The Dino-Aspie Ex-Café (for Those 40+... or feeling creaky)

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morning_after
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08 Apr 2008, 5:07 pm

Good LORD!! !!

They call us paranoid and such, then turn around and say we will cause adult aspies to be forgotten???

Aren't they the ones dismissing us out of hand?

And since when have we ever encouraged violence, as opposed to discussion?

I think they're more dangerous than we are.


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krex
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08 Apr 2008, 5:08 pm

Semelina...I am glad my post resulted in thought...I am an "agnostic" when it comes to my own thoughts,beliefs,feelings...I don't know if they are right or wrong for sure but hope voicing them will motivate further thought and debate.

I like the idea of WP providing it's own representation of positive perspective and life experiences of autism. I wish my life was a bit more positive. I think my experience, more accurately, reflects what can go wrong if teens and adults are offered no assistence. I still managed to graduate college and maintain my independence in working but the pain indured and the potential that I feel was lost with out assistance....is not something that should be glossed over. I think the same is true of many members of this cafe? I don't know how this should be incorporated into the message but I do think it important. Every body loves positive out comes(ALMOST as much as they love to hear about school shootings and Brintney Spears showing her underwear),but many appear to like their information packaged in bite size morsels that are easy to digest.

I trust the motives and ability of Alex as well as yourself. Keep the message as simple as possible with out distorting the reality of the diversity of the spectrum...(no easy task.) I hope for the day when AS is taken out of the DSM and put into the "neurological differences" catagory with out judgement of diseased/defective. The understanding of strengths that are sacrificed when all humans are judged on an environment and culture that plays on their weekness instead of their strengths would go along way into creating more positive changes for autistics then hours wasted on ABA and social stories....now, can figure out how to get that message acroos in 30 seconds or less?.....gulp.


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postpaleo
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08 Apr 2008, 5:37 pm

Why did I go to that places forum? Someone kick me now. First thread I tried to read...warning, we have been infiltrated by aspies for freedom and WP and it goes on and on and on, but there was that word, calling WP an advocacy group, advocacy. Well, duh, yeah I have an opinion, but I have one about everything and if I don't, give me a second. I see the starter of that thread got banned too, but i doubt for that thread. It's pretty clear some from here are there and some are very open about it, that's pretty cool, I think. Generalizations, man the place is ripe with them. Ok time to go on hiatus, this s**t has got me all worked up, not good for me.


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krex
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08 Apr 2008, 6:17 pm

Sorry Postie.... :oops: I have avoided the place fo the same reason but was lured bythat that old saying..."know thy enemy" and the lesser know "Don't call someone an enemy until you understand what they are attacking"....


(those old "sayers" were a bunch of trouble makers,me thinks)

Anywho...I still got a kick out of watching the "warning WP infiltraters" thread turning into a paranoid discussion of aspie sharp shooters.
Nothing goes further then letting ediots shot themselves in the foot(or each other in the fce?). Any rational person reading the site will be able to see that they are the paranoid ones. Any any one who isn't rational....?

Well as one of the autie posters there pointed out...

"You can't reason someone out of something that they didn't use reason to get into"..I thought that summed it up nicely.


Doesn't it help relieve your anoyance with them a bit to see first hand how "not very bright" some of them are? (If I could just stop thinking that some of them are "in charge" of making decissions for autistics in their own lives. )

Time to go find the X video of..."I will not think bad thoughts"


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krex
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08 Apr 2008, 6:41 pm

[youtube]http://www.youtube.com/watch?v=9aX9ONnh4Vw[/youtube]


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krex
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08 Apr 2008, 6:53 pm

I dont do much utubing but ...this is my favorite(local) band singing the title song for my favorite album......






[youtube]http://www.youtube.com/watch?v=oxhsP6OtcIc&feature=related[/youtube]


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Last edited by krex on 08 Apr 2008, 7:30 pm, edited 1 time in total.

lau
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08 Apr 2008, 7:09 pm

I should have said this earlier, but I got distracted into watching Doctor Who (The Daleks - the original William Hartnell stuff, where the word "exterminate" was first used.) Later, there was 3 hours of Battlestar Galactica.

krex wrote:
Out of curiosity lau...have you gone to their web-site or tried to participate in their forums? ...

