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LabPet
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08 Sep 2010, 11:53 am

Apologies if this has already been mentioned, but the UK's NAS (National Autistic Society) is really great - highly recommend. 5 stars

For myself, I am a PhD student & NAS actually has a representative on campus weekly.


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Dilemma
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06 Oct 2010, 11:18 pm

Illinois, highly highly recommend the Pediatric Development center at Illinois Masonic hospital in Chicago.

The Dr I mentioned earlier in the thread actually insisted I take my daughter there where they have a specialized autism clinic and can do a thorough evaluation. They do have waiting lists but it is a really great place. I've also had a few others recommend IL Masonic (I think someone here may have).

No particular Dr, we saw several for different areas during the evaluation, and have a referral ready.



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18 Oct 2010, 2:31 pm

Western New York

Dr. Michael P. Santa Maria PHD
Board Certified Neuropsychologist, Diplomate. ABPP-CN
DeGraff Memorial Hospital
455 Tremont Street, Suite 323
P.O. Box 750
North Tondwanda, NY 14120-0750
(716) 690-2560

He diagnosed me for Aspergers I got the test results back very quickly

Dr. Drew C. Messer, J.D., PHD
Clinical and Child Psychologist
www.electronicgamingtherapy.com

He is diagnosed with Aspergers so he knows what you are going through. :D

5888 Main Street
Williamsville, NY 14221
(716) 961-9435


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RykerSJ
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27 Oct 2010, 12:07 pm

Vanderbilt University in nashville,tn
Wendy Stone,head of the Autism,PDD,assessment team



kate123A
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04 Dec 2010, 8:34 pm

Triad Vanderbilt......They confirmed my son's diagnosis and made my diagnosis. They are great plus mine was a part of a study so I got paid to do it.



momsparky
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28 Jan 2011, 11:13 am

I did a search for the Chicago area and found only one reference, forgive me if this has been posted before. We are getting excellent care from the Pediatric Developmental Center at Illinois Masonic Hospital: http://www.advocatehealth.com/immc/body.cfm?id=139

They are a comprehensive program which includes not only a pediatric neurologist, psychologists, psychiatrists, and social workers - but also speech therapists and OT in the same building. The intake took a couple of visits, but we were referred for testing, and they did the ADOS and a speech test within a month or so - and gave us results that were easy to understand. They also have a multilingual staff with a particular focus on Spanish (they of course also speak English.) Our insurance recognizes them as in-network, and covers most of the costs.

Fair warning: I am sure this is the case with any program that works with kids on the spectrum, but when it's busy, the waiting room is NOISY. If your child is sensitive to noise and chaos, have a plan for the waiting room.


Pediatric Developmental Center
3040 N. Wilton Avenue 2nd Floor
Chicago, Illinois 60657
773.296.7340



bjcirceleb
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30 Jan 2011, 4:40 am

Autism Societies in each state in Australia have massive lists not just of who can diagnose, but also those that treat and/or assist with the condition. They have specailists in every single conceivable number of fields. The occupational therapists association, Australian psychological society and the like, also have lists on their websites of on accredited autism specailists, who have done some level of professional development in autsim and who claim to have experience, they do list how many years, not sure of other fields, but I suspect it would be similar.

Having said that it all depends on what you want to be told. There are professionals out there who will tell you you have XXX disorder, because it is the only thing they could possibly consider, to them every single thing of that nature means XXX. If you want that diagnosis, great, if you want another one, not so great. It is amazing to me just how many parents pick and choose the specialists they see to find the one that will give them the diagnosis they want. I know of a child who was assessed by 307 different pediatricians and child psychologists, the majority of whom said he had XXXX, the parents were not happy which is why they kept searching for another diagnosis. They ended up seeing Toni Attwood and got the diagnosis they wanted of Aspergers. It was the ONLY diagnosis they would accept. I can say that there is not one thing that I see in this child that is typical of someone on the spectrum, but then again Toni Attwood does not diagnose anything else. I know of people who have seen him and he has saved their lives and there children's lives, but diagnosing every single person who has the slightest bit of social isolation as aspergers is not necessarily making someone a good diagnositican. I do respect what he writes and a lot of what he has said, but some of the people who see him really do have questionable diagnosis to my eyes, but then again in his state in Australia the rate of Autism Spectrum Disorders is now at 1 in 30 children?? Are we honestly going to say that we are that common. Because that would mean that being on the spectrum is more common than wearing glasses, having blonde hair, etc. But when the only daignosis that gets you any services is autism spectrum disorders is it any wonder that people go looking for that diagnosis.

