Trigger Warning: Carly Fleischmann Update

Page 1 of 4 [ 54 posts ]  Go to page 1, 2, 3, 4  Next

Swiper
Pileated woodpecker
Pileated woodpecker

User avatar

Joined: 8 Sep 2014
Age: 46
Gender: Male
Posts: 192

04 Dec 2014, 1:10 pm

Carly Fleischmann underwent Electric Chock Therapy (ECT) last March and lost her ability to communicate. Yesterday was the first time she have been able to communicate at all since then. I hope she can recover from this failed treatment.

"i cabnt typerc anymmyore ectt didfd thisds to meed brayiin is scrrammbellld needdc fdocttor helphgfi" - Carly

"This is carly's dad. all is fine. carly had ECT in march. since then she's been unable to type or go on FB. tonight has been the first words we'e heard from her since April! we're all with her and her doctor is on the case! thank you all for your kind words, prayers and concerns. this is actually a joyful time!"

https://www.facebook.com/carlysvoice


_________________
Autism Spectrum Disorder, Level 1 (with language impairment) and Other Specified Anxiety Disorder
Aspie Score: 140 of 200, NT Score: 63 of 200
You are very likely neurodiverse (Aspie)


StarTrekker
Veteran
Veteran

User avatar

Joined: 22 Apr 2012
Age: 26
Gender: Female
Posts: 3,070
Location: Starship Voyager, somewhere in the Delta quadrant

04 Dec 2014, 1:45 pm

There is nothing "joyful" about this. What were they trying to accomplish with ECT? I would call her returning communication "lucky" and "a relief" but definitely not "joyful". What must it have been like for Carly to be stuck silent in her own head for all that time?


_________________
"Survival is insufficient" - Seven of Nine
Diagnosed with ASD level 1 on the 10th of April, 2014
Rediagnosed with ASD level 2 on the 4th of May, 2019
Thanks to Olympiadis for my fantastic avatar!


Swiper
Pileated woodpecker
Pileated woodpecker

User avatar

Joined: 8 Sep 2014
Age: 46
Gender: Male
Posts: 192

04 Dec 2014, 3:44 pm

Yes, I feeling dread just imagining how she must have felt the last 8-9 months. I was wondering why she suddenly had fallen silent and not updating her page. I would really want to know why they subjected her to this treatment.


_________________
Autism Spectrum Disorder, Level 1 (with language impairment) and Other Specified Anxiety Disorder
Aspie Score: 140 of 200, NT Score: 63 of 200
You are very likely neurodiverse (Aspie)


LokiofSassgard
Veteran
Veteran

User avatar

Joined: 3 Sep 2014
Age: 30
Gender: Female
Posts: 719
Location: My own autistic wonderland!

04 Dec 2014, 4:25 pm

Honestly? I don't think her dad is very smart. When I read her book, and from what I've seen... he doesn't seem to understand her very well. Something tells me this might have been his idea. I never liked her dad much either. I feel sorry for her because it's bad enough she can't speak, and now she has lost her ability to type through text? How the hell is that joyful? I'd like to know what the frick he's thinking calling it joyful. It doesn't sound like it's very good parenting to me.


_________________
Currently diagnosed with Autistic Disorder, ADHD, severe anxiety, learning delays and developmental delays.


CockneyRebel
Veteran
Veteran

User avatar

Joined: 17 Jul 2004
Age: 44
Gender: Male
Posts: 103,074
Location: Hanging out with my fellow Sweet Peas at Stalag 13

04 Dec 2014, 4:39 pm

I also fail to see the joy in all this. ECT is painful to go through and not being able to communicate doesn't seem joyful to me. I wouldn't wish ECT on anybody.


_________________
Schultz

viewtopic.php?f=11&t=26&start=645


LokiofSassgard
Veteran
Veteran

User avatar

Joined: 3 Sep 2014
Age: 30
Gender: Female
Posts: 719
Location: My own autistic wonderland!

04 Dec 2014, 4:42 pm

The father is somewhat of an ass. I read her book, and he struck me as someone who showed little interest in her. It was as if he was pushing himself to accept her, but he was falling to grasp what she was dealing with. Yeah, I get that most parents are like that, but this really pisses me off though. I agree with Cockney on this. Why the hell would you subject such a talented young woman who's changed the face of autism to this kind of treatment?


_________________
Currently diagnosed with Autistic Disorder, ADHD, severe anxiety, learning delays and developmental delays.


Jono
Veteran
Veteran

User avatar

Joined: 10 Jul 2008
Age: 38
Gender: Male
Posts: 5,459
Location: Johannesburg, South Africa

04 Dec 2014, 5:07 pm

Swiper wrote:
Carly Fleischmann underwent Electric Chock Therapy (ECT) last March and lost her ability to communicate. Yesterday was the first time she have been able to communicate at all since then. I hope she can recover from this failed treatment.

