RE: Kids w/ Classic Autism, PDD-NOS & Speech Delays

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Washi
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29 May 2012, 4:24 pm

Wreck-Gar wrote:

Thanks, I will look into it. Might not need it because we are in MA and we have Mass Health here.

Right now I am looking into IPAD grants for kids with autism. His ABA instructor recommended it.


We have health insurance too, it's separate from that.



Washi
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29 May 2012, 4:35 pm

Have any of you had to teach your kids how to spit? My boy still doesn't know how to spit ... he can sputter a little bit, but generally if he gets something in his mouth he doesn't want he just sticks out his tongue and waits for me to remove it. (I've been trying for a while now, I'm sure he'll get it eventually.... hopefully) Yesterday at the playground he was rolling in the sand and got so into it that he actually licked the ground, his tongue was covered in sand and I had to brush it off :tongue: even then he wouldn't spit. I usually try to work on it when he shows interest in using the adult toothpaste by filling my mouth with water from a cup and spitting in the sink and trying to get him to copy, he likes to pretend he's spitting but doesn't follow through.



Washi
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29 May 2012, 4:46 pm

Also, I don't know if any of you saw this video about teachers verbally abusing their non-verbal autistic students (a parent put a wire on his son).... http://www.wrongplanet.net/postt196508.html Too close to home. :(



Wreck-Gar
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29 May 2012, 6:38 pm

Washi wrote:
Have any of you had to teach your kids how to spit? My boy still doesn't know how to spit ... he can sputter a little bit, but generally if he gets something in his mouth he doesn't want he just sticks out his tongue and waits for me to remove it. (I've been trying for a while now, I'm sure he'll get it eventually.... hopefully) Yesterday at the playground he was rolling in the sand and got so into it that he actually licked the ground, his tongue was covered in sand and I had to brush it off :tongue: even then he wouldn't spit. I usually try to work on it when he shows interest in using the adult toothpaste by filling my mouth with water from a cup and spitting in the sink and trying to get him to copy, he likes to pretend he's spitting but doesn't follow through.


Nope, my kid is the same. I am not sure at what age kids usually learn to spit anyway.



Wreck-Gar
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29 May 2012, 6:38 pm

Washi wrote:
Also, I don't know if any of you saw this video about teachers verbally abusing their non-verbal autistic students (a parent put a wire on his son).... http://www.wrongplanet.net/postt196508.html Too close to home. :(


If that happened to my kid I'd heard it coming back to me later as echolalia I bet.



Washi
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29 May 2012, 7:25 pm

Wreck-Gar wrote:
Washi wrote:
Also, I don't know if any of you saw this video about teachers verbally abusing their non-verbal autistic students (a parent put a wire on his son).... http://www.wrongplanet.net/postt196508.html Too close to home. :(


If that happened to my kid I'd heard it coming back to me later as echolalia I bet.


Right, same with mine but depending on what it was I wouldn't know if he picked it up from other kids or a moment of unsupervised TV/internet because if it was from a teacher they'd deny it. My kid can be difficult, I'm afraid he's going to bring this sort of behavior out of people. He tried to chase away two innocent bigger kids in a store yesterday, they were playing with a video game display and my son ran up to them waving his arms saying "Hey, get away! Don't do that, get out of here!" because he wanted to play with it. Thankfully they didn't react to him and just stood there stunned while I redirected him....



Wreck-Gar
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29 May 2012, 7:58 pm

Washi wrote:
Wreck-Gar wrote:
Washi wrote:
Also, I don't know if any of you saw this video about teachers verbally abusing their non-verbal autistic students (a parent put a wire on his son).... http://www.wrongplanet.net/postt196508.html Too close to home. :(


If that happened to my kid I'd heard it coming back to me later as echolalia I bet.


Right, same with mine but depending on what it was I wouldn't know if he picked it up from other kids or a moment of unsupervised TV/internet because if it was from a teacher they'd deny it. My kid can be difficult, I'm afraid he's going to bring this sort of behavior out of people. He tried to chase away two innocent bigger kids in a store yesterday, they were playing with a video game display and my son ran up to them waving his arms saying "Hey, get away! Don't do that, get out of here!" because he wanted to play with it. Thankfully they didn't react to him and just stood there stunned while I redirected him....


