SCARY. Response to another thread but deserves a new thread

Post Reply New Topic

Obstructive Sleep Apnea

I think it’s because their intuitive empathy assumes another NT on the other end, gives them faulty information when interacting with us if they’re not making a conscious effort to overrule it: which I suppose must be hard work for them, because it’s unusual for them to have to deal with a divergent mind.
Could be, there certainly are many things that I do slower than most other people I know: although walking isn’t one of them, I have an optimum pace speed which I’ve been told is punishingly fast! I get tangled coordination and arrhythmic steps when I slow down to what I’m told is a normal speed.
Yes: I watched a few YouTubes on the subject by trekkers/mountaineers and “stop what you’re doing and rehydrate immediately” was emphasised by all of them.
I do get sudden fluctuations in my heart rate: but I’ve never noticed it as being connected to my breathing.
Mine too! They normally put them in jars in this country and allow you to keep them (or at least they did twenty~ years ago), but mine was too big for the jar: the surgeon made a point of telling me it was the biggest unburst one he’d seen in his career.
She was quite elderly: I think I just had the bad luck to get one of the last of the Freudians to still be practicing in a quiet rural corner of the NHS

Haha! Yes, I can only think that they did send the letter, but to my old address and the estate agents were slack and didn’t forward the post.
No idea why a referral would be cancelled due to not turning up to a group session though: so maybe that was the practice head covering up one of his junior staff members making a mistake. He did restart the process in that appointment.

Whichever, I’ll just have to get on with it without having a grudge: they’re reputed to be the best GP surgery in the shire so probably in my best interest not to!

(Hope my effort to get all the quote boxes lined up correctly works!)

Ah, Thank you!

I have to copy/paste this because captcha won't allow me to do a quote response. It might be because the quote response has become too big. But whatever the reason, it's infuriating.

... A Minor. [quote=Skibum] Nice!! Very cool!![/quote]

... a divergent mind [quote=Skibum] Yes. I always say this and I mean it, very few nts I have ever met have any theory of mind. All the textbooks accuse us of not having it but many of us have it in droves. We have to to constantly be accommodating the fact that they have none. [/quote]


Could be, there certainly are many things that I do slower than most other people I know: although walking isn’t one of them, I have an optimum pace speed which I’ve been told is punishingly fast! I get tangled coordination and arrhythmic steps when I slow down to what I’m told is a normal speed.

[quote=Skibum] That is funny. I can't keep up with anyone when I am walking. [/quote]

..., in retrospect, strange experiences with medical bods though.
[quote=Skibum] I get heart palpitations too but I don't think it's related to hydration even though hydration helps because it helps with everything. I have to manually bring my heart rate down every time it palpitates. I noticed that I usually get the palpitations when I am lying down. When I told this to one doctor, she said, chest pains and palpitations must just be my normal because nothing shows up on an EKG. [/quote]

It took them a decade (age 8 to 18) to interpret what I was describing and realise I had a dodgy appendix: by the time it was diagnosed they had to rush me to theatre instantly ahead of the queue to get it out before it burst and became peritonitis.[/quote]
[/quote] Mine too! They normally put them in jars in this country and allow you to keep them (or at least they did twenty~ years ago), but mine was too big for the jar: the surgeon made a point of telling me it was the biggest unburst one he’d seen in his career.

No idea why a referral would be cancelled due to not turning up to a group session though: so maybe that was the practice head covering up one of his junior staff members making a mistake. He did restart the process in that appointment.

Whichever, I’ll just have to get on with it without having a grudge: they’re reputed to be the best GP surgery in the shire so probably in my best interest not to! [quote=Skibum] Sounds like a "cover up" to me! Happens all the time. [/quote]

(Hope my effort to get all the quote boxes lined up correctly works!)[/quote]

[quote=Skibum] Your quote boxes turned out well! [/quote]

By the way, K, I also talk to myself out loud all the time for the same reason that you do.

Does it take you to an error message in black text on a plain white screen? If so click the browser back button to get back to I’m not a robot, then click back again and it should take you to the text input box with your post still there. Click submit again and eight times out of ten it’ll just do it without captcha re-occurring. (I found that out by accident last week)

Yes: I think the phrase Theory of Mind misuses the word ‘theory’. I’ve noticed that with Mrs K when talking about the problems and relationships of her friends and family, she assumes a sane NT mind that places practical logic and rational interest at the centre of analysis in other people, because that’s what she does: it takes me pointing out that they’re not operating like that for her to grasp, for instance, why her severely paranoid brother-in-law is acting the way he is.
’Tis funny.
I omitted to congratulate you on your athletic achievement: that is very impressive now I stop to take it in! Well done

I usually get them when I’m sat or lying down: I mentioned them because they came up as a symptom in the Altitude Sickness videos. I have to make a conscious effort to calm it down too: breathing very slowly and as deep as I can works for me, so maybe it is breathing related...

Well I did too! All the other kids got to keep their appendix’s! Grrrrr
Yep, otherwise things can go awry... I’ve just managed to put dinner on half an hour later than I should have it’ll all come out right though

Excellent!
Yes, I do tend to spend quite a bit of time fiddling with the layout on some of my posts: some of the ones in PPR even have footnotes!

Thank you K!

OMG you guys!! ! I am so infuriated by this doctor's office. So I figured out that as long as I stay super hydrated, like a gallon of water a day, I can avoid the high altitude sickness symptoms but I have to stay super hydrated. Now I just have my usual breathing issues that I have all the time.

So I was supposed to have my doctor's appointment with my GP this afternoon. When I had talked to the last after hours on call doctor he told me to come into the office for the visit. So I agreed to. But yesterday, the doctor's office called me and told me that I had to put the zoom app on my phone because they did not want me to come in and they were requiring me to do not just a phone call but a video call. So I had to download zoom and then the lady from the doctor's office spent the next forty minutes walking me trough the zoom setup. I asked her why I couldn't just come in and she said no, I would not be able to and that I was required to do the zoom video call. So I was like, OK, I guess I don't have a choice.

So today I was waiting for this call and it never came. 20 minutes after my scheduled appointment time, I called the doctor's office and they told me, "You missed your appointment." I was like, "What are you talking about?" and she said, "You were supposed to come in." I told her exactly what happened and she said, "I don't know what happened." I said, "I just told you what happened." Then she said that she did not know when they would be able to reschedule. But fortunately I got a call from the doctor herself a few minutes afterwards. She apologized and rescheduled for me to be able to physically come in tomorrow. Even though the hydration is taking care of the high altitude sickness symptoms, she still wants to see if we can find a way to help with the regular breathing issues that I have so she wants to physically see me. I will let you know what happens.

^
Right royal cock-up with denial for afters.
Still, at least you get to see the doc in person now.

Attempting to see an upside to the general shenanigans

I know right?! ! Like they think we aren't going to notice that they screwed up and are trying to blame us for their mistakes. It's infuriating as all get up. But yes, I am very grateful that this doctor stepped in and did not justify their mess.

Best of luck this time! Could you do an at-home sleep study to check for apnea? I’ve never done it like that myself, but maybe it would be easier to arrange than staying overnight at a clinic.

Thank you so much Anne. I went to the doctor today. They did blood tests. I already got the results. Everything is in normal range except one which is one point high so we will look into that if needed. She did order a two night sleep apnea test as well. It has to be one in the hospital because of the monitoring that they do. Once they start doing these nonessential things again they will do the test so hopefully it will be very soon.