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IstominFan
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14 Apr 2019, 9:02 am

Please continue posting here, firemonkey. You always have good things to say.



CockneyRebel
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16 Apr 2019, 4:11 pm

I enjoy reading your posts. I want you to stay.


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firemonkey
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16 Apr 2019, 5:24 pm

Thanks all of you. Did anyone else go through negative second guessing over the assessment process,or were you all supremely confident you were on the spectrum?

I feel like a lot is resting on the ADOS, and as with any future event that is a journey into the unknown I'm catastrophising.
I guess I'm relying heavily on this to fix the pieces into the jigsaw of my life.


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Claradoon
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16 Apr 2019, 9:24 pm

I didn't worry about the outcome of the Dx because I don't trust doctors.
Any Dx can be mistaken. I sought a Dx because it would shut up the
naysayers, the people who offer their own opinion, e.g. "You can't have
Asperger's, you just smiled." That kind of thing comes up too often.
So then I could ignore the peanut gallery and get on with my life.

I was sure I had Asperger's but nobody ever respected my beliefs about
anything. I got the Dx to clear my way of other people. Does that make
any sense?


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firemonkey
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17 Apr 2019, 2:26 am

You obviously have more self confidence than me. Mine is in the toilet. Over 46 years I've had some shitty psychiatrists so know they are not always to be trusted. I tend to go on the basis of innocent until they prove themselves guilty though.

My own research points to NVLD being a stronger fit than ASD,though I know it's possible to have both. They don't cover that. In fact the assessor when I mentioned it had never heard of it.

However I've heard it said that in the UK dyspraxia gets diagnosed when in the USA the same set of symptoms would get you a NVLD diagnosis.


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Your neurodiverse (Aspie) score: 133 of 200
Your neurotypical (non-autistic) score: 47 of 200
You are very likely neurodiverse (Aspie)


Claradoon
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17 Apr 2019, 3:18 pm

firemonkey wrote:
You obviously have more self confidence than me. Mine is in the toilet. Over 46 years I've had some shitty psychiatrists so know they are not always to be trusted. I tend to go on the basis of innocent until they prove themselves guilty though.

My own research points to NVLD being a stronger fit than ASD,though I know it's possible to have both. They don't cover that. In fact the assessor when I mentioned it had never heard of it.

However I've heard it said that in the UK dyspraxia gets diagnosed when in the USA the same set of symptoms would get you a NVLD diagnosis.

NVLD (Non-Verbal Learning Disability)- a disorder characterized by a discrepancy between higher verbal skills and weaker motor, visual-spatial and social skills.

I'm not used to UK/CAD differences in Dx. Could it be that NVLD was invented after ASD was lumped in with Autism? Maybe by way of getting rid of the label? And reinstating the "higher verbal" of Asperger's?

Does UK use the DSM-5? The current definition of Asperger's/Autism is so confused and vague that the doctors are still arguing and don't use it as the definition it should be. So I would ask you to have as much appreciation of the vulnerability of doctors as I do. It's not self-confidence.

I hope you're not looking to be labeled! Of course, I use the label to gain entrance to programs, if I need to. But there's no other reason to accept a label as a self-definition. It might be used as a take-off point, as in "If this label fits, then the following remedies will work."


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firemonkey
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17 Apr 2019, 4:26 pm

The UK uses the ICD 10 (I think) . It's about hopefully fitting the pieces of a puzzle together, and if that comes with a label so be it.


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Your neurodiverse (Aspie) score: 133 of 200
Your neurotypical (non-autistic) score: 47 of 200
You are very likely neurodiverse (Aspie)


kraftiekortie
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17 Apr 2019, 6:44 pm

The ICD-10 is sometimes used even in the United States. I worked in a place where I had to type in ICD-10 codes.

I'm not sure if the DSM-V is used in Europe at all.



rowan_nichol
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18 Apr 2019, 9:21 am

I have the impression that around the mind, both the DSM and ICD are used for reference.

The Retreat is on the record as using DSM 5 for its Adult Diagnosis work, and my own assessment makes reference to the criteria of DSM 5.



AnonymousAnonymous
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21 Apr 2019, 5:19 pm

Please stay, Sir Fire Monkey. You always have great guidance to give to those who seek it.


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fluffysaurus
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23 Apr 2019, 3:47 am

How are things going?

I can see I benefited from having no hope. I thought the assessor would laugh at the idea I was Asperger, the

extremely experienced councilor had several years earlier when I went for CBT. I only got put on the waiting list

because I was lucky enough to get a very inexperienced doctor who had to google Asperger who wasn't able to

find a senior doc to ask what to do so she referred me. Basically I railroaded her.

I went to my assessment thinking this was the first of many attempts to find the answer and got the answer. My

'oh my God this woman understands me' moment came half way through the first question (she let me finish

answering it :o ). I'm sorry it's all been more difficult for you, but I think while I was a very odd horse, I'm quite

cookie cutter unicorn, you're obviously more unique.


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Dear_one
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25 Apr 2019, 6:18 am

Still here, huh? It's like having a two year old who types. I'd answer a question if I though you'd ever take time to reflect on it.



firemonkey
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25 Apr 2019, 6:45 am

Was there really a need to be so rude?


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Your neurodiverse (Aspie) score: 133 of 200
Your neurotypical (non-autistic) score: 47 of 200
You are very likely neurodiverse (Aspie)


AnonymousAnonymous
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25 Apr 2019, 6:18 pm

firemonkey wrote:
Was there really a need to be so rude?


I'm wondering about this as well.


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jifmam j jasond
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25 Apr 2019, 6:31 pm

There's no excuse for rudeness.
...
Sounds like someone needs a sound thrashing about the head with a 5 kg teaching mallet (available in stores in time for Christmas).
Makes a wonderful gift for dealing with bluntskulls.