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Mona Pereth
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13 Feb 2021, 8:58 am

Autistic Peer Leadership Group

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The Autistic Peer Leadership Group (APLeG) is a group of autistic or similarly neurodivergent adults who either lead/facilitate or would like to lead/facilitate other small groups of autistic/neurodivergent people. (For examples of the kinds of groups that members might lead or aspire to lead, see Longterm visions for the autistic community.)

APLeG's main purpose is to help us develop leadership skills.

...

During the remainder of the COVID crisis, we will hold text-based chat meetings only. After the COVID crisis is over, we will hold both in-person meetings and text-based chat meetings.

At least for now, our chat meetings will be held on the first Thursday of each month. Please RSVP via Meetup. (Currently we use the Meetup site of the Queens discussion group. Eventually a separate Meetup site will be created.)


APLeG is NYC-based. However, any autistic adult from anywhere in the world who leads/facilitates or would like to lead/facilitate a group of autistic or similarly neurodivergent adults is welcome to join us in our text-based chat meetings. If you would like to participate, please RSVP on the Meetup site at least one day in advance of the meeting.


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Mona Pereth
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24 Mar 2021, 3:04 pm

The second meeting of the Autistic Peer Leadership Group (ApLeg) is on Thursday, April 1, at 7:00 PM Eastern Daylight Savings Time (6:00 PM Central, 4:00 PM Pacific).

The meeting will be held via text-based chat.

If interested, please join the Autistic in NYC: Queens groups Meetup.com group (if you are not already a member) and then RSVP for the meeting here, where you will also find a link to our chatroom.

The topic will be Facilitating Support Groups. We will discuss ideas in the following tutorial, which you are encouraged to read before the meeting: Facilitating Support Groups (PDF) on the website of the World Institute on Disability.


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Last edited by Mona Pereth on 24 Mar 2021, 3:17 pm, edited 1 time in total.

Fnord
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24 Mar 2021, 3:08 pm

How did the first one go?


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Mona Pereth
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24 Mar 2021, 4:00 pm

The first meeting was just a preliminary meeting in which we talked about our aims and made some decisions about how we'll be running the group.

Among other things, we decided to have rotating leadership, so everyone gets a chance to practice leading a meeting. And we decided who was going to be leading each of the next few meetings.

We hope to encourage the creation of various kinds of groups for adults on the autism spectrum, including not just support groups but also hobby-oriented social groups and career-oriented groups.


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Fnord
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24 Mar 2021, 4:04 pm

So ... group meetings to decide on how and which other groups will meet, right?


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Mona Pereth
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24 Mar 2021, 6:17 pm

Fnord wrote:
So ... group meetings to decide on how and which other groups will meet, right?

That was our first meeting. The next meeting will be a discussion on the topic of how to facilitate a support group. Anyone with an interest in learning how to facilitate an autistic peer-led support group is welcome to attend.


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Mona Pereth
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01 May 2021, 12:52 am

The third meeting of the Autistic Peer Leadership Group (ApLeg) will be on Thursday, May 6, at 7:00 PM Eastern Daylight Savings Time (6:00 PM Central, 4:00 PM Pacific).

The meeting will be held via text-based chat.

If interested, please join the Autistic in NYC: Queens groups Meetup.com group (if you are not already a member) and then RSVP for the meeting here, where you will also find a link to our chatroom.

The topic will be conflict resolution in the context of facilitating support groups. We will discuss ideas in the later sections of the following tutorial, which you are encouraged to read before the meeting: Facilitating Support Groups (PDF) on the website of the World Institute on Disability.


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Mona Pereth
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28 May 2021, 12:55 am

The fourth meeting of the Autistic Peer Leadership Group (ApLeg) will be on Thursday, June 3, at 7:00 PM Eastern Daylight Savings Time (6:00 PM Central, 4:00 PM Pacific).

The meeting will be held via text-based chat.

If interested, please join the Autistic in NYC: Queens groups Meetup.com group (if you are not already a member) and then RSVP for the meeting here, where you will also find a link to our chatroom.

The topic will be how to start a club. We will discuss ideas in the following tutorial, which you are encouraged to read before the meeting: How to Start a Club – 12 Easy Steps to Organize a Social Club on the CareerLancer website.


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Mona Pereth
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02 Jun 2021, 7:23 pm

Below is our answer to a commonly-asked question:

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"What???" some readers may ask. How can a bunch of people who have trouble with ordinary social skills learn leadership skills?

Just as some of us may find academic skills easier to learn than social skills, many of us may also find some social skills easier to learn than others. And, within the social realm too, what's relatively easy or difficult for us may differ from what's relatively easy or difficult for most NT's. (Again see autistic-friendly social skills.) Some of us may even find it easier to lead a group than to participate in groups led by others. (Some of us may, for example, find it easier to focus our attention on a group when we are leading it than when we are not leading it.)

That's not the case for all of us, of course. But, even so, attempting to develop leadership skills can be a good way to help us improve our social skills more generally.


