Autistics Awake/Unite: Autism Advancement #ActuallyAutistic

Page 1 of 1 [ 9 posts ] 

JimberryAndTheCouscous
Blue Jay
Blue Jay

User avatar

Joined: 29 Mar 2022
Age: 50
Gender: Male
Posts: 96
Location: Bristol

10 Apr 2022, 11:40 am

Dear Everybody,

It occurs to me that many here are fighting similar personal battles on account of the world at large's general misunderstanding of autism and the inadequacy and inappropriateness in the provision of services.

Should we all unite into a unified voice we could overcome much and effect real change and many in desperate circumstances could be given opportunity to thrive.

With best wishes, welcoming all comments/contributions and with the kindest of regards,

Jim

Jimberry and the Couscous Channel


_________________
https://www.youtube.com/watch?v=HkUSzQ0Vvrc

Jimberry and the Couscous - Too much information
- Failure to habituate
#ActuallyAutistic #Ableism #RightToThrive #Neglect #AutismAdvancement


JimberryAndTheCouscous
Blue Jay
Blue Jay

User avatar

Joined: 29 Mar 2022
Age: 50
Gender: Male
Posts: 96
Location: Bristol

10 Apr 2022, 3:24 pm

We have common ground and experience to unite behind. I have no choice. I am quite literally fighting for my very existence!


_________________
https://www.youtube.com/watch?v=HkUSzQ0Vvrc

Jimberry and the Couscous - Too much information
- Failure to habituate
#ActuallyAutistic #Ableism #RightToThrive #Neglect #AutismAdvancement


ASPartOfMe
Veteran
Veteran

User avatar

Joined: 25 Aug 2013
Age: 66
Gender: Male
Posts: 34,476
Location: Long Island, New York

10 Apr 2022, 11:09 pm

Talk to user Mana Pereth. Look at her posts and bio.


_________________
Professionally Identified and joined WP August 26, 2013
DSM 5: Autism Spectrum Disorder, DSM IV: Aspergers Moderate Severity

It is Autism Acceptance Month

“My autism is not a superpower. It also isn’t some kind of god-forsaken, endless fountain of suffering inflicted on my family. It’s just part of who I am as a person”. - Sara Luterman


JimberryAndTheCouscous
Blue Jay
Blue Jay

User avatar

Joined: 29 Mar 2022
Age: 50
Gender: Male
Posts: 96
Location: Bristol

11 Apr 2022, 6:58 am

Thanks ASPartOfMe!

I will do.

Have a great day,

Jim


_________________
https://www.youtube.com/watch?v=HkUSzQ0Vvrc

Jimberry and the Couscous - Too much information
- Failure to habituate
#ActuallyAutistic #Ableism #RightToThrive #Neglect #AutismAdvancement


KenG
Veteran
Veteran

User avatar

Joined: 31 Mar 2006
Age: 54
Gender: Male
Posts: 2,122
Location: Israel

11 Apr 2022, 9:39 am

JimberryAndTheCouscous wrote:
Should we all unite into a unified voice we could overcome much and effect real change and many in desperate circumstances could be given opportunity to thrive.


You live in Bristol, right?

Have you contacted Autistic UK, which is run by autistic people in the UK for autistic people?
https://autisticuk.org/

Have you contacted AutAngel, which is run by autistic people in the UK for autistic people?
https://www.autangel.org.uk/

Have you contacted the National Autistic Taskforce, which is run by autistic people in the UK for autistic people?
https://nationalautistictaskforce.org.uk/

Have you contacted Autistic Inclusive Meets, which is run by autistic people in the UK for autistic people?
https://autisticinclusivemeets.org/

Have you contacted Autscape, which is run by autistic people in the UK for autistic people?
http://www.autscape.org/


_________________
AUsome Conference -- Autistic-run conference in Ireland
https://konfidentkidz.ie/seo/autism-tra ... onference/
AUTSCAPE -- Autistic-run conference and retreat in the UK
http://www.autscape.org/


JimberryAndTheCouscous
Blue Jay
Blue Jay

User avatar

Joined: 29 Mar 2022
Age: 50
Gender: Male
Posts: 96
Location: Bristol

11 Apr 2022, 3:12 pm

Thank you KenG,

None of the above! Never heard of them until now.

Thank you for restoring some hope to me.

Best wishes,

Jim


_________________
https://www.youtube.com/watch?v=HkUSzQ0Vvrc

Jimberry and the Couscous - Too much information
- Failure to habituate
#ActuallyAutistic #Ableism #RightToThrive #Neglect #AutismAdvancement


Mona Pereth
Veteran
Veteran

Joined: 11 Sep 2018
Gender: Female
Posts: 7,811
Location: New York City (Queens)

12 Apr 2022, 1:42 am

Hi Jim,

You're very lucky you live in the U.K. -- where, as far as I can tell, the autistic community is better-developed than almost anywhere else in the world.

Yet the autistic community still has a long way to go, even in the U.K. See Longterm visions for the autistic community for my thoughts on various kinds of organizations that the autistic community needs but still does not yet have.

If you wish to help build the autistic community yourself, perhaps you might want to contact the Autistic Mutual Aid Society Edinburgh to ask if anyone there would be able and willing to advise you on how to start a similar group in Bristol, or if they will be holding any relevant training sessions soon. They occasionally hold trainings on how to build an autistic people's organization.


_________________
- Autistic in NYC - Resources and new ideas for the autistic adult community in the New York City metro area.
- Autistic peer-led groups (via text-based chat, currently) led or facilitated by members of the Autistic Peer Leadership Group.
- My Twitter / "X" (new as of 2021)


JimberryAndTheCouscous
Blue Jay
Blue Jay

User avatar

Joined: 29 Mar 2022
Age: 50
Gender: Male
Posts: 96
Location: Bristol

15 Apr 2022, 4:50 am

Thanks Mona. Not my experience of living in the UK unfortunately. I think I was born to be tortured and consider myself damned to live in the UK. Kind regards and best wishes, Jim.


_________________
https://www.youtube.com/watch?v=HkUSzQ0Vvrc

Jimberry and the Couscous - Too much information
- Failure to habituate
#ActuallyAutistic #Ableism #RightToThrive #Neglect #AutismAdvancement


Mona Pereth
Veteran
Veteran

Joined: 11 Sep 2018
Gender: Female
Posts: 7,811
Location: New York City (Queens)

29 Apr 2022, 5:43 am

Looking at the description of Jimberry's video on YouTube, I notice the following:

Quote:
Autism Acceptance Day?!

Why is it that the terminology remains so limp?
Because we (autistics) are all so used to being kicked in the proverbials?

How about Autism Advancement Day or Autistic Advancement Day or Advance Autistics Day?

Yes, Autism Acceptance is slightly less pathetic than Autism Awareness though it still sounds to me like 'Please sir can (may) I have some more?'. Almost like, 'Oh well, we are aware of these *****s; might as well accept them'!

I like the idea of Autistic Advancement!


_________________
- Autistic in NYC - Resources and new ideas for the autistic adult community in the New York City metro area.
- Autistic peer-led groups (via text-based chat, currently) led or facilitated by members of the Autistic Peer Leadership Group.
- My Twitter / "X" (new as of 2021)