Page 3 of 3 [ 35 posts ]  Go to page Previous  1, 2, 3

cyberdad
Veteran
Veteran

User avatar

Joined: 21 Feb 2011
Age: 52
Gender: Male
Posts: 10,691

20 Sep 2019, 6:30 pm

Mona Pereth wrote:
This is one of the reasons why both autistic people and parents/family need to create organizations that are independent of the professional establishment, to pressure the research establishment into dialog.


I have been trying for a number of years and I have some bad news. Lets start with the parents. The parents are mix of backgrounds and demographics who naturally carry suspicion/reservation about opening up to people they don't know or trust. It's not too different to making friends with strangers; except the only thing that draws us together is having one or more children with autism. Solidarity with parents only goes as far as brief fleeting conversations but beyond that nothing further.

So that leaves professionals (teachers, speech therapists and psychologists) who act as go-betweens bringing parents and children together. I have met plenty of autism specialists and academics now. None of them actually have a direct personal link to autism. They all have NT children so how could they understand?. It seems they have chosen this as a career path out intellectual curiosity or as a way of earning money. That is the sad fact. Speaking to one woman who is an autism researcher her eyes are like glass, not a shred of empathy/sympathy for people like us. This isn't just hyperbole, they are not out friends, they are just beneficiaries of our own trials and tribulations which allows them to get business class air tickets to conferences and expensive European cars and nice mansions in leafy suburbs. I find the commercial aspect of their services compromises trust and (in my view) is a conflict of interest.

Next are the children. Autism is a spectrum. Children/adolescents with autism are already rather withdrawn socially and for them to connect with other children they need to have common interests and common levels of communication skills. This is hit and miss. My daughter's experience hasn't been great, like other girls with autism she has had equally limited success in making friends with girls on the spectrum as she has making friends with NT girls. Therefore if the kids aren't friends then how do you expect the parents to justify meeting up?



Mona Pereth
Veteran
Veteran

Joined: 11 Sep 2018
Age: 61
Gender: Female
Posts: 1,912
Location: New York City (Queens)

01 Oct 2019, 5:53 am

Let's continue the discussion about organizing in a separate thread, in either the Autism Politics, Activism, and Media Representation sub-forum or the Social Skills and Making Friends sub-forum.

To bring this thread back on topic:

I just now I found the following article by John Elder Robison:

Autism at Work Today and Tomorrow.
Neurodivergent people are finding their way, but more progress is needed.
Jan 22, 2019.


_________________
- My WP Friendship Board - Age 19 Onward post, November 2019.
- My WP Regional Meetup & Networking Thread Index post, August 2019.
- My WP "Getting to know each other" thread: Hello from NYC, begun October 2018.


SocOfAutism
Veteran
Veteran

Joined: 2 Mar 2015
Gender: Female
Posts: 2,540

01 Oct 2019, 10:36 am

I feel like the problem isn’t so much that autistic people need to be recruited for more jobs, but that workplaces are not autism friendly.

An autism friendly workplace would benefit NTs and other neuro types too. Do they NEED all those meetings? Do you HAVE to have all the face to face time and groups to get something done? Productivity and comfort could easily be raised for all people with a few autism friendly modifications.



Mona Pereth
Veteran
Veteran

Joined: 11 Sep 2018
Age: 61
Gender: Female
Posts: 1,912
Location: New York City (Queens)

16 Oct 2019, 3:45 am

One good still-small but hopefully growing trend: How remote work is quietly remaking our lives by Rani Molla, Oct 9, 2019. (Working from anywhere: the good, the bad, the lovely.)


_________________
- My WP Friendship Board - Age 19 Onward post, November 2019.
- My WP Regional Meetup & Networking Thread Index post, August 2019.
- My WP "Getting to know each other" thread: Hello from NYC, begun October 2018.


Dial1194
Snowy Owl
Snowy Owl

User avatar

Joined: 3 Jul 2019
Age: 119
Gender: Male
Posts: 127
Location: Australia

16 Oct 2019, 7:22 am

SocOfAutism wrote:
I feel like the problem isn’t so much that autistic people need to be recruited for more jobs, but that workplaces are not autism friendly.


I wonder what an autistic-friendly job ad would be like. "No meetings, work from home at your own pace, pays exactly X amount per hour/item. Other benefits listed in full at [link]. No social club, no social events, no requirement for socializing in general. Full comprehensive instructions available for every aspect of the job. Clarification questions welcome. Union-friendly but not mandatory; more information at [other link]. No formal qualifications required. Qualifications which may assist your application include A, B, and C. Preference also given to backgrounds which include D, E, and F. All applications will be individually responded to with feedback."