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Mona Pereth
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29 Jun 2021, 1:36 pm

The fifth meeting of the Autistic Peer Leadership Group (ApLeg) will be on Thursday, July 1, at 7:00 PM Eastern Daylight Savings Time (6:00 PM Central, 4:00 PM Pacific).

The meeting will be held via text-based chat.

If interested, please join the Autistic in NYC: Queens groups Meetup.com group (if you are not already a member) and then RSVP for the meeting here, where you will also find a link to our chatroom.

The topic will be how to be a good club president. We will discuss ideas in the following tutorial, which you are encouraged to read before the meeting: How to Be a Good Club President on the WikiHow website. The tutorial should not be regarded as holy writ, but we will use it as a jumping-off point for discussion.


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Mona Pereth
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04 Aug 2021, 5:24 am

The sixth meeting of the Autistic Peer Leadership Group (ApLeg) will be on Thursday, August 5, at 7:00 PM Eastern Daylight Savings Time (6:00 PM Central, 4:00 PM Pacific).

The meeting will be held via text-based chat.

If interested, please join the Autistic in NYC: Queens groups Meetup.com group (if you are not already a member) and then RSVP for the meeting here, where you will also find a link to our Zulip chatroom.

The topic will be various things that can go wrong in a group of autistic people, based on various people's remarks in the following Wrong Planet threads:

- Your gripes about peer-led autistic adult support groups?
- Starting and leading autistic peer support & social groups
- Building the autistic community?

We will brainstorm ways to avoid these pitfalls.


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Mona Pereth
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31 Aug 2021, 10:08 pm

The seventh meeting of the Autistic Peer Leadership Group (ApLeg) will be on Thursday, September 2, at 7:00 PM Eastern Daylight Savings Time (6:00 PM Central, 4:00 PM Pacific).

The meeting will be held via text-based chat.

If interested, please join the Autistic in NYC: Queens groups Meetup.com group (if you are not already a member) and then RSVP for the meeting here, where you will also find a link to our Zulip chatroom.

More details will be posted here later.


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Mona Pereth
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07 Oct 2021, 12:51 am

The eighth meeting of the Autistic Peer Leadership Group (ApLeg) will be on Thursday, October 7, at 7:00 PM Eastern Daylight Savings Time (6:00 PM Central, 4:00 PM Pacific).

The meeting will be held via text-based chat.

If interested, please join the Autistic in NYC: Queens groups Meetup.com group (if you are not already a member) and then RSVP for the meeting here, where you will also find a link to our Zulip chatroom.[/quote]


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Mona Pereth
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02 Nov 2021, 7:14 am

The ninth meeting of the Autistic Peer Leadership Group (ApLeg) will be on Thursday, November 4, at 7:00 PM Eastern Daylight Savings Time (6:00 PM Central, 4:00 PM Pacific).

This meeting's topic will be the history of the autistic community.

The meeting will be held via text-based chat.

If interested, please join the Autistic in NYC: Queens groups Meetup.com group (if you are not already a member) and then RSVP for the meeting here, where you will also find a link to our Zulip chatroom.


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carlos55
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07 Nov 2021, 3:22 pm

Something that may be of interest to Mona:

https://www.ncsautism.org/blog//in-new- ... ere-autism

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By NCSA

SNACK* is a New York City based program that goes where few disability programs dare to venture — it serves autistic children, teens and adults with the most challenging behaviors who require the greatest support and are unsuccessful participating in other programs due to their intensive needs. It provides recreational as well as pre-vocational training and supported employment opportunities.

SNACK*, which stands for Special Needs Activity Center for Kids and Adults, was founded in 2003 by Jackie Ceonzo after her 7-year-old son with autism, Joey, was turned away by a special needs program due to his intensive needs. She formulated a plan to establish a center where Joey and other disabled children would be welcome, regardless of their language abilities, behavioral challenges or skill levels — and a place where families would feel comfortable socializing and participating.

Sustained by charitable donations, grants and private pay, over the past 18 years, this nonprofit has served more than 1,000 families.

A key philosophy of SNACK* is to serve people of all abilities no matter how challenging the behavior or degree of impairment — no one is turned away. It is one of the very few organizations that welcomes those with behavioral challenges commonly seen in autism, including self-injurious behaviors, self-care management needs, seizure disorders, communication disorders, stereotyped behaviors, and mood disorders.


SNACK* is an alternative to traditional state-funded programs where those with high support needs are usually turned away. It offers low participant/staff ratio and customized programming, small groups (8 max), trained staff, and principles of ABA, and visual supports and assisted technology for non-verbal communication to help address the needs of this under-served population.

Programs include art, music, sensory, fitness, yoga, private 1:1 lessons; pre-vocational/job readiness training classes; and community outings. It focuses on finding the client’s own version of success, to achieve a happier and more purposeful life, and to provide families with the support they need.


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Mona Pereth
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01 Dec 2021, 2:25 am

Thanks. I've added it to a list of NYC-based resources that I will eventually be posting on my website.


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