Page 1 of 1 [ 13 posts ] 

EskimoSpy
Emu Egg
Emu Egg

User avatar

Joined: 12 Apr 2021
Age: 51
Gender: Male
Posts: 1

12 Apr 2021, 1:04 am

Hello everyone, I found this forum through a book I'm reading on being diagnosed with AS/ASD level 1 as an adult.

The last year and a half has been an adventure - in November 2019, I was diagnosed with stage III lung cancer (and I'm not a smoker, so that was great), then as soon as I finished concurrent chemoradiation and started immunotherapy, covid hit. I was recently diagnosed as ASD level 1, but of these big three events, my diagnosis was not a negative to me. I have no issues with my diagnosis, but I am trying to gain a better understanding of, well, everything. Obviously the diagnosis along explains A LOT, as I've spent years trying to "normalize" myself. Now I understand that my behavior is completely normal - for me.

I'm working with the therapist who helped diagnose me to begin gaining more understanding of myself, what I can work on, what "normal" looks like, etc.

So, happy to be here! My first question; I have always dreaded upcoming events, even things I am sure I will enjoy, like vacations. My wife loves to get excited and talk about upcoming events, and plan plan plan, but all it does to me is create anxiety that I can't really explain, and makes me want to stay home. I'm working on explaining this to her, and fortunately she really loves me, and has taken this diagnosis in stride, but I'm curious - how many of you experience this, and how have you explained it to other people, and what strategies have you developed so that both people, the AS and the planner are both happy(ish)?



Double Retired
Veteran
Veteran

User avatar

Joined: 31 Jul 2020
Age: 66
Gender: Male
Posts: 1,149
Location: U.S.A.

12 Apr 2021, 9:36 am

Welcome to WP! I think you will find some nice people here.

And I sincerely wish you a best-possible outcome on the cancer. It's not a good thing and it's not a convenient thing and it's not a pleasant thing...but stay the course and, ideally, someday you'll look back and think "Well, that was not fun!"

ASD-1? Yes, the diagnosis explained so much!. I got my diagnosis shortly before my 65th birthday. I preferred to tell my relatives in person, as much as possible, so I did not tell many folk (other than medical providers) about the diagnosis for awhile.

And by the time I'd told my not-too-interested relatives in person it was tax season and then surgery season (I'm old). About the time I was clear of all of that there was a Pandemic. I'm an Aspie, I'm an INTJ with a very strong "I", and I am firmly retired--I'm well-equipped for hunkering down at home--though I miss fast-food.

The Psychologist who diagnosed me offered counseling but only mentioned it, she could tell I was doing OK. I have been relying on wandering around the Internet to get information. My bride has been quite supportive, and I think she found my ASD-1 diagnosis less troubling than my surgical adventure; she is Neurodiverse (ADHD) so that might have helped.

When my bride bumps up against one of my Aspie traits I get to say: "I have a doctor's note for that!" This amuses me much more than it amuses her--she was groaning at it before we even left the Psychologist's office!

One possibly practical thing I can offer is this (and other stuff on that web site). I say "possibly" practical because I've not had much success with it, yet--as before the diagnosis I ask my medical providers to put stuff in writing and explain things very simply...and maybe they do and maybe they don't.

And, again, welcome to WP!


_________________
When diagnosed I bought champagne!
I finally knew why people were strange.


NaturalEntity
Veteran
Veteran

User avatar

Joined: 3 Jan 2021
Age: 17
Gender: Female
Posts: 1,161
Location: UK

12 Apr 2021, 1:18 pm

I also found out about this forum through a book! Welcome.


_________________
Hans Asperger himself called autism a natural entity
Opinion polls coming to WP in 2022!


Jakki
Veteran
Veteran

User avatar

Joined: 21 Sep 2019
Gender: Female
Posts: 5,764
Location: Outter Quadrant

12 Apr 2021, 1:32 pm

welcome to WP , good luck with your wife and explaining it. i hope the best for you and your health :D


_________________
Diagnosed hfa
Loves velcro,
Quote:
where ever you go ,there you are


kitesandtrainsandcats
Veteran
Veteran

User avatar

Joined: 6 May 2016
Age: 58
Gender: Male
Posts: 2,232
Location: Missouri

12 Apr 2021, 4:17 pm

Oh my, that probably wasn't the life of adventure you hade been wanting.
At this moment on this day I don't have any strategy ideas to offer.
But when looking at your profile/avatar image I get an odd urge to thank someone for all the fish.
And where's my towel?


