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Double Retired
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09 Feb 2021, 10:02 am

MidnightRose wrote:
I was also rejected this year when I tried to get an adult diagnosis, though I'm in my 20s. I guess I am good at masking, but social behaviors usually feel put on and I froze trying to explain that to him. Pretty sure he didn't care and was just trying to get me on pills and out the door, don't even think we talked for an hour. But like you it has discouraged me from diving into another psych office.
My understanding is that not all psychologists work with autism, nor even have the skills and training to do so. If whoever you were talking to doesn't "do" autism then, if you decide you want to investigate further, here are a couple of resources you might find interesting:

(1) You can get a little more information about yourself with this Autism-Spectrum Quotient Test.

(2) You can look for candidate psychologists in your area using the National Register of Health Service Psychologists "Find a Psychologist" web page.

I cannot tell you much about those resources, just that I used them when I was looking for an Adult Autism Assessment and I found them helpful for me.

I can tell you that when I was looking for an assessment, my insurance provider was not very helpful. For a start, they gave me referrals to psychologists that did not do Adult Autism Assessments. After we got past that they said I could find a psychologist myself but that they had to have ABA certification, and that incorrect information had me on a futile hunt for a few months--it turns out I just needed a psychologist who did assessments and that certification was not needed for my purposes. Insurance coverage was also a concern because my insurance provider did not have any network psychologists in my area that would do an assessment and the psychologist I found did not "coordinate" with my insurance (it turned out I could, afterwards, submit the bills to my insurance for partial reimbursement).

One other concern for you consideration: Decide if you do want a formal assessment.

When I got my assessment I was 64. For me it was great to finally know but I was too old for the knowledge to affect much. I was already securely, comfortably retired. I was already secure in my life and not too concerned about what other people would think of me. And I have a wonderful bride :heart: and we were securely married and getting near our 20th anniversary. You are much younger than I was. I don't know what ramifications a formal diagnosis would have for you at your age--perhaps younger Aspies on WP can help you consider that and maybe advise you on ramifications of sharing a formal diagnosis.

In any event, best wishes!


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When diagnosed I bought champagne!
I finally knew why people were strange.


cyberdad
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09 Feb 2021, 3:33 pm

DuckHairback wrote:
cyberdad wrote:
Welcome

I went through the diagnosis dilemma myself after my daughter was diagnosed, but realised it wasn't worth it.


I flip-flop on it. Sometimes I feel like I'm just making it up and would like to have an 'official' diagnosis. I would like the relief of knowing. But then I think even if I had a diagnosis, it wouldn't stop those doubts. And if a diagnosis said I don't have it, I probably wouldn't accept that either. So what would be the point?


Yeah I was misattributing things which turned out to be nothing to do with autism and more about me trying fit a square peg into a round hole.



Gaffer Gragz
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09 Feb 2021, 5:01 pm

DuckHairback wrote:
cyberdad wrote:
Welcome

I went through the diagnosis dilemma myself after my daughter was diagnosed, but realised it wasn't worth it.


I flip-flop on it. Sometimes I feel like I'm just making it up and would like to have an 'official' diagnosis. I would like the relief of knowing. But then I think even if I had a diagnosis, it wouldn't stop those doubts. And if a diagnosis said I don't have it, I probably wouldn't accept that either. So what would be the point?


Hang around, you will soon see if you belong or not, that in itself will tell you something. There are tests to take from the web, admins here tend to advice to take them. I would advice that too. It will likely reduce the uncertainty you feel.

But most of all, be your self, think for yourself. The rest of the world contains lots of inputs to you. Dont drown.


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diagnosedafter50
Deinonychus
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Location: United Kingdom

09 Feb 2021, 5:56 pm

DuckHairback wrote:
I am undiagnosed, but fairly certain I have Aspergers and I'm fairly certain my 6 year old daughter does too. In fact it's been through watching her early years development and behavioural irregularities that I've come to better understand my own behaviour both as a child and into adulthood (I'm 41 now).

Last year I made some attempts at getting a diagnosis - it suddenly seemed important to me. I was referred by my doctor to the local specialists but I got a message back from them a few weeks later saying they didn't want to see me because it didn't sound like my issues were severe enough and they wouldn't be able to do much to help anyway. I spoke to my GP again and he agreed to advocate for me, and I was going to write out a load of stuff to support my case, life experiences and so on...but I never did it.

Why? I felt rejected, a bit I suppose. Like I'd been judged. I'm prone to feeling that people aren't believing me when I talk about anything so it kind of plays into that. Of course they haven't judged me specifically - they haven't assessed me at all. I also felt somehow at that moment that it was less important that I get diagnosed. And with Covid-19 going on I did feel like my problems weren't very serious in light of the bigger picture.

I don't know if I will go back to trying to get a diagnosis. I can't afford to do it privately and I don't know if I have the resilience to get past all the NHS gatekeepers.

I will certainly be trying to get my daughter properly assessed though as soon as Covid-19 is under control. If she can grow up at least understanding why she is the way she is I feel like that has to be better than growing up mystified and increasingly self-critical as I did.

I find it almost impossible to make and keep friends. I have a partner of 18 years who is my sole friend really. There have been other people but they've all fallen by the wayside. It often seems that if I don't make contact with people who I think of as friends, they will never reach out to me. I test this sometimes and it bears out. I assume this means they are happy for the friendship to fade away, like they're not getting enough out of it to make any effort to keep it alive. I've talked to some people about it and they've told me that they're never sure how I feel about them - whether I like them or not. Weirdly, my mum once told me that this was also how my grandmother felt about me. I've concluded that there's something other people do to transmit this information that I don't do. I've not been able to work out what this might be.

I've gone on so I'll stop there. But I'm looking forward to reading more of this forum. What I've seen so far has made me feel a bit less weird, and even more certain I have some ASD going on in here.

Welcome James. It seems like there is a postcode lottery in the UK. I am glad your GP is going to advocate for you. I think it’s important for your daughter to be diagnosed as her struggles and challenges can be recognise. You can help her by reading stories to her and getting her interested in fiction as this is supposed to help social skills.
I am sorry the autism specialist in your area Are acting like gatekeepers and I’m gonna do hope you get a diagnosis and that you enjoy being on this forum.