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Arganger
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12 Jun 2019, 10:15 am

I have bad joint pain, that has been getting worse. My mom also does.
My little brother who other than my mom I spend the most time watching and interacting with, we think is causing our already weak painful joints to get worse from picking him up.

The pain is at the point that I hardly want to do anything many days, it's draining me like a battery. Now, I've always has some level of chronic pain but this is getting out of control. The doctor is no help, really, and it will be a long time before I can see a specialist.

Anyway, things are getting tense at times between me and my mom. Her pain is also getting worse, so she's frustrated that people aren't helping out more, and being more responsible for their own things. I feel like she doesn't really appreciate what I do do for her, like the hours daily I watch my little brother, and mostly focuses on what I can't do. Not to mention I have school work to do over the summer and that takes a LOT out of me.


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Diagnosed autistic level 2, ODD, anxiety, dyspraxic, essential tremors, depression (Doubted), CAPD, hyper mobility syndrome
Suspected; PTSD (Treated, as my counselor did notice), possible PCOS, PMDD, Learning disabilities (Sure of it, unknown what they are), possibly something wrong with immune system (Sick about as much as I'm not) Possible EDS- hyper mobility type (Will be getting tested, suggested by doctor) dysautonomia


IsabellaLinton
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12 Jun 2019, 10:21 am

Do you have any idea what's causing the pain?

If you do see your doctor, you may want to seek a referral to Rheumatology for arthritis (obvious), or even autoimmune issues such as Lupus. Chances are it's from repetitive strain but you want to make sure, especially if your mother has the same symptoms.

Feel better soon!



kraftiekortie
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12 Jun 2019, 10:21 am

I wish I could help more. I definitely support you.

What is it that causes the chronic pain?



Arganger
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12 Jun 2019, 10:41 am

We don't know the cause of the pain, My mom has been tested and other than in one of her toes, doesn't have arthritis. She at least is going to be tested for autoimmune issues.

The specialist I mentioned is a geneticist as we are suspected to have h-EDS, which causes chronic pain among other things, and loose, easily damaged joints.


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Diagnosed autistic level 2, ODD, anxiety, dyspraxic, essential tremors, depression (Doubted), CAPD, hyper mobility syndrome
Suspected; PTSD (Treated, as my counselor did notice), possible PCOS, PMDD, Learning disabilities (Sure of it, unknown what they are), possibly something wrong with immune system (Sick about as much as I'm not) Possible EDS- hyper mobility type (Will be getting tested, suggested by doctor) dysautonomia


IsabellaLinton
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12 Jun 2019, 10:44 am

Arganger wrote:
We don't know the cause of the pain, My mom has been tested and other than in one of her toes, doesn't have arthritis. She at least is going to be tested for autoimmune issues.

The specialist I mentioned is a geneticist as we are suspected to have h-EDS, which causes chronic pain among other things, and loose, easily damaged joints.


I know someone with EDS, and I think there's a thread here somewhere.

Hugs. I hope you find the cause, and can feel better soon. Have you tried Tylenol Arthritis, or Motrin / Naproxen?



PoseyBuster88
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12 Jun 2019, 11:15 am

That sounds awful. I have issues with my joints popping in and out of place from carrying a little kid, but not as bad/constant as you do.

Could you look into ways to limit how much you both have to pick up your brother? Like maybe get a little wagon he can climb onto and then you guys pull him from room to room? Something like that? One thing I do is change diapers on the floor instead of lifting my kid onto a changing table each time. We also have a chair he sits on on the floor to eat (we just sit around the coffee table instead of a dining room table) - again, less lifting. And sometimes he just doesn't get picked up when he wants. If I am busy and don't feel up to holding him while I cook or whatever, he has to learn to be patient.

You could also look into whether chiropractic care is recommended for H-EDS? That gave me at least temporary relief back when I could afford it. But I don't know if I have H-EDS or just wiggly joints for some other reason.


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Mountain Goat
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12 Jun 2019, 11:20 am

You probably have tried these ideas, but just in case.. Avoid acidic foods like tomatos, fruits etc.. You may well already know this. I hope rhe pain subsides for both you and your mum.


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Lone Replicant
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12 Jun 2019, 1:54 pm

I have some chronic pains and that made me so tired that at a certain point I started to think a lot about suicide. All I needed was some rest to move on. So I'll tell you two things that helped me and one that you shouldn't try at all. First: MDMA. MDMA will not heal you but there is a chance to make your pain go away for a few hours and also make your emotional charge go down a lot. But MDMA should never be used continuously. Only in those moments when the weight of the pain is already practically unbearable and in case nothing else is working. Second: VERY cold bath. Bathing on a beach or waterfall with extremely cold water can make the pain go away for some time. Avoid at all costs: Fentanyl. Using Fentanyl when you have chronic pain is like making the worst possible pact with the worst possible demon.

Translated with www.DeepL.com/Translator


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timf
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13 Jun 2019, 1:24 pm

I have found glucosamine and chondroitin help with my knee pain. I think it depends on the type of joint pain, I do not think there is much risk in trying, and if it works so much the better.



leahbear
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13 Jun 2019, 3:19 pm

Have you tried seeing a naturopath or functional medicine doctor? I was living with daily pain and tried every treatment my doctors had and nothing worked for me. I saw a naturopath and she sorted out my gut and my diet and it helped all of my chronic conditions and now I have almost no pain. I had thought I was going to be in pain every day for the rest of my life. They look at your health as a whole and try to find the root cause of why you’re symptomatic and then gently ease your body back to health. My body overreacts like crazy to most medications but does well with supplements. Something to keep in mind if you’re not satisfied with the treatments you’re being offered.