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LogoLuver1
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24 Nov 2011, 10:31 am

"You're not autistic." "You can talk, read and write, so you can't be autistic."
I've had people give me hate mail on Youtube saying that I'm not autistic. And if that wasn't bad enough, these are 35-year olds. 35 YEAR OLDS!! They are ranting and whining about "You don't know what it's like to have autism", like they are 19-year old sexually dysfunctional males living in their parents' basement watching porn that can't get laid. What I don't get is they say, "Don't pass judgment on me," when they point fingers at us on who and who's not autistic. Freaking hypocrites. These are the same parents that admit wanting their children better off dead. I've warned them that an autistic person might have hung themselves over that comment and they could go to jail for "bullycide." These are middle-aged parents that nothing better to do than bully people on line like their middle-schoolers. I'm tired of being called a fake. It hurts me more than a knife. I'm freaking tired of it! :evil: :wall:



Gedrene
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24 Nov 2011, 10:36 am

LogoLuver1 wrote:
These are middle-aged parents that nothing better to do than bully people on line like their middle-schoolers. I'm tired of being called a fake. It hurts me more than a knife. I'm freaking tired of it!
How revealing. That explains a recent clash I had to deal with.

LogoLuver1 wrote:
You're not autistic." "You can talk, read and write, so you can't be autistic."
Yes the fact remains that for many of us the biggest barrier to advancement is the collective social barrier, not the individual neurological one. Wherever I go I have to fight my corner fiercely against parents or former parents of autistics who do either one of two things, accuse me of not being autistic or say that my unwillingness to concede to their confirmation bias is somehow an expression of autism.
Not earlier I was dealing with someone who was associating autism with bad handwriting because his children had it.



Last edited by Gedrene on 24 Nov 2011, 10:44 am, edited 1 time in total.

AJ989
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24 Nov 2011, 10:44 am

yeah a lot of people certainly just dont get how varied the autism spectrum is, it's not something that can just be shoehorned into a tiny little box,just because someone doesnt have the extreme problem's does not mean they dont still have problems.



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24 Nov 2011, 11:26 am

story of my life,ha ha


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Ilka
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24 Nov 2011, 11:58 am

I stopped posting comments on youtube because people there is too hurtful. If you dare think different than they do they will insult you and call you names. Its like it is fill eith angry people. Please just avoid yourself the pain, or just allow comments of people you know. Dont allow that bunch of ignorant people hurt ou. You know who you are.



aspie48
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24 Nov 2011, 1:27 pm

a vast majority of NTs are just like that. they are trying to tear the autism community apart. don't let it happen. we must support our lower functioning bretheren even when people try to turn us against them.



Gedrene
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24 Nov 2011, 1:29 pm

aspie48 wrote:
a vast majority of NTs are just like that. they are trying to tear the autism community apart. don't let it happen. we must support our lower functioning bretheren even when people try to turn us against them.

It isn't the majority aspie48. :/ Most don't care. Deal with peopl as they come, not as you suppose they are.



aspie48
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24 Nov 2011, 1:42 pm

Gedrene wrote:
aspie48 wrote:
a vast majority of NTs are just like that. they are trying to tear the autism community apart. don't let it happen. we must support our lower functioning bretheren even when people try to turn us against them.

It isn't the majority aspie48. :/ Most don't care. Deal with peopl as they come, not as you suppose they are.
wish i could but thats certainly not how people see me. its like that post about uncanny valley effect, people see me as a disgusting half human animal.



Gedrene
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24 Nov 2011, 1:49 pm

aspie48 wrote:
wish i could but thats certainly not how people see me. its like that post about uncanny valley effect, people see me as a disgusting half human animal.


Well that's honest at least, and I can't argue with the concept given some of my own experiences.



DW_a_mom
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24 Nov 2011, 1:51 pm

My message to those people is that high functioning AS children like mine DO share more with their children than they do with NT children, in how they think and experience the world, even if it isn't obvious. If they listen to children like mine - or adults like you - they will gain INVALUABLE insights into what their child needs.

I also tell them that we can't begin to understand what they are going through and what their worries are, and we aren't trying to. We are just saying, "listen to us, those with Aspergers can be a bridge for your family. USE that resource." "I won't talk to you about some of your choices I may not be thrilled about, because without having walked in your exact shoes I cannot understand what drove you to them, but I will talk to you about how I think your child might want to be parented, because I honestly think you need to know."

Practice a response along those lines, and see if you can get these people talking to you.

It seems so clear to me, as a parent, reading this forum, what traits and needs are universal across all levels of functioning. If the opposing groups can just learn to hear each other, so much good could result.


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Hyram_Inesh
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24 Nov 2011, 1:54 pm

that f****d up

lets you know just how little is known to most people

people see a movie and think to themselves, "oh that must be what all people on the spectrum do"



aghogday
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24 Nov 2011, 2:14 pm

Gedrene wrote:
.
Not earlier I was dealing with someone who was associating autism with bad handwriting because his children had it.


That's not confirmation bias on the parent's part, it's backed up by scientific research.

It doesn't apply to all autistic individuals, but problems with handwriting skills, is certainly a commonly associated issue with autism, backed up by scientific research.

And there is other scientific research that provides the same results.

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2777071/

Quote:
Results:
We found that children with ASD do indeed show overall worse performance on a handwriting task than do age- and intelligence-matched controls. More specifically, children with ASD show worse quality of forming letters but do not show differences in their ability to correctly size, align, and space their letters. Within the ASD group, motor skills were significantly predictive of handwriting performance, whereas age, gender, IQ, and visuospatial abilities were not.

Conclusions:
We addressed how different elements of handwriting contribute to impairments observed in children with autism. Our results suggest that training targeting letter formation, in combination with general training of fine motor control, may be the best direction for improving handwriting performance in children with autism.



Last edited by aghogday on 24 Nov 2011, 3:43 pm, edited 1 time in total.

Gedrene
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24 Nov 2011, 2:24 pm

aghogday wrote:
Gedrene wrote:
.
Not earlier I was dealing with someone who was associating autism with bad handwriting because his children had it.

The very premise of confirmation bias is only seeing things in results that confirm your suspicions.



ictus75
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24 Nov 2011, 2:41 pm

The thing is, HFAs learn how to hide their shortcomings and mimic NT behavior. But NTs don't see how HFAs think & feel inside, and how difficult it is to try and exist in the NT world.


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LogoLuver1
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24 Nov 2011, 3:32 pm

@aspie48,
Are you generalizing NT's into a box again? Stop trying to think that the whole world is after you. I know that some NT's would give anything to have me dead, but I don't point out to all of them. Please, don't start fights on my threads. If you can't say anything nice in a thread, keep them to yourself.


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aghogday
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24 Nov 2011, 3:32 pm

Gedrene wrote:
aghogday wrote:
Gedrene wrote:
.
Not earlier I was dealing with someone who was associating autism with bad handwriting because his children had it.

The very premise of confirmation bias is only seeing things in results that confirm your suspicions.


In peer reviewed research; if confirmation bias is found, the research is not accepted. The methodology in this research is sound and free of confirmation bias.

The association of poor handwriting and autism, is a commonly understood issue, that most people that have done any research on autism have heard about. It doesn't take the fact that a parent's childrens have autism and associated poor handwriting, to provide evidence for an issue, that is already backed up by scientific research, and free of confirmation bias.