I was daignosed as a child, but it meant nothing and I had no documentation. I was rediagnosed a number of years ago as an adult in their mid thirties on the advice of a psychiatrist that does not do those diagnoses, that has never done one, but could see that that was really what my issues were. When parents diagnose their own children and then search out a professional to give them the word they want to hear, I have a problem. When they go asking for a diagnosis for this, rather than saying I think there is something wrong and I would like your assessment I have a problem. I agree that parents know the child better than anyone, but they are not specialists and there are so so so many conditions that all overlap each other, and when there is no definitive test then it murky's the water all the more.

Yes we are diagnosing better and as a result seeing an increase, but there is also a huge amount of wrong diagnosis going on. At one stage one in 20 children had ADHD that has now changed, but in doing so we have 1 in 30 on the spectrum. It seems to me like we are taking the same problems and labelling them with something else. That does not mean that such conditions do not and cannot co-orrur but when the rates are that low in one area and not others one really does have to question what is happening.



Elismom
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09 Mar 2011, 2:20 pm

So this is a little off topic as we don't need a good diagnosing doc. We need a good pediatrician who understand all that goes along with Autism. Anyone have any good ideas. Preferably in the west central Wisconsin area.



tskin1
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10 Mar 2011, 2:27 am

Elismom- it's not west wisconsin but at least next state over lol Our pediatrician is fantastic she will bend over backward to help in any way she can has even in our case overseen williams medications to avoid having to deal with the idiot pych's around here who would like to see him drool in a corner .. doesn't expect you to travel every month or 3 for a med review, will let you adjust the meds slightly with a call to her office nurse.. We drive 3 hours to see her every year for his well child which is the only visit she expects and yet she continues to be as involved as we ask her to be...she also has no problem with them seeing a different doctor for simple illnesses in the meantime. Unlike most doctors who shuffle you in and out as quickly as possible she takes the time to listen and cares not only about how the child is doing but the parents/siblings as well.

Dr. Cynthia Statler
Mackinac straights Hospital
Saint Ignace, MI 49781

phone-906) 643-0400

her waiting list is generally about 3 months out


Other great docs in Michigan ....

University of Michigan has a great Autism center but the waiting list is a few years as i recall

Web & Devers Psychological Services
Bob Devers
906-635-7270
Sault ste. Marie, MI 49783

(diagnosed william with PDD-NOS at 3yrs old and was able to get him secured with speech also helped me fight the schools in making sure he had the services he needed he actually came to the IEP)

L. Humberto Covarrubias MD, P.C.
497 East Columbia Ave Suite 15
Battle Creek, Mi 49015
269-965-6406

(this was the one who diagnosied williams AS and ADHD , this one was available via teleconference if needed during the IEP a med review was expected every 3 months which ment a 6 hour drive but otherwise he and staff were fantastic)

it's very difficult to find good doctors but my suggestion is to find one who is willing to give you some power as parents to make the choices for your kids, one that is willing to be available for IEP's if nessesary and one who will take the extra time needed to make your child feel comfortable during visits.

I second whichever of you posted as being a nurse i feel the same thing myself.. i have been a nurse for more than 20 years and yet my opinion counts for squat with all but the three doctors listed above.... especially psychiatrists who see your child for maybe an hour (usually less) usually on a good day who presume to know more about your child than you do. I have a theory that most know the DSMV diagnostic criteria but care very little about what it's like to be the parent or the patient.



Aflowerinyourhair
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30 Mar 2011, 9:53 pm

For Nebraska USA.

