Page 1 of 2 [ 16 posts ]  Go to page 1, 2  Next

firemonkey
Veteran
Veteran

User avatar

Joined: 23 Mar 2015
Gender: Male
Posts: 4,019
Location: Calne,England

23 May 2020, 10:56 am

Have you ever come across a person saying they're on the spectrum(dxed as such) but are level 0, and see themself as requiring very little support?


_________________
Support mental health research
Please support mental health research
http://www.mentalhealthresearchuk.org.uk/
http://mcpin.org/
https://www.mqmentalhealth.org/


Your neurodiverse (Aspie) score: 133 of 200
Your neurotypical (non-autistic) score: 47 of 200
You are very likely neurodiverse (Aspie)


naturalplastic
Veteran
Veteran

User avatar

Joined: 26 Aug 2010
Age: 65
Gender: Male
Posts: 22,952
Location: temperate zone

23 May 2020, 11:19 am

No.



firemonkey
Veteran
Veteran

User avatar

Joined: 23 Mar 2015
Gender: Male
Posts: 4,019
Location: Calne,England

23 May 2020, 11:23 am

Another question . When does an impairment( required for dx) become or not become a disability?


_________________
Support mental health research
Please support mental health research
http://www.mentalhealthresearchuk.org.uk/
http://mcpin.org/
https://www.mqmentalhealth.org/


Your neurodiverse (Aspie) score: 133 of 200
Your neurotypical (non-autistic) score: 47 of 200
You are very likely neurodiverse (Aspie)


Joe90
Veteran
Veteran

User avatar

Joined: 23 Feb 2010
Gender: Female
Posts: 17,601
Location: Maidstone, UK

23 May 2020, 12:00 pm

I think level 0 might mean PDD-NOS, which a few people in my family seem to have. They don't seem impaired by any of their symptoms but they still have the traits.


_________________
Female
Aged 30
On antidepressants
Diagnosed with AS, ADHD and anxiety disorder


naturalplastic
Veteran
Veteran

User avatar

Joined: 26 Aug 2010
Age: 65
Gender: Male
Posts: 22,952
Location: temperate zone

23 May 2020, 12:19 pm

Joe90 wrote:
I think level 0 might mean PDD-NOS, which a few people in my family seem to have. They don't seem impaired by any of their symptoms but they still have the traits.

The one person I have met with PDD-NOS (a guy at a autism support group with his NT mom) was obviously seriously impaired.



naturalplastic
Veteran
Veteran

User avatar

Joined: 26 Aug 2010
Age: 65
Gender: Male
Posts: 22,952
Location: temperate zone

23 May 2020, 12:20 pm

firemonkey wrote:
Another question . When does an impairment( required for dx) become or not become a disability?


If youre impaired then youre impaired. Its a disability!



naturalplastic
Veteran
Veteran

User avatar

Joined: 26 Aug 2010
Age: 65
Gender: Male
Posts: 22,952
Location: temperate zone

23 May 2020, 12:25 pm

But ...let's play with idea for a moment.

An autism spectrum person, who had a savant skill that was highly marketable could theoretically earn so many stacks of green that they would be able to pay the rent etc, and not need any support. Even though they might might judged as being level 1, or level 2, if they only had a normal average NT aptitude for that thing that they happened to have a savant skill in.

Am thinking of two people, one fictional, and one real. The fictional person is Sheldon Leonard. And the real person is a young lady I used to know who was a mental patient, and who had many aspie traits (though never diagnosed with aspergers), who happened to be a wiz at computer programming. And now has a great job as a systems analyst , and earns stacks of green.

So this young lady, and Sheldon, maybe might be classified as "level zero".



Joe90
Veteran
Veteran

User avatar

Joined: 23 Feb 2010
Gender: Female
Posts: 17,601
Location: Maidstone, UK

23 May 2020, 1:57 pm

naturalplastic wrote:
Joe90 wrote:
I think level 0 might mean PDD-NOS, which a few people in my family seem to have. They don't seem impaired by any of their symptoms but they still have the traits.

The one person I have met with PDD-NOS (a guy at a autism support group with his NT mom) was obviously seriously impaired.


Then why was he diagnosed with PDD-NOS? Shouldn't he have been diagnosed with level 1 or 2?


_________________
Female
Aged 30
On antidepressants
Diagnosed with AS, ADHD and anxiety disorder


kraftiekortie
Veteran
Veteran

User avatar

Joined: 4 Feb 2014
Gender: Male
Posts: 68,568
Location: Queens, NYC

23 May 2020, 2:38 pm

There is no official “Level Zero.”

