I think my autism diagnoses has been removed

Page 1 of 1 [ 12 posts ] 

Phonic
Veteran
Veteran

User avatar

Joined: 3 Apr 2011
Age: 31
Gender: Male
Posts: 1,329
Location: The graveyard of discarded toy soldiers.

01 Dec 2011, 10:12 pm

Last tuesday - I'm still hazy and I haven't slept well this week so bare with me.

Last week on Wednesday I got a two hour evaluation for the presence psychosis as I was reporting some rather strange and long term issues while simaltaniously contesting that my ASD diagnoses was in fact incorrect (I made a thread about why, I can explain it again If you so request, no hassle). It was a facinating delve into my psyche - I intend to make a thread about the subject it brought up in moi.
But I disgress, I received my results last tuesday and was even allowed to have a look through the results sheet, those with little knowledge of psychosis, schizophrenia and co might want to skip this bit, I'll sum up after.

***
I received mostly 4/6's (moderately severe but not psychotic) on the positive symptom scale, including a 4 in delusions, 4 in hallucinations, 4 in speech and 2 in grandiosity, I forget the rest.
I received mostly 6/6's (extreme, I believe It should have been 5) for negative symptoms including avolition, anhedonia, asociality and 2/6 for flat affect, I forget the rest.
Under general symptoms I received mostly 5/6's including high scores for sleep troubles, anxiety and some stuff I forget.
A Global Assesment of Functioning (GAF) of either 28 or 38.
***

To sum up, I am not schizophrenic - yet. I have have been diagnosed with a technical obscure dx called Attenuated psychotic symptoms syndrome - a far simpler term would have been prodromal psychosis, ergo, the early stages of psychosis. There's no telling where I'm going to go from here, only that it seems like none of the pdocs think I've got the autism anymore nor do I and that we're just going to have to keep our eyes on my development, but..my prognosis isn't great, the high presence of negative symptoms coupled with reletively early onset and slow insidious course suggests poorer a outcome.

It's been made fairly clear to me that i am more then welcome to continue posting here, and I do see myself in so many of you, I truly identify with the autistics average problems, for oft different reasons maybe, and to different extants, but..I like it here :)

Toodles,
Phonic.


_________________
'not only has he hacked his intellect away from his feelings, but he has smashed his feelings and his capacity for judgment into smithereens'.


Verdandi
Veteran
Veteran

User avatar

Joined: 7 Dec 2010
Age: 54
Gender: Female
Posts: 12,275
Location: University of California Sunnydale (fictional location - Real location Olympia, WA)

01 Dec 2011, 10:22 pm

I realize this isn't a surprise given previous postings. I hope this information is helpful?

In addition to all that, early diagnosis and treatment also improves outcomes.



Phonic
Veteran
Veteran

User avatar

Joined: 3 Apr 2011
Age: 31
Gender: Male
Posts: 1,329
Location: The graveyard of discarded toy soldiers.

01 Dec 2011, 10:30 pm

Verdandi wrote:
I hope this information is helpful?



I am unsatisfied, having a diagnoses like this isn't what I had hoped for, it's just so..obscure, there are very few - if any - non technical pages online about it, diagnosing me with something that isn't discussed outside of highly specialised acedamia annoyed me and I'm going to discuss it next with my pdoc.

I just found its proposed DSM 5 criteria, hallelujah http://www.ncbi.nlm.nih.gov/pmc/article ... /table/T1/


_________________
'not only has he hacked his intellect away from his feelings, but he has smashed his feelings and his capacity for judgment into smithereens'.


Angel_ryan
Veteran
Veteran

User avatar

Joined: 19 Jun 2010
Age: 35
Gender: Female
Posts: 745
Location: Ontario Canada

01 Dec 2011, 10:37 pm

:( Awwe your totally welcome to stay I'd miss you. The BTS and Other just wouldn't be the same.



glasstoria
Velociraptor
Velociraptor

User avatar

Joined: 2 Jul 2011
Age: 43
Gender: Female
Posts: 468
Location: Missouri USA

01 Dec 2011, 10:38 pm

I hope it helps you in some way, and also hope you will stay. I started out this year with a very low GAF, too, but I think mine has gotten better since I have been getting help. Let us know how it goes.


_________________
Your Aspie score: 165 of 200
Your neurotypical (non-autistic) score: 48 of 200
EQ 12 SQ 70 = Extreme Systemizer


Verdandi
Veteran
Veteran

User avatar

Joined: 7 Dec 2010
Age: 54
Gender: Female
Posts: 12,275
Location: University of California Sunnydale (fictional location - Real location Olympia, WA)

01 Dec 2011, 10:49 pm

Phonic wrote:
Verdandi wrote:
I hope this information is helpful?