Williamsburg Behavioral Psychology
3801 Union Dr # 206
Lincoln, NE 68516-6652
(402) 489-2218

There are a few Dr's in this office that can diagnose.

Dr Palmer-Wilson or Dr Diane Marti are two that I have spoken with and are very good!

Dr Marti Diagnosed my sons and myself


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snarrkyone
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03 Apr 2011, 3:50 pm

I'm in Cookeville Tennessee USA

I have 2 here I can list.

Dr. Daniel Donovan
ADHD clinic
105 Cherry Ave.
Cookeville, TN 38501
931-528-5811

Dr. Donald Atkinson
Plateau Mental Health Center
1200 S. Willow Ave.
Cookeville, TN 38506
931-432-4123

I have a son (16) with Aspergers, ADHD, ODD. Both these doctors have been a God send. He's finally on the right meds and getting help with social skills. This is the happiest he has ever been. Thanks to these 2 doctors my son is college bound and excited about it.



yesterdaysmom
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23 May 2011, 2:15 am

Anyone know where to go for both Children's and adult diagnosis in Southwest Virginia or nearby? I live in Buchanan County which is sandwiched between Pike County Kentucky and McDowell County West Virginia. NE TN and NW NC and Central VA are also close enough for us if need be. Thanks!



808Friend
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24 May 2011, 10:15 am

As a friend of a family with an autistic son in Hawaii - it is clear to me that there is a place in Hawaii that is a God-send for families dealing with autism and other developmental challenges. The place is the Loveland Academy. Good luck!



Daria
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27 May 2011, 8:18 am

jelibean wrote:
SUSSEX, UNITED KINGDOM

DR GEOFF KEWLEY ........................The Learning Assessment Centre



Thanks for the recommendation. Just been to him - he is great



tiffanymm
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02 Jul 2011, 10:21 pm

In California

I would recommend Dr. Ken Grelling, drgrelling (dot) com - He was really helpful when we were needing some parenting help when our son was a toddler. Completely showed us ways to teach our son discipline in ways that worked without having to resort to hitting him.


Grelling psychology associates
61 Avenida de Orinda #100
Orinda, CA 94563
925-215-8694

In Florida

I would recommend Dr. Drew Rubin, drewrubin (dot) com - He specializes in children with special needs and their families. He did our son's testing as well has our marriage counseling. I can honestly say he saved my marriage. Our son's unique personality and challenges put our marriage through a wringer. He helped us understand how to deal better with our son as well as each other.

Neuropsychological Consultation Associates
1860 N Pine Island Rd Suite 101
Plantation FL 33322

Phone: 954-778-7808



pollyfinite
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13 Jul 2011, 8:42 am

For children in Kansas and the surrounding states:

You'll want to contact Heartspring http://www.heartspring.org/ It is an autism hospital is the best way I can describe it. They have live in care and outpatient services. The facility is beautiful and the staff is amazing. My children have a team. They work with the University of Kansas for their psychiatry (it was listed earlier, we go to the Wichita campus), Heartspring for their OT, speech, they have physical therapy, hearing, everything you need for children but they only do children.

Dr. Valarie L. Kerschen, MD is THE expert pediatrician on neurological issues. She is board certified in them and has a huge waiting list. Still, she is easier to get into than heartsping and is good for a first step.

For adults in Kansas:

The university of kansas is the best bet for adults. Call their psychiatry department.

Also the http://www.counselingcenteratmha.com/ is a good place to start. They have an aspergers group (it's just for children right now) and they have the resources you'll need to get help. They are connected with the county through comcare so this is a great place to start.

Sorry, I just wanted to add more about the MHA because honestly they are wonderful and my kids are in their aspergers group and I prefer their therapy over Heartspring because they have a wraparound service where they come to your child's school, home, take them out in the community, that is in addition to what the schools offer and heartspring does not go out into the community with your child like MHA will.

So, for therapy, we go to MHA, for meds, we go to KU wichita campus and for OT and Speech we go to heartspring.


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