Cerebral Palsy + DNR order = one pissed off Strapples

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A smiling Katie Jones takes a break in the early afternoon at Laremont School in Gages Lake, part of the Special Education District of Lake County. Katie, who suffers from severe cerebral palsy, is a 2nd grader at the school, where officials decided to honor her Do Not Resuscitate order after two years of emotional debate. (Tribune photo by JIm Prisching / September 17, 2007) (chicago tribune)

this kind of pisses me off that the family did this... i dont think it is right to say "if my child goes into medical distress dont do anything" cerebral palsy is not terminal, not progressive, not life threatening, and i have a possibly life threatening, rapidly progressive condition and you dont see me have a yellow DNR on the back of my wheelchair... this is blasphemy... i dont think this is right... why would you want to throw away the life of a child like this... the mind is very powerful, even though she may possibly have severe CP and possibly severe learning disabilities it does not mean those disabilities can be mitigated through all of the great technologies and therapies available to this date...

P.S she is a real cutie and if she were a bit older i would sign her on as my girlfriend

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Why don't they ask Katie?

I had troubles following what your post was about. What exactly did Katie's parents do?

my point of view is since CP will not kill a person and since she is a living being that may be having to use a head array to power a wheelchair if she did use a poewrchair, i dont think its right to refuse emergancy rescue procedures on a child. disabled or not

i think since people with cp live a long life and at 2nd grade (usually about 7 to 9 years old) its too early to tell about her outcome on life. i really think its both risky and DANGERUS to have her DNR order pinned to the back of her wheelchair, i mean since the patient's name and ssn are on there, anyone can steal that child's identity.

if this was because of some religion such as jehovahs witnesses, i think its time for the safety and well bing of this child to convert to a more free religion.

i really hate when adults and people assume what people can or cannot do when the assumed about hasnt had a chance to try soemthing or reach that point in time,


sehs human, has a mind, people with severe cp THINK and i really find it sad that they are treated like a broken toaster (tossed or not treated or fixed)

i voted no id not put a dnr on this cute looking child who may have a really good life ahaid of now

Do you have a link to the story? I don't see any indicator that this went through a court of law - just a decision made by the school district, which is an entirely different thing.
I'm honestly not sure how I feel about this. In principle, I think we ought to respect parents' wishes on things like this, but it seems an odd decision on their part, to put things mildly. I disagree with Jehovah's Witnesses who refuse blood transfusions for their children, but I still feel that I have to support their right to choose the medical treatment their kids do or do not get, nomatter how wrongheaded I think their decision is. This seems similar - I think it's the wrong decision, but I'm not sure I'd want anyone else making a decision in the parents' place.

grrr... parents that stupid should be served with a Do Not Reproduce order

This just pisses me off. I know two kids with severe cerebral palsy and they're both wonderful children. Biggest smiles you'll ever see, happy as larry most of the time (though they've worked out some rather rude codes using their eyes to let you know when they're pissed off... and believe me, you know!!).

One of them can move his knee, so they've linked up a giant button he can kick to a computer programme with the alphabet and a word processor. He kicks the button with his knee, chooses what letter he wants, and writes fantastic stories. He's also bilingual at age 8!!

CP is NOT retardedness. So what if the body doesn't work properly for the most part; the mind is there, the spirit is there, the ego is there, the PERSON is there. That's all that matters. Yes, it's difficult for the parents (to say the least) but they're still your kids, people!! Can't you see that?!

I couldn't find a link to the article from the photo gallery, but I did eventually find it:

http://www.chicagotribune.com/news/local/chi-dnrkids_bd_09dec09,0,3568955.story?page=1

According to the article, the doctor told the parents that her condition was getting worse and suggested the DNR so that she could die peacefully at home. I still don't agree with it, considering that they didn't ask her.

I still don't understand what a DNR is? What does it do for the child?