Getting Re-diagnosed For Asperger's Syndrome

Page 1 of 1 [ 16 posts ] 

FluttercordAspie93
Veteran
Veteran

User avatar

Joined: 29 Sep 2013
Gender: Female
Posts: 1,374
Location: San Antonio, TX

24 Nov 2013, 9:02 pm

Ok, so I was already tested just yesterday, but I haven't exactly gotten my results back just yet. Either way, I'll just have to wait.

I don't really think that I was misdiagnosed, but this was just mainly done to get a better understanding of where I am on the spectrum.

For those of you who haven't read some of my previous posts, I was first diagnosed when I was just three years old; my neurologist didn't and still doesn't like using labels for my condition. He kind of just refers to it as a "right brain deficit." Meaning... Lack of communication, attention problems, and faulty reasoning.

My mother told me that it was really just the school system that gave me the label, because I fit some of the criteria in terms of "high-functioning."

Regardless, even if I was or wasn't misdiagnosed, I really have no way of knowing. I just really want to understand my condition better.



heatherbk
Velociraptor
Velociraptor

User avatar

Joined: 23 Apr 2011
Age: 36
Gender: Female
Posts: 462
Location: New York

24 Nov 2013, 9:33 pm

The best way would be to go to a psychologist who specializes in dealing with individuals with autism spectrum disorder. People on the autism spectrum often have other comorbidities or gets misdiagnosed before arriving at the diagnosis of autism spectrum disorder. The new DSM-5 came out few months ago and now the Asperger criteria has been eliminated and lumped into the general autism spectrum disorder. You will now be diagnosed as high functioning autism instead



Sethno
Veteran
Veteran

User avatar

Joined: 23 Nov 2012
Gender: Male
Posts: 1,077
Location: computer or tablet

24 Nov 2013, 10:32 pm

FluttercordAspie93 wrote:
Ok, so I was already tested just yesterday, but I haven't exactly gotten my results back just yet. Either way, I'll just have to wait.

I don't really think that I was misdiagnosed, but this was just mainly done to get a better understanding of where I am on the spectrum.

For those of you who haven't read some of my previous posts, I was first diagnosed when I was just three years old; my neurologist didn't and still doesn't like using labels for my condition. He kind of just refers to it as a "right brain deficit." Meaning... Lack of communication, attention problems, and faulty reasoning.

My mother told me that it was really just the school system that gave me the label, because I fit some of the criteria in terms of "high-functioning."

Regardless, even if I was or wasn't misdiagnosed, I really have no way of knowing. I just really want to understand my condition better.


You have the right to know what you've been diagnosed with. Nobody should hide or keep the diagnosis from you. I don't care who they are. They have no right.


_________________
AQ 31
Your Aspie score: 100 of 200 / Your neurotypical (non-autistic) score: 101 of 200
You seem to have both Aspie and neurotypical traits

What would these results mean? Been told here I must be a "half pint".


FluttercordAspie93
Veteran
Veteran

User avatar

Joined: 29 Sep 2013
Gender: Female
Posts: 1,374
Location: San Antonio, TX

25 Nov 2013, 1:35 pm

heatherbk wrote:
The best way would be to go to a psychologist who specializes in dealing with individuals with autism spectrum disorder. People on the autism spectrum often have other comorbidities or gets misdiagnosed before arriving at the diagnosis of autism spectrum disorder. The new DSM-5 came out few months ago and now the Asperger criteria has been eliminated and lumped into the general autism spectrum disorder. You will now be diagnosed as high functioning autism instead


I have seen a specialist in that felid; she comes down once a month to work with and diagnose autistic kids. That's who I saw yesterday.

I've also been seeing another specialist who plans on helping me branch out more in society, and hopefully then I'll be able to live independently on my own.

I'm sorry for coming off as rude, because I know you're just trying to help...



FluttercordAspie93
Veteran
Veteran

User avatar

Joined: 29 Sep 2013
Gender: Female
Posts: 1,374
Location: San Antonio, TX

25 Nov 2013, 1:39 pm

Sethno wrote:
FluttercordAspie93 wrote:
Ok, so I was already tested just yesterday, but I haven't exactly gotten my results back just yet. Either way, I'll just have to wait.

I don't really think that I was misdiagnosed, but this was just mainly done to get a better understanding of where I am on the spectrum.

For those of you who haven't read some of my previous posts, I was first diagnosed when I was just three years old; my neurologist didn't and still doesn't like using labels for my condition. He kind of just refers to it as a "right brain deficit." Meaning... Lack of communication, attention problems, and faulty reasoning.

My mother told me that it was really just the school system that gave me the label, because I fit some of the criteria in terms of "high-functioning."

Regardless, even if I was or wasn't misdiagnosed, I really have no way of knowing. I just really want to understand my condition better.


