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pyrrhicwren
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02 Jan 2020, 11:35 pm

After reaching a point of not caring anymore and full acceptance of HFA/ASP, it was too late. At times I've heard "but you don't look autistic", I respond with "what is it supposed to look like?". NTs that respond this way having zero knowledge about ASD except for the appearance of an ASD level-3. (In the current research, there are some facial features common to 2 ASD subtypes, facial subtype 1 & 2 -epicanthal folds are one but not totally a rule). But why get into deeper subject-matter with NTs that have no knowledge about this and really don't care.

I wish I would have known about other people like me from a young age, instead of being forced into the NT world, being isolated, feeling and being totally alone. Nobody understood, nobody cared. I've been called: idiot, stupid, moron, weird, and the list goes on. I have nothing truly in common with NTs. (AQ: 47/50, ASP/HFA 190/200)

The deepest meaningful interactions are with other ASD people. I don't have to overexplain, I don't seem weird, I am free to express interests without seeming boring to a NT. I met a post-doc PsyD who after many conversations was glad that I talked with them because I could keep up in every subject in discussion, in depth. With NTs I would fail miserably, get made fun of and hurt, lose energy, and have to gain energy & courage to go out and try to be normal again. Done with that.

:nerdy: I embrace the weirdness :nerdy:


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Last edited by pyrrhicwren on 03 Jan 2020, 1:59 am, edited 3 times in total.

Jakki
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02 Jan 2020, 11:48 pm

pyrrhicwren wrote:
After reaching a point of not caring anymore and full acceptance of HFA/ASP, it was too late. At times I've heard "but you don't look autistic", I respond with "what is it supposed to look like?". NTs that respond this way having zero knowledge about ASD except for the appearance of an ASD level-3. (In the current research, there are some facial features common to 2 ASD subtypes, facial subtype 1 & 2 -epicanthal folds are one but not totally a rule). But why get into deeper subject matter with NTs that have no knowledge about this and really don't care.

I wish I would have known about other people like me from a young age, instead of being forced into the NT world and being isolated and feeling totally alone in the world. Nobody understood, nobody cared. I've been called: idiot, stupid, moron, weird, and the list goes on. I have nothing truly in common with NTs. (AQ: 47/50, ASP/HFA 190/200)

The deepest meaningful interactions are with other ASD people. I don't have to overexplain, I don't seem weird, I am free to express interests without seeming boring to a NT. I met a post-doc PsyD who after many conversations was glad that I talked with them because I could keep up in every subject in discussion, in depth. With NTs I would fail miserably, get made fun of and hurt, lose energy, and have to gain energy & courage to go out and try to be normal again. Done with that.

:nerdy: I embrace the weirdness :nerdy:


awe great there are facial subtypes now ?? my sister was almost totally no verbal.. etc...
i was reverse ... now . how do i know what these folds are , and whether i have had them all my life and is reason am being targeted .. most of life . and yes know girls are not readily defined with autism when younger... what was told ,, diagnosed late in life based on my own suspicions and something my mom said about seeing a P doc.. when much younger.. she had too much on her plate to care for 2 aspies , specially when 1 is non verbal and violent do to abuse by older brothers. but not so my mother could figure that out ever.


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pyrrhicwren
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03 Jan 2020, 1:52 am

Jakki wrote:
awe great there are facial subtypes now ?? my sister was almost totally no verbal.. etc...
i was reverse ... now . how do i know what these folds are , and whether i have had them all my life and is reason am being targeted .. most of life . and yes know girls are not readily defined with autism when younger... what was told ,, diagnosed late in life based on my own suspicions and something my mom said about seeing a P doc.. when much younger.. she had too much on her plate to care for 2 aspies , specially when 1 is non verbal and violent do to abuse by older brothers. but not so my mother could figure that out ever.


Yeah I was reading about evolving studies a few months ago. To me the features look normal as I have some of the same features.

Minor Facial Anomalies (Dysmorphisms) in Some People With Autism

Possible Commonalities Of Facial Features In Those with Autism (Pic)

Possible Commonalities Of Facial Features In Those with Autism (Article)

Another Study


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EzraS
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06 Jan 2020, 5:36 pm

I'm not so sure about this. I have known of two sets of identical twins where one was autistic and the other wasn't. It wasn't facial structure that set them apart as that was the same. It was the difference in facial expressions. That's what an actor is going to work on when playing a character with autism.



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06 Jan 2020, 5:56 pm

 
 

Image


EMBRACE YOUR WEIRDNESS!!


