Why I want to cure or treat my Aspergers

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ZombieBrideXD
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07 May 2015, 7:07 pm

Hi there! You are not alone with the hatred for your AS, many other aspies struggle and are in constant anguish with their symptoms, I know I did for a while it even drove me to the point of suicide at one point in my life, but overtime I learned to accept it, it took 18 year but hey, it happened, even then, I still struggle a lot and I'm under a lot of stress.

Unfortunately there is no real "cure" for aspergers or autism, only treatments and a lot of those treatments involve aspies themselves rebooting so to speak their entire brain. The best treatment I know of is a course of early intervention, cognitive therapy and a mix of many anti depressants and other meds. A good diet, excersize , schedule, and adequate and quality sleep CAN minimize troubling symptoms, reduce sensitivity and anxiety. Also, practicing social rules and skills is the only sure fire way to get rid of social awkwardness, it may take you longer than others to learn it but you CAN learn.

Aspergers is a life long disability, like someone with diabetes or asthma, with a good life style the bad stuff can be managed

Wishing you the best


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07 May 2015, 7:17 pm

Oh god... I have to read more carefully I completely misread the question

I came to terms with my autism after a very very long time of hating it and wanting to be normal, I only started accepting it and being comfortable with being different after I met other autistics, I started going to an autism camp and it made me feel a lot better, I wasn't he alienated one anymore, or the "weird" one, I wasn't getting picked on. Then I heard other autistic people felt the SAME WAY I DID. It was the first time I connected with other people and now, it feels more meaningful, NTs get that feeling all the time but now I have it for the first time.

I guess what I'm saying is, I'm okay with being different, sure I can't handle as much or learn as fast as others but I'm not the only one going through issues, and sure I get mad sometimes and sad, I probably will always need help but so do NTs, everyone has issues, I just have different ones, and even if I was cured I would STILL have issues, but I also won't be as focused as I am or even as smart as I am now. I'm finally okay with myself, not happy, just okay. I quote temple grandin "the world needs all different kinds of minds"


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nick007
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07 May 2015, 9:47 pm

BrainPower101 wrote:
If only I could get my hands on that drug that prunes synapses I would take the risk, but it's way too expensive. Right now I'm doing the Broccoli Sprout and MMS Protocol.
What drug is that?


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08 May 2015, 8:44 am

Quote:
suppositories


No....way.....in.....hell am I putting anything up there unless I absolutely have to. My mother gave me enemas when I was a little child in hopes of solving constipation, which I found out is one of the symptoms of ASC.

Not sure who said it first, but the saying "You are what you eat." applies, the solution to the above is a diet high in fiber.

TMI?



goldfish21
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08 May 2015, 11:29 am

michael517 wrote:
Quote:
suppositories


No....way.....in.....hell am I putting anything up there unless I absolutely have to. My mother gave me enemas when I was a little child in hopes of solving constipation, which I found out is one of the symptoms of ASC.

Not sure who said it first, but the saying "You are what you eat." applies, the solution to the above is a diet high in fiber.

TMI?


:roll: A 1/2" or so long gel cap pill is far smaller than any bowel movement you'll ever have. I've found that putting probiotics directly to the end of the digestive tract is far more effective than swallowing them - yet I still do both.

As for enemas, I've done dozens & dozens of them - 3-5L of fluid (w/ salts, ACV or infused w/ garlic or black coffee etc) at a time. Clearing out my large intestine has enabled my brain to function much better. I am not kidding in the least bit.

Correct, you are what you eat - and that's why I eat a very healthy high protein ultra low carb diet full of herbs/spices/veggies etc. I also eat a lot of fibre & have drank Kilos of powdered clay over the last couple years, but even that isn't nearly as effective as high volume herbal enemas at clearing out & detoxing the large intestine.


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BrainPower101
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09 May 2015, 12:20 am

nick007 wrote:
BrainPower101 wrote:
If only I could get my hands on that drug that prunes synapses I would take the risk, but it's way too expensive. Right now I'm doing the Broccoli Sprout and MMS Protocol.
What drug is that?



It's called Sirolimus. It's never been tested on humans with autism, but it's approved for other uses.



Norny
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09 May 2015, 3:40 am

SocOfAutism wrote:
This topic makes me sad. No one should have to feel like parts of them should be cured or removed.

