My new theory on self diagnosed autistics

Page 10 of 11 [ 163 posts ]  Go to page Previous  1 ... 7, 8, 9, 10, 11  Next

NowhereWoman
Velociraptor
Velociraptor

User avatar

Joined: 1 Jul 2009
Age: 56
Gender: Female
Posts: 499
Location: Los Angeles, CA

28 Oct 2015, 12:15 pm

League_Girl wrote:




People will believe whatever. If something is so uncomfortable to hear, they can just choose to believe it's not real. I think that is how people operate.


Yes, that can happen, but for some of us, we don't want to get upset/disturbed about something that may be being misrepresented, so we require at least basic evidence for a "shocker" story before getting upset about it. Nothing crazy, but at least something that supports the assertion being made. That's where I'm coming from, anyway.

I may be overly-logical but this is usually how I operate, especially as regards "viral videos" (i.e. the blinding), shows that are known to utilize sensationalism in order to get ratings (a standard M.O., I'm not saying they're The Debbil or anything :lol: ), etc. Again, if there's anything concrete about these stories, of course I'll believe them; I don't automatically disbelieve them, I realize there are "crazy" people out there, just saying a. I see no reason to believe without questioning, especially in a venue (internet, talk show) that relies on grabbing people's attention and would be interested in seeing links to some sort of evidence for them, and am also saying that even if true, they don't seem to necessarily support that faking autism, etc. is some sort of a larger or growing problem or whatever. That's just my personal view of all this.

I'm not trying to pick on your ideas, I hope you don't take it that way.



babybird
Veteran
Veteran

User avatar

Joined: 11 Nov 2011
Gender: Female
Posts: 64,354
Location: UK

28 Oct 2015, 12:35 pm

NowhereWoman wrote:
League_Girl wrote:




People will believe whatever. If something is so uncomfortable to hear, they can just choose to believe it's not real. I think that is how people operate.


Yes, that can happen, but for some of us, we don't want to get upset/disturbed about something that may be being misrepresented, so we require at least basic evidence for a "shocker" story before getting upset about it. Nothing crazy, but at least something that supports the assertion being made. That's where I'm coming from, anyway.

I may be overly-logical but this is usually how I operate, especially as regards "viral videos" (i.e. the blinding), shows that are known to utilize sensationalism in order to get ratings (a standard M.O., I'm not saying they're The Debbil or anything :lol: ), etc. Again, if there's anything concrete about these stories, of course I'll believe them; I don't automatically disbelieve them, I realize there are "crazy" people out there, just saying a. I see no reason to believe without questioning, especially in a venue (internet, talk show) that relies on grabbing people's attention and would be interested in seeing links to some sort of evidence for them, and am also saying that even if true, they don't seem to necessarily support that faking autism, etc. is some sort of a larger or growing problem or whatever. That's just my personal view of all this.

I'm not trying to pick on your ideas, I hope you don't take it that way.


So, with all that being said. Are you in support in some way of what the OP is saying or not?


_________________
We have existence


League_Girl
Veteran
Veteran

User avatar

Joined: 4 Feb 2010
Gender: Female
Posts: 27,205
Location: Pacific Northwest

28 Oct 2015, 12:41 pm

Ashariel wrote:
I agree that Munchausen's by Proxy is probably incredibly rare. But there is one situation that troubles me, with low-income parents seeking a disability ruling for their children, because SSI pays better than welfare:

http://www.boston.com/news/local/massac ... e_effects/

This article focuses on kids being wrongfully diagnosed and medicated for ADHD, as a work-around for welfare limitations. (I'm not sure if this is happening with ASD as well, but it could be a potential motivation.)




Stories like this will justify peoples beliefs about a kid's diagnoses being a fake and the fact they are just normal kids that need more discipline just because the family is poor or low income. These articles always frighten me.


_________________
Son: Diagnosed w/anxiety and ADHD. Also academic delayed.

Daughter: NT, no diagnoses.


League_Girl
Veteran
Veteran

User avatar

Joined: 4 Feb 2010
Gender: Female
Posts: 27,205
Location: Pacific Northwest

28 Oct 2015, 12:58 pm

NowhereWoman wrote:
League_Girl wrote:




People will believe whatever. If something is so uncomfortable to hear, they can just choose to believe it's not real. I think that is how people operate.


Yes, that can happen, but for some of us, we don't want to get upset/disturbed about something that may be being misrepresented, so we require at least basic evidence for a "shocker" story before getting upset about it. Nothing crazy, but at least something that supports the assertion being made. That's where I'm coming from, anyway.

