Writing a personal history for AS diagnosis

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jackie31337
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19 Jan 2007, 8:53 am

I made an appointment today to begin the diagnosis process. I was asked to write a personal history and send it to them before my first appointment. I'm wondering what kinds of things I should include in it. They specifically asked me to describe experiences and things about myself that lead me to believe I have AS, but other than that, I don't know what I should write. Does anyone have any suggestions?



Prof_Pretorius
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19 Jan 2007, 9:16 am

Oh, you know, the usual stuff. How you were abducted by aliens at the age of eight, and they gave you the power to see the molecular structure of bricks, and the way the other children mocked you when you told them. How you can mind-meld with your cat, make house plants levitate, perfom calculus in your head, heal the sick, give sight to the blind, you know, just everyday stuff ....


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Aardvark
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19 Jan 2007, 9:24 am

ummm. lol.


why you feel it's important that you get a diagnosis, one way or the other.
how AS symptoms have affected you.



SteveK
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19 Jan 2007, 10:32 am

On a SERIOUS note, and bear in mind I am no expert, but these ARE relevant....

When did you hit milestones? When did you start smiling? Say your first word? Speak your first sentence? What is you IQ? What have your grades been like? How do you get along with people, and develop friendships? What's your IQ(although they probably WILL test you anyway)? What variances and strengths/weaknesses does your IQ show? Sensitivities to touch, sight, smell, sound? Special mental talents/deficiencies?

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19 Jan 2007, 10:49 am

To write your history first try to put down things you remember with a little note until you got a few things,

Then you try to expand, tell what happened now this is the really stupid part, what happens if you don't remember...



What is Social History?
Social history is the study of the lives of ordinary people. Where history focuses on the who, what, when, and where, social history looks at why and how. It looks at why things happen and how events affect people. Social history is the study of society and cultures. Social history looks at how events affect people collectively.


Social communication

People with AS may be very good at basic communication and letting people know what they think and feel. Their difficulties lie in the social aspects of communication. For example:

* they may have difficulty understanding gestures, body language and facial expressions
* they may not be aware of what is socially appropriate and have difficulty choosing topics to talk about
* they may not be socially motivated because they find communication difficult, so they may not have many friends and they may choose not to socialise very much.

Some of these problems can be seen in the way people with AS present themselves. for example classic traits include:

* difficulty making eye contact
* repetitive speech
* difficulties expressing themselves especially when talking about emotions
* anxiety in social situations and resultant nervous tics.


Social understanding

Typical examples of difficulties with social understanding include:

* difficulties in group situations, such as going to the pub with a group of friends
* finding small talk and chatting very difficult
* problems understanding double meanings, for example not knowing when people are teasing you
* not choosing appropriate topics to talk about
* taking what people say very literally.

You might want to back this up with specific examples of the kind of social situations you find difficult.

Imagination

This can be a slightly confusing term. People often assume it means that people with AS are not imaginative in the conventional use of the word, for example, they lack creative abilities. This is not the case and many people with AS are extremely able writers, artists and musicians. Instead lack of imagination in AS can include difficulty imagining alternative outcomes and finding it hard to predict what will happen next. This frequently leads to anxiety. This can present as:

* an obsession with rigid routines and severe distress if routines are disrupted
* problems with making plans for the future, and having difficulties organising your life
* problems with sequencing tasks, so that preparing to go out can be difficult because you can't always remember what to take with you.

Some people with AS over-compensate for this by being extremely meticulous in their planning, and having extensive written or mental checklists.


Secondary traits of Asperger syndrome

Besides the triad of impairments, people with AS tend to have difficulties which relate to the triad but are not included within it. These can include:

* obsessive compulsive behaviours, often severe enough to be diagnosed as obsessive compulsive disorder (OCD);
* these can also be linked to obsessive interests in just one topic, for example they might have one subject about which they are extremely knowledgeable which they want to talk about with everyone they meet;
* phobias: sometimes people with AS are described as having a social phobia but they may also be affected by other common fears such as claustrophobia and agoraphobia;
* acute anxiety, which can lead to panic attacks and a rigid following of routines;
* depression and social isolation: this is especially common among adults;
* clumsiness often linked to a condition known as dyspraxia. This includes difficulties with fine motor co-ordination such as difficulties writing neatly as well as problems with gross motor co-ordination such as ungainly movements, tripping, falling a lot and sometimes appearing drunk as a result.

Not having these associated problems does not mean you do not have AS, but if you have any of them you might want to describe it in order to back up your case.


To conclude

You don't need to go and describe every single one of these features. Your doctor may be more likely to respond if you give one good example from each area of the triad. Once you have explained why you think you have AS to the doctor



Sedaka
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19 Jan 2007, 3:29 pm

it's hard to sit down and make a list.

just browse the forums here and i'm sure you'll see yourself in a lot of the posts.

when i started learning about AS... i felt like i was reading about myself in a text book.

once you start experiencing that, maybe more things about your personal experience will start surfacing on their own as you gain new perspective.


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