They want to abolish Aspergers diagnosis!

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Rascal77s
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20 Jan 2013, 7:41 pm

XFilesGeek wrote:
Rascal77s wrote:

The problem is that the SSA makes decisions based on the DSM.



....which is a problem with the SSA and how they interpret the DSM, not the DSM itself.

The fact that the SSA employs jerks is not something that would be ameliorated by keeping Aspergers as a diagnosis.

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Next re-assessment can push people completely out of ASD, that is the problem.


Will the SSA be requiring people currently DXed as "Aspergers" to get re-assessed?

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Can you tell me what kind of help people who are re-assessed as SCD will be getting? Or what infrastructure public schools have implemented to help students diagnosed SCD come May 2013? None.


Honestly, what help is currently available for "Aspergers Disorder," especially for those over 18?


My point was that everything is tied to the DSM.

I was forced to get a reassessment 6 months after my initial assessment so yes.

There is more help available for kids under 18 with an AS dx than there will be for kids diagnosed with SCD. May is right around the corner and the vast majority of schools have no infrastructure in place to deal with SCD specifically. You can still just write off adults from either group, they'll still be pretty much f****d.



answeraspergers
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20 Jan 2013, 7:43 pm

.............depends on the audience i guess. nope "garbage in garbage out" and all that.

You can use google.



XFilesGeek
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20 Jan 2013, 7:48 pm

Rascal77s wrote:

My point was that everything is tied to the DSM.



I know, but I just don't get how keeping Aspergers in the DSM-V is going to fix the problems with the SSA.

It seems like a case of "SSDD (same s***, different day)."

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I was forced to get a reassessment 6 months after my initial assessment so yes.


You were forced to get re-assessed from Aspergers to ASD?

Quote:
There is more help available for kids under 18 with an AS dx than there will be for kids diagnosed with SCD. May is right around the corner and the vast majority of schools have no infrastructure in place to deal with SCD specifically. You can still just write off adults from either group, they'll still be pretty much f****.


That doesn't necessarily imply that they're not going to have help available for kids with SCD. Bureaucracies (which public schools most certainly are) are not known for their speed or efficiency in adapting to change.

If SCD hits in May 2013, they'll have a plan in place by January 2014. :roll:


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XFilesGeek
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20 Jan 2013, 7:50 pm

answeraspergers wrote:
.............depends on the audience i guess. nope "garbage in garbage out" and all that.

You can use google.


I cannot "google" what another person meant to say.

That's why Verandi asked him to clarify.


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answeraspergers
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20 Jan 2013, 7:51 pm

You can google your question.



XFilesGeek
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20 Jan 2013, 7:52 pm

answeraspergers wrote:
You can google your question.


My QUESTION is what Steven meant by "they're not changing the diagnosis."

I cannot "google" what Steven "meant."


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Sylvastor
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20 Jan 2013, 7:53 pm

CaptainTrips222 wrote:
I'm honestly baffled as to why they're doing this. If you go to any spectrum group, it's obvious who has AS and who has ASD. They really are not the same thing.

That's what happens when people write DSM who have a "I know how you guys roll, it's better that way, trust me" mood and attitude. :roll:
Given the amount of neurotypical and non-autistic people in the world, I believe that there is barely any autistic person or person with AS in that group of people who made those changes who can try to explain to them what the bad consequences could be.
I already shared my theory that NTs can only feel empathy towards NTs in another thread.
To sum it up: I believe that people can only feel empathy towards people of their kind, let's say only autistic people towards autistic people (with active efforts, active thinking and using personal experiences to compare to find out how a certain person would think/feel/etc) and neurotypical and non-autistic only to people of their kind, with the difference that the process they have is automatised compared to us and more complex/going deeper, is more emotional.
This could explain why they often project their way of thinking on us and have troubles understanding us (NT/non-autistic empathy to an autistic person which doesn't work in most cases due to the big differences in how we work and perceive the world).
I think this applies here. They think they know what they are doing but the lack of being able to see things from our point of view is what makes them think it's okay but what upsets quite a few here.
But then again, maybe I'm awfully mistaken. :roll:
Some might say "But they work on it since 1998", but the amount of time invested doesn't matter, the result does and I'm very skeptical whether the changes in DSM-V will be all that good as they think they will be by merging everything...


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answeraspergers
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20 Jan 2013, 7:55 pm

if you looked at the subject you would not have the question



XFilesGeek
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20 Jan 2013, 7:59 pm

answeraspergers wrote:
if you looked at the subject you would not have the question


And now you're just looking to pick a fight.

This conversation is over.

Back to the main topic..........


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Rascal77s
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20 Jan 2013, 8:08 pm

XFilesGeek wrote:
Rascal77s wrote:

My point was that everything is tied to the DSM.



I know, but I just don't get how keeping Aspergers in the DSM-V is going to fix the problems with the SSA.

It seems like a case of "SSDD (same s***, different day)."

Quote:
I was forced to get a reassessment 6 months after my initial assessment so yes.


You were forced to get re-assessed from Aspergers to ASD?

Quote:
There is more help available for kids under 18 with an AS dx than there will be for kids diagnosed with SCD. May is right around the corner and the vast majority of schools have no infrastructure in place to deal with SCD specifically. You can still just write off adults from either group, they'll still be pretty much f****.