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CarlM
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06 Jan 2020, 7:36 pm

pyrrhicwren wrote:
At times I've heard "but you don't look autistic", I respond with "what is it supposed to look like?". NTs that respond this way having zero knowledge about ASD except for the appearance of an ASD level-3.

No one has said this to me yet since I started telling people about my ASD :lol:. I suppose I might end up finding someone who doesn't understand the "spectrum", but I suppose I haven't been brave enough to tell anyone like that yet.

I don't think they are expecting any subtle facial features which may be present (This idea was new to me). I suppose they expect at least an autistic affect and this may be too subtle in many aspies to be recognized. Mine is probably just enough to be recognizable.


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kraftiekortie
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06 Jan 2020, 9:03 pm

I've known quite a few autistic people who happen to look "totally normal."

Their autism is in their outward behavior, not their physical appearance.



Jakki
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06 Jan 2020, 9:25 pm

pyrrhicwren wrote:
Jakki wrote:
awe great there are facial subtypes now ?? my sister was almost totally no verbal.. etc...
i was reverse ... now . how do i know what these folds are , and whether i have had them all my life and is reason am being targeted .. most of life . and yes know girls are not readily defined with autism when younger... what was told ,, diagnosed late in life based on my own suspicions and something my mom said about seeing a P doc.. when much younger.. she had too much on her plate to care for 2 aspies , specially when 1 is non verbal and violent do to abuse by older brothers. but not so my mother could figure that out ever.


Yeah I was reading about evolving studies a few months ago. To me the features look normal as I have some of the same features.

Minor Facial Anomalies (Dysmorphisms) in Some People With Autism

Possible Commonalities Of Facial Features In Those with Autism (Pic)

Possible Commonalities Of Facial Features In Those with Autism (Article)

Another Study


CRAP.....................! Gawd dammit . Sorry. Please note intentionally misspelled swearing if offended.
AAaaAaAaaAAAhhhhhhhhh......... okay now ... am a subtype , almost exact match ... am done........... So this explains a lot.. are there cloistered communities for. peeps falling under these subtypes .
WHAT now ?


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Jakki
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06 Jan 2020, 9:32 pm

Jakki wrote:
pyrrhicwren wrote:
Jakki wrote:
awe great there are facial subtypes now ?? my sister was almost totally no verbal.. etc...
i was reverse ... now . how do i know what these folds are , and whether i have had them all my life and is reason am being targeted .. most of life . and yes know girls are not readily defined with autism when younger... what was told ,, diagnosed late in life based on my own suspicions and something my mom said about seeing a P doc.. when much younger.. she had too much on her plate to care for 2 aspies , specially when 1 is non verbal and violent do to abuse by older brothers. but not so my mother could figure that out ever.


Yeah I was reading about evolving studies a few months ago. To me the features look normal as I have some of the same features.

Minor Facial Anomalies (Dysmorphisms) in Some People With Autism

Possible Commonalities Of Facial Features In Those with Autism (Pic)

Possible Commonalities Of Facial Features In Those with Autism (Article)

Another Study


CRAP.....................! Gawd dammit . Sorry. Please note intentionally misspelled swearing if offended.
AAaaAaAaaAAAhhhhhhhhh......... okay now ... am a subtype , almost exact match ... am done........... So this explains a lot.. are there cloistered communities for. peeps falling under these subtypes .
WHAT now ?

Okay okay better now. many peeps have divets under their noses..whew!


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pyrrhicwren
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06 Jan 2020, 9:45 pm

Yeah, there is a STUDY of facial subtypes but it is not a rule. A lot of ASD appear "normal". I get that. Personally, instead of not remembering faces like some do, I have extreme awareness. I can remember someone I met 25 yrs ago by face. The facial features are not a list but differing attributes. I also recognize patterns and small differences to an unusual degree.

As I said, I have a hard time explaining myself, also usually the entirety of a topic, missing fine details.


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aquafelix
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11 Jan 2020, 4:53 am

I heard the Han Asperger observed that the people he described as quite beautiful, Leo Kanner made the same observation independently.



pyrrhicwren
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11 Jan 2020, 7:31 am

aquafelix wrote:
I heard the Han Asperger observed that the people he described as quite beautiful, Leo Kanner made the same observation independently.


Agreed. People on the spectrum are beautiful people in many different ways.


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Jakki
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11 Jan 2020, 9:49 am

Jakki wrote:
Jakki wrote:
pyrrhicwren wrote:
Jakki wrote:
awe great there are facial subtypes now ?? my sister was almost totally no verbal.. etc...
i was reverse ... now . how do i know what these folds are , and whether i have had them all my life and is reason am being targeted .. most of life . and yes know girls are not readily defined with autism when younger... what was told ,, diagnosed late in life based on my own suspicions and something my mom said about seeing a P doc.. when much younger.. she had too much on her plate to care for 2 aspies , specially when 1 is non verbal and violent do to abuse by older brothers. but not so my mother could figure that out ever.


