will remain for those of us who obviously are not.

Don't get me wrong. I can appear normal but not for long.

I actually hate writing like this as I know you and the site owner are friends but when I watch you and Kirsten, I don't see people who are representing those who actually have the stereotypical traits that often lead to lack of job, lack of friends, people avoiding you because of your akwardness and the list goes on. I see people making it seem like aspies are photogenic camera friendly extroverted people.

What that is doing actually is on one hand maybe charming NT's is a good idea but ONLY if you are an aspie who fits in and can put on an act. For the rest of us who do hand stims, are awkward, have hard times with getting jobs, can only handle people at small amounts at a time, have difficulty processing others emotions...we're still left out of the equation.

It would be nice to actually see someone who has more challenges as an adult express their point of view.

It's just the same "Camera friendly, photogenic" protocol that you'd expect from Hollywood.

If the motive is to decrease NT's prejudism, it's applaudable for the intent. However realistically, I understand that will not apply for aspies who most NT's still frown on and label freaks.



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25 Nov 2011, 4:57 pm

Hang on a second, this was a great video.....i totally associate with this dude. He is funny and his ADHD is prob more of an issue than his Aspergers, i am more AS than ADD but regardless of how much we have it, how we look or how we interact, we all have a similar problem with variables so let's stick together.

The way his sister is with him in the video is kinda refreshing for me. She is like well he is a bit weird but i love him for being him and different. She is open minded and tolerant. Yes she finds it tough but she is a kind soul and loves him despite his flaws, as i am sure he does for her too.

I wish i had a sister like this. Dude, you are very lucky. I have a brother who doesnt accept that he has it.

The video is entertaining, am checking out all these old films you love. I think Bob Dylan also has Aspergers, my dad (also has AS but doesnt admit it) told me BD doesnt even face the audience. I think i am going to start listening to more Bob Dylan.

I wish i knew people like you and your sister. I live in the UK and feelings and attitudes are way behind you free thinking americans although i think we come accross as smarter. Your society is WAY more liberal, although i think my generation will change that in 10 years.

Great video, great people. Aspies unite!

Your limitations are self inflicted. (within reason)



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25 Nov 2011, 5:11 pm

When I first saw Autism Talk TV, I thought, "These people can't be autistic, they're so normal!" It is funny how the camera brings out the performer in you.


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Last edited by Tambourine-Man on 25 Nov 2011, 5:41 pm, edited 4 times in total.

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25 Nov 2011, 5:13 pm

rickc77 wrote:
Hang on a second, this was a great video.....i totally associate with this dude. He is funny and his ADHD is prob more of an issue than his Aspergers, i am more AS than ADD but regardless of how much we have it, how we look or how we interact, we all have a similar problem with variables so let's stick together.

The way his sister is with him in the video is kinda refreshing for me. She is like well he is a bit weird but i love him for being him and different. She is open minded and tolerant. Yes she finds it tough but she is a kind soul and loves him despite his flaws, as i am sure he does for her too.

I wish i had a sister like this. Dude, you are very lucky. I have a brother who doesnt accept that he has it.

The video is entertaining, am checking out all these old films you love. I think Bob Dylan also has Aspergers, my dad (also has AS but doesnt admit it) told me BD doesnt even face the audience. I think i am going to start listening to more Bob Dylan.

I wish i knew people like you and your sister. I live in the UK and feelings and attitudes are way behind you free thinking americans although i think we come accross as smarter. Your society is WAY more liberal, although i think my generation will change that in 10 years.

Great video, great people. Aspies unite!

Your limitations are self inflicted. (within reason)


My sister is, indeed, amazing! I love her to death.


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25 Nov 2011, 5:39 pm

TheygoMew wrote:
Not only are you good looking but you are quite charming as well. Maybe someone like you will decrease the negative stigma, but I think if you have aspergers and you stim alot, awkward amongst most of the other stereotypical traits, people aren't going to be okay with that still.

I am one of those aspies that you can tell by looking at me that I don't belong. Will there ever be someone that represents that?

What about people who stim alot really do incorporate interests in everyday speech and are treated badly and there is obvious prejudism over it?

Someone who is as normal as you appear will not be judged as harshly. When people watch this video they are going to assume all aspies just appear normal and the same prejudism will remain for those of us who obviously are not.

Don't get me wrong. I can appear normal but not for long.

I actually hate writing like this as I know you and the site owner are friends but when I watch you and Kirsten, I don't see people who are representing those who actually have the stereotypical traits that often lead to lack of job, lack of friends, people avoiding you because of your akwardness and the list goes on. I see people making it seem like aspies are photogenic camera friendly extroverted people.

What that is doing actually is on one hand maybe charming NT's is a good idea but ONLY if you are an aspie who fits in and can put on an act. For the rest of us who do hand stims, are awkward, have hard times with getting jobs, can only handle people at small amounts at a time, have difficulty processing others emotions...we're still left out of the equation.

It would be nice to actually see someone who has more challenges as an adult express their point of view.

It's just the same "Camera friendly, photogenic" protocol that you'd expect from Hollywood.

If the motive is to decrease NT's prejudism, it's applaudable for the intent. However realistically, I understand that will not apply for aspies who most NT's still frown on and label freaks.


I'm not nearly as "normal" as I appear to be in this video. I've learned to mask my AS as best as I can, because I went without a diagnosis for many years. I had to try and get by as best as I could.

I didn't want to overemphasize my deficits in this video, because I want to be as positive as possible, but I have my share of issues. I can't drive and have developed mild agoraphobia.

I've been criticized for discussing my deficits, as if admitting that I have them is anti-Neurodiversity. The autistic community can be very hard to please, because we are such a diverse lot.

