*§*AS-Parent Support Group*§*
Vivienne
Toucan
Joined: 22 Dec 2009
Age: 45
Gender: Female
Posts: 276
Location: Toronto, Ontario, Canada
My son is undiagnosed (waiting...waiting..waiting..) AS. Upon researching I've realized I share many many many traits. I don't plan to seek diagnosis for myself but I consider myself AS.
I don't regret my choice to have kids. I am an amazing mom. It's my passion, and my kids are wonderful and the biggest joy in my life.
I'd like to see such a forum.
_________________
Be not angry that you cannot make others as you wish them to be, since you cannot make yourself as you wish to be.
~Thomas à Kempis
"Be plain, good son, and homely in thy drift;
Riddling confession finds but riddling shrift"
~Shakespeare
I would LOVE a permanent place for this - that is only for Parents who have AS, with children who do or do not have spectrum disorders.
I don't come to WP very often because I find it very overwhelming. But my website is supposed to be just that. I don't mind people registering who don't meet the criteria, but it is supposed to be a place for AS parents. I've also continued to look for someone who has NT or NT/ASD mixed children to blog on things they see important. So if anyone is interested. I know that different issues pop up with everyone. Both my kids are ASD not AS, but I'm AS myself, and my husband is AS-lite (ADHD to be exact, can "do" social interaction but chooses not to).
Link is in signature. And if you don't like the style of the website, let me know. I can see what I can do to get something that most everyone likes. I've changed the look 4 times since I started it in Fall '08.
I love being a mom.
Yes its hard. Yes I hate being forced to be social. I have over stimulation issues, Question myself as a parent, Wonder If i'm doing it right, exc.. I worry, I complain sometimes, I find it hard when my daughters friends are over, and I can barely hold myself together dealing with NT "professionals" who want to help my newborn son with problems that he doesnt have. But being an AS inclined parent can be a good thing too. I know things that I believe NT parents wouldnt think about. I try to understand my children instead of assuming that they are stupid or too little (or too anything) to understand. When one of the kids has obviously had a bit too much, we turn down the lights and talk, or read, or meditate and de-stress together. I keep figgit toys, (they are just cool) I know how to stop a meltdown in the kids, because I know what helps me, and That gives me an advantage. I have learned to accept that there is nothing you can prepare for when It comes to kids. and that I have more to learn from them then I have to teach them. All in all Its been a positive expereince. I do not know If my children have inherrited my quirkyness, but I hope they can find a way to accept their own. Being weird is a good thing in this family. and not being weird is ok too. as long as your being yourself.
I don't know whether the poll meant by AS Parents: "Parents of those with AS," "AS folks that happen to be Parents," or, in all probability, "Both of the above."
I am neither, but I have AS and I help out a group of "Parents of those with AS" in my local community located in Fargo, ND. I was invited by the parents support groups to be a resource, and I've obliged them for the past two years on a pretty regular basis sans. A contingent of them might respond well to a reliable online place to mostly rant about that stuff. Idk.
It's actually the latter. AS people that happen to be parents. There is already a forum on here for parents of those with ASDs. We with AS that also are parents are in a different sort of predicament. Think for a second about what it takes to become a parent. It means we have enough social skills to gain a romantic and/or sexual relationship with a partner for long enough to get pregnant. We have to have enough self understanding to know that we are equipped to raise the child. We then start raising that child, but are then expected to be like typical parents. Some of us have ASD children, others do not.
We are expected to handle 'playdates', parks, PTA and all the social events and politics that go along with it. On top of it, many of us end up with social services at one point or another questioning our ability to parent. Just because we are unconventional doesn't mean we can't take good care of our kids. People don't see that our children in general are usually pretty happy and healthy, they just see what we're doing 'wrong.' So it's definitely a very different dynamic and a different world.
Ah. Okay. That makes more sense as I saw the forum for parents already. I'm actually very new to this despite having an account that's over a year old.
