Page 1 of 1 [ 15 posts ] 

lady_katie
Veteran
Veteran

User avatar

Joined: 16 Jul 2012
Gender: Female
Posts: 575

21 Jul 2012, 11:58 am

So, I've recently learned that I most likely have AS. I've been having a really difficult time dealing with my mixed feelings about this, and I think it's even throwing me into "overload" (still trying to understand what the even means, but I've been taking a lot of showers because it seems to be helping). Anyway, I've been trying to talk to a few friends about this, and they don't believe me! One of my friends asked what difference it would make to find out, which I thought was pretty ignorant, but maybe I'm reading too much into that comment. Than my sister was saying that she "knows people with AS" and that they're really "different" (not like me). Even my therapist thought that I was completely wrong, until she had me explain myself (than she said she wanted to test me!). I had another person tell me that AS is just "over-diagnosed like ADHD" and that everyone thinks that everyone has AS or something.

Anyway, I'm finding it impossible to find even an ounce of support with this, and I'm really having a hard time trying to convince anyone that I have any kind of internal struggles at all. I don't know why that would be, I recently had to go to the ER because I sprained my wrist because I broke a table with my bare hands while having what I now know is referred to as a "melt-down" (because I was interrupted). This realization certainly doesn't shock me, in fact, it's like I finally found a word for my life time of unusual behavior. I just can't understand why no one would believe me! Is this common? Has anyone else gone through this?



Mirror21
Veteran
Veteran

User avatar

Joined: 16 Oct 2011
Age: 40
Gender: Female
Posts: 1,751

21 Jul 2012, 12:04 pm

It is actually quite common and if you want and can afford a diagnosis, get it before you discuss it with people, it may help their attitude. I have been through this and trust me, its better this way. As for a diagnosis not changing anything it sort of doesn't.

I am autistic and getting medical recognition has not changed that fact.

like a friend told me here "the methods used for coping still work, diagnosis or not".



Dirtdigger
Veteran
Veteran

User avatar

Joined: 9 Sep 2011
Age: 77
Gender: Female
Posts: 855

21 Jul 2012, 12:11 pm

lady_katie wrote:
So, I've recently learned that I most likely have AS. I've been having a really difficult time dealing with my mixed feelings about this, and I think it's even throwing me into "overload" (still trying to understand what the even means, but I've been taking a lot of showers because it seems to be helping). Anyway, I've been trying to talk to a few friends about this, and they don't believe me! One of my friends asked what difference it would make to find out, which I thought was pretty ignorant, but maybe I'm reading too much into that comment. Than my sister was saying that she "knows people with AS" and that they're really "different" (not like me). Even my therapist thought that I was completely wrong, until she had me explain myself (than she said she wanted to test me!). I had another person tell me that AS is just "over-diagnosed like ADHD" and that everyone thinks that everyone has AS or something.


Most normal people don't believe you because they are normal and lack any understanding or empathy about people on the Autism Spectrum. Even the majority of mental health professionals don't have a clue. Therefore you need to go to someone who specializes in Autism and Aspergers.

Quote:
Anyway, I'm finding it impossible to find even an ounce of support with this, and I'm really having a hard time trying to convince anyone that I have any kind of internal struggles at all. I don't know why that would be, I recently had to go to the ER because I sprained my wrist because I broke a table with my bare hands while having what I now know is referred to as a "melt-down" (because I was interrupted). This realization certainly doesn't shock me, in fact, it's like I finally found a word for my life time of unusual behavior. I just can't understand why no one would believe me! Is this common? Has anyone else gone through this?


If your temper is so great that it causes you, another person or an item harm very often, then you seem to have Bipolar as well as maybe Autism. Good luck and I hope you can find a specialist. And don't let you family and friends get you down. You are among friends with Autism and Aspergers who very well understand.



lady_katie
Veteran
Veteran

User avatar

Joined: 16 Jul 2012
Gender: Female
Posts: 575

21 Jul 2012, 12:12 pm

Mirror21 wrote:
It is actually quite common and if you want and can afford a diagnosis, get it before you discuss it with people, it may help their attitude. I have been through this and trust me, its better this way. As for a diagnosis not changing anything it sort of doesn't.

