I'm going to research alexithymia - what would people like?

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CathyKn
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24 May 2024, 12:25 pm

I'm autistic and have dyscalculia. I'm planning research on alexithymia which is difficulty identifying or expressing emotions. I'm interested in neurodiverse people who have these difficulties and how it affects them, or how they manage.

However, I would like to know what other people would like to know about alexithymia.

Here are my parameters:
I'm dyscalculic so any research has to be qualitative and cant involve lots of numbers or statistical analysis.
I'm a counsellor and mentor so the areas I'm best qualified to look at are relationships, wellbeing, learning strategies, how we manage our own internal sensitivities, how we can learn what other people are feeling, how we 'are' in the world.
I also dont have years to do the research, only a few months.

If anyone has any interests about this topic, any specific questions about alexithymia they would like researched (like, how do we know what other people are feeling), or if there was an area where they thought there wasn't enough research or information, I am happy to change my question before I start planning the work. I cannot guarantee to take on the question, as it might be too complicated, but I thought I would ask.



nick007
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24 May 2024, 5:21 pm

You mentioned being a counsellor & I think it might be potentially helpfull if there was more research about how alexithymia could affect various relationships or relationships in general.


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CathyKn
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24 May 2024, 9:59 pm

That sounds good, it's one of the areas I work with people on.
I might post extra questions about aspects of relationships, if no-one else posts suggestions, to close in on a really narrow question for the research.
I'm going on to PhD after this, so this research will probably then lead to the next, bigger project.
Thank you.
I really like this idea.

I'll also keep people up to date with what I'm doing, if interested.



IsabellaLinton
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24 May 2024, 10:01 pm

Alexithymia and Selective Mutism
Alexithymia and PTSD
Alexithymia and Aphantasia
Alexithymia and Interoception
Alexithymia and Self-Harm / Suicide


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CathyKn
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25 May 2024, 3:19 am

That's really helpful, especially interoception.
I'm going to keep checking in.
Thank you



Edna3362
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27 May 2024, 9:08 pm

The difference between allistics (not necessarily NT, but can be) with alexithymia from autistics with alexithymia and how much that mattered.

What's the difference between alexithymics who are external inclined, logical, rational thinkers and is likely stoic (over-regulated) from those who aren't (Might be emotionally expressive and easily dysregulated yet unaware/cannot tell much of said emotionality) regardless of being in the spectrum or not.
Or if the latter type exists at all.

Alexithymia and anything to do with emotional regulation and emotional processing in conjunction or relative to their interoception.


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MatchboxVagabond
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27 May 2024, 9:11 pm

Alexithymia and dissociation or Alexithymia without dissociation could be potentially very interesting.



CathyKn
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25 Jun 2024, 9:20 am

CathyKn wrote:
I'm autistic and have dyscalculia. I'm planning research on alexithymia which is difficulty identifying or expressing emotions. I'm interested in neurodiverse people who have these difficulties and how it affects them, or how they manage.

However, I would like to know what other people would like to know about alexithymia.

Here are my parameters:
I'm dyscalculic so any research has to be qualitative and cant involve lots of numbers or statistical analysis.
I'm a counsellor and mentor so the areas I'm best qualified to look at are relationships, wellbeing, learning strategies, how we manage our own internal sensitivities, how we can learn what other people are feeling, how we 'are' in the world.
I also dont have years to do the research, only a few months.

If anyone has any interests about this topic, any specific questions about alexithymia they would like researched (like, how do we know what other people are feeling), or if there was an area where they thought there wasn't enough research or information, I am happy to change my question before I start planning the work. I cannot guarantee to take on the question, as it might be too complicated, but I thought I would ask.


I hope everyone sees this post okay!
I want to thank you so very much for contributing, it's made a huge difference and I'm determined to research the areas that matter most to us, and which I can contribute to. I'm having a meeting with my supervisor soon and I've got the question for the research which I want to do this winter. It's drawn from everyone's views.

I want to give people an option to be involved if they want to, so I'm not going to say what the question is right now - this is so that anyone who participates in the research has the question at the same time and has the same amount of time to respond. I have to make sure the research has rigor and can stand up to academic scrutiny.

I'll keep everyone updated and will let you know what's happening. I'm very excited as I know we can influence what is researched about us, so that we have relevant and better knowledge.

It will be a while before I can post again, but I haven't forgotten.



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27 Jul 2024, 11:27 pm

I've thought for a long time that Alexithymia meant relying on others to interpret your own emotional state. I stand corrected.

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