I hate being the way I am

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tomboy4good
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06 Apr 2012, 7:41 pm

I am 50 & can't even get a diagnosis other than knowing about Aspergers & having a name for why I am unable to fit in anywhere. Apparently, I can't have Aspergers because I am female, have been married, & held down a job (even though I faced bullying on a regular basis). I am happiest alone in my own world. I've been told that that's not normal. What do you do when you are clearly not normal, & can never live up to others' expectations no matter how hard you try? I always fail at everything I try to accomplish. I am so tired of trying to jump through hoops, & never getting anywhere. Yeah, I have my special interests but my main one doesn't earn me money. I am unemployed & unemployable due to my inability to get along with anyone other than myself. I even suck at volunteering my skills


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wrong, no one forgets.

Aspie Score: 173/200, NT score 31/200: very likely an Aspie
5/18/11: New Aspie test: 72/72
DX: Anxiety plus ADHD/Aspergers: inconclusive


diniesaur
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06 Apr 2012, 7:46 pm

Hahahaha! Just because you're female and you've been married means you can't be Autistic? What kind of idiot therapist is spouting that crap? Post its name and location publicly so people will know not to go to it!

And get a new, better therapist.

That's all I know to tell you; I'm young and I know very little about the world.



tomboy4good
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06 Apr 2012, 7:52 pm

diniesaur wrote:
Hahahaha! Just because you're female and you've been married means you can't be Autistic? What kind of idiot therapist is spouting that crap? Post its name and location publicly so people will know not to go to it!

And get a new, better therapist.

That's all I know to tell you; I'm young and I know very little about the world.


Well, when you're 50 & your health care provider says no one 50 years old can have Aspergers because of blah, blah, blah, & the rest of the health care agency listens to her because she is the "professional," why would they then listen to me? Apparently, I don't know anything at all about the spectrum just because of the crap I've been through in my life. Funny because both my children have been DXd with it. But I don't....there's no one else I can talk with...it's Kaiser btw. I guess I really don't exist since all my problems are imaginary, I must be imaginary too.


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If I do something right, no one remembers. If I do something
wrong, no one forgets.

Aspie Score: 173/200, NT score 31/200: very likely an Aspie
5/18/11: New Aspie test: 72/72
DX: Anxiety plus ADHD/Aspergers: inconclusive


Narfibald
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06 Apr 2012, 8:14 pm

Sounds like you need a new healthcare provider. I mean, I'm no medical professional, but I'm pretty sure autism isn't one of those things that magically disappears at a certain age. Personally I'm not sure if I should be depressed that such idiots can gain the title of "professional", or reassured that the world still somehow works when such idiots CAN gain the title of "professional". Other than the changing providers advice I'm afraid I can't do much for your actual predicament. As for any negative emotional feelings, try not to listen to them. They'll just make you depressed and thats just what they want. Don't give them what they want! If you can't have what you want then THEY DON'T DESERVE WHAT THEY WANT!

......

Ugh, terrible at cheering people up. Need to work on that. Toodles!


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DaBeef2112
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06 Apr 2012, 8:18 pm

I'm a male and I'm 41 but my gp said similar things. You can't have Asperger's because you have an education, a stable job (software development job for a bank), are married and don't "look" like I have Asperger's. But he still referred me to a psychiatrist. He said I likely had mild ADHD and nothing more.

It took the psychiatrist 2 appointment to conclude I had Asperger's and another that I had ADHD as well.

Don't give up, find a better dr.


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Self Diagnosed Asperger's since 2010
Officially Diagnosed Asperger's and ADHD-PI March 2012
Your Aspie score: 152 of 200
Your neurotypical (non-autistic) score: 42 of 200
You are very likely an Aspie
AQ = 41 EQ = 9


tomboy4good
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06 Apr 2012, 8:48 pm

I am unemployed, & because I can't seem to get another job for the life of me, am stuck with my current provider. They have always sucked for me, though they gave my mother wonderful treatment while she was alive. I wish I could explain it, but there seems to be something that I am continually doing wrong, & since I cannot beg for help, I get blown off. If I could afford to change, I would. I am just so sick & tired of having issues that Aspergers explains while nothing else does, but no one will listen to me even when I describe my difficulties. It's as though I speak a dialect my health care providers just cannot understand...though to me, I speak perfectly clearly. I am pretty much at the end of my rope. I am learning that I even suck giving away my skills as a volunteer since I cannot make money off my broken personality. It's been broken since I was at least a toddler, & it only gets worse as time marches on.