Some time back, I did go there, briefly. I baulked at registing, on the grounds that I had no intention of showing any form of support for them (at present), even by bumping their forum member count by one.

What I saw was pretty awful. I saw no point in any attempt to contribute to a hostile forum. However, I have no idea if the forum membership is at all representative of the members of Autism Speaks itself.


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krex
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08 Apr 2008, 7:51 pm

your right that there may be a differene between the AS members and those who participate in the forums...that is it's only slanted demographic,I think. I see many people on the forum who are autistic and reasonable and I don't know if being a forum member also means you are a memeber of AS or vice versa? It did seem like some of the members who were listed as "senior" on the forum were disseminating some of the most hurtful lies about WP and aspergers....being "senior" on a forum doesn't mean the have any power in establishing policy of AS.

I was actually shocked to see how few members there were....WP is bigger? Was I readig the numbers wrong? Were those just forum members nd not AS members???Bit confused.


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SleepyDragon
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08 Apr 2008, 8:02 pm

I've just gotten back from reading the eight-page thread on Autism Speaks that Krex linked earlier. Yes, there is a nasty adversarial tone to much of what was said there, but there are also a few dispassionate voices:

Britkim wrote:
Not A Problem For Me

Personally, I think everyone's views should be heard - as long as no one is mis representing who they are.

If EVERYONE would show RESPECT this would be a much nicer place.

Personally, I think that adults with ASD have a lot to offer us parents and honestly, have never read anything on here from an Aspie or Autie that has offended me. Unfortunately, I can't say the same about the contributions from some parents.

Unfortunately, there are many agendas competing on here and so it will always be a bit of a minefield...

On the Internet, respect, and what is deserving of respect, is an elastic concept. Whose views are most worthy of consideration? Which has more weight — the passion with which the belief is held? Or the logic and reason behind it? Does stridency devalue the message, or add to it? Should it matter if the sentences are constructed coherently and the spelling is faultless?

I will have much more to say on this shortly. Right now I have some chores to do.



DeaconBlues
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08 Apr 2008, 8:12 pm

lau wrote:
I should have said this earlier, but I got distracted into watching Doctor Who (The Daleks - the original William Hartnell stuff, where the word "exterminate" was first used.) Later, there was 3 hours of Battlestar Galactica.

Speaking of "exterminate"... :)

I didn't read the thread, and I don't go to Autism Speaks, because I don't see the need to rile myself up with the biases of people who are demonstrably ignorant, and insist on shoving their ignorance into our ears. It is interesting to learn that I can't know what they're going through - I guess I should go tell 'Gana she can start talking like an NT now, because these people have determined that I'm not the parent of an autistic child. :roll:


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lau
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08 Apr 2008, 8:31 pm

krex wrote:
I was actually shocked to see how few members there were....WP is bigger? Was I readig the numbers wrong? Were those just forum members nd not AS members???Bit confused.

Anyone can join the forum. One might think that all the donors to Autism Speaks would also join the board, but I guess not. The board certainly has members that have never donated to Autism Speaks.

Autism Speaks is really just a few people who get to play with tens of millions of donated dollars, and mostly seem to use it to fund genetic research.

Back to the board, and it would appear they have 5,101 members with just under 76,000 posts between them. So, we've over three times the membership, who post five times as often.

(Mind you, a chunk of our posts are in the games. I've looked, and I don't think there's any fun to be had on the Autism Speaks board.)

Oddly, their front page says:
Threads: 5,591, Posts: 71,839, Members: 7,275, Active Members: 1,013

Now, the fact that I saw a recent message numbered 75,789 and they only claim 71,839 might mean they delete about 5% of all the posts.

I find it odd that they quote 7,275 members, yet I got my figure of 5,101 from looking at their member list. That's a huge discrepancy.

I don't know what they consider as an "active" member. Someone who has posted in the last month? Maybe Alex could produce such a statistic.


