We went to the doctor this morning. Of course she blamed it on the Benadryl he takes to sleep. Every time I bring him in with something odd, they blame the Benadryl. Too much Benadryl causes tremors - not rhythmically rolling eyes! They're never willing to look into anything more complex than that. Most of the providers at that practice know nothing about autism, let alone PANDAS.
Last night I took matters into my own hands. I believe he had PANDAS 5 years ago (his doctor refused to culture him for strep); I was concerned that it had been reactivated. I had a full course of amoxicillan from one I filled recently but never used. I started him on it last night, and today the eye-rolling is almost gone!
Maybe I shouldn't have given it to him without the doctor's "permission," but I couldn't let it continue and become more severe. If he DOES have PANDAS, then he could suffer even more neurological damage than he already has. We've suffered mightily from incompetent/uninterested doctors. My daughter almost died at the age of 2, because the doctor refused to test her for diabetes. Of course she did have it, and ended up in DKA. I've been right about my son's OCD, my sleep apnea and my autism. Each time I've had to fight doctors who dismiss and ignore me.
Sorry for the rant...my boy has enough to deal with. OCD/ADHD, anxiety, and (very likely) autism. Plus all the family stuff and worries about school.