_________________
If I do something right, no one remembers. If I do something
wrong, no one forgets.

Aspie Score: 173/200, NT score 31/200: very likely an Aspie
5/18/11: New Aspie test: 72/72
DX: Anxiety plus ADHD/Aspergers: inconclusive


Narfibald
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06 Apr 2012, 8:58 pm

IDEA! Maybe instead of trying to tell them you have Aspergers, see if you can come up with another reason (any) to see a psychiatrist. Depressions, anxiety, whatever. Then maybe if you can get to an actual doctor, you can get your diagnosis? I'd go with depression, you seem kinda depressed (no offense).


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I have no purpose, I make them.

--Narfibald Narfchester von Narfington
--Lord of Castle Narfenstein
--Ruler of the Narfshire
--Keeper of the Tome of Narf
--Aspergian in Good Standing


cathylynn
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06 Apr 2012, 9:00 pm

take the test at iautisitc.com/test_AS.php and print out the results and take them to your doc. figuratively beat them over the head with it. when we were at the age when most people are diagnosed, autism wasn't on the radar. there are tons of us middle agers just getting by and not knowing why until a family member is diagnosed and we read about AS, only to find it describes ourselves.

docs need to keep an open mind and listen to their patients. YOU are the expert on YOU.

i'm married and i work part-time and i have AS. all this happenned recently as a result of social skills hard won through the school of hard knocks. i'm also on disability for another problem, or i would have been destitute because of AS.



tomboy4good
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06 Apr 2012, 9:05 pm

Narfibald wrote:
IDEA! Maybe instead of trying to tell them you have Aspergers, see if you can come up with another reason (any) to see a psychiatrist. Depressions, anxiety, whatever. Then maybe if you can get to an actual doctor, you can get your diagnosis? I'd go with depression, you seem kinda depressed (no offense).


In process as I have been seeing a psychiatrist. I have been prescribed Adderall for ADHD (this is what the autism specialist Dxd me with). Unfortunately, Adderall had many nasty side effects & I quit taking it since it made my anxiety go through the roof. Now I have been prescribed something for my anxiety. But the shrink only sees me for maybe 20 minutes, so there's never enough time to go over symptoms. I am falling into another deep depression because I am frustrated with my life. I have few coping skills beyond stimming or spending time engaging in my special interests. Life just gets more & more frustrating. If someone would have told me that I'd have no chance ever at a normal life, I would have taken mine as a child. Wish I had a time machine to go back & make things right as to be honest, I do not belong, & it hurts something awful to be rejected over & over again. I'm getting far too old for this nonsense of life. No wonder Van Gogh checked out. I don't blame him.


_________________
If I do something right, no one remembers. If I do something
wrong, no one forgets.

Aspie Score: 173/200, NT score 31/200: very likely an Aspie
5/18/11: New Aspie test: 72/72
DX: Anxiety plus ADHD/Aspergers: inconclusive


tomboy4good
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06 Apr 2012, 9:10 pm

cathylynn wrote:
take the test at iautisitc.com/test_AS.php and print out the results and take them to your doc. figuratively beat them over the head with it. when we were at the age when most people are diagnosed, autism wasn't on the radar. there are tons of us middle agers just getting by and not knowing why until a family member is diagnosed and we read about AS, only to find it describes ourselves.

docs need to keep an open mind and listen to their patients. YOU are the expert on YOU.

i'm married and i work part-time and i have AS. all this happenned recently as a result of social skills hard won through the school of hard knocks. i'm also on disability for another problem, or i would have been destitute because of AS.


Thanks Cathy...I did just that with the specialist. I explained my lack of friends over the years, special interests, not fitting in, being bullied. I even brought her the print out of the AS tests that I have taken online that point directly to Aspergers. She basically said all that means nothing. So in conclusion, not only the stuff I have studied, but even being me, means nothing. I am a big fat zilch of nothingness. I just should cease to exist. Then the NT world would be right.


