Research on Experiences of Students with Asperger's

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Kangoogle
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08 Jan 2009, 8:27 pm

Fnord wrote:
The university may or may not know of Bianca's actions, or her real intentions (whatever they may be).

I've passed the matter along to Alex through a PM. Please exercise caution and discretion until he responds.

If its an approved study a quick phone call would be able to check it out. As for Alex - him saying something does not guarantee safety, especially if you want to go down this paranoid path. After all you don't know him as far as I gather, he may as well just be another person on the internet.



Fnord
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08 Jan 2009, 8:38 pm

Alex is the owner of this website, and not just an administrator. Bianca has made the claim that Alex has approved of her post - a claim that remains unsubstantiated. I merely advise caution and discretion until her claim is confirmed by Alex.

For all we know, the person answering the phone at the university could be Bianca herself, or a friend of hers.

Think about it: If you're being asked to provide details regarding past experiences - including education and employment history - as well as your real name through an essentially anonymous on-line contact, wouldn't you be justified in being cautious (in the least) or somewhat paranoid (at the most) regarding Social Engineering and other methods of identity theft?

Besides, as the old saying goes, "Just because you're paranoid does not mean that someone is not out to get you."

Let's wait for Alex's response.


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Kangoogle
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08 Jan 2009, 9:07 pm

Fnord wrote:
Alex is the owner of this website, and not just an administrator. Bianca has made the claim that Alex has approved of her post - a claim that remains unsubstantiated. I merely advise caution and discretion until her claim is confirmed by Alex.

You might also notice that her post is, erm, still here.
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For all we know, the person answering the phone at the university could be Bianca herself, or a friend of hers.

Not if you have half a brain and google the Princeton Psychology Departments phone number. Clearly you don't know how the academic system works.
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Quote:
Think about it: If you're being asked to provide details regarding past experiences - including education and employment history - as well as your real name through an essentially anonymous on-line contact, wouldn't you be justified in being cautious (in the least) or somewhat paranoid (at the most) regarding Social Engineering and other methods of identity theft?

Besides, as the old saying goes, "Just because you're paranoid does not mean that someone is not out to get you."

Let's wait for Alex's response.

Seems like an hell of an elaborate scheme for someone to concoct and for what purpose?



Bianca
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08 Jan 2009, 9:10 pm

Hi all,

It appears that my attempt to recruit participants for my research has become a bit of an issue, and I understand your concerns. I also had my own concerns in placing a post as I felt that it might be a bit intrusive and which is why I felt it was necessary to contact Alex and have his permission to post on this website. Once I contacted him and received his approval I felt that this would not be an issue. Unfortunately, my attempts to get Alex to confirm his approval by posting on here (which he already gave) have not been answered. I am supposed to speak with Alex sometime soon, so maybe at that point we can discuss how to clear up this issue. Until then, I ask for your patience as I attempt to address this issue. In the next few days I will have a similar description of the study placed on another Apserger's site which is monitored much more carefully than this one, and I will provide the link to that website once it has been added to potentially calm some of the fears. If this is truly a problem, then I will be happy to remove the post from this website.

My apologies,
Bianca



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08 Jan 2009, 9:57 pm

Bianca wrote:
For those concerned about the credibility of my post/research, I spoke with Alex over the phone and asked for his permission to post on this website. I have also requested that he place a post on here in order to help reduce concern, and he will hopefully be able to do it sometime soon. With regards to the comment about the IRB number, are you referring to my protocol number?


That would be sufficient, Bianca. A phone call to the IRB requesting verification that it exists would put an end to a lot of the paranoia.



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08 Jan 2009, 10:05 pm

My IRB protocol number is 4168, and I apologize for not placing it in the original post.



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08 Jan 2009, 11:12 pm

Fnord wrote:
Bianca wrote:
The site administrator Alex Plank has approved this posting.

I would like to take this opportunity to point out that Alex has yet to publically confirm Bianca's foregoing assertion. Be careful of what you tell her, whether it's in a public post or PM. Divulging private information, especially identity data, can be detrimental.

Fnord, I understand your concern (actually, I was the first to post doubts about this situation) but as I have since posted, some Internet stalking reveals this to be legit. Ms. Love possesses a valid Princeton University e-mail account (and it's not a Yahoo account; how do you get a university e-mail account without being a student there?) and has a Facebook page that is sufficient to verify her identity, as several details of it are far too elaborate to be fabricated for the purpose of scamming Aspies. Also, we now have her IRB number, which should provide sufficient validation.


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09 Jan 2009, 1:27 am

Bianca wrote:

Please note : Participation in the study WILL involve me knowing your actual name

You said earlier that it wouldn't.

I'm out.



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09 Jan 2009, 11:03 am

MizLiz wrote:
Bianca wrote:
Please note : Participation in the study WILL involve me knowing your actual name

You said earlier that it wouldn't. I'm out.

So you noticed that too, eh?

"Curiouser and curiouser," said Alice.


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Orwell
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09 Jan 2009, 12:06 pm

MizLiz wrote:
Bianca wrote:

Please note : Participation in the study WILL involve me knowing your actual name

You said earlier that it wouldn't.

I'm out.

She said earlier that our names would not be attached to our responses in any way, and this is standard procedure for research projects of this nature- it's confidential in the sense that no one will be able to find anything out about us by looking at the research results, and all information about us, as Bianca already said, will be securely stored and then deleted once the study is completed. All in line with standard IRB procedures. Call her university if you still have doubts.


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09 Jan 2009, 12:11 pm

I will call Princeton and give you the results shortly, so that the entire world does not hop on the phone to check up on her (Princeton would not be happy with that). Standby, please, until I have the results. I called their Institutional Review Board Office and asked for verification by Bianca's name, IRB, and research project focus. It was a voicemail, so hopefully I will have a response shortly and will post it for you.

Until then, please try to be calm. :lol:



Orwell
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09 Jan 2009, 12:19 pm

But Nan, how do we know you aren't just a troll account that Bianca (if that is her real name) has established here in advance to lend credibility to her with a fake IRB phone call? :lol:


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Nan
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09 Jan 2009, 12:25 pm

Orwell wrote:
But Nan, how do we know you aren't just a troll account that Bianca (if that is her real name) has established here in advance to lend credibility to her with a fake IRB phone call? :lol:



hahahahahahahahahahah. You're good, Orwell. You're good. :lol:

Gee, I guess you could go in and look at all of the eight-kazillion posts I've put on this board in the last several years and then try to see how to fit those in with a very-young-person's alter-ego?



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09 Jan 2009, 12:55 pm

That's what they *want* us to think, Nan.

Honestly, if everyone on this thread took the MMPI, half of us would probably come up as paranoid schizophrenics. :P


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Nan
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09 Jan 2009, 2:51 pm

Ok, folks. Calmeth Thyselves.

I have just spoken to a gentleman from Princeton's IR Board and he assures me that her study is valid, legit, and above board.

Good luck with it, Bianca, and sorry for the paranoia. You have to understand that a lot of us have been scammed in the past, and are just a tad gun-shy....

Now, of course, they have to assume that I'm not her in disguise. :wink:
(Would happily trade all these wrinkles and gray hair, but no.)



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09 Jan 2009, 2:55 pm

She'd really spend nearly three years (looking at how old Nan's account is) trying to get the seventy odd bucks in my bank account? Wow. With that much effort, she deserves it. :lol:

I was just offended by the whole "you're going to be anonymous... oh wait... NO YOU'RE NOT!" thing. I never thought this was a scam. A bad idea, yes. At a place like Princeton, you don't need to go online to find a person with an ASD. Assuming you do shows a lack of knowledge on the subject.