I may be overly-logical but this is usually how I operate, especially as regards "viral videos" (i.e. the blinding), shows that are known to utilize sensationalism in order to get ratings (a standard M.O., I'm not saying they're The Debbil or anything :lol: ), etc. Again, if there's anything concrete about these stories, of course I'll believe them; I don't automatically disbelieve them, I realize there are "crazy" people out there, just saying a. I see no reason to believe without questioning, especially in a venue (internet, talk show) that relies on grabbing people's attention and would be interested in seeing links to some sort of evidence for them, and am also saying that even if true, they don't seem to necessarily support that faking autism, etc. is some sort of a larger or growing problem or whatever. That's just my personal view of all this.

I'm not trying to pick on your ideas, I hope you don't take it that way.



I understand what you are saying. My mom is the same way. She will be the first to tell me there is probably more to the story than what is being told. If something sounds f****d up, she will be skeptical. But of course she knows there are disturbed children out there and people. Which is why she will read different things on the same subject and if there is only one thing about it, she won't believe it and just take it as an opinion or perspective. I try to do that now.


_________________
Son: Diagnosed w/anxiety and ADHD. Also academic delayed.

Daughter: NT, no diagnoses.


Sweetleaf
Veteran
Veteran

User avatar

Joined: 6 Jan 2011
Age: 34
Gender: Female
Posts: 34,470
Location: Somewhere in Colorado

28 Oct 2015, 1:11 pm

Ashariel wrote:
I agree that Munchausen's by Proxy is probably incredibly rare. But there is one situation that troubles me, with low-income parents seeking a disability ruling for their children, because SSI pays better than welfare:

http://www.boston.com/news/local/massac ... e_effects/

This article focuses on kids being wrongfully diagnosed and medicated for ADHD, as a work-around for welfare limitations. (I'm not sure if this is happening with ASD as well, but it could be a potential motivation.)


Umm SSI is welfare....and it pays terribly, a low income pair of parents and their child could not live on SSI in any comfortable manner. Granted its possible in some cases fraud occurs but getting caught for faking disability or making your child fake disability is a very, very, very serious offense certainly not worth the measly SSI income.

edit* I have to say that article is dripping with BS...SSI does not pay thousands of dollars, it is a form of welfare and right off the article seems quite anecdotal. And that is just in the first couple sentences I dread to continue reading :roll:


_________________
We won't go back.


League_Girl
Veteran
Veteran

User avatar

Joined: 4 Feb 2010
Gender: Female
Posts: 27,205
Location: Pacific Northwest

28 Oct 2015, 1:21 pm

Sweetleaf wrote:
Ashariel wrote:
I agree that Munchausen's by Proxy is probably incredibly rare. But there is one situation that troubles me, with low-income parents seeking a disability ruling for their children, because SSI pays better than welfare:

http://www.boston.com/news/local/massac ... e_effects/

This article focuses on kids being wrongfully diagnosed and medicated for ADHD, as a work-around for welfare limitations. (I'm not sure if this is happening with ASD as well, but it could be a potential motivation.)


Umm SSI is welfare....and it pays terribly, a low income pair of parents and their child could not live on SSI in any comfortable manner. Granted its possible in some cases fraud occurs but getting caught for faking disability or making your child fake disability is a very, very, very serious offense certainly not worth the measly SSI income.

edit* I have to say that article is dripping with BS...SSI does not pay thousands of dollars, it is a form of welfare and right off the article seems quite anecdotal. And that is just in the first couple sentences I dread to continue reading :roll:



Probably not relevant her but I get social security for my kids because my husband and I are both on it. I am not sure how much they get but it is a lot less than $1,000 each so I can see how someone else might keep having children to get more from SSI for their kids because it all adds up.


_________________
Son: Diagnosed w/anxiety and ADHD. Also academic delayed.

Daughter: NT, no diagnoses.


Sweetleaf
Veteran
Veteran

User avatar

Joined: 6 Jan 2011
Age: 34
Gender: Female
Posts: 34,470
Location: Somewhere in Colorado

28 Oct 2015, 1:33 pm

League_Girl wrote:
Sweetleaf wrote:
Ashariel wrote:
I agree that Munchausen's by Proxy is probably incredibly rare. But there is one situation that troubles me, with low-income parents seeking a disability ruling for their children, because SSI pays better than welfare:

http://www.boston.com/news/local/massac ... e_effects/

This article focuses on kids being wrongfully diagnosed and medicated for ADHD, as a work-around for welfare limitations. (I'm not sure if this is happening with ASD as well, but it could be a potential motivation.)