_________________
If I do something right, no one remembers. If I do something
wrong, no one forgets.

Aspie Score: 173/200, NT score 31/200: very likely an Aspie
5/18/11: New Aspie test: 72/72
DX: Anxiety plus ADHD/Aspergers: inconclusive


Narfibald
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06 Apr 2012, 9:35 pm

tomboy4good wrote:
I just should cease to exist. Then the NT world would be right.


Horse s**t! Continue to exist. So what if you're an anomaly. Honestly, I don't know exactly what a diagnosis will necessarily do for you. I was diagnosed when I was 17, and I don't remember my life changing either way. You exist, and you have a nature of existence. Tacking a word onto it does nothing to change that. Focus on what you enjoy in life, and endure what you can't. You know who you are and that's all that matters. If the rest of the world can't figure you out, that just gives you more power, because you are a mystery to them.


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--Narfibald Narfchester von Narfington
--Lord of Castle Narfenstein
--Ruler of the Narfshire
--Keeper of the Tome of Narf
--Aspergian in Good Standing


tomboy4good
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06 Apr 2012, 9:47 pm

Originally I wanted a DX just so I could just put a name to my afflictions. But it's not likely to happen with my current healthcare provider. As a matter of fact, it takes a minimum of 5-6 weeks just to get a follow up appt with a shrink. I also tried to get occupational therapy for my many overwhelming sensory issues. My healthcare provider informed me that if I am over 21, I can't get OT. They only provide it for children. I have to deal with the sensory issues alone by myself. Well it hasn't worked so far for 50 years. How much longer should I keep trying when nothing works? I am running out of options. Life is one big huge frustration, & has been since I can remember. I'm just tired of fighting a losing battle, when doors are slammed in my face over & over again. If I didn't have to work ever again, & could just sit in my house, & do photography & listen to ELO or Irish music, I'd be a very happy camper. Unfortunately, my life is one big fat struggle, & I just don't know how much more I can cope with.

Sorry for whining. It's just so frustrating to live in a world where being different is so wrong.


_________________
If I do something right, no one remembers. If I do something
wrong, no one forgets.

Aspie Score: 173/200, NT score 31/200: very likely an Aspie
5/18/11: New Aspie test: 72/72
DX: Anxiety plus ADHD/Aspergers: inconclusive


Narfibald
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06 Apr 2012, 10:15 pm

Sadly this healthcare system (and calling it a system is nicer than it deserves) is more equipped to deal with children with autism spectrum than adults. That's a problem I had when I got diagnosed. We found plenty of AS help, but it was all for childbeasts. In the end I found a psychologist who was willing to take a try. Talking with him helped a little, wasn't able to offer any good advice (but I haven't found a single therapist who did). But you got this place, and people who if they aren't able to offer any helpful advice, can at least hear your story and relate. You aren't alone, and knowing that can be a big comfort. And life can be a frustrating journey, but you're 50 years old, you made it this far, might as well see it through to the end.

I believe it was Confucius who said, "It is better to light one small candle than to curse the darkness." And while I am not a fan of the Chinese way to run a society, I am a fan of that quote. Because truly it is the small pleasure's in life that make it worth living. Maybe get an MP3 player, put your music on it. And when you're at work and somethings getting to you, go to the bathroom and listen to your favorite track. It won't make the problem go away, but the couple minutes it gives you to recuperate may give you the small boost you need to make it through the day. Though I would limit that tactic to 1 use, 2 max per day. I say that because 1) people will think you're just slacking off and that's never good and 2) I think over use can make it less effective. Keep up the good work soldier! I can't give you reinforcements, but I can tell you that you are not alone in the war.


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I have no purpose, I make them.

--Narfibald Narfchester von Narfington
--Lord of Castle Narfenstein
--Ruler of the Narfshire
--Keeper of the Tome of Narf
--Aspergian in Good Standing


tomboy4good
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13 Apr 2012, 3:47 pm

Narfibald wrote:
Sadly this healthcare system (and calling it a system is nicer than it deserves) is more equipped to deal with children with autism spectrum than adults. That's a problem I had when I got diagnosed. We found plenty of AS help, but it was all for childbeasts. In the end I found a psychologist who was willing to take a try. Talking with him helped a little, wasn't able to offer any good advice (but I haven't found a single therapist who did). But you got this place, and people who if they aren't able to offer any helpful advice, can at least hear your story and relate. You aren't alone, and knowing that can be a big comfort. And life can be a frustrating journey, but you're 50 years old, you made it this far, might as well see it through to the end.