_________________
"There are a thousand things that can happen when you go light a rocket engine, and only one of them is good."
Tom Mueller of SpaceX, in Air and Space, Jan. 2011


Jakki
Veteran
Veteran

User avatar

Joined: 21 Sep 2019
Gender: Female
Posts: 5,764
Location: Outter Quadrant

12 Apr 2021, 6:22 pm

a Robert Heilien fan pardon spelling . love the title of this thread


_________________
Diagnosed hfa
Loves velcro,
Quote:
where ever you go ,there you are


starkid
Veteran
Veteran

User avatar

Joined: 9 Feb 2012
Gender: Female
Posts: 5,744
Location: California Bay Area

12 Apr 2021, 6:38 pm

EskimoSpy wrote:
So, happy to be here! My first question; I have always dreaded upcoming events, even things I am sure I will enjoy, like vacations. My wife loves to get excited and talk about upcoming events, and plan plan plan, but all it does to me is create anxiety that I can't really explain, and makes me want to stay home.
Well, if you can't explain it, maybe it has nothing to do with autism. Maybe you just have problems going outside of your regular daily routine.

Personally I dread anything involving traveling or being in busy places for long periods of time (like more than an hour or so) because the visual over-stimulation gives me migraines, I cannot sleep in unfamiliar places, and the noise and need to continually concentrate (on driving, listening, or watching for public transportation, for example) fatigue me.

So I order things online rather than going out shopping, bring ear defenders, ear plugs, and sometimes music and ear buds, try to travel and run errands during parts of the day that have only light traffic, and I avoid vacations, traveling, attending large events, hanging out with more than one person at a time, or doing anything that requires me to be away from home overnight.


_________________
Just the L
LGBTQIAwhatever


Blue_Blake
Pileated woodpecker
Pileated woodpecker

User avatar

Joined: 15 Mar 2021
Age: 24
Gender: Male
Posts: 187
Location: Atlanta, GA

14 Apr 2021, 11:30 am

Welcome, I love your avatar image



Mona Pereth
Veteran
Veteran

Joined: 11 Sep 2018
Age: 62
Gender: Female
Posts: 3,724
Location: New York City (Queens)

23 Apr 2021, 2:22 am

EskimoSpy wrote:
Hello everyone, I found this forum through a book I'm reading on being diagnosed with AS/ASD level 1 as an adult.

What book, may I ask?

(I'm putting together a list of helpful books for my website.)

Anyhow, welcome to Wrong Planet!


_________________
- Autistic in NYC - Resources and new ideas for the autistic adult community in the New York City metro area.
- Autistic peer-led groups (via text-based chat, currently) led or facilitated by members of the Autistic Peer Leadership Group.
- Longterm visions for the autistic community


aquafelix
Veteran
Veteran

User avatar

Joined: 26 Jul 2019
Age: 49
Gender: Male
Posts: 922
Location: Australia

23 Apr 2021, 8:12 am

Welcome



CockneyRebel
Veteran
Veteran

User avatar

Joined: 17 Jul 2004
Age: 46
Gender: Male
Posts: 104,840
Location: Canada in person, Germany in spirit

03 May 2021, 9:24 pm

Welcome to WPea! :mrgreen:


_________________
Peabody

Om Nom 2024

viewtopic.php?f=11&t=26&start=645


Double Retired
Veteran
Veteran

User avatar

Joined: 31 Jul 2020
Age: 66
Gender: Male
Posts: 1,149
Location: U.S.A.

03 May 2021, 9:30 pm

Note: EskimoSpy last visited WP on April 12--the day they posted the OP, also their only post (so far).

Given the medical issues they listed, let's hope they're okay.


_________________
When diagnosed I bought champagne!
I finally knew why people were strange.


Jakki
Veteran
Veteran

User avatar

Joined: 21 Sep 2019
Gender: Female
Posts: 5,764
Location: Outter Quadrant

04 May 2021, 5:06 am

Double Retired wrote:
Note: EskimoSpy last visited WP on April 12--the day they posted the OP, also their only post (so far).

Given the medical issues they listed, let's hope they're okay.


Agrees hope the best for them .


_________________
Diagnosed hfa
Loves velcro,
Quote:
where ever you go ,there you are