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krex
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08 Apr 2008, 8:57 pm

Interesting stats Lau, thanks. It is just so hard to believe that they have the kind of power that they do with so few members. Then again, I think I read that the guy who started the AS, (with his wife), was the CEO or something powerful like that of a major US network...NBC/CBS? Well, the details are in their "about us section". I guess money and power attracts money and power.....(don't want to get all anarcist or paranoid about it).


They have also recently joined with CAN...so I don't think their agenda for a cure is going to change any time soon. There was one part of the thread...when they were going on and on about the paranoid kids on WP....when several members said...."They should stop wasting their time harassing us and do some of their own advocating if they don't like they way we are doing it"..(Sorry,I didnt write it down and that is not a direct quote)but what amazed me about it as they seem to have no concept that many people with aspergers maybe spending every "resource" of energy they have just trying to keep from drowning...and then there is that whole verbal communication and social phobia thing....and in spite of that....There are many who ARE advocating in spite of those difficulties....but just to be ignored by popular media in favor of Autism Speaks.......I just think this group of individuals have no idea what is like to try and function as an aspie in an NT society....and worse,they don't want to know because their kids are going to be "cured"...even if it kills them.


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morning_after
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08 Apr 2008, 11:05 pm

krex wrote:
Semelina...I am glad my post resulted in thought...I am an "agnostic" when it comes to my own thoughts,beliefs,feelings...I don't know if they are right or wrong for sure but hope voicing them will motivate further thought and debate.

I like the idea of WP providing it's own representation of positive perspective and life experiences of autism. I wish my life was a bit more positive. I think my experience, more accurately, reflects what can go wrong if teens and adults are offered no assistence. I still managed to graduate college and maintain my independence in working but the pain indured and the potential that I feel was lost with out assistance....is not something that should be glossed over. I think the same is true of many members of this cafe? I don't know how this should be incorporated into the message but I do think it important. Every body loves positive out comes(ALMOST as much as they love to hear about school shootings and Brintney Spears showing her underwear),but many appear to like their information packaged in bite size morsels that are easy to digest.

I trust the motives and ability of Alex as well as yourself. Keep the message as simple as possible with out distorting the reality of the diversity of the spectrum...(no easy task.) I hope for the day when AS is taken out of the DSM and put into the "neurological differences" catagory with out judgement of diseased/defective. The understanding of strengths that are sacrificed when all humans are judged on an environment and culture that plays on their weekness instead of their strengths would go along way into creating more positive changes for autistics then hours wasted on ABA and social stories....now, can figure out how to get that message acroos in 30 seconds or less?.....gulp.


I believe I could script them. I might need some time, but I believe I can.


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morning_after
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08 Apr 2008, 11:10 pm

postpaleo wrote:
Why did I go to that places forum? Someone kick me now. First thread I tried to read...warning, we have been infiltrated by aspies for freedom and WP and it goes on and on and on, but there was that word, calling WP an advocacy group, advocacy. Well, duh, yeah I have an opinion, but I have one about everything and if I don't, give me a second. I see the starter of that thread got banned too, but i doubt for that thread. It's pretty clear some from here are there and some are very open about it, that's pretty cool, I think. Generalizations, man the place is ripe with them. Ok time to go on hiatus, this sh** has got me all worked up, not good for me.


I saw what they said about us, and I had to close it.

Parents, they're saying that we don't have anyone on here that are parents and that people go over there from here and claim to be parents. They are calling us liars and saying that the people that go over there that are parents are actually 22 year old college students.

They also say that because we don't support many forms of therapy will will cause adult AS to be forgotten and blame us for when adult AS get violent, talking like we support it.

Now, when I have gotten agressive, it was actually people like them that caused it, trying to eliminate every way in which I was wierd and doing things like that, NOT people like the ones I've found here.

I think this community is more of a supportive community than they want to admit.


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morning_after
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08 Apr 2008, 11:18 pm

lau wrote:
krex wrote:
I was actually shocked to see how few members there were....WP is bigger? Was I readig the numbers wrong? Were those just forum members nd not AS members???Bit confused.

