Input Needed-A 13 yr old adolescent with Autism lost all

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purchase
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27 Feb 2012, 10:25 pm

This blog

http://biologyfiles.fieldofscience.com/ ... erone.html

investigates the possibility that either high testosterone or low estrogen is linked to autism. It's critical of a study that says high testosterone causes autism but it does not dismiss it, just says maybe the link is somewhat different from what the study presents it as.

Anyway maybe the onset of adolescence has caused the boy you work with to have levels of androgens reaching a level that intensifies his autistic symptoms to the point he's having the difficulties you describe. There must be more recent publishings on the link between testosterone etc and autism but this is what I've found at the moment. Other articles might have actual suggestions for remedies.



leopold
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27 Feb 2012, 10:27 pm

so helpful! everyone on this is soo helpful. thanks!



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27 Feb 2012, 11:27 pm

The other thing that should be looked into is the patient's pharmacology. What are the potential side effects of the meds he's on and is there a conflict? It's been years since I was an EMT - 1989 being my last year, but back then (when ambulances were horse-driven) we were taught that not all anaphylactic reactions include the textbook hives, shortness of breath, etc.

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28 Feb 2012, 1:41 am

leopold wrote:
he was on stimulants for years but had a very bad reaction this past year.
he is now on zyprexa and depakote...very zombie like and won't stop walking.


Could be a reason for the regression. No one just grows out of something like this. They need a lot of help especially if they aren't aware of what is happening to them. He may grow out of it but he may not. Would you risk it by just letting him be?

From medications I have developed seizures, hypoglycaemia, increased sensory sensitivity which made me regress. I got told it was my behaviour too then when people had to start to simplify their instructions to me they knew that it wasn't just an act.

It could also be caused by stress or trauma.


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eigerpere
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28 Feb 2012, 1:44 am

Yes, I've had very bad reactions to drugs to the point that I can't take any and would probably be the first thing to take a look at. Remove the medication if possible and see if there's an improvement. Those drugs are awful.



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28 Feb 2012, 2:35 am

leopold wrote:
so thankful to all of the posts. i will do more research on cdd and autistic catatonic .
no changes in his life.
he was on stimulants for years but had a very bad reaction this past year.
he is now on zyprexa and depakote...very zombie like and won't stop walking.

Here's a few links about "autistic catatonia":

http://bjp.rcpsych.org/content/176/4/357.full
http://www.psychiatrictimes.com/autism/ ... 68/1147681
http://www.salon.com/2007/05/18/autism_misdiagnosis/

The first two are scientific articles, and the last is by a woman whose son developed the condition.

Part of what makes the condition dangerous is that a lot of doctors don't know about it, and/or confuse it with "schizophrenic catatonia." With the latter, they can wind up increasing the neuroleptic dosage which makes the condition worse, which leads to further dosage increases, and around and around.



OJani
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28 Feb 2012, 4:05 am

Lots of information here, I just wanted to add my experience meekly. Adolescence has been almost like trauma to me. My body changed the way I didn't give my consent to, in addition it happened earlier than in most of my peers. As a result I began to stutter, articulation got worse too, I lost some organizing skills, and become even more aloof in general. This isn't comparable, I know.


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28 Feb 2012, 4:12 am

leopold wrote:
Your input is needed.
I work with a 13 yr old boy with autism. Within the past yr he lost the ability to go to the bathroom independently, write, speak clearly, read, sit still, and many other abilities.
The MRI and EEG results from pittsburgh, pa came back normal. They told us he would grow out of it by 18 yr old. WHAT!

Has anyone ever heard of a story like this or met anyone like this?

It is so sad and he resembles someone who has a brain injury. Yet they say it is all behavior.

Please all help is needed and welcome.


leopold wrote:
so thankful to all of the posts. i will do more research on cdd and autistic catatonic .
no changes in his life.
he was on stimulants for years but had a very bad reaction this past year.
he is now on zyprexa and depakote...very zombie like and won't stop walking.


It could be a combination of drug side effects and changes occurring during puberty. It needs to be determined whether there is a correlation between his change in medication and current symptoms. Also, in regards to medication make sure this child is not being overly medicated(inappropriate high dosages).

Drugs effect individuals differently. This is simply a long list of possibilities.

http://www.drugs.com/sfx/olanzapine-side-effects.html

http://www.drugs.com/sfx/divalproex-side-effects.html

Good Luck.