I am autistic and getting medical recognition has not changed that fact.

like a friend told me here "the methods used for coping still work, diagnosis or not".


Thanks for responding...it's good to know that I'm not as alone as I feel.

I think that people think I'm pretty normal socially, but I have no idea why they would think that! I can't keep a friend for very long to save my life, whether they disappear without explanation or I over read their non-verbals and feel like they hate me and withdraw...the friendships don't last. I also hate socializing and I'm fairly certain that I married an Aspie (he's getting tested soon too) because he was the only person on the face of the earth that I could really relate to (and vice versa). People can clearly see that he's "weird" - yet they don't question why I want to be around a "weirdo" all the time? It's so confusing to me!



redrobin62
Veteran
Veteran

User avatar

Joined: 2 Apr 2012
Age: 61
Gender: Male
Posts: 13,009
Location: Seattle, WA

21 Jul 2012, 12:13 pm

I was officially diagnosed by a clinical psychologist who is an expert on Asperger's. She wrote several articles and counsels Asperger's couples here in Seattle. She also sponsors the biggest Asperger's meetuo group here so she's well known in this aspect. Guess what? My family or so-called friends don't believe I'm an aspie. They said I don't look like Rain Man or Adam or Miss Snow Cake so I'm not an aspie. They said I don't look like the descrition of it in online descriptions. They FAIL to see this is a SPECTRUM, a variety of symptoms ad their severity, that we fall under. I'm mild, and over the years I've learned to blend I in with the norm. I've learned to look people in the eyes. I'm still working on the illeism bit (refer to myself in 3rd person) because it drives people crazy. I'm still a social misfit and am VERY prone to saying the wrong things in conversations. Mentally, I'm like a 12 year old. I still play video games. Mature things like marriage, relationships, mortgage and children escape me. I can't feel anyone's pain if they're crying for a loved one. (It aggravates me, really). So, yeah, NT's don't get me at all, but WP does. That's the important thing.



Mirror21
Veteran
Veteran

User avatar

Joined: 16 Oct 2011
Age: 40
Gender: Female
Posts: 1,751

21 Jul 2012, 12:17 pm

redrobin62 wrote:
So, yeah, NT's don't get me at all, but WP does. That's the important thing.


Amen. =)

This place has been my refuge.



lady_katie
Veteran
Veteran

User avatar

Joined: 16 Jul 2012
Gender: Female
Posts: 575

21 Jul 2012, 12:18 pm

Dirtdigger wrote:
Most normal people don't believe you because they are normal and lack any understanding or empathy about people on the Autism Spectrum. Even the majority of mental health professionals don't have a clue. Therefore you need to go to someone who specializes in Autism and Aspergers.


Yeah, I've known about this for less than a week, and I can already see that this is true. I've already determined that if my therapist isn't interested in helping me with this, and sticks her head in the sand, I'm going to get a second opinion. I think I could use some behavioral therapy, especially since I do have a habit of breaking things and hurting myself. (At the very least, I'm so sick of having to fix the things that I break!)

Dirtdigger wrote:
If your temper is so great that it causes you, another person or an item harm very often, then you seem to have Bipolar as well as maybe Autism. Good luck and I hope you can find a specialist. And don't let you family and friends get you down. You are among friends with Autism and Aspergers who very well understand.


That's interesting...not something that I feel I can research at the moment (feeling very overwhelmed) so I'll put it on the shelf for the time being. Thanks so much for the support, I think I'll hang out on this website a lot now and make it my new home.



lady_katie
Veteran
Veteran

User avatar

Joined: 16 Jul 2012
Gender: Female
Posts: 575

21 Jul 2012, 12:23 pm

Mirror21 wrote:
redrobin62 wrote:
So, yeah, NT's don't get me at all, but WP does. That's the important thing.


Amen. =)

This place has been my refuge.


So glad that I found this place, everyone is so nice and supportive (and straight-forward!!).