You have the right to know what you've been diagnosed with. Nobody should hide or keep the diagnosis from you. I don't care who they are. They have no right.


You're probably right on that, but I know my neurologist is very good with what he does; he really does understand me better than most people do.



FluttercordAspie93
Veteran
Veteran

User avatar

Joined: 29 Sep 2013
Gender: Female
Posts: 1,374
Location: San Antonio, TX

25 Nov 2013, 1:43 pm

And just as an update, I got more testing done today; don't exactly know what the testing was over, because the instructor didn't tell me...



ASPartOfMe
Veteran
Veteran

User avatar

Joined: 25 Aug 2013
Age: 66
Gender: Male
Posts: 34,490
Location: Long Island, New York

26 Nov 2013, 1:57 am

heatherbk wrote:
The new DSM-5 came out few months ago and now the Asperger criteria has been eliminated and lumped into the general autism spectrum disorder. You will now be diagnosed as high functioning autism instead


The DSM 5 has eliminated Aspergers in favor of ASD but clinicians are under no obligation to follow the DSM 5. There is a segment of specialists that disagrees with the DSM 5. There are several people here that have been diagnosed with Aspergers after the DSM 5 came out. In August, 3 months after the DSM 5 came out I was diagnosed with Moderately Severe Aspergers under the DSM IV and Autism Spectrum Disorder under the DSM 5. I have seen no studies on the matter so I have now way of knowing if we are talking about a few renegade outliers or if there is significant resistance.


_________________
Professionally Identified and joined WP August 26, 2013
DSM 5: Autism Spectrum Disorder, DSM IV: Aspergers Moderate Severity

It is Autism Acceptance Month

“My autism is not a superpower. It also isn’t some kind of god-forsaken, endless fountain of suffering inflicted on my family. It’s just part of who I am as a person”. - Sara Luterman


FluttercordAspie93
Veteran
Veteran

User avatar

Joined: 29 Sep 2013
Gender: Female
Posts: 1,374
Location: San Antonio, TX

27 Nov 2013, 3:34 pm

Got even more testing done today, and I won't get my results back until a couple of weeks.



Sethno
Veteran
Veteran

User avatar

Joined: 23 Nov 2012
Gender: Male
Posts: 1,077
Location: computer or tablet

27 Nov 2013, 5:04 pm

Please try to find out for yourself if you've been diagnosed as autistic or not.

Some people may not like labels, but in life we need names to call things by.


_________________
AQ 31
Your Aspie score: 100 of 200 / Your neurotypical (non-autistic) score: 101 of 200
You seem to have both Aspie and neurotypical traits

What would these results mean? Been told here I must be a "half pint".


beneficii
Veteran
Veteran

User avatar

Joined: 10 May 2005
Age: 40
Gender: Female
Posts: 7,245

27 Nov 2013, 6:21 pm

I had a bit of re-diagnosing done for me, as well. You sometimes have to find the right doctor. I was diagnosed with PDD-NOS at age 5/6 and then Asperger's at age 13. When I recently started having problems again at age 28, a psychiatrist at a hospital diagnosed me with bipolar disorder, not bothering to really check my history or stressors or anything. I then went for a second opinion at age 29 with a doctor who seemed much more interested in me as a person, and I was "re-diagnosed," this time with autism spectrum disorder, which I think fits my situation quite well.

I wasn't made to take any tests to arrive at this diagnosis, since it was based at least partly on history, which I know is allowed under the DSM-5.

Now I wonder if I should change my profile from "Asperger's--diagnosed" to "Other autism spectrum disorder."


_________________
"You have a responsibility to consider all sides of a problem and a responsibility to make a judgment and a responsibility to care for all involved." --Ian Danskin


equestriatola
Veteran
Veteran

User avatar

Joined: 13 Aug 2012
Gender: Male
Posts: 134,388
Location: Half of me is in the Washington state, the other Los Angeles.

28 Nov 2013, 12:34 am

I'm going to see someone about that within the next few months or so. Hope things all go well.


_________________
LIONS-STAMPEDERS-ELKS-ROUGHRIDERS-BLUE BOMBERS-TIGER-CATS-ARGONAUTS-REDBLACKS-ALOUETTES

The Canadian Football League - What We're Made Of

Feel free to talk to me, if you wish. :)

Every day is a gift- cherish it!

"A true, true friend helps a friend in need."


FluttercordAspie93
Veteran
Veteran

User avatar

Joined: 29 Sep 2013
Gender: Female
Posts: 1,374
Location: San Antonio, TX

28 Nov 2013, 1:52 am

Sethno wrote:
Please try to find out for yourself if you've been diagnosed as autistic or not.