There are lots of biological differences between autistic people and non-autistic people. There are also neurological differences between women and men, rich people and poor people, etc. No one knows what autism IS, so it cannot be removed. Symptoms that come with being painfully sensitive to an environment not suited to you can be alleviated, and you can alter your behavior. But people should keep this stuff in perspective.

I have pairs of high heels that are painful, but I wear them sometimes anyway. I could take medication to ease the pain, and walk differently so they don't hurt so much, but the real problem is the SHOE, not me.

Unfortunately you can't change society as easily as you can a shoe.


Your way of thinking is very gracious but as a person without AS but with other conditions, this is my perspective:

Thinking that nobody should feel parts of them be cured/changed or removed belongs only in a perfect world (where everybody was born free of issues). I have OCD and a tic disorder, and by god yes, I would love to have them removed. I don't like living with a lower quality of life - in part, it is due to society, but that is not society's fault, claiming so is silly as this line of logic suggests psychopaths and other destructive people be tolerated. There are always standards that people prefer to live by, hence the creation of the DSM and disorders.

I could and still cannot understand why disorders are often such positive points of attachment for a person's identity, aside from the idea that it's likely either a defense mechanism or an individualistic case where problems are minimal.

I believe Brainpower and Goldfish are correct in saying that conditions do not completely define you, and that with treatment you actually are likely to become an improved version of yourself.


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09 May 2015, 5:45 am

BrainPower101 wrote:
All aspies say they love having this condition and it's part of who they are. I do NOT feel the same way!


Not all. I don't like having autism.



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09 May 2015, 11:38 am

"Mild autism can give you a genius like Einstein. If you have severe autism, you could remain nonverbal. You don't want people to be on the severe end of the spectrum. But if you got rid of all the autism genetics, you wouldn't have science or art. All you would have is a bunch of social 'yak yaks.' "
-- Temple Grandin.

Something to think about...



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09 May 2015, 11:41 am

In the forest, there was a crooked tree and a straight tree. Every day, the straight tree would say to the crooked tree, "Look at me...I'm tall, and I'm straight, and I'm handsome. Look at you...you're all crooked and bent over. No one wants to look at you." And they grew up in that forest together. And then one day the loggers came, and they saw the crooked tree and the straight tree, and they said, "Just cut the straight trees and leave the rest." So the loggers turned all the straight trees into lumber and toothpicks and paper. And the crooked tree is still there, growing stronger and stranger every day.

--Tom Waits

My favorite :D



btbnnyr
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09 May 2015, 2:10 pm

Norny wrote:
SocOfAutism wrote:
This topic makes me sad. No one should have to feel like parts of them should be cured or removed.

There are lots of biological differences between autistic people and non-autistic people. There are also neurological differences between women and men, rich people and poor people, etc. No one knows what autism IS, so it cannot be removed. Symptoms that come with being painfully sensitive to an environment not suited to you can be alleviated, and you can alter your behavior. But people should keep this stuff in perspective.

I have pairs of high heels that are painful, but I wear them sometimes anyway. I could take medication to ease the pain, and walk differently so they don't hurt so much, but the real problem is the SHOE, not me.

Unfortunately you can't change society as easily as you can a shoe.


Your way of thinking is very gracious but as a person without AS but with other conditions, this is my perspective:

Thinking that nobody should feel parts of them be cured/changed or removed belongs only in a perfect world (where everybody was born free of issues). I have OCD and a tic disorder, and by god yes, I would love to have them removed. I don't like living with a lower quality of life - in part, it is due to society, but that is not society's fault, claiming so is silly as this line of logic suggests psychopaths and other destructive people be tolerated. There are always standards that people prefer to live by, hence the creation of the DSM and disorders.

I could and still cannot understand why disorders are often such positive points of attachment for a person's identity, aside from the idea that it's likely either a defense mechanism or an individualistic case where problems are minimal.

I believe Brainpower and Goldfish are correct in saying that conditions do not completely define you, and that with treatment you actually are likely to become an improved version of yourself.


I think you have to think of autism as developmental to understand why many people don't want to be cured or change most of their core traits that they have had since birth and developed with throughout childhood and were part of what made them who they are as adults, and in fact it is impossible to distinguish between autism trait vs. my personal trait. Autism affects the development of the entire brain from earliest life, so many autistic people simply don't develop the same desires as NTs, not even if they try to. It's impossible to imagine autism being removed from my brain and me still being me. The positives of my brain, the big ones that distinguish me from most of the people around me, are likely conferred by the organization and function of the autistic brain. These positives are natural and effortless for me, and I didn't work to get them, so they are not like developed skills that anyone could develop if they tried hard. As for NT skills, I don't value them as much as NTs do, and I have chosen a field where they are not too highly valued either.


