Think I'll just have to stay self diagnosed

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firemonkey
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15 Sep 2017, 2:23 pm

The process of gathering info and then organising it to present to facilitate an assessment just seems too difficult for me to cope with. Having read what people have said.



kraftiekortie
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15 Sep 2017, 2:25 pm

Paradoxically, what you just described is a hallmark of a disorder in "executive functioning"---an essential aspect of Autism Spectrum Disorders......



will@rd
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15 Sep 2017, 2:28 pm

I see no reason why you should have to organize or present anything to facilitate anything. It's up to the person doing the evaluation to test you, and ask questions to elicit any information needed. You're not required to prove anything.


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firemonkey
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15 Sep 2017, 4:06 pm

kraftiekortie wrote:
Paradoxically, what you just described is a hallmark of a disorder in "executive functioning"---an essential aspect of Autism Spectrum Disorders......


My executive functioning is below average/poor . A decade ago I did the free brain test mentioned here http://www.schizophrenia.com/sznews/arc ... 04531.html ( test no longer available) . I scored average or above average for everything but E.F. For E.F I scored 1.5 - 2 SD below average.



naturalplastic
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15 Sep 2017, 5:27 pm

I don't know what you're talking about when you talk about gathering material together. I do remember having to get the name of a lady shrink I saw a long time ago to get releases, or something.

But basically I just showed up at the doctor's office and promised to pay a large some of dead presidents. And he gave me a battery of tests. And then showed the results to a panel. The only slight problem is getting people who have known you for a LONG time. Ideally you produce your mom and dad. But neither were available (one was dead, and other demented in a home). So had to get my sister, and my girl friend to come in and be interviewed (neither with me there). Both were happy to do so, and the doc said "both were quite forthcoming" about the information he wanted.



B19
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15 Sep 2017, 5:33 pm

Fire Monkey, from various sources and also many reports here, I suspect that the rate of missed diagnosis is highest in older women on the spectrum. If you are more comfortable to stay with self discovery, then that's right for you at this time. So many of us did choose to stay with that for quite some time before making the decision whether to seek confirmation or not. This includes a lot of our male WP members too. However I think that if you do decide to go the diagnosis route, get informed support from other older AS women, perhaps from the Autistic Women's Network also, and establish a peer support group that can travel with you through the process. And bear in mind that diagnosticians (in medicine and AS matters) are far from infallible. Perhaps NAS could also guide you to good quality practitioners if you decide to seek evaluation in the future.



firemonkey
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15 Sep 2017, 6:23 pm

naturalplastic wrote:
I don't know what you're talking about when you talk about gathering material together. I do remember having to get the name of a lady shrink I saw a long time ago to get releases, or something.

But basically I just showed up at the doctor's office and promised to pay a large some of dead presidents. And he gave me a battery of tests. And then showed the results to a panel. The only slight problem is getting people who have known you for a LONG time. Ideally you produce your mom and dad. But neither were available (one was dead, and other demented in a home). So had to get my sister, and my girl friend to come in and be interviewed (neither with me there). Both were happy to do so, and the doc said "both were quite forthcoming" about the information he wanted.


My father lives in the States . Since 1983 I've seen him about once a year, apart from a 2 week holiday in 1995. He is 87 and his memory of my childhood years is rather patchy . My mother died in 2010.
I have a brother and sister but when I move it will be 3 or so hours away from them.



firemonkey
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15 Sep 2017, 6:26 pm

B19 wrote:
Fire Monkey, from various sources and also many reports here, I suspect that the rate of missed diagnosis is highest in older women on the spectrum. If you are more comfortable to stay with self discovery, then that's right for you at this time. So many of us did choose to stay with that for quite some time before making the decision whether to seek confirmation or not. This includes a lot of our male WP members too. However I think that if you do decide to go the diagnosis route, get informed support from other older AS women, perhaps from the Autistic Women's Network also, and establish a peer support group that can travel with you through the process. And bear in mind that diagnosticians (in medicine and AS matters) are far from infallible. Perhaps NAS could also guide you to good quality practitioners if you decide to seek evaluation in the future.


I think you will find I am male. It says so on my profile.



B19
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15 Sep 2017, 6:29 pm

My apologies. The situation for adult men and missed diagnosis seems better than for the women, though still can be challenging, as AspieUtah and others have written about on WP.



AspieSingleDad
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15 Sep 2017, 7:16 pm

firemonkey wrote:
naturalplastic wrote:
I don't know what you're talking about when you talk about gathering material together. I do remember having to get the name of a lady shrink I saw a long time ago to get releases, or something.

But basically I just showed up at the doctor's office and promised to pay a large some of dead presidents. And he gave me a battery of tests. And then showed the results to a panel. The only slight problem is getting people who have known you for a LONG time. Ideally you produce your mom and dad. But neither were available (one was dead, and other demented in a home). So had to get my sister, and my girl friend to come in and be interviewed (neither with me there). Both were happy to do so, and the doc said "both were quite forthcoming" about the information he wanted.


My father lives in the States . Since 1983 I've seen him about once a year, apart from a 2 week holiday in 1995. He is 87 and his memory of my childhood years is rather patchy . My mother died in 2010.
I have a brother and sister but when I move it will be 3 or so hours away from them.


Be your own memory. Besides, the doctor will assess you based on criteria that is more oriented towards the present than your past. You can do this!



naturalplastic
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15 Sep 2017, 7:27 pm

Why did you think he was a chick? :?:

@Firemonkey

your siblings would probably be willing to travel to help you out in something important like this. They maybe itching to tell someone about how...friggin weird my brother is! I suspect that maybe why the two folks in my life were so "forthcoming".



B19
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15 Sep 2017, 7:29 pm

naturalplastic wrote:
Why did you think he was a chick? :?:

@Firemonkey

your siblings would probably be willing to travel to help you out in something important like this. They maybe itching to tell someone about how...friggin weird my brother is! I suspect that maybe why the two folks in my life were so "forthcoming".


Perhaps because I know women with faces and expressions which are similar to Fire Monkey's picture/avatar..



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15 Sep 2017, 7:43 pm

naturalplastic wrote:
your siblings would probably be willing to travel to help you out in something important like this. They maybe itching to tell someone about how...friggin weird my brother is! I suspect that maybe why the two folks in my life were so "forthcoming".

I don't even think travelling on the part of your siblings is likely even necessary. For me, the psychologist interviewed my parents by phone since they live in a different city from me.

I'm also pretty sure that the interview with people who knew you for a long time isn't even absolutely essential; for my assessment, the psychologist said he'd like to speak to my parents, but if I didn't want them to know I was being assessed, I'm pretty sure he'd indicated it was semi-optional (I didn't have a problem with them knowing I was being assessed).


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firemonkey
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15 Sep 2017, 8:49 pm

B19 wrote:
My apologies. The situation for adult men and missed diagnosis seems better than for the women, though still can be challenging, as AspieUtah and others have written about on WP.


No need to apologise. I was actually rather flattered. I just didn't want you to be under a false impression.



Alexanderplatz
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15 Sep 2017, 10:22 pm

I was dx'd at the age of 58 in the UK by an NHS consultant psychiatrist and an Occupational Therapist, with no one else other there but me. My guess is perhaps the dx technique is different all over the country (?), but mine was a LOT of questions, and a lot of them about things long forgotten.



soloha
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15 Sep 2017, 11:43 pm

In my diagnosis it mentioned history, direct observation, and testing, in coming to a conclusion. If you have relatives that can provide the history, that is all you need to bring. If you can't, they will work with a self reported history. The rest they will do during the evaluation. I did not find it difficult. Except the tests. They were exhausting.