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camelia
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20 Dec 2011, 12:33 am

Are there more recent statistics on the number of people on the spectrum having epilepsy (or vice versa)?


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JaeDee
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20 Dec 2011, 4:04 am

I'll add to this Thread in a week when i get my Tests back.
recently i had to go through the whole "head Proding" and head scanning to do with epilipsy.
i wouldn't know the statistic, but its possible many have been incorrectly Flash Diagnosed (diagnosed without full testing) with Temporal Lobe Epilesy Due to our Tics.



pensieve
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20 Dec 2011, 6:25 am

I don't know how they could mistake TLE as tics. TLE is a non-convulsive form of epilepsy but has behaviour symptoms like aggression, over excitability, strange ideas, and auditory and visual hallucinations. It's also very hard to see it on an EEG. The pre-aura is a dead give away: phantom smells, tingling, flashes of light, tiredness or moodiness. From my personal experience, that is.

I'm unsure of the statistics.


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20 Dec 2011, 7:03 am

I have not been officially diagnosed with frontal lobe epilepsy but my doc says I show symptoms such as visual hallucinations and some abnormal current in the frontal lobe on the EEG. The hippocampal volume is normal but it seems to be losing some structure apparently. So he termed it epileptogenesis which could or could not be epilepsy. I'm going back for more tests next week.



SylviaLynn
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20 Dec 2011, 1:59 pm

It could be as high as 40%. It stands to reason that if autism is neurobiological that epilepsy could be a common comorbid factor. My daughter may be accepted into a research study at the Mind Research Institute. If so, one of the tests she will have is EEG & MEG to test for epilepsy. Not all forms of epilepsy involve obvious seizures.


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camelia
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20 Dec 2011, 2:18 pm

I have (had.. controlled) tonic-clonic siezures. Dx'd 20 yrs ago. The medicine completely stops the seizures thank goodness. My latest EEGs ('07 and '11) both came back abnormal with partial slowing in left temporal lobe.


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JaeDee
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20 Dec 2011, 8:26 pm

pensieve wrote:
I don't know how they could mistake TLE as tics. TLE is a non-convulsive form of epilepsy but has behaviour symptoms like aggression, over excitability, strange ideas, and auditory and visual hallucinations. It's also very hard to see it on an EEG. The pre-aura is a dead give away: phantom smells, tingling, flashes of light, tiredness or moodiness. From my personal experience, that is.

I'm unsure of the statistics.



i just wanted say, a lot of us aspies have aggression, easily excited, strange ideas (to NT's) and a few of us can create hallucinations on will.

and TLE can include localised bodily Convulses, for example a leg. but not a whole body thing. at least that was the basis of my specialist for forwarding me towards testing. although mine is also connected to a head injury in a high sped collision so if tests are positive, it wouldn't be very accurate to the ratio of aspies with epilepsy.



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20 Dec 2011, 10:16 pm

I just remembered that many people in the past were wrongly diagnosed as epileptic when infact they were on the Autism spectrum.



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20 Dec 2011, 11:37 pm

JaeDee wrote:
pensieve wrote:
I don't know how they could mistake TLE as tics. TLE is a non-convulsive form of epilepsy but has behaviour symptoms like aggression, over excitability, strange ideas, and auditory and visual hallucinations. It's also very hard to see it on an EEG. The pre-aura is a dead give away: phantom smells, tingling, flashes of light, tiredness or moodiness. From my personal experience, that is.

I'm unsure of the statistics.



i just wanted say, a lot of us aspies have aggression, easily excited, strange ideas (to NT's) and a few of us can create hallucinations on will.

and TLE can include localised bodily Convulses, for example a leg. but not a whole body thing. at least that was the basis of my specialist for forwarding me towards testing. although mine is also connected to a head injury in a high sped collision so if tests are positive, it wouldn't be very accurate to the ratio of aspies with epilepsy.


I've only been having my TLE symptoms since last December and they are very prominent and random. It certainly isn't autism, more like drug-damage. I sometimes enjoy my hallucinations, well apart from incomprehensible voices in my head. I have convulsions too, partial and full.

Before it all happened I felt a tearing on the right side of my head. The pain was unimaginably bad.

I'll give you a blow by blow of the process...because I'm bored and can't find anything else to do.

Early in the day I'll be tired, like really fatigued and cranky. I may see sudden bright flashes and smell a smell out of nowhere, usually burning. I'll feel tingling in my head, shadows will be too hard to look at, my limbs twitch a bit. Sometimes my hallucination will be mistaking an object for a bug or spider, other times they'll be more detailed like completely take over the environment. Once it was a UFO surgery scene, starring me. I know they're not real except when I'm in bed.
Sometimes an arm or leg would jerk back and forth and will spread to full tonic clonic seizures, and I'll stay conscious. I actually woke up having one. I fight to breathe and would rather pass out so someone can find me and deal with the situation so I won't have to.
Then follows 30-60 mins of Todd's paralysis, memory loss, slurred speech or loss of speech, poor motor control and one bulging eye.

I've woken up with very poor motor control and I just know I had a seizure in my sleep.

Triggers: really sweet and rich foods, caffeine, alcohol, drugs, menstrual cycle. One time I had a simple cup of tea on an empty stomach and had a seizure. The dog that usually hates me even sat next to me.

I can have blinking seizures too which is the more mild version of my photosensitive epilepsy. Cannot be near flashing lights or even fireworks. My own natural over excitement can lead to a seizure too.

I don't tend to have strange behaviour any more. I had that when it all started. Instead of strange ideas I'd say it's more 'magical thinking.' Doctor's would probably say I have schizophrenia if they found out my...I suppose you can say religious beliefs.

I'm sorry, maybe I was wrong in thinking TLE didn't have convulsions. I know it can spread to form frontal lobe seizures. I usually call what you have myoclonus. Probably misspelled it.

Sometimes my hallucinations are a result of sensory overload, though that got worse after this damage so maybe it's connected.


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