Uhura
Velociraptor
Velociraptor

User avatar

Joined: 27 Oct 2006
Age: 51
Gender: Female
Posts: 432
Location: Wisconsin

21 Jul 2012, 12:43 pm

I have a similar problem, except that people believe I have it. What they don't believe or maybe just don't understand is how it affects my life. I can seem normal for short amounts of time but if I am around people for too long it is exhausting. Some people more than others. And after too long it shows up as, according to some people being rude. I am also aloof most of the time.

People don't see that it affects us, wouldn't recognize a social skill unless you could wrap it up and label it in writing as a social skill, and hit them over the head with it.

I wish people understood and believed. It would make life easier for us.



Aharon
Veteran
Veteran

User avatar

Joined: 26 Dec 2011
Age: 50
Gender: Male
Posts: 745
Location: Kansas

21 Jul 2012, 12:56 pm

If you want acceptance, come here, because you are not likely to find it anywhere else. I'm so glad I found WP!


_________________
We are not so different from potted plants in that, if given everything we need to be properly nourished, the outcome can be incredibly contrary to when we are not. A flower won't grow in flour, and neither can we.


redrobin62
Veteran
Veteran

User avatar

Joined: 2 Apr 2012
Age: 61
Gender: Male
Posts: 13,009
Location: Seattle, WA

21 Jul 2012, 1:16 pm

I guess, by definition, I'd be considered aloof. I don't like the connotation, though, that I'm "better than thou." It's quite the opposite, more like "I'm not worthy."



Uhura
Velociraptor
Velociraptor

User avatar

Joined: 27 Oct 2006
Age: 51
Gender: Female
Posts: 432
Location: Wisconsin

21 Jul 2012, 1:19 pm

I have been called aloof by other people. I never thought about the connotation though. Because I don't see myself as better. Sometimes worse, or more specifically less capaable. But that's more because of my LD than AS.



shortcircuit3
Blue Jay
Blue Jay

User avatar

Joined: 10 Jul 2012
Age: 124
Gender: Female
Posts: 86

21 Jul 2012, 2:28 pm

some people are incapable of decontextualization and will presume "normalcy  in all facets of your life, simply because you appear to be at least "marginally normal" within the confines of a given domain. "you can speak, therefore you can't be autistic". "you have a specialized skill, therefore you can't be autistic." "you're not a robot, therefore you can't be autistic"... the list is ridiculous and endless. sometimes, if these people have known you for awhile, they may be unable to view you outside the context of a longstanding relationship. i have many people who see me infrequently on best behavior who regard this behavior as a constant (instead of realizing its a transient and profoundly exhausting performance that doesn't even remotely resemble my behavior at home.) relatives presume that because i'm able to relate to them, functionally albeit quite awkwardly, that i relate to ALL people i meet in this fashion (without understanding my skills decrease exponentially outside familiar relationships). that's just how some people are. if they don't see something (it doesn't matter if they only see you once a year for five minutes) they'll presume it isn't there. and often times, even when they CAN see it, they dismiss it -- unless or until its so obvious that there are marquees and flashing, red lights.



UnLoser
Veteran
Veteran

User avatar

Joined: 28 Mar 2012
Gender: Male
Posts: 655

21 Jul 2012, 2:37 pm

After reading this and similar posts, I'm convinced that I'll never tell anyone about my Autism. Labels don't really do anything for me, anyway. It's best for you and others to simply recognize aspects and challenges of your personality, and find constructive ways to deal with them, rather than fussing over a label.

But if people are being unsympathetic and blaming your struggles on YOU, then I feel for you. Luckily, I've never really had to deal with such ignorance.



outofplace
Veteran
Veteran

User avatar

Joined: 10 Jun 2012
Age: 50
Gender: Male
Posts: 1,771
Location: In A State of Quantum Flux

22 Jul 2012, 1:35 am

I have been fortunate in that many of the people I know actually agree with me that I have Asperger's. Even many of the ones who didn't think it initially have come around to agree that it probably describes me.


_________________
Uncertain of diagnosis, either ADHD or Aspergers.
Aspie quiz: 143/200 AS, 81/200 NT; AQ 43; "eyes" 17/39, EQ/SQ 21/51 BAPQ: Autistic/BAP- You scored 92 aloof, 111 rigid and 103 pragmatic