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Worst thing about autism?

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Davideus85
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17 Sep 2020, 1:17 am

What is the worst thing about having autism?



AEqualsBCD
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17 Sep 2020, 2:37 am

For me personally, it's not being able to do certain things like brush my hair or make friends. When I go out I struggle with anxiety and panic attacks, I try not to but I can't stop it. I try and I try but for some reason I'm unable to do it. That's hard to accept and live with.



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17 Sep 2020, 2:45 am

All I know is that...

.. It's harder and much trickier to wield the mind and body as a whole with the condition, in more ways than one.


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17 Sep 2020, 3:18 am

For me (I think) it is, that people don't belive, when I say I can't/I can't stand this/it feels like that for me. Most of the time I'm well functioning (as seen from the outside), but sometimes (more and more often) It costs more than all my power - and no one believe me. And that hurting so much!


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17 Sep 2020, 3:58 am

The meltdowns

Social isolation

Overthinking

The double standards (NTs can get away with something but autistics can't)

Being bullied

The harsh stereotypes and stigma

The co-mordids that often go with it (anxiety, depression and anger)

Challenging behaviour in childhood (like needing the world to revolve around the autistic child otherwise he will have an unavoidable and unstoppable meltdown)

The diagnostic criteria always being altered

The way the word autism means "self", which looks like all autistics are self-centred loners and the frustration of having your disorder named after something that doesn't even describe you :roll:

Being misunderstood and judged by society

Having a deficit that humans are born to do (socialise)

Having no real cure or prevention

Aggressive gene that is often passed around families

Being emotionally immature or behind your peers

Serial killers saying they have autism (Adam Lanza and James Fairweather)

It's a s**t thing to live with unless you have a really high IQ and are happy with social isolation

Sensory and issues, especially with loud noises


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17 Sep 2020, 4:38 am

Apart from the fact that being less hypersensitive to light and sound would make my days less tiring, and an improved short-term memory would make work easier, I don't really see autism in a bad light. I've found ways to cope.



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17 Sep 2020, 5:07 am

Davideus85 wrote:
What is the worst thing about having autism?


This will be different for most of us. For me, it is feeling almost "locked in" - I have solutions to many big problems, but technical talent is insufficient to sell a new process.



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17 Sep 2020, 5:25 am

It's easily burnout.


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17 Sep 2020, 5:33 am

the worst thing is... how my autism affects my kids



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17 Sep 2020, 5:36 am

MrsPeel wrote:
the worst thing is... how my autism affects my kids
yeah...same here. and how it affects my wife as well.



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17 Sep 2020, 5:46 am

Pieplup wrote:
It's easily burnout.


I agree and the shutdowns.


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17 Sep 2020, 6:30 am

Mountain Goat wrote:
Pieplup wrote:
It's easily burnout.


I agree and the shutdowns.

I don't have shutdowns but I can imagine they'd be quite annoying


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17 Sep 2020, 6:46 am

Pieplup wrote:
Mountain Goat wrote:
Pieplup wrote:
It's easily burnout.


I agree and the shutdowns.

I don't have shutdowns but I can imagine they'd be quite annoying



The most annoying thing about them was that I never knew what they were or how to describe them.
That other people thought I was making it up.
The "Ignore them and they will go away"...
Or "He always does this to get out of work" (When my brother asked for me to help him and it was an unexpected change of plan and I think is most unfair as I am stuck in a partial or full shutdown so I can't argue back as I have to be non verbal and try to keep myself calm to pull out of it).

I spent years trying to hide them and somehow became an expert in doing so... I would be getting up off the floor after having recovered and make some excuse like "I was looking for a washer or a little nut or bolt etc" I would pretend I was tired and needed a breather if in a partial shutdown... I would (When coming out of a deeper partial shutdown which was not quite a full on the floor shutdown) when I was not able to understand english due to the shutdown recovery say "Yes" if someone asked me "Do you understand" after me asking for the question to be repeated several times as it was not going in... And I would say "Yes" just to get rid of the person so I could have time to recover (And orevent myself from having a full on shutdown, or having another full on shutdown). Sometimes, unlike me as is out of character, I would turn nasty to make the other person go away so I could recover...
All aspects I used to hide what was happening.