Anyone can join the forum. One might think that all the donors to Autism Speaks would also join the board, but I guess not. The board certainly has members that have never donated to Autism Speaks.

Autism Speaks is really just a few people who get to play with tens of millions of donated dollars, and mostly seem to use it to fund genetic research.

Back to the board, and it would appear they have 5,101 members with just under 76,000 posts between them. So, we've over three times the membership, who post five times as often.

(Mind you, a chunk of our posts are in the games. I've looked, and I don't think there's any fun to be had on the Autism Speaks board.)

Oddly, their front page says:
Threads: 5,591, Posts: 71,839, Members: 7,275, Active Members: 1,013

Now, the fact that I saw a recent message numbered 75,789 and they only claim 71,839 might mean they delete about 5% of all the posts.

I find it odd that they quote 7,275 members, yet I got my figure of 5,101 from looking at their member list. That's a huge discrepancy.

I don't know what they consider as an "active" member. Someone who has posted in the last month? Maybe Alex could produce such a statistic.


Maybe they claim to have more members to make their organization look bigger and more intimidating.

Or maybe they count people that have registered and left without posting anything a member.

I don't know.


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lau
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09 Apr 2008, 6:30 am

morning_after wrote:
lau wrote:
krex wrote:
I was actually shocked to see how few members there were....WP is bigger? Was I readig the numbers wrong? Were those just forum members nd not AS members???Bit confused.

Anyone can join the forum. One might think that all the donors to Autism Speaks would also join the board, but I guess not. The board certainly has members that have never donated to Autism Speaks.

Autism Speaks is really just a few people who get to play with tens of millions of donated dollars, and mostly seem to use it to fund genetic research.

Back to the board, and it would appear they have 5,101 members with just under 76,000 posts between them. So, we've over three times the membership, who post five times as often.

(Mind you, a chunk of our posts are in the games. I've looked, and I don't think there's any fun to be had on the Autism Speaks board.)

Oddly, their front page says:
Threads: 5,591, Posts: 71,839, Members: 7,275, Active Members: 1,013

Now, the fact that I saw a recent message numbered 75,789 and they only claim 71,839 might mean they delete about 5% of all the posts.

I find it odd that they quote 7,275 members, yet I got my figure of 5,101 from looking at their member list. That's a huge discrepancy.

I don't know what they consider as an "active" member. Someone who has posted in the last month? Maybe Alex could produce such a statistic.


Maybe they claim to have more members to make their organization look bigger and more intimidating.

Or maybe they count people that have registered and left without posting anything a member.

I don't know.


I took a couple of pages (51 and 101) of their alphabetic ordered member list.

Out of those 60 members, 37 had not posted at all, and eleven had made a single post. A further ten had made 3, 4, 6, 7, 10, 12, 14, 20, 24 and 25 posts respectively. All of those 58 well shown as "Junior Member". One more was listed as a "Member" with 43 posts, and the final one was listed as a "Senior Member" with a total of 287 posts.

To make a reasonable comparison with statistics on WP, I sorted the members on email address, reversed, and stepped through to page 6 (which was as far as I could be bothered to go... I'd have rather selected the middle page, but the page box doesn't work).

For those 50 WP members:
22 had not posted.
12 had posted 1..9 times (1 1 2 2 2 3 3 5 6 6 6 7).
8 had posted 10..99 times (13 17 18 25 26 35 50 59).
7 had posted 100..999 times (105 140 155 186 226 412 519)
One had posted 1,746 times.

I.e. the pattern of people that don't make any posts isn't so different. As I calculated before, we are rather gabbier than the Autism Speaks bunch.

Oh, and for the record, the latest member has user number 18,475 when WP shows the statistics as 18,063 members (which is the same number reflected by the 362 membership pages). I.e. WP in four years has (maybe) had 412 usernames deleted from the database. I don't believe Alex bothers to delete usernames often. I think there have been a couple of spamming attacks that generated spurious usernames, but it's generally not worth the trouble to delete them.


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Last edited by lau on 09 Apr 2008, 7:07 pm, edited 1 time in total.