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BrainPower101
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09 May 2015, 2:54 pm

btbnnyr wrote:
Norny wrote:
SocOfAutism wrote:
This topic makes me sad. No one should have to feel like parts of them should be cured or removed.

There are lots of biological differences between autistic people and non-autistic people. There are also neurological differences between women and men, rich people and poor people, etc. No one knows what autism IS, so it cannot be removed. Symptoms that come with being painfully sensitive to an environment not suited to you can be alleviated, and you can alter your behavior. But people should keep this stuff in perspective.

I have pairs of high heels that are painful, but I wear them sometimes anyway. I could take medication to ease the pain, and walk differently so they don't hurt so much, but the real problem is the SHOE, not me.

Unfortunately you can't change society as easily as you can a shoe.


Your way of thinking is very gracious but as a person without AS but with other conditions, this is my perspective:

Thinking that nobody should feel parts of them be cured/changed or removed belongs only in a perfect world (where everybody was born free of issues). I have OCD and a tic disorder, and by god yes, I would love to have them removed. I don't like living with a lower quality of life - in part, it is due to society, but that is not society's fault, claiming so is silly as this line of logic suggests psychopaths and other destructive people be tolerated. There are always standards that people prefer to live by, hence the creation of the DSM and disorders.

I could and still cannot understand why disorders are often such positive points of attachment for a person's identity, aside from the idea that it's likely either a defense mechanism or an individualistic case where problems are minimal.

I believe Brainpower and Goldfish are correct in saying that conditions do not completely define you, and that with treatment you actually are likely to become an improved version of yourself.


I think you have to think of autism as developmental to understand why many people don't want to be cured or change most of their core traits that they have had since birth and developed with throughout childhood and were part of what made them who they are as adults, and in fact it is impossible to distinguish between autism trait vs. my personal trait. Autism affects the development of the entire brain from earliest life, so many autistic people simply don't develop the same desires as NTs, not even if they try to. It's impossible to imagine autism being removed from my brain and me still being me. The positives of my brain, the big ones that distinguish me from most of the people around me, are likely conferred by the organization and function of the autistic brain. These positives are natural and effortless for me, and I didn't work to get them, so they are not like developed skills that anyone could develop if they tried hard. As for NT skills, I don't value them as much as NTs do, and I have chosen a field where they are not too highly valued either.



Maybe people like me don't have ASD then, because I can't relate to people wanting to have this difference except their unique interests, but even then I don't think it's all an association with ASD.

I have been called all types of names from ableist *** to a tribute of Hitler's eugenics experiments from other aspies. For people who want to be the way they are, I totally respect that.

The only idea I'm proposing is fixing the impairments and difficulties we all face so we can live happier and cope with the stresses of life.



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09 May 2015, 3:35 pm

BrainPower101 wrote:
Ettina wrote:
I don't want a cure because AS is part of who I am, and curing me would alter my personality so much I'd be unrecognizable as 'me'.

I do want to learn new skills and coping methods, though. I don't know why people so often think not wanting a cure means you don't want help.


And I hear this over and over and over from aspies. Question is, why do you think this condition defines you? Don't you think you'll become a better version of you and come out of your shell expressing who you truly are?

From what I understand, autism is a neurological impairment not something that defines a person.


But why would someone have to be 'cured of autism' to become a better version of them-self?...by better do you mean neurotypical? I just do not see why people are so opposed to the notion that one can make improvements in their life and have help/treatments for difficult symptoms and become a better version of themselves all the while still keeping their underlying autistic neurology.


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09 May 2015, 3:37 pm

BrainPower101 wrote:
nick007 wrote:
BrainPower101 wrote:
If only I could get my hands on that drug that prunes synapses I would take the risk, but it's way too expensive. Right now I'm doing the Broccoli Sprout and MMS Protocol.
What drug is that?



It's called Sirolimus. It's never been tested on humans with autism, but it's approved for other uses.