So to now know what they are has been such a breakthrough, and it has only really been about a year that I have found out.
The other major breakthrough is stimming, which I would automatically do but was told off, and I went from one semi hidden stim to the next.. Funnily enough when I finally thought I have conquored all stimms (I did not know they were called stimming and I believed they were "Annoying habbits that "Normal people" did not do"), I then ended up having my first burnout.
The breakthrough for me was that stimming prevents, or lessens the effects of shutdowns. This has been amazing for me!


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Last edited by Mountain Goat on 17 Sep 2020, 6:52 am, edited 1 time in total.

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17 Sep 2020, 6:51 am

Mountain Goat wrote:
Pieplup wrote:
Mountain Goat wrote:
Pieplup wrote:
It's easily burnout.


I agree and the shutdowns.

I don't have shutdowns but I can imagine they'd be quite annoying



The most annoying thing about them was that I never knew what they were or how to describe them.
That other people thought I was making it up.
The "Ignore them and they will go away"...
Or "He always does this to get out of work" (When my brother asked for me to help him and it was an unexpected change of plan).
I feel the same way about burnout.


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I run a discord for moderate-severely autistic people if anyone would like to join. You can also contact me on discord @Pieplup or by email at [email protected]


Mountain Goat
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17 Sep 2020, 7:04 am

Pieplup wrote:
Mountain Goat wrote:
Pieplup wrote:
Mountain Goat wrote:
Pieplup wrote:
It's easily burnout.


I agree and the shutdowns.

I don't have shutdowns but I can imagine they'd be quite annoying



The most annoying thing about them was that I never knew what they were or how to describe them.
That other people thought I was making it up.
The "Ignore them and they will go away"...
Or "He always does this to get out of work" (When my brother asked for me to help him and it was an unexpected change of plan).
I feel the same way about burnout.


Burnout is horrible. The effects last a long time. Takes me a long time to recover and I am concerned. I hit the last burnout in september when I was working last, and I am still going in and out of the fragile stage. I am better then I was but it is taking ages. I still can't do some things I would take for granted. It is hard to explain to those who may see me and know me and they may not understand. I don't understand so how can I tell them? How can I explain?
People who expect me to do things for them... I am made to feel guilty that I am not the same as before. They don't understand.
It is not that doing tasks themselves is not possible. It is that the effort to do them is too much for me to cope with since hitting burnout.

It feels like I hit some sort of mental breakdown.

Each burnout I hit hit me harder then the one before, and it was only the last burnout that hit me that I knew what it was called. Past burnouts I could not explain. I could not tell doctors. I did not even know how to so I did not even try. I just would quit work and quit as many responsibilities as I can.


(I hope my reply is not seen as being a negative reply. I am greatful that you and everyone else are here. I am just sharing my experiences).


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Last edited by Mountain Goat on 17 Sep 2020, 7:07 am, edited 1 time in total.

Pieplup
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17 Sep 2020, 7:06 am

Mountain Goat wrote:
Pieplup wrote:
Mountain Goat wrote:
Pieplup wrote:
Mountain Goat wrote:
Pieplup wrote:
It's easily burnout.


I agree and the shutdowns.

I don't have shutdowns but I can imagine they'd be quite annoying



The most annoying thing about them was that I never knew what they were or how to describe them.
That other people thought I was making it up.
The "Ignore them and they will go away"...
Or "He always does this to get out of work" (When my brother asked for me to help him and it was an unexpected change of plan).
I feel the same way about burnout.


Burnout is horrible. The effects last a long time. Takes me a long time to recover and I am concerned. I hit the last burnout in september when I was working last, and I am still going in and out of the fragile stage. I am better then I was but it is taking ages. I still can't do some things I would take for granted. It is hard to explain to those who may see me and know me and they may not understand. I don't understand so how can I tell them? How can I explain?
People who expect me to do things for them... I am made to feel guilty that I am not the same as before. They don't understand.
It is not that doing tasks themselves is not possible. It is that the effort to do them is too much for me to cope with since hitting burnout.

It feels like I hit some sort of mental breakdown.

Each burnout I hit hit me harder then the one before, and it was only the last burnout that hit me that I knew what it was called. Past burnouts I could not explain. I could not tell doctors. I did not even know how to so I did not even try. I just would quit work and quit as many responsibilities as I can.
idk for me it's just like Tries to do something consistently for 2 weeks which normal people would have no problem doing burns out instantly. Amazing


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ever changing evolving and growing
I am pieplup i have level 3 autism and a number of severe mental illnesses. I am rarely active on here anymore.
I run a discord for moderate-severely autistic people if anyone would like to join. You can also contact me on discord @Pieplup or by email at [email protected]