Very Early Intervention therapy said to be “breakthrough”

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League_Girl
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22 Sep 2021, 10:07 am

My mom has always told me if they had listened to the doctors and listened to everyone, I would have grown up to be autistic. So I guess here I am now high functioning instead of being dysfunctional and living in a group home.


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League_Girl
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22 Sep 2021, 10:09 am

Fnord wrote:
Just how much is this ableist therapy going to cost, anyway?  Is it covered by insurance?  Who can afford it?



Parents can also do the work themselves at home with their child but that is if they can actually have the time to do it. Some parents need to work full time to afford childcare or to afford a living over their heads, some have other kids and can't put all their attention to one kid. This actually does happen and it causes resentment in the kids for their sibling and parents.


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Fnord
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22 Sep 2021, 10:18 am

League_Girl wrote:
Fnord wrote:
Just how much is this ableist therapy going to cost, anyway?  Is it covered by insurance?  Who can afford it?
Parents can also do the work themselves at home with their child but that is if they can actually have the time to do it. Some parents need to work full time to afford childcare or to afford a living over their heads, some have other kids and can't put all their attention to one kid. This actually does happen and it causes resentment in the kids for their sibling and parents.
Still, such "therapies" seem to be priced for upper-middle class incomes and above.


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magz
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22 Sep 2021, 10:24 am

League_Girl wrote:
Fnord wrote:
Just how much is this ableist therapy going to cost, anyway?  Is it covered by insurance?  Who can afford it?
Parents can also do the work themselves at home with their child but that is if they can actually have the time to do it. Some parents need to work full time to afford childcare or to afford a living over their heads, some have other kids and can't put all their attention to one kid. This actually does happen and it causes resentment in the kids for their sibling and parents.
These parents usually don't have money, either, so they are not the target of this advertisement.

Any adult can do it. In the overcrowded apartment where I grew up, my unemployed, likely autistic uncle played a great role for me developing - by having time and power to establish some meaningful contact. He was the one to introduce me to science :)


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League_Girl
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22 Sep 2021, 3:01 pm

Quote:
These parents usually don't have money, either, so they are not the target of this advertisement.


I'm just saying you don't need the money to do it, you can do the work yourself. But that is if the parent is able to have the time to do that. Not everyone is as privleged as my mother was when I was a child.


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22 Sep 2021, 7:16 pm

carlos55 wrote:
ASPartOfMe wrote:

Velorum wrote:
More ableist BS from the PNT's

What does PNT stand for?


With respect to velorum without wanting to take words out of his mouth :-

predominant neurotype (PNT)

Thank you.


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22 Sep 2021, 8:04 pm

It's NOT entirely clear what this "therapy" consists of, but it appears to involve helping parents become more aware of their child's attempts to communicate, thus helping parents become more responsive to their child's needs. Presumably this enables the kids to develop some basic social skills naturally (rather than by masking). If so, this sounds like it would be a LOT better for the kids' longterm mental health than ABA-style "early interventions."

If subsequent studies show the new therapy to be as helpful as is claimed here, then hopefully it will eventually replace ABA as the go-to "early intervention" treatment that insurance companies are mandated to pay for. Hopefully the ABA establishment will see the writing on the wall and be willing to diversify its therapeutic approaches.

However, these kids will still be neurodivergent. If a lot of these kids no longer meet diagnostic criteria for "autism" but still need support, then it may become necessary to invent a new diagnostic category to include them, or perhaps to re-define the "autism spectrum" yet again.


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22 Sep 2021, 8:36 pm

^^^^ Agreed ^^^^


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carlos55
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23 Sep 2021, 2:35 am

Mona Pereth wrote:
It's NOT entirely clear what this "therapy" consists of, but it appears to involve helping parents become more aware of their child's attempts to communicate, thus helping parents become more responsive to their child's needs. Presumably this enables the kids to develop some basic social skills naturally (rather than by masking). If so, this sounds like it would be a LOT better for the kids' longterm mental health than ABA-style "early interventions."

