Should we try and get an official AS diagnosis

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Should we try and get an official AS diagnosis
Poll ended at 21 Feb 2021, 9:50 am
Yes, definitely get an official diagnosis 29%  29%  [ 2 ]
Why bother? 0%  0%  [ 0 ]
Leave it up to your daughter 71%  71%  [ 5 ]
No 0%  0%  [ 0 ]
Total votes : 7

chrismyk1
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11 Feb 2021, 9:50 am

We are very late to the game with learning about Asperger's Syndrome. Our daughter who is almost 19, has been going to a therapist for a year or so now and the therapist is the one that brought up AS to us. Learning and reading about AS it definitely fits our daughter in so many ways.

So my question....What is everyone's feelings about trying to get an official diagnosis for our daughter?

She is 19 and so it's really her decision.



Fnord
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11 Feb 2021, 10:14 am

Did you not already claim in another thread that your daughter had received just such a diagnosis?


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chrismyk1
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16 Feb 2021, 3:27 pm

No, her therapist is not a specialist in Autism or AS. She has discussed it with my daughter but there has never been an official diagnosis.



HeroOfHyrule
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16 Feb 2021, 3:30 pm

Since she's an adult it's really up to your daughter and whether she thinks it's important to her. I do think if she wants an assessment she should try to get one though. My brother got financial help in college due to having Asperger's and there are some other resources available (in the U.S.) that could help her in the future if she thinks she needs that.



SharonB
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16 Feb 2021, 4:45 pm

Kudos to her therapist for raising the topic. In any case, it's a beginning of what you all make of it - her individual needs. If AS is applicable, even without an official diagnosis your daughter could explore AS support groups online and in person. If she goes for diagnosis, make sure to have an evaluator experienced in the presentation of AS in adult women.

A tale of two cousins: My niece received an AS diagnosis at age 11 but my sister did very little about it (which pains me). My daughter at age 9 who I believe is AS (like me) did not receive a diagnosis (which pains me) b/c she compensates well (so far) given my positive insights and support. I worry about both of them as 19 and the 20s were the most difficult time for myself and my AS-like cousin (deceased). Now in my 40s I have an AS diagnosis but remain unclear what is reasonable accommodation and how to request it. I do wish that in college I was aware that I had challenges other kids didn't. For example, in the minimum, I could have used ear plugs or more confidently requested accommodations, instead of being uncomfortable All The Time, not realizing why and hanging my head in shame to ask for test retakes and lab makeups (to do them in peace and quiet). I'm lucky my professors generally agreed. It was difficult but doable. Even if I didn't have a diagnosis, the self-awareness would have been helpful.

This resonated with me: https://the-art-of-autism.com/females-a ... checklist/



chrismyk1
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26 Feb 2021, 11:51 am

Thanks for all the input :D SharonB...Thank you for sharing those intimate details of your life. I will check out the URL and share it with my daughter. I bought a book for her but she doesn't want to read it. :cry: Maybe she will read the link.