Umm SSI is welfare....and it pays terribly, a low income pair of parents and their child could not live on SSI in any comfortable manner. Granted its possible in some cases fraud occurs but getting caught for faking disability or making your child fake disability is a very, very, very serious offense certainly not worth the measly SSI income.

edit* I have to say that article is dripping with BS...SSI does not pay thousands of dollars, it is a form of welfare and right off the article seems quite anecdotal. And that is just in the first couple sentences I dread to continue reading :roll:



Probably not relevant her but I get social security for my kids because my husband and I are both on it. I am not sure how much they get but it is a lot less than $1,000 each so I can see how someone else might keep having children to get more from SSI for their kids because it all adds up.


Yes but I imagine the amount of parents actually having more and more kids specifically to get more from SSI are a very small minority of parents who are collecting disability on behalf of their children. A parent collecting SSI for two children would then be getting less than 2,000 and so on. From what I understand pregnancies/having babies is not exactly cheap either. Also you wouldn't automatically get more SSI for each additional child...that would depend on if they are diagnosed as disabled or not.

So I kind of doubt the epidemic of lazy welfare parents having more and more kids just to get more SSI, as I say its probably a very small minority.


_________________
We won't go back.


Ashariel
Veteran
Veteran

User avatar

Joined: 16 Jun 2012
Gender: Female
Posts: 1,779
Location: US

28 Oct 2015, 2:25 pm

Thanks for the clarification on that article... Sorry for posting something that wasn't right! 8O



RhodyStruggle
Veteran
Veteran

User avatar

Joined: 7 Nov 2014
Age: 39
Gender: Male
Posts: 508

28 Oct 2015, 10:15 pm

DoNotDisturb wrote:
Can't we all just get along? Division always results in less.


Well, unless the dividend is greater than 1, and the divisor is between 0 and 1, exclusive. Or both the dividend and divisor are less than 0. In both cases, the quotient would be greater than the dividend.


_________________
From start to finish I've made you feel this
Uncomfort in turn with the world you've learned
To love through this hate to live with its weight
A burden discerned in the blood you taste


B19
Veteran
Veteran

User avatar

Joined: 11 Jan 2013
Gender: Female
Posts: 9,993
Location: New Zealand

29 Oct 2015, 5:42 am

Ashariel wrote:
Sweetleaf wrote:
I could be dead on the streets of a drug overdose or purposeful suicide if I had continued my self blame and increasing self loathing of everything that had gone wrong in my life.


My feelings exactly. If the alternative to self-diagnosis is this extreme level of self-blame, then I would far rather have people 'wrongfully' guessing they're autistic and finding the courage to keep living, instead of becoming just another statistic.


Yes, I prefer your compassionate viewpoints to the OP's dismissive generalising too; and this analysis found very high concordance rates of ASD scores between self and formally diagnosed:
http://abnormaldiversity.blogspot.co.nz ... nosis.html



whatamess
Veteran
Veteran

User avatar

Joined: 27 Aug 2007
Age: 56
Gender: Female
Posts: 1,284

02 Nov 2015, 10:28 pm

CWA wrote:
HisShadowX wrote:
whatamess wrote:
There are many parents out there who research autism and some come here asking for advice. They say things such as "my son does this, is this an autistic trait"? With research and noticing many of all of the signs of autism in their children, they push schools and doctors to get their child diagnosed...they are hardly ever wrong. Most kids diagnosed today were diagnosed because someone, not necessarily someone qualified to diagnose them, noticed the signs. With that said, I'm not sure why anyone would think that an adult can suspect that a child is autistic, but that same adult can't read the same information and see it in themselves, after all, nobody knows how we feel/see the world/our experiences better than we do.

PS getting a diagnosis as an adult is not always easy...sometimes it is terrifying...with the view of most of the world thinkin autistics are broken or need to be fixed, as a parent, it is terrifying to seek a diagnosis and not think about the possible consequences of having that diagnosis on paper. In a divorce having such diagnosis could be the basis for an ex to attempt to take your kids away, it could be the basis for social services to say you can't really take care of your children because you are autistic and are prone to meltdowns, depression, etc. So just because someone is not diagnosed, does not mean that the person is making it up...they may have many reasons for not seeking a diagnosis or being able to even get one.



Good point on parents "pushing their child to be disgnosised"

In another thread here someone listed a study out there showing 'High Autism Rates Due To Over-Diagnosis' which begs the question are parents pushing their children into doctors or therapists who are handing out the diagnosis of ASD like candy?