Some people may not like labels, but in life we need names to call things by.


The best I can do is probably take an online test, especially since I won't get my results back until four weeks...



FluttercordAspie93
Veteran
Veteran

User avatar

Joined: 29 Sep 2013
Gender: Female
Posts: 1,374
Location: San Antonio, TX

28 Nov 2013, 2:02 am

beneficii wrote:
I had a bit of re-diagnosing done for me, as well. You sometimes have to find the right doctor. I was diagnosed with PDD-NOS at age 5/6 and then Asperger's at age 13. When I recently started having problems again at age 28, a psychiatrist at a hospital diagnosed me with bipolar disorder, not bothering to really check my history or stressors or anything. I then went for a second opinion at age 29 with a doctor who seemed much more interested in me as a person, and I was "re-diagnosed," this time with autism spectrum disorder, which I think fits my situation quite well.

I wasn't made to take any tests to arrive at this diagnosis, since it was based at least partly on history, which I know is allowed under the DSM-5.

Now I wonder if I should change my profile from "Asperger's--diagnosed" to "Other autism spectrum disorder."


I seem to recall going through several different doctors when I first got diagnosed; we just had to keep trying until we found the right one.

But the other stuff I'm being tested for is ADHD, (runs in the family), and depression, (two of my siblings have it).



FluttercordAspie93
Veteran
Veteran

User avatar

Joined: 29 Sep 2013
Gender: Female
Posts: 1,374
Location: San Antonio, TX

28 Nov 2013, 2:07 am

equestriatola wrote:
I'm going to see someone about that within the next few months or so. Hope things all go well.


I hope so, too. Thanks!

I've been having some pretty conflicting feelings lately; I just shouldn't be putting myself down all the time...



heatherbk
Velociraptor
Velociraptor

User avatar

Joined: 23 Apr 2011
Age: 36
Gender: Female
Posts: 462
Location: New York

29 Nov 2013, 8:43 pm

ASPartOfMe wrote:
heatherbk wrote:
The new DSM-5 came out few months ago and now the Asperger criteria has been eliminated and lumped into the general autism spectrum disorder. You will now be diagnosed as high functioning autism instead


The DSM 5 has eliminated Aspergers in favor of ASD but clinicians are under no obligation to follow the DSM 5. There is a segment of specialists that disagrees with the DSM 5. There are several people here that have been diagnosed with Aspergers after the DSM 5 came out. In August, 3 months after the DSM 5 came out I was diagnosed with Moderately Severe Aspergers under the DSM IV and Autism Spectrum Disorder under the DSM 5. I have seen no studies on the matter so I have now way of knowing if we are talking about a few renegade outliers or if there is significant resistance.


The new DSM5 just came out this year so I'm guessing that some clinicians will still follow the DSM4 diagnosis criteria. I'm also aware of the movement within psychology against elimination of asperger criteria.



heatherbk
Velociraptor
Velociraptor

User avatar

Joined: 23 Apr 2011
Age: 36
Gender: Female
Posts: 462
Location: New York

29 Nov 2013, 8:46 pm

FluttercordAspie93 wrote:
heatherbk wrote:
The best way would be to go to a psychologist who specializes in dealing with individuals with autism spectrum disorder. People on the autism spectrum often have other comorbidities or gets misdiagnosed before arriving at the diagnosis of autism spectrum disorder. The new DSM-5 came out few months ago and now the Asperger criteria has been eliminated and lumped into the general autism spectrum disorder. You will now be diagnosed as high functioning autism instead


I have seen a specialist in that felid; she comes down once a month to work with and diagnose autistic kids. That's who I saw yesterday.

I've also been seeing another specialist who plans on helping me branch out more in society, and hopefully then I'll be able to live independently on my own.

I'm sorry for coming off as rude, because I know you're just trying to help...


Ok, so I was already tested just yesterday, but I haven't exactly gotten my results back just yet. Either way, I'll just have to wait.

I don't really think that I was misdiagnosed, but this was just mainly done to get a better understanding of where I am on the spectrum.

For those of you who haven't read some of my previous posts, I was first diagnosed when I was just three years old; my neurologist didn't and still doesn't like using labels for my condition. He kind of just refers to it as a "right brain deficit." Meaning... Lack of communication, attention problems, and faulty reasoning.

My mother told me that it was really just the school system that gave me the label, because I fit some of the criteria in terms of "high-functioning."

Regardless, even if I was or wasn't misdiagnosed, I really have no way of knowing. I just really want to understand my condition better.

What I meant are sometimes clinicians who dont have much experience working with individuals with ASD also diagnose people. It wasnt disclosed as to whether you were seeing a specialist or not so I just wanted to help you out. It's quite common for people to get diagnosed with several disorders prior to diagnosis of ASD.