I am “impaired” in many ways—yet I’ve managed to have a job, get married, and (at age 51) own a car.

I’m not “disabled” officially—but it is obvious to some people who know me that there is “seriously a screw loose somewhere.”

My wife cannot believe that I cannot put together something that most 7-year-olds could put together.

Other people cannot understand why I don’t have an elementary knowledge of certain things.



naturalplastic
Veteran
Veteran

User avatar

Joined: 26 Aug 2010
Age: 65
Gender: Male
Posts: 22,952
Location: temperate zone

23 May 2020, 3:31 pm

Joe90 wrote:
naturalplastic wrote:
Joe90 wrote:
I think level 0 might mean PDD-NOS, which a few people in my family seem to have. They don't seem impaired by any of their symptoms but they still have the traits.

The one person I have met with PDD-NOS (a guy at a autism support group with his NT mom) was obviously seriously impaired.


Then why was he diagnosed with PDD-NOS? Shouldn't he have been diagnosed with level 1 or 2?


PDD..that part means that you have "a pervasive developmental disorder". Youre impaired in your development. So that means that youre...friggin impaired! Rather pervasively.

The NOS part means "not otherwise specified". As the guy's mom explained it "it means we don't know what you have because it doesn't fit into any box, but you got something, and its debilitating".

So that guy didn't present symptoms that werent exactly aspie or autistic. So they didn't have a box for him. So they put him into the PDD box.

Also this was some years ago. Before they had the level 1,2, and 3, grade for autism.



kraftiekortie
Veteran
Veteran

User avatar

Joined: 4 Feb 2014
Gender: Male
Posts: 68,568
Location: Queens, NYC

23 May 2020, 3:47 pm

People with PDD-NOS run the gamut as far as presentation is concerned.

It can be quite minor—or it could be quite major.



BTDT
Veteran
Veteran

User avatar

Joined: 26 Jul 2010
Age: 56
Gender: Female
Posts: 6,555

23 May 2020, 3:51 pm

I don't have an official diagnosis but I can offer useful insights that help diagnosed people with autism based on personal experience. I doubt I'd ever get any benefits from a diagnosis. If I thought I'd need help from my co-workers I'd just ask. They have been most helpful driving me to doctor's appointments.



Joe90
Veteran
Veteran

User avatar

Joined: 23 Feb 2010
Gender: Female
Posts: 17,601
Location: Maidstone, UK

23 May 2020, 3:58 pm

naturalplastic wrote:
Joe90 wrote:
naturalplastic wrote:
Joe90 wrote:
I think level 0 might mean PDD-NOS, which a few people in my family seem to have. They don't seem impaired by any of their symptoms but they still have the traits.

The one person I have met with PDD-NOS (a guy at a autism support group with his NT mom) was obviously seriously impaired.


Then why was he diagnosed with PDD-NOS? Shouldn't he have been diagnosed with level 1 or 2?


PDD..that part means that you have "a pervasive developmental disorder". Youre impaired in your development. So that means that youre...friggin impaired! Rather pervasively.

The NOS part means "not otherwise specified". As the guy's mom explained it "it means we don't know what you have because it doesn't fit into any box, but you got something, and its debilitating".

So that guy didn't present symptoms that werent exactly aspie or autistic. So they didn't have a box for him. So they put him into the PDD box.

Also this was some years ago. Before they had the level 1,2, and 3, grade for autism.


I always thought PDD-NOS meant people who are on the borderline of ASD but don't fit enough to be diagnosed with an ASD.
But it's OK, I was wrong. Thank you for educating me. :)

But most other neurological conditions share a few traits with autism anyway.


_________________
Female
Aged 30
On antidepressants
Diagnosed with AS, ADHD and anxiety disorder


kraftiekortie
Veteran
Veteran

User avatar

Joined: 4 Feb 2014
Gender: Male
Posts: 68,568
Location: Queens, NYC

23 May 2020, 4:41 pm

PDD-NOS: you have autistic traits, but don’t fit all the diagnostic criteria for autism.

You can be very mildly affected, and “not quite” have autism—or you could be very seriously disabled, yet not have “enough” autistic traits.

And many times in the middle of these things.



Last edited by kraftiekortie on 23 May 2020, 4:46 pm, edited 1 time in total.

kraftiekortie
Veteran
Veteran

User avatar

Joined: 4 Feb 2014
Gender: Male
Posts: 68,568
Location: Queens, NYC

23 May 2020, 4:43 pm

I was “fully” autistic because I had all the symptoms. It was a “no-doubter” with me.