We have some self diagnosised people refuting those claims as well on that thread though they are not for the most part adding in things that were not said but adding them in, in an attacking in wolf pack type of mentality.

For the most part the "how dare you" responses with the attacks have added in things that haven't been said. As I said before I wont be addressing those specific comments as in past threads they won't stop until they bring anyone who does not worship at the altar of the self diagnosised to heel.

Though we may disagree in our points you made some interesting points in your post.


Really? Parents pushing their children to be diagnosed? Are you effing insane? Most of the parents I meet are in utter denial. There are SO many kids still not getting diagnosed, I know quite a few who are older and not diagnosed and a LOT of really obvious ones that weren't "caught" until age 5 or so. A lot of parents DON'T want a label on their child so they do everything they can to avoid it (my nephew... his parents just moved him from school, to school, to school... then when he'd been booted out of every school in the district they MOVED and started over). My oldest daughter Showed signs really young but getting anyone to pay attention to my concerns was IMPOSSIBLE because she was verbal. When I finally went around the pediatrician and scheduled something on my own they were in shock that she had gotten to age 5 without a diagnosis because it was blazingly obvious. Getting a diagnosis for children is difficult and the places I've been it is NOT handed out like candy and they will send you packing if they think your child is NT or has something else going on other than ASD.

If a parent is "pushing" for a DX it's because something is hinky with their kid. No one takes a kid with no issues and pushes for a DX. Give me a break.


NO I am NOT effing INSANE...I am telling you what I see every single day WHERE I LIVE...not where YOU live. Why is it so hard for you to actually read somethig and understand that things are NOT what you see around you ONLY? Where I freaking live that is the way it is. I see it everyday. I have spoken with MANY teachers, therapists, etc. here. In fact over 33% of the kids here have some type of disability, that is BS...it is made up because yes, WHERE I LIVE the parents get extra money NOT in SSI, it doesn't exist here, but in welfare, foodstamps, handicap parking spaces and MANY OTHER THINGS...so get over yourself and try to understand another's point of view and understand that there is an entire world out there NOT just your little world in whatever town you live in in the USA. Geez.



probly.an.aspie
Veteran
Veteran

Joined: 1 Oct 2015
Age: 45
Posts: 522
Location: U.S.A.

03 Nov 2015, 8:02 am

whatamess wrote:
CWA wrote:
HisShadowX wrote:
whatamess wrote:
There are many parents out there who research autism and some come here asking for advice. They say things such as "my son does this, is this an autistic trait"? With research and noticing many of all of the signs of autism in their children, they push schools and doctors to get their child diagnosed...they are hardly ever wrong. Most kids diagnosed today were diagnosed because someone, not necessarily someone qualified to diagnose them, noticed the signs. With that said, I'm not sure why anyone would think that an adult can suspect that a child is autistic, but that same adult can't read the same information and see it in themselves, after all, nobody knows how we feel/see the world/our experiences better than we do.

PS getting a diagnosis as an adult is not always easy...sometimes it is terrifying...with the view of most of the world thinkin autistics are broken or need to be fixed, as a parent, it is terrifying to seek a diagnosis and not think about the possible consequences of having that diagnosis on paper. In a divorce having such diagnosis could be the basis for an ex to attempt to take your kids away, it could be the basis for social services to say you can't really take care of your children because you are autistic and are prone to meltdowns, depression, etc. So just because someone is not diagnosed, does not mean that the person is making it up...they may have many reasons for not seeking a diagnosis or being able to even get one.



Good point on parents "pushing their child to be disgnosised"

In another thread here someone listed a study out there showing 'High Autism Rates Due To Over-Diagnosis' which begs the question are parents pushing their children into doctors or therapists who are handing out the diagnosis of ASD like candy?

We have some self diagnosised people refuting those claims as well on that thread though they are not for the most part adding in things that were not said but adding them in, in an attacking in wolf pack type of mentality.

For the most part the "how dare you" responses with the attacks have added in things that haven't been said. As I said before I wont be addressing those specific comments as in past threads they won't stop until they bring anyone who does not worship at the altar of the self diagnosised to heel.

Though we may disagree in our points you made some interesting points in your post.


