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Mona Pereth
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31 Oct 2019, 3:34 am

cyberdad wrote:
Point taken...the "autistic community" only includes high functioning adults...message received loud and clear

Depends you mean by "high functioning."

Obviously, people who can't communicate at all can't participate in a community of any kind.

But, here on Wrong Planet and other autistic online forums, there are at least a few people who can't talk but can type. (Example: Ezra here on WP.) Also here on WP, there are quite a few people who have identified themselves as being Level 2.

Also, in one of the support groups I attend, there's at least one person with mild intellectual disability. (He often mentions being a participant in the "Special Olympics," which are for intellectually disabled people.)

There's more that the autistic community can and should do in order to be more inclusive of relatively severely disabled autistic people -- although there are, unfortunately, limits to how far we can go in that regard.


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cyberdad
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31 Oct 2019, 4:49 am

Mona Pereth wrote:
There's more that the autistic community can and should do in order to be more inclusive of relatively severely disabled autistic people -- although there are, unfortunately, limits to how far we can go in that regard.


I'm not disagreeing with you, just pointing out that you referred to this as an "autistic community", I think what you mean is you are trying to create an "Aspergers" community.

Some years ago I met a fairly wealthy business owner who an his own IT company. As we talked he revealed he had Aspergers (there was a couple of things he was self-conscious about and thought he should explain to me).

Like you he had plans to create a community of adults but he was very particular he wanted a network of "successful" professionals with Aspergers. His idea actually had merit.

I didn't keep in touch despite accepting his facebook friendship, main problem I had was an attitude that people like him didn't want to have anything to do with lower functioning people on the spectrum as if they don't matter. I think part of the issue was he lacked a filter for politeness/refinement but he may have developed values (growing up) that autism was associated with not progressing. As I said he was quite wealthy and successful so I had nothing but respect for his tenacity and hard work. But lets be fair, he demonstrates better than anyone that there are two autistic communities in the world.
- Folks who live with dependents
- Folks who are independent



Mona Pereth
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31 Oct 2019, 1:15 pm

cyberdad wrote:
I'm not disagreeing with you, just pointing out that you referred to this as an "autistic community", I think what you mean is you are trying to create an "Aspergers" community.

No, certainly NOT that narrow. I myself don't quite fit the DSM IV definition of "Asperger's disorder." (I was developmentally delayed, including speech delay.)

EDIT: I consider this misunderstanding between us to be a derailment of this thread. If you still want to claim that the adult autistic community is an Aspie-only community, or that I'm trying to build an Aspie-only community, please do so in one of the threads linked below, rather than here in this thread.

I just now created the separate thread The autistic community and the autism parents' community, and I've replied to the remainder of your post here in that thread.

Alternatively, if you wish to argue a separation between "Aspergers" and "autism," perhaps we can have that discussion in "Autism" definition wars thread.


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cyberdad
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02 Nov 2019, 12:20 am

Actually how am I derailing this thread? we are talking about "building" the autistic community

I correctly pointed out that you are giving people the impression there is one autistic community when infact you contradicted yourself saying that there are exclusion criteria against children, low-moderate functioning autistic people and their parents.

That means you are creating divisions....



Mona Pereth
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02 Nov 2019, 5:50 pm

cyberdad wrote:
Actually how am I derailing this thread?

Not just you, but our (your and my) misunderstanding is/was derailing this thread.

If you don't understand why, please just humor me. I'm the O.P. and I said so. See also my more substantive reply here, in the other thread.

Everyone, please don't reply to this message here in this thread. Please reply only to my more substantive reply here, in the other thread. Feel free to continue any meta-discussion there too, in the other thread. Just not here in this thread, please.


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Jakki
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03 Nov 2019, 10:19 pm

auntblabby wrote:
in my last aspie group, it was divided between those with renumerative talents [programming, maths, hard sciences] and those of us lacking any earthly talents. when the talented ones went away to join others of like mind, what was left of the group seemed to evaporate. i was clueless as to what to do about this. a lot of the other members didn't really want to interact, to be honest, preferring to bury their noses in their respective smartphones. a brief rule about no smartphones on the table resulted in sullen silence. threw up hands.

Very good observation ... ! And agrees with no phones at table idea...
But a entire ggeneration has been spoon fed internet access ?
Need something ageeable . Like a large screen monitor . And 1 moderatoe of the meering having control . Verbal discussion based on what the entire group is reading .


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13 Nov 2019, 9:05 pm

My idea is to include some sort of activity with the meeting. My preference would be walking in the woods. I'm sure someone can think of some indoor activities too. My aspie teen daughter attends a facilitated meeting and the leader uses this approach and encourages the group to meet for other activities too.


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Jakki
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14 Nov 2019, 1:02 am

CarlM wrote:
My idea is to include some sort of activity with the meeting. My preference would be walking in the woods. I'm sure someone can think of some indoor activities too. My aspie teen daughter attends a facilitated meeting and the leader uses this approach and encourages the group to meet for other activities too.

Actually would like this based in a real life world. Activities that might transcend .. levels of the spectrum people were on ...... this could go onto several levels , and if peoples found outside commonalities .. so be it .
If sharing , fits , so be i
t .. but reponsible , thinking hfa peoples . Might try to oversee , for potential problems , depending on their own level of social skills and empathy towards others in the group .And endurance levels regarding these type of interactions


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