Disparities Impact Identification of Autism Without ID
ASPartOfMe
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Joined: 25 Aug 2013
Age: 66
Gender: Male
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Location: Long Island, New York
For a study published in Pediatrics, Dr. Shenouda and colleagues assessed the prevalence of autism spectrum disorder with and without intellectual disability among 8 year olds in the New York/New Jersey metropolitan area. The cross-sectional study design included data from 2000 to 2016.
“In our region, we saw autism estimates of approximately 1% in 2000 that rose to 3% by 2016, but there were variations, with some community estimates exceeding 5%,” Dr. Shenouda says. “That led to the question of why, and we saw that in areas with high estimates, we are identifying more children with autism without intellectual disability. That question led to this study. We wanted to know if the increase over time in autism was equally distributed among children with autism with and without intellectual disabilities.
Estimates Increase for Autism Without Intellectual Disability
he study team identified 4,661 8-year-old children (81.4% male) with autism spectrum disorder (ASD), including 1,505 with intellectual disability (32.3%) and 2,764 without intellectual disability (59.3%). Nearly half of the study population (45.4%) identified as non-Hispanic White, followed by Hispanic (26.4%) and Black (20.3%).
“We found that there was a steeper rise over time among children with autism without intellectual disability,” Dr. Shenouda says. “While estimates increased two-fold for autism with intellectual disability, estimates increased five-fold for autism without intellectual disability between 2000 and 2016.”
She also noted the disparities observed in the detection of autism without intellectual disability. “Specifically, our findings show lower autism estimates among Black children compared with White children and among children residing in socially disadvantaged areas compared with children residing in affluent areas.”
According to Dr. Shenouda, the researchers expected different patterns in estimates over time among children with autism with and without intellectual disability, but not the large differences based on socioeconomic factors.
“A child with autism without intellectual disability in an affluent region has an 80% greater likelihood of being identified with autism and receiving services compared with a similar child in a community of low wealth,” she says. “We also saw that Black children with autism without intellectual disability were 30% less likely to be identified compared with White children. These findings can stem from multiple factors, including access to service as well as cultural barriers.”
Universal Screening ‘Essential’ to Identify Autism Earlier
According to Dr. Shenouda, the disparities observed as likely the result of lower access to services among certain populations. “It is likely many of these children are not receiving services and not coming to a provider’s attention at an early age. Early screening for autism is essential to identify children early, and children from underserved communities are the ones likely to benefit the most.”
She also noted that the best way to address rising rates of autism, and to have an impact on the disparities seen in autism identification, is through universal screening for the condition among all toddlers
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Professionally Identified and joined WP August 26, 2013
DSM 5: Autism Spectrum Disorder, DSM IV: Aspergers Moderate Severity
It is Autism Acceptance Month
“My autism is not a superpower. It also isn’t some kind of god-forsaken, endless fountain of suffering inflicted on my family. It’s just part of who I am as a person”. - Sara Luterman
Strange thing to say, he’s clearly come out of a long coma or Time Machine having missed Asperger’s and Autism merger 10 years ago.
To be diagnosed Asperger’s before then meant to be without ID. By merging its obviously diluting the data of those with ID as a %
These so called experts are so incompetent anyone here or high school maths kid could have spotted that.
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"The reasonable man adapts himself to the world; the unreasonable one persists in trying to adapt the world to himself. Therefore all progress depends upon the unreasonable man."
- George Bernie Shaw
Strange thing to say, he’s clearly come out of a long coma or Time Machine having missed Asperger’s and Autism merger 10 years ago.
To be diagnosed Asperger’s before then meant to be without ID. By merging its obviously diluting the data of those with ID as a %
These so called experts are so incompetent anyone here or high school maths kid could have spotted that.
I think they would know to include Asperger's in the 2000 numbers. But they should have said they were doing that.
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ND: 123/200, NT: 93/200, Aspie/NT results, AQ: 34
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The gold standard stats on this are the CDC which as far as I know ID remain stable as a % of autistic people.
The problem is there are two things wrong with the figures:-
1. It ignores ID in adults - They claim ID is approx 31% in 8 year olds autistics so everyone thinks only a 1/3 of autistic people are ID.
But this is not true, if look at the CDC figures there’s another 25% called borderline also known as “wait and see” (25 % is a lot) at 18 years old this 25% splits in two and the 12.5% is added to the 31% so in reality nearly 45% of autistic people are ID and always were.
2. There’s a middle of autistic people with IQ slightly above ID cut off but significantly below the normal range. They are significantly disabled by it but this gets ignored because the public think in binary terms that if someone’s IQ is not ID they must be ok which is not true, this article goes into that
https://www.ncsautism.org/blog//the-pro ... und-autism
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"The reasonable man adapts himself to the world; the unreasonable one persists in trying to adapt the world to himself. Therefore all progress depends upon the unreasonable man."
- George Bernie Shaw
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