That doesn't necessarily imply that they're not going to have help available for kids with SCD. Bureaucracies (which public schools most certainly are) are not known for their speed or efficiency in adapting to change.

If SCD hits in May 2013, they'll have a plan in place by January 2014. :roll:


What I was trying to tell you is that I was forced to get an assessment with an SSA contractor after getting one from a private doctor 6 months previously. Fortunately I happened to get a good contractor who also diagnosed me with AS.

If this had happened after May it would have been an opportunity (obviously not a guarantee) for a SSA contractor to diagnose me with SCD and completely move me out of ASD. In this case I would be stuck with an SCD diagnosis for any services I try to get in the future; what will people look at on my medical file, a recent DX of SCD or an old DX of something that doesn't exist any more? Now I have SCD unless I come out of pocket to go to a private practice to challenge the SCD dx with a new ASD dx. I hope this is making sense to you because I'm really baked.


P.S. Woooo hooo go '49s!!



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20 Jan 2013, 8:13 pm

I forgot to mention:

My personal thoughts on this are:
Stolen identity. If I would finally get an official diagnosis now and be seen as an (official) aspie and then the term would be removed and I would be just autistic and thrown on the spectrum on the mild end, who would I be? I would have to explain myself because the more time passes, the more people will forget what the original symptoms of Asperger's were. While it is similar to HFA, it is not the same thing and having to say for example "I have a social communication disorder" would probably lower my self esteem simply by the way it sounds, decreasing my motivation to socialise or mention that to a theoretical boss at work even more or making people think "why should I talk to him? Why could we need him or why would we have to deal with him? He has a communication disorder, not worth my time and energy". Those who identificated as aspies would have to get used to the change too, they are no more aspies then, they're just autists. But the spectrum is big, their "identity" would be more generalised.
I hope my gibberish in this post is somewhat understandable, had an exhausting day today...
Those are just examples, but that's how it looks like to me.


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XFilesGeek
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20 Jan 2013, 8:14 pm

Rascal77s wrote:
XFilesGeek wrote:
Rascal77s wrote:

My point was that everything is tied to the DSM.



I know, but I just don't get how keeping Aspergers in the DSM-V is going to fix the problems with the SSA.

It seems like a case of "SSDD (same s***, different day)."

Quote:
I was forced to get a reassessment 6 months after my initial assessment so yes.


You were forced to get re-assessed from Aspergers to ASD?

Quote:
There is more help available for kids under 18 with an AS dx than there will be for kids diagnosed with SCD. May is right around the corner and the vast majority of schools have no infrastructure in place to deal with SCD specifically. You can still just write off adults from either group, they'll still be pretty much f****.


That doesn't necessarily imply that they're not going to have help available for kids with SCD. Bureaucracies (which public schools most certainly are) are not known for their speed or efficiency in adapting to change.

If SCD hits in May 2013, they'll have a plan in place by January 2014. :roll:


What I was trying to tell you is that I was forced to get an assessment with an SSA contractor after getting one from a private doctor 6 months previously. Fortunately I happened to get a good contractor who also diagnosed me with AS.

If this had happened after May it would have been an opportunity (obviously not a guarantee) for a SSA contractor to diagnose me with SCD and completely move me out of ASD. In this case I would be stuck with an SCD diagnosis for any services I try to get in the future; what will people look at on my medical file, a recent DX of SCD or an old DX of something that doesn't exist any more? Now I have SCD unless I come out of pocket to go to a private practice to challenge the SCD dx with a new ASD dx. I hope this is making sense to you because I'm really baked.


P.S. Woooo hooo go '49s!!


Thank you for clarifying.

I'm interpreting you as saying that SCD is going to give the relevant authorities another way of wriggling out of giving people support. It IS a very valid concern and I wish you the best of luck. It will be interesting to see how it all works out. I guess I'm just adopting a "wait and see" approach.

P.S. I just slammed three espresso coffees, so I'm utterly wired, which is probably why I needed you to expound.


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20 Jan 2013, 8:25 pm

FYI and all,

If you don't think you meet the proposed criteria, you should probably give the reason for it (what bits you don't meet, and explain how you meet the current lot), in addition to providing source material that is congruent to such, whether Hans' or Wing's papers.

DSM-5 jives with all I've read regarding Asperger's Syndrome and Autistic Psychopathy.



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20 Jan 2013, 8:36 pm

how come everyone expects others to post in a manner that they do not?

I'm not "down with" the changes.



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20 Jan 2013, 11:17 pm

answeraspergers wrote:
40% of Aspies will no longer be on the spectrum.

The issue is drugs lobbying and the fact that 70% of the panel have conflicts of interest.

Your history is not now worthless and supposedly existing diag's stand.


How do you figure that, from what I've seen of the criteria most with AS would still fall under the autism spectrum and that would be what the diagnoses is referred to. Where you get this 40% number I'd like to know.


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20 Jan 2013, 11:19 pm

CaptainTrips222 wrote:
I'm honestly baffled as to why they're doing this. If you go to any spectrum group, it's obvious who has AS and who has ASD. They really are not the same thing.


As far as I know they are the same disorder, but if they aren't what is the difference?


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