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AllisonWonderland
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25 Jun 2014, 11:26 pm

I was diagnosed with Social Communication Disorder recently. I'm in my early 20's. Anyone else diagnosed with this?
I know it's not actually on the Spectrum but it's close. The psychologist said I could consider it Asperger's (since it isn't in the DSM anymore) but that I didn't meet the new criteria for ASD. She said probably in the future they'll change the diagnostic criteria again and I'll fall on the Spectrum.
I'd also like to add that I assumed ASD but never mentioned it to her because I wanted to see if my symptoms were actually noticeable (which they were obviously).
Oh, I'm in the US and I guess that's the only place where SCD is recognized so far.



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25 Jun 2014, 11:40 pm

Did she ever say you met the AS criteria under the DSM-IV or other ASD?


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AllisonWonderland
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26 Jun 2014, 12:04 am

She didn't mention AS criteria specifically. When I asked why it wasn't ASD we went through the DSM5 criteria. She said something about it being AS but that it's gone now.



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26 Jun 2014, 12:11 am

AllisonWonderland wrote:
She didn't mention AS criteria specifically. When I asked why it wasn't ASD we went through the DSM5 criteria. She said something about it being AS but that it's gone now.


She's wrong; you couldn't have AS by meeting only the social criteria of autism.


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AllisonWonderland
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26 Jun 2014, 12:28 am

I have at least one of the other four ASD things for sure but she didn't think the other three were severe enough. She said stimming only counts if it interferes directly with activities you're trying to accomplish. My "special interest" would be movies/shows but that's not odd (everyone watches movies). And I don't react to change by lying on the floor screaming. She seemed to have a more textbook idea of autism. More like Rain Man I guess.



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26 Jun 2014, 12:37 am

I believe that SCD was included in the new DSM secifically to eliminate the milder end of the spectrum dx-wise, basically to answer 'autism-epidemic'. This is not about traits. I find it a bit odd though that there are more to SCD than only communication disorder, like stims, sensory sensitivities, execution-function deficit, and so on, that might be overlooked and remain untreated, unaccounted for.


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AllisonWonderland
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26 Jun 2014, 12:47 am

I agree OJani. (Sorry, I don't know how to quote.) I wouldn't want to be diagnosed with something I don't actually have but it seems like people will wind up with many diagnoses. SCD and ADD or SCD and Tourette's or SCD and sensory processing disorder. Or like you said they'll just focus on the one disorder.



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26 Jun 2014, 3:06 am

AllisonWonderland wrote:
I agree OJani. (Sorry, I don't know how to quote.) I wouldn't want to be diagnosed with something I don't actually have but it seems like people will wind up with many diagnoses. SCD and ADD or SCD and Tourette's or SCD and sensory processing disorder. Or like you said they'll just focus on the one disorder.



For quoting there is a box in the upper right hand corner of all the posts that should say "quote"

Diagnostic Criteria for Social (Pragmatic) Communication Disorder
http://www.iidc.indiana.edu/?pageId=368

The way I interpreted her remarks is she does think you are the spectrum but not under the current criteria.

The DSM 5 is fairly new so there is confusion and I agree that an important reason was the belief there had been widespread overdiagnosis of autism in general, but particularly Aspergers.

We make not like it but for those of us living in certain areas the DSM 5 manual has been forced upon us so we have to deal with it. The idea now is to get the help you need for your difficulties, whatever it is labeled.

If she said you should consider it aspergers and it feels right for you go ahead and consider yourself that.


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26 Jun 2014, 5:40 am

On paper according to the definitions she should say ASD if she considers it AS. She's responding to social pressure to diagnose ASD less.

Some people think it's okay even essential to diagnose based on history and some people think it's not. Those people who go only on what's in front of them think you graduate from having ASD when you look typical enough in the present in the neuropsuchogists office.

She'll never admit it but she's confused. They all are now.



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26 Jun 2014, 11:22 am

I think what it means is she would have met the AS criteria under DSM IV but she didn't meet the new ASD criteria so therefore she does not have it. If she would have been diagnosed before May 2013, she would have had it because the new criteria allows people with already diagnosed ASDs to keep their dx. But unfortunately kids have gotten rediagnosed since then and getting SCD and losing all their help they are getting in school. Schools are using this loophole to save money by not giving the kid the help they need anymore. This is what I have read online and heard at my local autism group. Plus I have seen a study online showing how much people with diagnosed AS don't fall under the new ASD criteria. But according to the DSM, people including children were supposed to be getting better help and not get unnecessary treatment they don't need but it seems to be doing the opposite I hear. I also hear it gets misused. I am no sure how that works, how do you misuse the DSM?

I just think you can make anyone fit a criteria if you keep on rewriting it until it fits that person.


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23 May 2016, 3:51 pm

I did a search for "social communication disorder" and revived this thread. I'm blind, and I know other blind people who are more socially adept than I. They seem to know how to handle social hierarchies and difficult conversations, so I know there's more to my social story than my blindness.

Is there anything to this social communication disorder diagnosis in adults? What I mean is, how do clinicians actually treat adults? The reading I've done so far discusses teaching children basic social skills. What about predicting difficult situations adults might face? What about figuring out if an adult is as effective as possible at attracting like-minded friendships or handling conflict?

I joined this forum because I relate to many of the people who post here about their analytical, systematic way of viewing the social world. The prospect of meaningful discussion around these issues really appealed to me, and I also want to share what I learn as I go through life. I don't have an SCD/ASD label, and I hope that doesn't matter for the purpose of getting help, support, or enjoyment from this forum. A lot of people on here have shared their experiences with me already, and it's been amazing.



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23 May 2016, 4:46 pm

What is the likelihood of Social Communication Disorder appearing all on its own, without sensory issues, stims, special interests, etc?



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23 May 2016, 5:09 pm

Is that a literal question or a rhetorical one? Either way, I really have no idea. SCD is sort of an empty diagnosis in that from what I understand, its causes aren't apparent, and it's not officially on the spectrum. Shrug.

It's interesting that I can't entirely relate to some of the other aspects of ASD, though I'm starting to understand them. For example, I feel the need for order in my world, but my rules, systems, and routines are not arbitrarily put in place to create that order. I can definitely get lost in interests, and yet, I can generally bring myself back to balance. I'm an extrovert, and although I've been told I'm very sensitive, I don't have the sorts of sensory issues many people describe here.

It's also interesting that when I was describing some of my concerns to a life coach I know who happens to have an MSW, she asked me if I was on the spectrum. No one's ever asked me that before, which prompted me to take another look at this site.



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23 May 2016, 5:58 pm

DataB4 wrote:
Is that a literal question or a rhetorical one? Either way, I really have no idea. SCD is sort of an empty diagnosis in that from what I understand, its causes aren't apparent, and it's not officially on the spectrum. Shrug.


Mostly literal, but slightly rhetorical :D

I think that what I was reacting to was a total lack of explanation for why a person would display these behaviors. Also, I doubt these social issues would show up without some sort of compensating behaviors. If social life is not satisfying you, something else has to.



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23 May 2016, 6:20 pm

That's an interesting way to look at it. I'd say that analysis and systemizing are compensatory behaviors for social issues and anxiety, and there's sort of a feedback loop going with the behaviors and being out of touch with intuition. I wonder, if I didn't have these issues, would I be as analytical? Either way, my question about how clinicians actually help adults who make social mistakes still stands. :) I've had therapists look at individual situations, but they've never created situations to see how I'd react, or anything like that.