TheSunAlsoRises



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28 Feb 2012, 5:34 am

leopold wrote:
so thankful to all of the posts. i will do more research on cdd and autistic catatonic .
no changes in his life.
he was on stimulants for years but had a very bad reaction this past year.
he is now on zyprexa and depakote...very zombie like and won't stop walking.


Ignore CDD, I misread your post, and if it was CDD he should have lost his skills far earlier.


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28 Feb 2012, 7:18 am

First thing I'd want to do is to have a second opinion and get the most important tests done again at another (independent) place.

Mental health professionals can make mistakes, it's only human and happens all the time. This is a case I think anyone would want to be absolutely sure about that all tests are correct and nothing was overseen by accident or because of misinterpretation of results.


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28 Feb 2012, 12:37 pm

I'm not any expert, but I don't think I can see autism or any physical problem of the brain as the cause here. There is such a thing as regression with autism, and in fact I was much more social as a child and teen, than I am now. But it doesn't happen overnight that I've ever known. It sounds like there's an underlying issue somewhere. This is NOT the place for me to suggest anything so serious as what I'm about to suggest, but I think it's something that I would want to rule out if I were the father: I believe that sexual abuse can cause a reaction as you are describing the boy has been displaying. I don't mean necessarily that someone took him someplace and did something evil; it could be something purely verbal in nature coming from a "friend", or from a teacher, or anyone literally. Additionally, it could be something that was done to him many years ago, and is just now understood by him as he goes through puberty. I hope to God that's not it, but please consider it. I've seen it. At 12-15, it doesn't take much to upset the apple cart in a developing boy or girl. And I've personally known it to happen to kids of the most afflunet, better class, and most fine-parented loving and caring homes without anyone having a clue.

Charles



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28 Feb 2012, 1:01 pm

Abuse is a possibility... Simple stress, too. If a person is pushed too hard, pushed to try to become more and more independent, maintain more and more skills simultaneously, do more and more on their own, look more and more normal--and they can't sustain those things--then eventually, they can just burn out. It seems to be sort of a self-preservation instinct; the brain drops all of those precariously held skills, goes back to the basics, just to survive. Sometimes with that intensive ABA stuff, that's what happens, when you push too hard. For me, it was less severe, but I did lose the ability to live on my own, and had to be hospitalized briefly. Since then, with several years of recovery, I am more independent than before--but only because I gave myself permission to do things the way I needed to do them, to stop pretending to be normal, to get the help I needed from other people.

It should help, whatever the cause, to remove sensory overload, make life simpler and more predictable for the kid--maybe take him out of school and teach him at home, in a more predictable environment with less switching around and less chaos.

At 13 years old, developmental demands increase sharply. You are supposed to be able to take care of all your own self-care, to talk about your own thoughts in an abstract way, to connect with your peer group. Physically, your body grows quickly, often leaving you sore and tired. Your energy demands increase. School is getting more serious, with much less play and much more abstract things--algebra instead of math, literature instead of reading, in-depth science and history. Rote memory can no longer get you the grades you need; you have to think more in-depth. Your peers are becoming ever more cliquish, but are still too immature to relate to those they don't understand very well, so that bullying peaks at this age.

The environmental stresses at age 13 are huge. If you are going to lose skills or hit a developmental plateau, it's most common around age three or four (the end of toddlerhood), then around six and seven (school age), then around adolescence, and finally at adulthood.

I don't know what would cause this. Meds are a possibility; so is all that new stress. So is epilepsy or some other organic brain issue. So is a psychological disorder, or abuse. Some kids just hold on to their skills so precariously that when they're stressed they have to drop some just to survive. Whatever the cause--and yeah, it has to be investigated--I can only say that the best approach for now would be to just give him a safe, predictable environment, and people he can trust, and to make sure that whatever he is saying, whenever he can say it, people are listening to him.

Another thing: Has he lost language, or just speech? If it's just speech, he might be able to reestablish communication by typing, sign language, PECS, or similar. Communication is high-priority, because it is the one thing nobody else can do for you. Insisting on speech when it's too difficult at the moment can shut off communication altogether--has he got a speech therapist that can establish some alternative methods for him?


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28 Feb 2012, 1:46 pm

When you're unable to communicate and something bad happens, you likewise can't tell anyone and this is also extremely traumatizing to have to experience for long periods of time. This happened to me and went on for too many years. I hope someone can ask him as many questions as possible to get to what's going on with him if the problems at all pertain to psychological issues concerning trauma and abuse.