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Forum: General Autism Discussion Topic: Needing suggestions for guidelines about ASD & hospitals |
| Pandanus |
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Posted: 02 Aug 2017, 7:17 pm
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Replies: 18
Views: 1,356
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| Sorry, I don't know about the situation in the US. We're very lucky in the UK to have such good legislation, which means that often if you passive-aggressively wave the relevant subsection of the statutory guidance in the face of services that are being [expletive] then they will often immediately d... |
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Forum: General Autism Discussion Topic: Needing suggestions for guidelines about ASD & hospitals |
| Pandanus |
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Posted: 02 Aug 2017, 5:57 pm
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Replies: 18
Views: 1,356
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| One suggestion for anyone struggling to get their needs met by hospitals is to quote their responsibilities under the Accessible Communications Standard, which is in place for health and social care settings. They must communicate with you in a way that's suitable for you and allow you to communicat... |
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Forum: General Autism Discussion Topic: JCP won't allow me onto JSA from ESA |
| Pandanus |
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Posted: 21 Jun 2015, 10:14 am
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Replies: 26
Views: 1,551
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| As Ukguy says, these days local further education colleges can be very good at helping disabled people. If they have a 'two tick' mark it's likely they will do absolutely everything they can to help people enrol and complete a course. (Being cynical, it's because they get 'brownie points' for disabl... |
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Forum: General Autism Discussion Topic: JCP won't allow me onto JSA from ESA |
| Pandanus |
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Posted: 19 Jun 2015, 7:31 pm
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Replies: 26
Views: 1,551
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| JCP is Jobcentre Plus for non-Brits. It's where we have to go for government assistance for unemployed people. (By the way, do google the origins of the word 'dole') The 'plus' was added when they added extra 'services' like computers for job searching. They are still [rude word meaning rubbish] tho... |
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Forum: General Autism Discussion Topic: Flex your tensor tympani? |
| Pandanus |
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Posted: 19 Jun 2015, 5:52 pm
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Replies: 39
Views: 10,408
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I can do it at will too, though I didn't know what the muscle was called.
Dguru, it seems related to ASMR (google that!) and clinical hypnosis for me. I get that noise during deep relaxation in imagery work durings schema therapy. |
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Forum: General Autism Discussion Topic: JCP won't allow me onto JSA from ESA |
| Pandanus |
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Posted: 19 Jun 2015, 4:33 pm
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Replies: 26
Views: 1,551
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| Haha, indeed! Yeah, sorry for all the abbreviations. We're Brits and those of us unfortunate/fortunate to be stuck in the benefits system quickly have to get used to all of this. I'm doing some autism engagement stuff linked to social care and that's got a whole other set of silly sounding terms to ... |
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Forum: General Autism Discussion Topic: JCP won't allow me onto JSA from ESA |
| Pandanus |
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Posted: 19 Jun 2015, 4:01 pm
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Replies: 26
Views: 1,551
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| steve: apparently the way the assessment system for ESA works is that the assessors have weekly targets to meet of what % of people they put into each 'box'...JSA, ESA (Work related activity group) and ESA (Support gp). They can find themselves near the end of the week having been too harsh to peopl... |
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Forum: General Autism Discussion Topic: JCP won't allow me onto JSA from ESA |
| Pandanus |
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Posted: 18 Jun 2015, 2:40 am
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Replies: 26
Views: 1,551
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| Interesting stuff Pezar. mm, m'dear, be careful what you wish for. JSA isn't fun and you are supposed to spend 5 hours a day 7 days a week, 52 weeks a year looking for work. The do have Disability Advisers, but they aren't generally much for to people on the spectrum. If you are on JSA they can offe... |
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Forum: General Autism Discussion Topic: Please vote online so our autism groups gets funding |
| Pandanus |
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Posted: 02 Jun 2015, 10:20 am
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Replies: 4
Views: 1,133
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| Unfortunately we didn't receive enough votes to get the funding. However, we've got other stuff going on so although it's disappointing, we're still doing things for the local autistic community. |
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Forum: General Autism Discussion Topic: Needing suggestions for guidelines about ASD & hospitals |
| Pandanus |
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Posted: 01 Jun 2015, 8:15 pm
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Replies: 18
Views: 1,356
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| Thanks B19 for directing me to that thread. I particularly like the ideas of a 'Health Passport' and a 'Worksheet' to take to an appointment. And different sensitivity to pain definately needs to be included. B19: We're really getting things moving here now. This area used to be without services for... |
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Forum: General Autism Discussion Topic: Needing suggestions for guidelines about ASD & hospitals |
| Pandanus |
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Posted: 30 May 2015, 2:33 pm
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Replies: 18
Views: 1,356
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Thank you all for those really useful suggestions.
(I'll repost this in the General forum.) |
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Forum: General Autism Discussion Topic: Needing suggestions for guidelines about ASD & hospitals |
| Pandanus |
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Posted: 29 May 2015, 6:44 pm
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Replies: 18
Views: 1,356
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| I'm a woman with mild Asperger's and a long history of mental health problems exacerbated by not being diagnosed ASD til recently. I'm part of a local authority working group that's helping write new guidelines/standards for how people on the spectrum should be treated by government services. We are... |
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Forum: General Autism Discussion Topic: Please vote online so our autism groups gets funding |
| Pandanus |
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Posted: 02 May 2015, 12:58 pm
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Replies: 4
Views: 1,133
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Thank you, David. We appreciate your support and I'll let everyone know if we do get funding.
Adult autism is such an untrendy thing to fund but because we're a bit different from your average cute kids community group, hopefully we'll get it. |
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Forum: General Autism Discussion Topic: Please vote online so our autism groups gets funding |
| Pandanus |
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Posted: 02 May 2015, 12:39 pm
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Replies: 4
Views: 1,133
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| We're shortlisted to win £5,000 for our self-help group for adults with an ASD. Please vote for us. You can log in to vote via your facebook account or register with the site to vote. Obviously as people on the spectrum with don't have the largest social circle, so please Wrong Planet dwellers, vote... |
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Forum: Women's Discussion Topic: Does My Friend Have Aspergers? |
| Pandanus |
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Posted: 28 Mar 2015, 3:34 pm
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Replies: 8
Views: 1,148
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Hello and welcome to Wrong Planet,
Yes, a lot of that does sound like Asperger's. I would broach the subject with her. Although it's scary to understand that your differences are caused by ASD, it does help you make progress in the future.
All the best |
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Forum: General Autism Discussion Topic: Anyone know of a solicitor in England re: employment & ASD? |
| Pandanus |
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Posted: 23 Mar 2015, 7:36 pm
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Replies: 2
Views: 351
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| Many thanks, I'll PM him. |
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