If subsequent studies show the new therapy to be as helpful as is claimed here, then hopefully it will eventually replace ABA as the go-to "early intervention" treatment that insurance companies are mandated to pay for. Hopefully the ABA establishment will see the writing on the wall and be willing to diversify its therapeutic approaches.

However, these kids will still be neurodivergent. If a lot of these kids no longer meet diagnostic criteria for "autism" but still need support, then it may become necessary to invent a new diagnostic category to include them, or perhaps to re-define the "autism spectrum" yet again.



https://www.theguardian.com/society/202 ... evelopment

[quote=“mona”] However, these kids will still be neurodivergent. [/quote]

No that’s the point they won’t be autistic or at least many of them won’t. It prevents autism in many.

Quote:
. Doctors have shown for the first time that a new therapy aimed at infants can reduce autistic behaviour and the likelihood the children will go on to be diagnosed with autism before they reach school age.


[quote=“mona”] If so, this sounds like it would be a LOT better for the kids' longterm mental health than ABA-style "early interventions." [/quote]

Your comparing apples to oranges since there is no cross over or competition since this new therapy is aimed at babies and ABA is aimed at slightly older children.

The research proves scientifically for the first time that autism can be reduced or prevented by early intervention. So in theory ABA would follow this therapy like high school follows middle school.


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magz
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23 Sep 2021, 2:56 am

Reduce autistic behaviour and the likelihood the children will go on to be diagnosed with autism before they reach school age is not the same as prevent children from being autistic.
In particular, it totally leaves the option typical for AS - doing reasonably well pre-school and reaching the "expectations exceed capacities" moment later in life.

The study authors use the scientific language correctly, they stay aware of limitations of their results and don't claim more than they can demonstrate.


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23 Sep 2021, 3:08 am

magz wrote:
Reduce autistic behaviour and the likelihood the children will go on to be diagnosed with autism before they reach school age is not the same as prevent children from being autistic.
In particular, it totally leaves the option typical for AS - doing reasonably well pre-school and reaching the "expectations exceed capacities" moment later in life.


Quote:
. and the likelihood the children will go on to be diagnosed with autism


Sounds very clear to me.


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magz
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23 Sep 2021, 3:13 am

"before reaching school age".

Nothing about later in life.

This (the source, not The Guardian comment) is a scientific article, written in precise scientific language. The authors are aware of limitations of their results and careful not to claim anything the data don't demonstrate.


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23 Sep 2021, 3:35 am

They wanted to boost the back-and-forth communications between the parent and the child as the building blocks for brain development.
"What we're doing is helping give the parents the secret as to how their baby's communicating with them through their body, through their face, through their vocal expressions and how they can best communicate back to get those back and forth interactions to build the brain," Professor Whitehouse said.

How many specialists can identify autism in babes?? ours didn't.

They then go and say

The researchers stressed parent-child interactions were not the cause of autism and parents were not to blame in any way, rather children were born with a developmental vulnerability that was related to genetics.

Wait something about this doesn't make sense??



magz
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23 Sep 2021, 3:41 am

cyberdad wrote:
How many specialists can identify autism in babes?? ours didn't.

That's a valid point. DSM criteria for autism can't be applied to babies.

cyberdad wrote:
The researchers stressed parent-child interactions were not the cause of autism and parents were not to blame in any way, rather children were born with a developmental vulnerability that was related to genetics.

Wait something about this doesn't make sense??
How about this translation to common language: "Autism is not caused by bad parenting - it's mainly genetic - but parents can help reduce impact of autism on their children."


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carlos55
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23 Sep 2021, 4:08 am

magz wrote:
"before reaching school age".

Nothing about later in life.

This (the source, not The Guardian comment) is a scientific article, written in precise scientific language. The authors are aware of limitations of their results and careful not to claim anything the data don't demonstrate.


If they don’t have autism by school age it’s unlikely but not impossible they will have it later in life like AS for example.

The study has wider implications in that autism was considered fixed in the womb but this study shows that may not be the case.

A large part of the Neurodiversity paradigm of born natural difference has just been thrown on the bonfire.


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magz
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23 Sep 2021, 4:28 am

"Not being diagnosed with autism" is something very different from "not being autistic".

I didn't start to be autistic at the age of 32, for example.


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