Yes it is an immunosuppressant....obviously ongoing treatment with a drug that suppresses the bodies immune system is just the thing we need. :roll: Also has a noted risk of contributing to cancers of the immune system, common side effects are:
-stomach pain
-headache
-constipation
-diarrhea
-nausea
-joint pain

I get enough headaches as is and tend to be sensitive to that effect of medications, and I already have enough trouble with stomach pain, constipation, nausea, diarrhea and other assorted digestive ailments/discomfort...so I don't need a drug that increases those especially when its purpose is to try to 'trim' parts of my brain to make it less active to hopefully rid myself of any pesky autism symptoms...and potentially maybe things I don't want to be rid of. I think I will avoid this medication meant for preventing rejection of kidney transplants when it comes to treating any of my autism symptoms.

if anyone else wants to read about this great treatment option:
http://www.nlm.nih.gov/medlineplus/druginfo/meds/a602026.html


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Spook1
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09 May 2015, 3:54 pm

BrainPower101 wrote:
I feel like I'm defected like there's something wrong with my eyes speech pattern and overall facial expressions. I can barely think straight most of the time unless I'm on medication.
Why isn't anyone on wrongplanet discussing these new studies and possible ways to help the negative traits of autism?

Lastly, I don't want anyone to think I'm here to hate or not accept those who love themselves. But many of us have social issues we things we could be doing to improve ourselves..


Umm. I am completely focused on fixing/improving my aspergers, I spend hours each day thinking/reading about it. I am on like 8 different medications not neccessarily targetting aspergers but with the result of making me a more functional human. And in my subjective opinion my aspergers has improved somewhat.

A large part of the problem is by definition aspergers is more in line with a learning disability than a mental illness. (You can't cure stupid.) So there are no medications in trials to specifically treat aspergers. (That I know of) Although there are medications to treat symptoms of aspergers.

In my attempt to improve my aspergers I have been mostly focused on treating my other issues like sleep, mood disorders, fatigue, and ADD. Even if you have none of those things I think those are the types of medications you need to try if you want to treat aspergers. No other options exist.

I will not go into details about my medication regime because it is a risk to take medications in an offlabel manner but it is my life so I can take those risks.

:!: :!: :!:
Anyways, I wouldn't try treating aspergers by trying to lower your synaptic connections. There is not enough evidence showing that that is the cause of aspergers. Plus any treatment to lower synaptic connections could just make your brain abnormal again in a worse state then it started.

In a sort of case study on myself I have taken drugs that increase BDNF within the brain as well as grow the hippo-campus and I found them very helpful for my depression and somewhat improved my autism-like traits. (Mostly subjective opinion, but I have had people around me make similar comments to me.)



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10 May 2015, 1:18 am

Spook1 wrote:
BrainPower101 wrote:
I feel like I'm defected like there's something wrong with my eyes speech pattern and overall facial expressions. I can barely think straight most of the time unless I'm on medication.
Why isn't anyone on wrongplanet discussing these new studies and possible ways to help the negative traits of autism?

Lastly, I don't want anyone to think I'm here to hate or not accept those who love themselves. But many of us have social issues we things we could be doing to improve ourselves..


Umm. I am completely focused on fixing/improving my aspergers, I spend hours each day thinking/reading about it. I am on like 8 different medications not neccessarily targetting aspergers but with the result of making me a more functional human. And in my subjective opinion my aspergers has improved somewhat.

A large part of the problem is by definition aspergers is more in line with a learning disability than a mental illness. (You can't cure stupid.) So there are no medications in trials to specifically treat aspergers. (That I know of) Although there are medications to treat symptoms of aspergers.

In my attempt to improve my aspergers I have been mostly focused on treating my other issues like sleep, mood disorders, fatigue, and ADD. Even if you have none of those things I think those are the types of medications you need to try if you want to treat aspergers. No other options exist.

I will not go into details about my medication regime because it is a risk to take medications in an offlabel manner but it is my life so I can take those risks.

:!: :!: :!:
Anyways, I wouldn't try treating aspergers by trying to lower your synaptic connections. There is not enough evidence showing that that is the cause of aspergers. Plus any treatment to lower synaptic connections could just make your brain abnormal again in a worse state then it started.

In a sort of case study on myself I have taken drugs that increase BDNF within the brain as well as grow the hippo-campus and I found them very helpful for my depression and somewhat improved my autism-like traits. (Mostly subjective opinion, but I have had people around me make similar comments to me.)


"No other options exist."

BS. Diet/intense detox/probiotics & exercise have all worked wonders to very effecitvely treat my symptoms. Others may prefer counselling, or meditation, or ____. There are plenty of other options besides drug cocktails that alter your brain chemistry & carry significant risks of undesirable side effects.


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