"i cabnt typerc anymmyore ectt didfd thisds to meed brayiin is scrrammbellld needdc fdocttor helphgfi" - Carly

"This is carly's dad. all is fine. carly had ECT in march. since then she's been unable to type or go on FB. tonight has been the first words we'e heard from her since April! we're all with her and her doctor is on the case! thank you all for your kind words, prayers and concerns. this is actually a joyful time!"

https://www.facebook.com/carlysvoice


WTF did they do that for? After all the progress that she's made by learning to communicate through typing, they do this to her, why?



WerewolfPoet
Veteran
Veteran

User avatar

Joined: 3 Mar 2012
Age: 24
Gender: Female
Posts: 865

04 Dec 2014, 7:12 pm

From what I could gleam surfing though the replies on Facebook, it appears that Carly had posted something a while back about wanting to seek treatment for some of her severe symptoms of co-morbid OCD, and it is speculated that the ECT may have been the treatment that was ultimately sought out. Supposedly, ECT is supposed to have some effect on severe OCD. Then again, I do not know Carly or her family, so I cannot say for certain what was going on.

I agree, though, that other avenues should have been considered, especially since so little is known about the autistic brain and, thus, what effects sending high voltages of electricity through this may have. I do wish Carly the utmost healing and peace.


_________________
I am not a textbook case of any particular disorder; I am an abstract, poetic portrayal of neurovariance with which much artistic license was taken.


Adamantium
Forum Moderator
Forum Moderator

User avatar

Joined: 6 Feb 2013
Age: 1019
Gender: Female
Posts: 5,998
Location: Erehwon

04 Dec 2014, 7:14 pm

I have only heard of electroconvulsive therapy being used for severe depression that doesn't respond to other treatments. I wonder what was going on here. The words are disturbing to read.



EzraS
Veteran
Veteran

User avatar

Joined: 24 Sep 2013
Age: 2000
Gender: Male
Posts: 20,254
Location: USA

04 Dec 2014, 7:19 pm

Jono wrote:
WTF did they do that for? After all the progress that she's made by learning to communicate through typing, they do this to her, why?


Exactly what I was going to say. Makes absolutely no sense whatsoever. This is very distressing to read about.



Protogenoi
Veteran
Veteran

User avatar

Joined: 24 Aug 2014
Gender: Female
Posts: 817

04 Dec 2014, 7:42 pm

Adamantium wrote:
I have only heard of electroconvulsive therapy being used for severe depression that doesn't respond to other treatments. I wonder what was going on here. The words are disturbing to read.


Even when treating something ECT is known to be possible to treat, like severe depression... it is known to cause some rather severe side affects... it's supposed to be a last resort treatment.


_________________
Now take a trip with me but don't be surprised when things aren't what they seem. I've known it from the start all these good ideas will tear your brain apart. Scared, but you can follow me. I'm too weird to live but much too rare to die. - a7x


Tawaki
Veteran
Veteran

User avatar

Joined: 30 Sep 2011
Age: 55
Gender: Female
Posts: 1,446
Location: occupied 313

04 Dec 2014, 7:43 pm

CockneyRebel wrote:
I also fail to see the joy in all this. ECT is painful to go through and not being able to communicate doesn't seem joyful to me. I wouldn't wish ECT on anybody.


ECT is bullshit. It's used for suicidally depressed people for have failed all other treatments, or for psychotic manias.

The short term memory loss is brutal for the average person.

Wonder what the hell happened that ECT was used? It has been offered to me, and I have flat out refused.



alex
Developer
Developer

User avatar

Joined: 13 Jun 2004
Age: 33
Gender: Male
Posts: 10,111
Location: Beverly Hills, CA

04 Dec 2014, 7:52 pm

Did Carly outline her reasons for wanting to do ECT before undergoing the procedure? It sounds like a pretty scary procedure with the risk of memory loss.


_________________
Follow me on Twitter: http://twitter.com/alexplank

Personal FB: http://fb.me/alexplank1


Swiper
Pileated woodpecker
Pileated woodpecker

User avatar

Joined: 8 Sep 2014
Age: 46
Gender: Male
Posts: 192

04 Dec 2014, 7:52 pm

LokiofSassgard wrote:
How the hell is that joyful? I'd like to know what the frick he's thinking calling it joyful


I think he is referring to the fact that she's finally able to communicate at all again.


_________________
Autism Spectrum Disorder, Level 1 (with language impairment) and Other Specified Anxiety Disorder
Aspie Score: 140 of 200, NT Score: 63 of 200
You are very likely neurodiverse (Aspie)


DevilKisses
Veteran
Veteran

User avatar

Joined: 3 Jul 2010
Age: 23
Gender: Female
Posts: 3,083
Location: Canada

05 Dec 2014, 1:01 am

That's very sad. I hope she recovers her brain and can get treatments that actually help her. I suspect she got ECT to get rid of her stimming.


_________________
Your neurodiverse (Aspie) score: 82 of 200
Your neurotypical (non-autistic) score: 124 of 200
You are very likely neurotypical