I cannot outright imagine parenthood because it scares me at a fundamental level.
However, I do help a neurotypical parent group (that have AS children) enough to know that there's a very bizarre social pecking order just among parents in regards to cross-expectations and providing rapport. More bizarre than the stuff I see in the workplace or recall seeing from my time in college. Just the idea of forcing kids into "playdates" while the parents talk about small talky things for an extended period of time brings an innate fear.
Good luck?
Obviously non-parents and NT parents can read the thread, but please do not post. This is meant to be for AS parents. Thank you very much.
The reason for this thread is that although there is a Parent's Forum for parents of AS children to discuss difficulties on it isn't about being an AS parent.
I don't think the problem is so much the number of "NT" parents on the Parent's Forum, with all the NT capacities ( for negotiation; imposing regular routine on another; multi-step paperwork etc etc, and sometimes advocacy work involved in parenthood, etc ) which many NT can't help taking for granted, nor the predominantly NT perspective on what is ok in a child, though that can be a problem, so much as that it's about the children.
Which is fine, but I have particular difficulties being a parent because I am AS, and I sometimes feel all those classically AS things, irremedially irresponsible, immature, prone to exaggeration or black and white thinking, "silly", slow, like a child, over-excitable/emotional, etc, on the Parent's Forum because after all it's supposed to be about the real AS children right, the ones still under-18.
Have put thread on here because this is a slow moving forum but also because it offers some protection from possibly hostile, perhaps uncomprehending, potentially "hurt" gaze of family members, friends and colleagues, when all one is doing is venting.
Does anyone think a poll would be useful? If have ideas for one in next 32 hours or so can put one on. Let me know.
agreed
Yes, I have an AS son. I am not diagnosed AS (not assessed) but I am definitely not neurotypical. Being the non NT parent of an AS child has it's benefits, for one thing I really understand what he experiences with social issues. I have my own difficulties negotiating life and while there's a lot I've learned, there's a lot still I need to learn. I'll try to do my part in keeping this thread active, because I think it could be useful.
I have always let my son come to things at his own pace. Sometimes it seems like he will hold on to something forever and then one day he will decide that he's ready to let it go. This was true of his pacifier and also with potty training. The present issue is he can't get to sleep unless I am with him till he falls asleep. He's 12 by the way.He is visiting his grandparents in another part of the state and is having a hard time sleeping in a strange house. The available guest room is on the basement level far away from the master bedroom. He is too shy to ask his grandmother to make other arrangements so I have emailed her. My question is, do you think it is best to let him come to things when he's ready? I think most would say I was indulging him but I'm not sure if forcing change on an AS child is the right way to go. What do you think?
I'm not sure why this thread never got off the ground because there are many here who are AS or suspect they are with AS children.I admit I don't post often in the parent's forum, maybe because I think he's wonderful just the way he is and I only want to help him learn how to navigate an alien world while still being true to himself. I tell him the way I've learned that things work and even if it doesn't seem to make sense it is to his advantage to understand it. One example is this: I have noticed in NT male culture it is common for a certain kind of teasing to happen. I realized it was some sort of unwritten test to see how resilient someone is. My son has never been able to tell the difference. He takes it all seriously and reacts angrily and then he is bullied afterwords.
I admire you for homeschooling. I don't think I could pull it off with my difficulties with executive function. I work and my son receives SSDI and with that we live right below the poverty level. The funds from the SSDI enable me to work at reduced hours (about 32 hours a week). I am lucky to have a job with flexible hours so I can easily get errands done in the middle of the day. My big problem is I cannot operate at the same level as most people. I don't feel it when I'm out there in the world but it must drain me because when I get home I feel exhausted and must nap before I can function again.
I wonder if people simply do not notice this thread. I think it would be nice to have a separate forum rather than just a thread but I don't know if Alex would go for it.
I applaud what you're doing, it can't be easy.
Last edited by ominous on 23 Sep 2010, 6:37 pm, edited 1 time in total.
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