I am unsatisfied, having a diagnoses like this isn't what I had hoped for, it's just so..obscure, there are very few - if any - non technical pages online about it, diagnosing me with something that isn't discussed outside of highly specialised acedamia annoyed me and I'm going to discuss it next with my pdoc.

I just found its proposed DSM 5 criteria, hallelujah http://www.ncbi.nlm.nih.gov/pmc/article ... /table/T1/


Oh yeah, that is really frustrating.



Ai_Ling
Veteran
Veteran

User avatar

Joined: 15 Nov 2010
Age: 35
Gender: Female
Posts: 1,891

01 Dec 2011, 11:13 pm

Well if you did not know, autism used to be branched under shizophrenia back before the dsm 3 came out.



Guineapigged
Velociraptor
Velociraptor

User avatar

Joined: 16 Sep 2011
Age: 32
Gender: Female
Posts: 412
Location: UK

02 Dec 2011, 3:29 am

It's kind of funny, my story is like the opposite of yours. At first they thought my symptoms were early signs of a psychotic illness, so I've been with the Early Intervention Psychosis team for 2 years, but it's only recently that somebody suggested it might be an autism spectrum disorder instead.



NathanealWest
Toucan
Toucan

User avatar

Joined: 4 Jan 2011
Age: 37
Gender: Male
Posts: 258

02 Dec 2011, 5:13 am

Yeah schizoid can be pretty close to Aspergers, in my case I think the main thing that puts me in the autistic camp is stimming behavior.



Ettina
Veteran
Veteran

User avatar

Joined: 13 Jan 2011
Age: 34
Gender: Female
Posts: 3,971

02 Dec 2011, 10:34 am

The 'negative symptoms' of schizophrenia are pretty much identical to autism. I've read stuff by people with psychotic conditions and whenever they talk about how the negative symptoms affect them, it's stuff that fits me too. The self-care issues, for example, are pretty much the same.



Phonic
Veteran
Veteran

User avatar

Joined: 3 Apr 2011
Age: 31
Gender: Male
Posts: 1,329
Location: The graveyard of discarded toy soldiers.

02 Dec 2011, 11:43 pm

Guineapigged wrote:
It's kind of funny, my story is like the opposite of yours. At first they thought my symptoms were early signs of a psychotic illness, so I've been with the Early Intervention Psychosis team for 2 years, but it's only recently that somebody suggested it might be an autism spectrum disorder instead.


"Everyone is an idiot" It should be very obvious - you just have to ask when the symptoms started.

NathanealWest wrote:
Yeah schizoid can be pretty close to Aspergers, in my case I think the main thing that puts me in the autistic camp is stimming behavior.


The majority of people under the shizophrenic spectrum stim in some way, or otherwise engage in purposless repetitive behavior, otherwise known as catatonia

Ettina wrote:
The 'negative symptoms' of schizophrenia are pretty much identical to autism. I've read stuff by people with psychotic conditions and whenever they talk about how the negative symptoms affect them, it's stuff that fits me too. The self-care issues, for example, are pretty much the same.


The negative symptoms are lack of motivation, lack of socializing, poverty of speech and lack of pleasure - none of which are primary symptoms of autism.
Self care problems are not negative symptoms, they're disorganization symptoms.


_________________
'not only has he hacked his intellect away from his feelings, but he has smashed his feelings and his capacity for judgment into smithereens'.


enrico_dandolo
Veteran
Veteran

User avatar

Joined: 20 Nov 2011
Age: 33
Gender: Female
Posts: 866

03 Dec 2011, 12:14 am

Phonic wrote:
Verdandi wrote:
I hope this information is helpful?



I am unsatisfied, having a diagnoses like this isn't what I had hoped for, it's just so..obscure, there are very few - if any - non technical pages online about it, diagnosing me with something that isn't discussed outside of highly specialised acedamia annoyed me and I'm going to discuss it next with my pdoc.

I do understand. I am theoretically followed for a psychotic episode (the criteria in the link fits, though I was never given a definite diagnosis), and in the beginning, I looked for ressources about it. Basically, when looking for psychosis in general, there are only websites and fora for schizophrenia, in which people post rather scary things which did not at all ressemble my own symptoms -- possibly hallucinations, certainly delusions. Idem for the support group I was in through my clinic. It was rather unsettling.