Autism Affects 1 in 150
http://news.yahoo.com/s/ap/20070208/ap_ ... prevalence
The new numbers are based on the largest, most convincing study done so far in the United States, and trump previous estimates that placed the prevalence at 1 in 166.
The difference means roughly 50,000 more children and young adults may have autism and related disorders than was previously thought — a total nationwide of more than half a million people.
Advocates said the study provides a sad new understanding of autism's burden on society, and should fuel efforts to get the government to spend hundreds of millions of additional dollars for autism research and services.
"This data today show we're going to need more early intervention services and more therapists, and we're going to need federal and state legislators to stand up for these families," said Alison Singer, spokeswoman for Autism Speaks, the nation's largest organization advocating services for autistic children.
The study by the U.S. Centers for Disease Control and Prevention was based on 2002 data from 14 states. It calculated an average autism rate 6.6 per 1,000, compared to an estimate last year of 5.5 in 1,000.
"Autism is more common than we believed," said Catherine Rice, a CDC behavioral scientist who was the study's lead author.
The research was based on 2002 data from all or part of 14 states. It involved an intense review of medical and school records for children and gives the clearest picture yet of how common autism is in some parts of the country, CDC officials said.
The results suggest 560,000 children and young adults have the condition.
However, the study population is not demographically representative of the nation as a whole, so officials cautioned against using the results as a national average. The study doesn't include some of the most populous states like California, Texas and Florida.
Also, the study does not answer whether autism has recently been on the rise — a controversial topic, driven in part by the contention of some parents and advocates that it is linked to a vaccine preservative. The best scientific studies have not borne out that claim.
"We can't make conclusions about trends yet," because the study's database is too new, Rice said.
Autism is a complex disorder usually not diagnosed in children until after age 3. It is characterized by a range of behaviors, including difficulty in expressing needs and inability to socialize. The cause is not known.
Scientists have been revising how common they think the disorder is. Past lower estimates were based on smaller studies. The study released Thursday is one of the first scientific papers to come out of a more authoritative way of measuring it.
"This is a more accurate rate because of the methods they used," said Dr. Eric Hollander, an autism expert at New York's Mount Sinai School of Medicine.
The study involved 2002 data from parts or all of 14 states — Alabama, Arizona, Arkansas, Colorado, Georgia, Maryland, Missouri, New Jersey, North Carolina, Pennsylvania, South Carolina, Utah, West Virginia and Wisconsin.
Researchers looked specifically at children who were 8 years old because most autistic kids are diagnosed by that age. The researchers checked health records in each area and school records when available, looking for children who met diagnostic criteria for autism. They used those numbers to calculate a prevalence rate for each study area.
Included were autism-linked conditions like Asperger disorder, which some experts say might partly account for the higher rate.
Dr. Fred Volkmar, director of the Child Study Center at Yale University, said the educational records researchers relied on in some states may be misleading. Sometimes, if a child has problems that seem like autism, parents will push for an autism label to get additional educational services, he said.
Rates varied dramatically among states, in some cases. The rate was 3.3 per 1,000 in the northeastern Alabama study area and 10.6 per 1,000 in the Newark, N.J., metro area.
Researchers say they don't know why the rate was so high in New Jersey. They think the Alabama rate was low partly because of limited access to special education records.
The study was not an effort to find the cause of autism, still a point of debate. While many advocacy groups blame the vaccine preservative thimerosal, scientists are putting more focus on possible genetic causes, according to a recent Stanford University study.
I simply thought this was interesting. I wonder though, how accurate can it be if they only used 14 states? From the research I've done, autism is much more prevalant is certain places than in other.
I also noticed it's not a strictly autistic rate - other related causes (like aspies) count too.
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Three years!
no. the last numbers were 1 in 160 or 166
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Are they talking about high functioning autism or classic autism, I wonder, and how do they distinguish between the two? As surely there is a significant gray area. While some people are clearly at one end or the other, there are plenty of people who could be construed as being either way.
they don't distinguish. doctors are required to report how many people they diagnose with some form of a disorder
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they don't distinguish. doctors are required to report how many people they diagnose with some form of a disorder
MY GOD! So if I was diagnosed then I would figure into this as well? And you and blackcat and starbuline, etc... have? HECK, it doesn't sound to me like ANY of us should be declared diseased, etc... Yet we are used to show how widespread this "SCOURGE" (autism) is! IRONIC! We are almost like the new chips intel makes. Some of THOSE are far from perfect, but some ALWAYS seem to make it. IMAGINE if they had shut down INTEL because of all the faulty 80386 chips!
Steve
I am always confused about the term ironic(yes I looked up the definition but still dont get it)but it seems "ironic" that HFA/aspies are part of the increase in the number of autism that "autism speaks" likes to use to raise money for their curebby causes but when many aspies speak for themselves and refute the goals of Autism Speaks as insulting and demeaning to autistics....they are told that "they(aspies) dont understand, because they are not "real" autistics.I say they cant have it both ways....either leave all HFA autistics out of their "total number" or let us speak for ourselves(like anyone could stop us,lol)
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Actually, from what my social worker friend told me, that's illegal. I always thought they reported that stuff to NIMH or the CDC, but she says it's against the law for them to do that. I think this study might be based off of school records.
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I find it increasingly irritating how they keep putting autism and AS as a big nation wide epidemic. What the hell is wrong with AS and autism!?! It isn't a disease or a virus for Pete's sake!! It's also unfair how Autism Speaks or CAN does all the talking 'for' us. It's one of the few things in life that pisses me off to infinite ends. I'd love it if they got Alex's opinion sometimes. If were my opinion I'd say this:
Aspie is a term used to describe those affected by Asperger's.
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According to Lorna Wing the actual number may be more like 1 in 100 for all the spectrum - and this was from a while ago.
Notes on the prevalence of autism spectrum disorders by Lorna Wing
and David Potter
http://www.autism.org.uk/nas/jsp/polopo ... view=print
I wonder too how this will play out among the curebie groups. Either the numbers are not going up (which means no epidemic of autism) or if they are still increasing than thimerisol alone could not have been the cause.
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