I'd feel more comfortable with Asperger's if it was called s

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Joe90
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18 Nov 2015, 8:48 am

I'd feel more comfortable with telling people about my condition if it was called something like Emotional Communication Disorder or something like that. When you have a condition what is just a bunch of words abbreviated, it just sounds less cringing. You have an explanation for your odd behaviour and anxieties, but it doesn't sound so serious.

I was talking to a colleague who has a bowel problem what interferes with her life, and it has a medical name for it but I can't remember what it is. But she said that she feels more comfortable just calling her condition IBS (Irritable Bowels Syndrome), because the actual term for her condition makes her feel like she has some sort of disease. So saying to people that it's just IBS makes her feel more secure about her condition.

And I feel the same way about Asperger's. I'd rather say it in a different way to people. I just hate saying Asperger's. Does anyone know what I mean?


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kraftiekortie
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18 Nov 2015, 8:52 am

Yep...I know what you mean. Asperger's might, to some schmuck in the street, sound more "serious" than something like "Emotional Communication Disorder." I

t's almost as if it is serious enough to have a fancy name LOL



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18 Nov 2015, 9:08 am

Yeah I see that; and I wouldn't be surprised if there were even some, just some, very, very uninformed people who haven't heard of Asperger's and would think it might be some awful disease they could catch, or that you might die from.

Seriously, there is still ignorance out there and some people don't even have "Asperger's" on their general radar. Hence all the needing to explain further when we tell someone. This is why I haven't even bothered yet; I have some acquaintances it might be good to disclose to, but when I think of all the 'splainin' ..... it tires me out just thinking about it.



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18 Nov 2015, 1:42 pm

It's the curse of having a rare mental disorder that nobody heard of and nobody understands.
I could do without this so-called gift.


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18 Nov 2015, 1:47 pm

Joe90 wrote:
I'd feel more comfortable with telling people about my condition if it was called something like Emotional Communication Disorder or something like that.

Aye. This sounds like it can be way more "accessible" to non-professionals than Asperger's! I like it.



iliketrees
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18 Nov 2015, 1:57 pm

Closest thing I can think of to the name would be Social Communication Disorder, which is ASD without the repetitive behaviours. Could use that I suppose. :shrug:



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18 Nov 2015, 2:49 pm

iliketrees wrote:
Closest thing I can think of to the name would be Social Communication Disorder, which is ASD without the repetitive behaviours. Could use that I suppose. :shrug:


Yes, that would suit me too. My boss was saying yesterday that I am the quietest person in the office and was wondering if I was ok with my job. I said that I am and it's just my personality type that makes me quiet. If I start throwing the word aspergers around I don't know how that would go down.



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18 Nov 2015, 2:52 pm

I think there is more to Asperger's than just social communication problems. Also it makes it sound more like a horrible disease, which it is not, and that it needs to be cured no matter what the risk, which it does not need.

People on the spectrum can communicate, it just doesn't come naturally, which for some reason the NTs think it should because nothing else matters unless you have a social life. :roll:



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18 Nov 2015, 3:31 pm

Another option is just disclosing your traits on an as needed basis without giving it a label at all.


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18 Nov 2015, 3:51 pm

Joe90 wrote:
I'd feel more comfortable with telling people about my condition if it was called something like Emotional Communication Disorder or something like that. When you have a condition what is just a bunch of words abbreviated, it just sounds less cringing. You have an explanation for your odd behaviour and anxieties, but it doesn't sound so serious.

I was talking to a colleague who has a bowel problem what interferes with her life, and it has a medical name for it but I can't remember what it is. But she said that she feels more comfortable just calling her condition IBS (Irritable Bowels Syndrome), because the actual term for her condition makes her feel like she has some sort of disease. So saying to people that it's just IBS makes her feel more secure about her condition.

And I feel the same way about Asperger's. I'd rather say it in a different way to people. I just hate saying Asperger's. Does anyone know what I mean?


Ulcerative colitis or Crohns?


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18 Nov 2015, 4:01 pm

kraftiekortie wrote:
Yep...I know what you mean. Asperger's might, to some schmuck in the street, sound more "serious" than something like "Emotional Communication Disorder." I

t's almost as if it is serious enough to have a fancy name LOL


My name is Angie and I'm a schmuck - or used to be. Probably about 75% of people on the street are schmucks. I agree that it should be called something else and actually it's worse now being lumped in with Autism.


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18 Nov 2015, 4:12 pm

I don't mind if it's called ASD. Being labeled Asperger's or HFA might give someone the impression that don't struggle at all and that I can function well in life when I don't have a job, can't handle school, am far from being independent and live with my parents at 29, struggle socially, none of which I would call high functioning.



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18 Nov 2015, 5:57 pm

Noca wrote:
I don't mind if it's called ASD. Being labeled Asperger's or HFA might give someone the impression that don't struggle at all and that I can function well in life when I don't have a job, can't handle school, am far from being independent and live with my parents at 29, struggle socially, none of which I would call high functioning.

I like Asperger's as it is a set of definitions that fit me very well. ASD is just as less known.

But, eventually, something that is created (a word) to stand in for something perceived as negative, will eventually be considered negative itself.

Until this is a general issue that can be understood, instead of only by experts or the people who suffer from it, no name change will make it better for understanding from others. Look how long it has taken just for depression to be accepted. And, even now, it is still not accepted no matter how well it is understood.


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18 Nov 2015, 7:10 pm

I dont see why Dr. Hans Asperger could not have legally changed his name to....

"Leonardo Di Caprio".

That way I could tell folks that I've been dx'd with "Di Caprio's syndrome".

It just sounds so melodic.

The actor who starred in Titanic was born with some forgettable clunky heavy German name much like "Hans Asperger" before he changed it.

Of course on the other hand both "salmonella", and "melanoma", have beautiful melodic Italian sounding lilts. But that doesnt make either condition seem any more desirable to have.

So...scratch that idea.



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19 Nov 2015, 2:26 am

I'm not saying Social Communication Disorder should be a blanket diagnosis. But those of us who display less obvious symptoms, and are mostly affected by anxiety in nearly every aspect of life but able to live independently otherwise, we need a different spectrum name. So we still be on the Autism spectrum, but can be defined with something that sounds a little less...fancy. I think that would make my life a lot easier when having to disclose my condition to someone. I do say "anxiety disorder", or "panic disorder", but I'm not sure if that would explain my quirky personality. But I do believe I have ADHD as well, which I do have a lot of symptoms of.


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19 Nov 2015, 2:33 am

ASPartOfMe wrote:
Another option is just disclosing your traits on an as needed basis without giving it a label at all.

it's what i do. :rambo:


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