RE: Kids w/ Classic Autism, PDD-NOS & Speech Delays

Post Reply New Topic

Ok so I came home and took over and he had not gone wees for four hours by the time we finally took him off the toilet, even though we were filling him up with water and food so I put undies back on and let him do whatever he wanted but followed him around and within 5 minutes he was a little fire hydrant and then after sorting that out he pooed, and that pattern had also happened last night, so it seems he is hanging on to go where he feels most comfortable.
He likes best of all to hop into a bed to go.
So anyway we are learning things at least.
I think we are going to have to get some helpers. Maybe some students or something, just because of the time involved in doing this, and the duration I think we might be in for! I can see this taking quite a long time..

Last night I was having some stress issues and to prevent a total meltdown and a two day stay in bed recovery I was trying to distract myself. I was reading the forum, and I read through this thread. I have to say this.

You parents have my utmost respect! I remember being so stressed out and tired and overwhelmed with my 4 kids (NT's - I' always feel that when I point it out I'm going to be taken as "bragging" but I'm not. I just want to make sure that people know where I'm coming from). I had 3 in diapers at once and one that was 4 years older than the oldest toddler. I thought potty training them was hard. I thought getting them down for naps and sleep was hard. I thought keeping them busy was hard.

Oh boy, I had it easy! I see that now, and I want to say that you parents here seem to take so much time and effort and work for your kids and I imagine that must be exhausting, and I just wanted to say that I think it's great, and to compliment you all on it. Your kids are very lucky to have you all.

Basically, I just wanted to say I'm impressed and that I'm not sure I would be able to do what you all do, although the maternal instinct is very strong and will make you do what you have to do, but I'm still very, very impressed.

My hat's off to all of you!

_________________
I'm giving it another shot. We will see.
My forum is still there and everyone is welcome to come join as well. There is a private women only subforum there if anyone is interested. Also, there is no CAPTCHA.

The link to the forum is http://www.rightplanet.proboards.com

All this talk of potty training has inspired me to put another page on my free website devoted to potty training. (See below): I'm no expert at potty training, but some of these links might help.

http://www.freevideosforautistickids.co ... ining.html

our autie will be 6 in less than 2 months, and he is still fully in diapers. something we struggle with is that part of his sensory dysfunction is low registration, so he cant feel his body's signals for various things. potty, hunger, pain, etc, it doesnt register with him like it does with most people. he often cant tell the difference between hunger and thirst, or refuses to eat when he is hungry because his tummy hurts (from hunger). he cant tell when he has to go to the bathroom and cant tell when he has gone to the bathroom in his diaper.

i have gone back and forth a lot on whether its completely low registration or he just doesnt want to do it or just gets too busy, etc. but my SO is also an autie, and he also has low registration. for him, he doesnt know he has to go to the bathroom until its urgent, and then he has to immediately stop what hes doing and sometimes even run to the bathroom. they are like two peas in a pod, so i have come to the point of thinking that the issue really is low registration.

i often wonder if some of the other kids out there have the same low registration issues that cause a lot of difficulty in toilet training. i feel pressure to get him trained, but worry if its going to be a traumatic experience over something that isnt even in his control.

my son never complains about his diaper, i cant remember a single time he has ever requested a change or even let us know he was soiled. and thats the crux right there, how can you potty train a child who doesnt feel the need to go or that hes gone? K has stayed in a soiled diaper to the point that his bum is raw and red (doesnt take that long as he has sensitive skin with vitiligo and granuloma anulare, majority of his bum is white with no pigment) and if you ask him if he needs changed, he'd say no.

we once pointed out that there is a bad smell when his diapers are soiled. his response was, "doesnt bother me!"

I have a question. I need to know what I am supposed to do regarding diagnosis once we arrive in the US with my son. My mom has contacted the local school but other than that I am not sure where to start. Do I need to get recommendations from a pediatrician or something like that?

Another issue is that we will be staying with my parents for a few months, but we are planning to buy a house (finally!) and it won't be in the same town (I will need to be closer to work)...will there be an issue getting my son's school evaluation in my parents' town and then moving?

the local school district where you will be living is usually required to do the evaluation, even if its only a temporary few months that you are there. you dont need any outside referrals to go through the school district. if your child gets an IEP, that follows the child to any other school district you move into. the new district would have to follow the IEP as written, until they do their own evals and IEP. the age of your child plays a role in how the process goes, the idea laws are separated into birth to age 2, and age 3 to 21. i dont believe the first years have an IEP, but the older group usually does. the states vary a bit in how things are done, as they have to follow the laws but do so by developing their own programs that fulfill the federal laws.

one great place to get info is your states special education website. just do a search for the special education department of the state you will be living in, it should tell you a lot about the process. its also good to get familiar with the actual laws, you can find info at http://idea.ed.gov/ and http://wrightslaw.com/ is an advocacy site with tons of info and a newsletter you can subscribe to.