Yeah I was reading about evolving studies a few months ago. To me the features look normal as I have some of the same features.

Minor Facial Anomalies (Dysmorphisms) in Some People With Autism

Possible Commonalities Of Facial Features In Those with Autism (Pic)

Possible Commonalities Of Facial Features In Those with Autism (Article)

Another Study


CRAP.....................! Gawd dammit . Sorry. Please note intentionally misspelled swearing if offended.
AAaaAaAaaAAAhhhhhhhhh......... okay now ... am a subtype , almost exact match ... am done........... So this explains a lot.. are there cloistered communities for. peeps falling under these subtypes .
WHAT now ?

Okay okay better now. many peeps have divets under their noses..whew!

Alright.... so trying not to be self concious on this thread. But long ago used to think maybe had mild bells palsy condition. Facial exercises helped much and being a woman could mask minor details . With little work. To hec with the divet part of this identifications. Think people with divets might feel more trustworthy ..imho. As if trying to mask being a NT wasn't enough .


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pyrrhicwren
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11 Jan 2020, 11:13 am

Jakki wrote:
Jakki wrote:
Jakki wrote:
pyrrhicwren wrote:
Jakki wrote:
awe great there are facial subtypes now ?? my sister was almost totally no verbal.. etc...
i was reverse ... now . how do i know what these folds are , and whether i have had them all my life and is reason am being targeted .. most of life . and yes know girls are not readily defined with autism when younger... what was told ,, diagnosed late in life based on my own suspicions and something my mom said about seeing a P doc.. when much younger.. she had too much on her plate to care for 2 aspies , specially when 1 is non verbal and violent do to abuse by older brothers. but not so my mother could figure that out ever.


Yeah I was reading about evolving studies a few months ago. To me the features look normal as I have some of the same features.

Minor Facial Anomalies (Dysmorphisms) in Some People With Autism

Possible Commonalities Of Facial Features In Those with Autism (Pic)

Possible Commonalities Of Facial Features In Those with Autism (Article)

Another Study


CRAP.....................! Gawd dammit . Sorry. Please note intentionally misspelled swearing if offended.
AAaaAaAaaAAAhhhhhhhhh......... okay now ... am a subtype , almost exact match ... am done........... So this explains a lot.. are there cloistered communities for. peeps falling under these subtypes .
WHAT now ?

Okay okay better now. many peeps have divets under their noses..whew!

Alright.... so trying not to be self concious on this thread. But long ago used to think maybe had mild bells palsy condition. Facial exercises helped much and being a woman could mask minor details . With little work. To hec with the divet part of this identifications. Think people with divets might feel more trustworthy ..imho. As if trying to mask being a NT wasn't enough .


I knew a person that said he had that palsy. One side of his face was limp for about 2 weeks.


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sport
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24 Feb 2020, 11:26 am

I been ask about the same question.I was tested real late in life 70's and the 1st time came back autism so had a hard time accepting it.I was retested result was middle of the row autism.I've had several problems growing up somewhat stimm was never at the top of my class in school the test show me somewhat below aver.I love to read about the 2nd ww.I sometimes pace love alone time once in awhile have meltdowns.My wife helps me to adjust and keep things going also I been incontinent for 30yrs.



Jakki
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24 Feb 2020, 11:24 pm

sport wrote:
I been ask about the same question.I was tested real late in life 70's and the 1st time came back autism so had a hard time accepting it.I was retested result was middle of the row autism.I've had several problems growing up somewhat stimm was never at the top of my class in school the test show me somewhat below aver.I love to read about the 2nd ww.I sometimes pace love alone time once in awhile have meltdowns.My wife helps me to adjust and keep things going also I been incontinent for 30yrs.


might consider a co-morbidity ,, lyme disease as it survives in human can create many of the dysfunctions you have described . There are several co infections that can cross the birth canal with lyme . These are largely not
watched for by any U.S. A. doctors even the infectious disease doctors , do not wish to diagnose these. a company , a blood testing lab in PaloAlto , Calif.
called Igenex .. has competint testing facilities to test for these. tests there can range up to 700 dollars . But there are some people also that help subsidize these tests. You might seek out a Lyme Literate Medical Doctor.
Lyme.Org maybe a source . i recognize your symptoms as some of my own.
Diagnosis was hard to get treatment was equally hard, butsince my diagnosis
things have gotten more efficiant.


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