Ha ha, sounds like he's been messing around with your computer or home game system...



Washi
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29 May 2012, 9:21 pm

Wreck-Gar wrote:
Washi wrote:
Wreck-Gar wrote:
Washi wrote:
Also, I don't know if any of you saw this video about teachers verbally abusing their non-verbal autistic students (a parent put a wire on his son).... http://www.wrongplanet.net/postt196508.html Too close to home. :(


If that happened to my kid I'd heard it coming back to me later as echolalia I bet.


Right, same with mine but depending on what it was I wouldn't know if he picked it up from other kids or a moment of unsupervised TV/internet because if it was from a teacher they'd deny it. My kid can be difficult, I'm afraid he's going to bring this sort of behavior out of people. He tried to chase away two innocent bigger kids in a store yesterday, they were playing with a video game display and my son ran up to them waving his arms saying "Hey, get away! Don't do that, get out of here!" because he wanted to play with it. Thankfully they didn't react to him and just stood there stunned while I redirected him....


Ha ha, sounds like he's been messing around with your computer or home game system...


Oh "ha ha" (sarcasm) that's an understatement. I constantly have my ears open for inappropriate material and I think I've done well because he hasn't picked up any bad language but he has purchased games and a $100 xbox subscription (bad parental controls on xbox, if I had my way he'd never play the xbox but his Dad lets him, we're no longer subscribed so it shouldn't be a problem anymore we were able to get refunds), he's deleted a months worth of family photos and videos from the ipad, deleted every game on the wii, I have to be real careful about logging myself out of websites and games - he's passed my turn in games and made posts on my facebook wall via apps on the iphone/ipad, he knows how to open big fish and download games, he helps himself he can start up the computer himself and puts disks in the drive.



Wreck-Gar
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30 May 2012, 7:46 am

The big IEP meeting is today...



Washi
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30 May 2012, 1:50 pm

Wreck-Gar wrote:
The big IEP meeting is today...


Good luck!



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31 May 2012, 6:53 am

Washi wrote:
Wreck-Gar wrote:
The big IEP meeting is today...


Good luck!


Here's what he gets for the next year -

3 hours of both OT and speech (2 hours private and one hour group)

2 hours ABA at home

an aide

will be in the special ed class, no inclusion yet because he is not ready - one of his biggest issues is he still does not participate in class activites and is mostly self-focused so they will work on that.

One thing the teachers brought up is that they have never seen a kid who is academically gifted (as I have said before my son is very ahead academically) but who has all these deficits. I think they are mostly used to the totally non-verbal autistic kids.



Washi
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31 May 2012, 3:57 pm

Wreck-Gar wrote:
Washi wrote:
Wreck-Gar wrote:
The big IEP meeting is today...


Good luck!


Here's what he gets for the next year -

3 hours of both OT and speech (2 hours private and one hour group)

2 hours ABA at home

an aide

will be in the special ed class, no inclusion yet because he is not ready - one of his biggest issues is he still does not participate in class activites and is mostly self-focused so they will work on that.

One thing the teachers brought up is that they have never seen a kid who is academically gifted (as I have said before my son is very ahead academically) but who has all these deficits. I think they are mostly used to the totally non-verbal autistic kids.


I have no idea where my son should be academically though I think his reading ability is well above normal ... but he doesn't get math yet although he still loves numbers. When we checked out the local special ed preschool last year I got the feeling that none of the other kids there were as big a handful as mine (in that they were all more verbal, there was little mine would eat, he constantly screamed and bolted, he completely ignored the other children, didn't respond to his name, was in cloth diapers (I'm sure they would of had a problem with that) and would not sit on the potty and had big allergic reactions to mosquitoes so I didn't trust them not to take him outside without the proper precautions) I felt it would be disasterous to send him at that time, I would have tried it if they let parents watch classes but they don't and some of the administration rubbed me the wrong way I got the feeling they were two faced and that video of the Dad who sent his kid to school with a wire happened quite close to me (close enough that if people from that school were transferred they could end up in my school) so I felt like my suspicions were not at all unfounded.... :(

Did they label him academically gifted based mostly on his reading comprehension?