If you think I'm pretty normal, you should see me in meltdown mode - I can't speak, I scream and cry, stim like mad, and bang my head into the wall. It is NOT pretty.

Also, I pretty much stim 24/7 but my stims are not obnoxious. I mostly just do weird things with my fingers. When I get really nervous I flap my hands pretty bad.

I've learned how to "perform." I am definitely performing on video. I can't help it... I'm on video! Ha ha.

Don't underestimate my abilities OR my challenges - I have my fair share of debilitating Aspie issues. Nevertheless, I love who I am!


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25 Nov 2011, 5:56 pm

So do you find it when people are video taping you, they are constantly saying "CUT!" because you start stimming or doing something that isn't camera friendly in their opinion?

I can see how being in front of a camera and being able to edit it or take multiple pauses would help.



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25 Nov 2011, 6:16 pm

Just watched the whole thing. It was really cool and fun to watch.

I would like to make a few remarks as to what other people here said.

I absolutely agree with what was said about less expressive aspies not being portrayed in the media as much. I present very awkward, at least from what I've seen of myself on camera. I was filmed in a documentary before, but that wasn't a problem there because it was a documentary about people with various differences, either cultural or disability. I was also filmed in an ASD-specific documentary, where awkwardness was expected. Because I know that I do present more stereotypically, I try to put myself out there as much as possible. However, the irony here is that you have to have strong social & networking abilities in order to get yourself further in this domain. It is in people's nature to be less accepting of those who are more different and even though I try to advocate and promote difference, I find that it is very, very difficult to break through this barrier. Even the most accepting people I know end up being influenced by their emotional responses to people very strongly to the point where their values & logic fly out the window at some point and they just break down. In other words, once one learns to interpret other people's behaviours in a certain framework (i.e. the NT cultural framework), it becomes very difficult and emotionally taxing for people to try to shift that framework consciously because their emotional responses are not conscious.

Ideally, every person on the spectrum should be only regarded as "one person on the spectrum". People shouldn't generalize. It's not about the label as much as it is about specific abilities.


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25 Nov 2011, 7:34 pm

MathGirl wrote:
Just watched the whole thing. It was really cool and fun to watch.

I would like to make a few remarks as to what other people here said.

I absolutely agree with what was said about less expressive aspies not being portrayed in the media as much. I present very awkward, at least from what I've seen of myself on camera. I was filmed in a documentary before, but that wasn't a problem there because it was a documentary about people with various differences, either cultural or disability. I was also filmed in an ASD-specific documentary, where awkwardness was expected. Because I know that I do present more stereotypically, I try to put myself out there as much as possible. However, the irony here is that you have to have strong social & networking abilities in order to get yourself further in this domain. It is in people's nature to be less accepting of those who are more different and even though I try to advocate and promote difference, I find that it is very, very difficult to break through this barrier. Even the most accepting people I know end up being influenced by their emotional responses to people very strongly to the point where their values & logic fly out the window at some point and they just break down. In other words, once one learns to interpret other people's behaviours in a certain framework (i.e. the NT cultural framework), it becomes very difficult and emotionally taxing for people to try to shift that framework consciously because their emotional responses are not conscious.

Ideally, every person on the spectrum should be only regarded as "one person on the spectrum". People shouldn't generalize. It's not about the label as much as it is about specific abilities.


This my lack of theory of mind at work. What appears to be a conclusion is not really a conclusion as I tend to examine further to debunk even my own first reaction. After viewing more of his writings and even watching the video again after he explained his own subtle quirks, I started to see it myself. After reading his writings I understood exactly where he was coming from.

I do not stick to an initial response, instead I investigate and delve further. Through examination and further reading I conclude that my initial observations were off.



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25 Nov 2011, 10:01 pm

TheygoMew wrote:
So do you find it when people are video taping you, they are constantly saying "CUT!" because you start stimming or doing something that isn't camera friendly in their opinion?

I can see how being in front of a camera and being able to edit it or take multiple pauses would help.


My sister and I made that movie together in a couple hours a few months ago. It was just the two of us making it. I have an acting background. I don't get the slightest bit nervous onstage. In real life I am very nervous most of the time.

When I'm performing I'm very in my element. I know what I'm supposed to say. I have lines. In real life I never know what to say, so I just borrow lines from movies. Ha ha.

I don't stim too bad. Sometimes my fingers hurt though because they never stop doing these weird things. It is a subtle stim. If I get nervous though, my stims become much more obvious.


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26 Nov 2011, 1:08 am

That explains alot.

Anything can also become routine. Having an actor background when you've had long term experience becomes like a routine you've grown used to where as someone who doesn't have a background that hasn't cultivated into an interest would more than likely get really nervous because it's not apart of the person's background or routine.

It becomes like second nature?

Did you have people coaching you? If so that would probably be of great help.

You and your sister did a good job.



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26 Nov 2011, 1:56 am

TheygoMew wrote:
That explains alot.

Anything can also become routine. Having an actor background when you've had long term experience becomes like a routine you've grown used to where as someone who doesn't have a background that hasn't cultivated into an interest would more than likely get really nervous because it's not apart of the person's background or routine.

It becomes like second nature?

Did you have people coaching you? If so that would probably be of great help.

You and your sister did a good job.


We just kind of made that video on a whim, just the two of us. The whole Bob Dylan cameo was a creative way of disguising the fact that we didn't have a cameraman. It was just the two of us taking turns filming each other. Ha ha. We just made it up as we went along.

Learning to act helped me a lot with my social skills. I'm not shy when I'm discussing things I'm interested in. I always say the wrong thing during NT conversations.


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