Really? Parents pushing their children to be diagnosed? Are you effing insane? Most of the parents I meet are in utter denial. There are SO many kids still not getting diagnosed, I know quite a few who are older and not diagnosed and a LOT of really obvious ones that weren't "caught" until age 5 or so. A lot of parents DON'T want a label on their child so they do everything they can to avoid it (my nephew... his parents just moved him from school, to school, to school... then when he'd been booted out of every school in the district they MOVED and started over). My oldest daughter Showed signs really young but getting anyone to pay attention to my concerns was IMPOSSIBLE because she was verbal. When I finally went around the pediatrician and scheduled something on my own they were in shock that she had gotten to age 5 without a diagnosis because it was blazingly obvious. Getting a diagnosis for children is difficult and the places I've been it is NOT handed out like candy and they will send you packing if they think your child is NT or has something else going on other than ASD.

If a parent is "pushing" for a DX it's because something is hinky with their kid. No one takes a kid with no issues and pushes for a DX. Give me a break.


NO I am NOT effing INSANE...I am telling you what I see every single day WHERE I LIVE...not where YOU live. Why is it so hard for you to actually read somethig and understand that things are NOT what you see around you ONLY? Where I freaking live that is the way it is. I see it everyday. I have spoken with MANY teachers, therapists, etc. here. In fact over 33% of the kids here have some type of disability, that is BS...it is made up because yes, WHERE I LIVE the parents get extra money NOT in SSI, it doesn't exist here, but in welfare, foodstamps, handicap parking spaces and MANY OTHER THINGS...so get over yourself and try to understand another's point of view and understand that there is an entire world out there NOT just your little world in whatever town you live in in the USA. Geez.


I am mostly in agreement with those who feel that self-diagnosis is valid due to a variety of factors...however i can see where you are coming from here too, whatamess. I live in an area where ppl seem to be polar opposites on this--we have ppl such as myself and my family who tend to be in total denial of illness/disability until it "smacks them upside the head" so to speak, in a way that can't be ignored and must be dealt with.

Then we have a portion of our population in our locality who dress in expensive clothing, own stuff i myself can't afford, but live in trashy-looking abodes with junk all around and pull out access cards to pay for their chips, soda etc., while buying lottery tickets on the side. And teach their kids how to get on some type of disability as young as possible so they can play the system instead of being a contributing member of society. So yes, there are those who push for a diagnosis of something, anything, to get money or special treatment.

However, there are a lot of ppl, myself included, who find a self-diagnosis a huge sigh of relief as they can finally stop blaming themselves for things that are neurological issues rather than character weaknesses. Those are the ones i have sympathy for. The lady who pulls out her access card to pay for her soda, chips, and pizza at a convenience store while i am waiting to buy gas for my car or some other practical thing and go home and cook supper for my family because it is cheaper...her i have no patience or use for. (i realize that there are those who are legitimately on public assistance too and i am not directing my rant at those folks. I needed it once too, but thankfully, not any more. I am talking about those who play the system at the expense of us hard working ppl and then live at a higher standard than those of us who work to earn our money.)



HisShadowX
Deinonychus
Deinonychus

User avatar

Joined: 1 Apr 2015
Posts: 344
Location: Chicago

04 Nov 2015, 9:36 pm

Ashariel wrote:
Sweetleaf wrote:
I could be dead on the streets of a drug overdose or purposeful suicide if I had continued my self blame and increasing self loathing of everything that had gone wrong in my life.


My feelings exactly. If the alternative to self-diagnosis is this extreme level of self-blame, then I would far rather have people 'wrongfully' guessing they're autistic and finding the courage to keep living, instead of becoming just another statistic.


I can understand your logic in that. If someone is sucidal and he or she finds a group of people with a diagnosis they identity with and their mental health situation improves due to acceptance within this group isn't that a good thing?

I think in many ways it can be a good and bad thing. If someone can live life peacefully with their mind at ease isn't that a good thing? Yes, but life has a habit of catching up with all of us.

Again without the professional diagnosis from someone who is license to give an objective diagnosis what's to say that persons life won't come apart again without the proper treatment and care.

Every day in my city we deal with people with extreme psychosis who are better off in an Asylum but are literally kicked to the streets with free housing, food, and most importantly medication to keep them there psychosis in check.

But when they do not take their medicine they become a danger to themselves and other people.

My biggest fear when it comes to this crowd is what happens for those who are not autistic and do not receive the proper treatment.

Doctors miss diagnose people all the time granted but that miss diagnosis can have real consequences as that person can become impaired, injured or lose his or her life due to a miss diagnosis and can be a legal nightmare for the medical group the doctor is in.

That danger still exists when someone plays doctor as well.

If anything we as a country really need to jump start our care for those who have mental impairments.
l