Wreck-Gar
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31 May 2012, 9:49 pm

Washi wrote:
I have no idea where my son should be academically though I think his reading ability is well above normal ... but he doesn't get math yet although he still loves numbers. When we checked out the local special ed preschool last year I got the feeling that none of the other kids there were as big a handful as mine (in that they were all more verbal, there was little mine would eat, he constantly screamed and bolted, he completely ignored the other children, didn't respond to his name, was in cloth diapers (I'm sure they would of had a problem with that) and would not sit on the potty and had big allergic reactions to mosquitoes so I didn't trust them not to take him outside without the proper precautions) I felt it would be disasterous to send him at that time, I would have tried it if they let parents watch classes but they don't and some of the administration rubbed me the wrong way I got the feeling they were two faced and that video of the Dad who sent his kid to school with a wire happened quite close to me (close enough that if people from that school were transferred they could end up in my school) so I felt like my suspicions were not at all unfounded.... :(

Did they label him academically gifted based mostly on his reading comprehension?
w

He didn't get any academically gifted label, they just said he was way ahead or something like that.

Since we totally missed out on early intervention, we just called the school district when we got back to the US and they set us up at this preschool, run in one of the nearby elementary schools. It's part of the school district, not a private preschool. My son has many of the behaviors you mention but they are set up to deal with these things. Responding to his name and sitting still are some of his goals for the next year...



Washi
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01 Jun 2012, 2:48 am

Wreck-Gar wrote:
Washi wrote:
I have no idea where my son should be academically though I think his reading ability is well above normal ... but he doesn't get math yet although he still loves numbers. When we checked out the local special ed preschool last year I got the feeling that none of the other kids there were as big a handful as mine (in that they were all more verbal, there was little mine would eat, he constantly screamed and bolted, he completely ignored the other children, didn't respond to his name, was in cloth diapers (I'm sure they would of had a problem with that) and would not sit on the potty and had big allergic reactions to mosquitoes so I didn't trust them not to take him outside without the proper precautions) I felt it would be disasterous to send him at that time, I would have tried it if they let parents watch classes but they don't and some of the administration rubbed me the wrong way I got the feeling they were two faced and that video of the Dad who sent his kid to school with a wire happened quite close to me (close enough that if people from that school were transferred they could end up in my school) so I felt like my suspicions were not at all unfounded.... :(

Did they label him academically gifted based mostly on his reading comprehension?
w

He didn't get any academically gifted label, they just said he was way ahead or something like that.

Since we totally missed out on early intervention, we just called the school district when we got back to the US and they set us up at this preschool, run in one of the nearby elementary schools. It's part of the school district, not a private preschool. My son has many of the behaviors you mention but they are set up to deal with these things. Responding to his name and sitting still are some of his goals for the next year...


We did early intervention - I don't think it made a bit of difference in my son's development, I appreciated the extra socialization though. Our local special ed preschool is also run out of a public elementary school.

Apparently my son is starting to learn how to type/write .... he just brought me the ipad and he had something like "ttaecat.intaehat.." in the search bar and asked me for "The Cat in the Hat", I coached him through retyping it and he did the search himself, went to the Cat in the Hat on Wikipedia said "oops", hit the back key scanned the page and went to the official web site. He knew exactly what he was doing. 8O



Wreck-Gar
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01 Jun 2012, 4:48 am

Washi wrote:
We did early intervention - I don't think it made a bit of difference in my son's development, I appreciated the extra socialization though. Our local special ed preschool is also run out of a public elementary school.

Apparently my son is starting to learn how to type/write .... he just brought me the ipad and he had something like "ttaecat.intaehat.." in the search bar and asked me for "The Cat in the Hat", I coached him through retyping it and he did the search himself, went to the Cat in the Hat on Wikipedia said "oops", hit the back key scanned the page and went to the official web site. He knew exactly what he was doing. 8O


Have you checked to see what services are available through your local school district? Service with the schools are supposed to kick in once your kid turns 3.

Cool your kid is typing, mine only really wants to touch the space bar and the numbers.



Washi
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01 Jun 2012, 12:27 pm

We checked out the school when he was 3 and decided it wasn't in his best interests to send him at that time. They didn't offer any services unless we signed him up for school. We're supposed to be going through that process again now but too much has been going on. I need to see if there are any other schools he could go to in the area because I didn't like the one I saw.