I believe it was Confucius who said, "It is better to light one small candle than to curse the darkness." And while I am not a fan of the Chinese way to run a society, I am a fan of that quote. Because truly it is the small pleasure's in life that make it worth living. Maybe get an MP3 player, put your music on it. And when you're at work and somethings getting to you, go to the bathroom and listen to your favorite track. It won't make the problem go away, but the couple minutes it gives you to recuperate may give you the small boost you need to make it through the day. Though I would limit that tactic to 1 use, 2 max per day. I say that because 1) people will think you're just slacking off and that's never good and 2) I think over use can make it less effective. Keep up the good work soldier! I can't give you reinforcements, but I can tell you that you are not alone in the war.


I love the idea of playing my favorite track in a bathroom. Right now, I only have access to my favorite music on Youtube, & my phone can't access it. So I can only listen to it when I'm at home. Great because I am listening to it as I type this. I am ungainfully unemployed...no prospects, no nothing. I really don't want to do customer service anymore or work in an office setting. Both cause my anxiety to go through the roof & NTs just don't understand why I have these issues.

I do photography, but because of my past & being shy it makes it very difficult to get paid gigs. I don't like shooting weddings as it aggravates my anxiety, I am also a perfectionists by nature & super fussy about my images, although I might have one coming up in September. In the meantime, I am working to put together a portfolio to market my work. Funny, my favorite band is not in the Rock & Roll Hall of Fame. Jeff Lynne who wrote & composed the majority of ELO's music is not well known either although he's worked with 3 out of the 4 Beatles, along with a slew of other musicians over the years. He is much better known than I am, but like him, I keep plugging away at my art.


_________________
If I do something right, no one remembers. If I do something
wrong, no one forgets.

Aspie Score: 173/200, NT score 31/200: very likely an Aspie
5/18/11: New Aspie test: 72/72
DX: Anxiety plus ADHD/Aspergers: inconclusive


glassjailer
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13 Apr 2012, 8:30 pm

This may not help you, but can't hurt to look into it.

Is there a local (or regional) autism resource network that could offer you some help? Advocacy, suggestions for better therapists, or just someone who will listen to your situation and offer some suggestions? While you may not be able to afford to see another doctor/psychologist, there are folks out there that offer a sliding scale, and even work with some people for a token payment.

I suggest this because I feel like your story is similar to mine. I'm younger than you at 30, but still an adult who has held jobs, and "done NT stuff" for years. When I finally came to the conclusion that I probably have Aspergers, I had no idea what to do about it. I work, but very part-time, and money is so very tight for anything that isn't housing or food. Healthcare is pretty much research, herbs, and ibuprofen. So what if I'm so depressed that some days I can't do much more than blink and stare into space. I can understand how hard it is to feel that because I don't have the finances to pay for help, that I can't get help.

I did some research and started calling local autism societies, and resource centers. It sucked. It was terribly awkward, and I started crying on the phone a couple times. I hate talking on the phone! But I understood that I had to be creative if I was going to be taken seriously and heard. I ended up talking to an intake counselor at a local autism diagnostic center. They do adult diagnosis for FREE! (for now anyways until the DSM 5 takes effect, and they lose some funding). I didn't know about them til I started reaching out for help. I don't live in an area that has much money so I was shocked. She listened to me, and asked me lots of questions. Just being heard and validated was SO helpful to me.
I also contacted the local Autism group, and they referred me to some psychologists who do sliding scale assessments and therapy for Aspergers and Autism. Those folks weren't as nice, sort of condescending and doubtful of my claims, but they connected me to a woman who will see me for a price I can (sort of) afford. It is a start.

I guess what I'm saying is that there may be resources available to you. Please don't give up yet, even if you feel like it is pointless. I've been severely depressed off and on my whole life. It is a rough and dark place to live, especially when this world is so unforgiving and harsh. I'm sorry you are having such a hard time right now. :(
What I will say is that we don't know what the future will bring. It could be very interesting and I want you to be heard! You deserve validation and relief. I want to have Aspie elders around to turn to, people who have lived and struggled and have amazing wisdom to share. You aren't yet an elder, but I want you to be one day.

I'm not good at encouragement, but I hope you can find some resources. Even if it is food assistance and SSD or something. You sound like you need an advocate, and I really hope you find one soon. :)