2 sons with severe Autism and developmental delay.

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Joined: 19 Jan 2013
Gender: Male
Posts: 1

20 Jan 2013, 2:52 am

Oh lucky us !
Our first son was hitting his milestones until 12 months of age and then fell of this precipice into the Autism abyss.
By that time we were already pregnant with no. 2 who quietly followed his siblings descent.
Fully diagnosed and completely without any link to this world, we've despaired at the futility of every day, trying to connect, coping with the constant screams and unearthly howls and moans. Our life is a misery, all friends gone, marriage in tatters, careers adrift, all hope lost for our future and theirs. The only reprieve from this torment is an early grave.
However each day we get up smile at our boys and carry on, sometimes crying from lack of sleep and depression, but we go on.
Where does our life lead ? And who will warmly hold our sons hands when we cannot ?
What did we do to deserve this ? Was it us, the IVF, fate ? Whatever it was , it is forever.

And it's not just us, after a while we read about other parents who live like we do, how can it be fair... but life's not fair... But we are not alone.
To the parents , siblings and friends , hold on, we are people just like you, and while the road looks impossible, were right there with you. No advice or idiotic platitudes, just hold on.

Brett and Carolyn in Sydney, Australia.