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RE: Kids w/ Classic Autism, PDD-NOS & Speech Delays

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Wreck-Gar
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10 Sep 2012, 8:24 am

nostromo wrote:
Got home yesterday from a bike ride, and my son was wandering around home using his head to headbutt our arms and handing us PECS for things he didn't want. I knew he was bored of being at home and frustrated so decided to attempt something we haven't done for a long time and that was try a grocery shop with him. Luckily my daughter came and I made her hold his hand, and I was diligent about getting down and talking to him and telling him what we were doing. I don't know what level of comprehension he has, but it does just seem to make things run a lot smoother and keeps him chilled out.

It was a quicker than normal shop, but he was extremely good, no melt downs, and no eating food off shelves. The main thing he likes to do is run up and down the ailes, I call it 'strafing runs' but my daughter kepts that in check mostly.
We even got him to try and help with putting the groceries on the converyer and he did that once or twice. Was very pleased with the whole thing.


That's good. My son likes to run up and down the ailes too. He will soon be too big for the stroller and shopping cards so I am not sure how we will take him out and about...he will walk with us sometimes but he sometimes tries to sit on the floor/road or run around.



Washi
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11 Sep 2012, 4:08 pm

Anyone else get periodically unsubscribed to this thread? My son is a terror in the grocery store, sometimes it starts off well enough but eventually he'll run off and scream at the top of his lungs etc.. My grocery store actually has a free day care that we've left him in successfully 3 or 4 times now, but I'm always stressed out that he's giving them trouble when I'm shopping. The last time we went to pick him up he wouldn't give back a toy and created such a scene that they said he could keep it (his Dad went to pick him up, I image it would have gone differently if it were me), I'm going to donate some of his toys to make up for it.



Wreck-Gar
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12 Sep 2012, 9:07 am

Washi wrote:
Anyone else get periodically unsubscribed to this thread? My son is a terror in the grocery store, sometimes it starts off well enough but eventually he'll run off and scream at the top of his lungs etc.. My grocery store actually has a free day care that we've left him in successfully 3 or 4 times now, but I'm always stressed out that he's giving them trouble when I'm shopping. The last time we went to pick him up he wouldn't give back a toy and created such a scene that they said he could keep it (his Dad went to pick him up, I image it would have gone differently if it were me), I'm going to donate some of his toys to make up for it.


I suppose this running around in the store thing could be more of a little kid thing than an autism thing...my two year old does it, too. I certainly hope they grow out of it soon.

My ASD son has started climbing over the fence and leaving the yard. He hasn't run into the street yet but we've found him in the neighbor's yard a couple of times.



Wreck-Gar
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12 Sep 2012, 9:18 am

Washi wrote:
Anyone else get periodically unsubscribed to this thread?


Couldn't say, I don't subscribe to threads here.



nostromo
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18 Sep 2012, 3:11 am

Have a Birthday party I have to take my son to, as with the last one which was stressful and not fun its just me taking my boy.
I'm thinking we'll go, give the boy our present, scoff some food then leave, I figure we might be there 15 minutes, and when James is keen to go we'll go. My wife already told the other boys Mum that that was probably what will happen.
So I wonder the point of going, but I guess its "getting out in the world".



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18 Sep 2012, 7:44 am

nostromo wrote:
Have a Birthday party I have to take my son to, as with the last one which was stressful and not fun its just me taking my boy.
I'm thinking we'll go, give the boy our present, scoff some food then leave, I figure we might be there 15 minutes, and when James is keen to go we'll go. My wife already told the other boys Mum that that was probably what will happen.
So I wonder the point of going, but I guess its "getting out in the world".


What do you think will happen? We brought our son to a friends' kid's birthday party a couple of weeks ago. It was an outdoor barbecue. It went well at first, I think...at first my son was crying but he was fine once he got used to being around the other kids. He didn't interact with them but he played kind of near them.

After a couple of hours he got bored though, and wandered into the neighbor's yard...



Washi
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18 Sep 2012, 3:07 pm

I dread parties, I have the social skills of a barnacle to begin with and my son's behavior is always ... *challenging* .... And I don't drive so when I get coerced into going to a party I can't just leave when I want, I have to count on my partner for that and he may be enjoying himself so I may not want to tell him I want to leave ... I think popping in for just 15 minutes sounds great, it shows you care enough to be there without having to beat yourself up by having a stressful time.



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18 Sep 2012, 8:25 pm

Wreck-Gar wrote:
nostromo wrote:
Have a Birthday party I have to take my son to, as with the last one which was stressful and not fun its just me taking my boy.
I'm thinking we'll go, give the boy our present, scoff some food then leave, I figure we might be there 15 minutes, and when James is keen to go we'll go. My wife already told the other boys Mum that that was probably what will happen.
So I wonder the point of going, but I guess its "getting out in the world".


What do you think will happen?

In the last one he just didn't want to be there, and I ended in the birthday boys room away from everything with my son trying to keep him calm. And he made a lunge for the cake which I only just stopped, and the mother told me I'd be 'Dead' if he had got his hands on it. And they had a magician there, and James went after his stuff, and so he got told off and I felt responsible.

So..yeah :lol:

:(

However this one is at one of those play places you go to where kids climb up tunnels and things like that so it might be OK



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19 Sep 2012, 2:46 am

nostromo wrote:
Wreck-Gar wrote:
nostromo wrote:
Have a Birthday party I have to take my son to, as with the last one which was stressful and not fun its just me taking my boy.
I'm thinking we'll go, give the boy our present, scoff some food then leave, I figure we might be there 15 minutes, and when James is keen to go we'll go. My wife already told the other boys Mum that that was probably what will happen.
So I wonder the point of going, but I guess its "getting out in the world".


What do you think will happen?

In the last one he just didn't want to be there, and I ended in the birthday boys room away from everything with my son trying to keep him calm. And he made a lunge for the cake which I only just stopped, and the mother told me I'd be 'Dead' if he had got his hands on it. And they had a magician there, and James went after his stuff, and so he got told off and I felt responsible.

So..yeah :lol:

:(

However this one is at one of those play places you go to where kids climb up tunnels and things like that so it might be OK


Ethan tries to grab whatever he pleases too, and if I tell him to put something back or take whatever it is away from him he screams "NO!! !! !!" over and over as loud as he can at me and lately he's been telling me to "go to your room!" because that's what I tell him to do when he's being unruly. The screaming is embarrassing in public and completely ineffective at home, I never cave into it ... I hope it's a short phase. :?



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19 Sep 2012, 2:49 am

And to add to it he overturns large toys (art easel, plastic slide, ride in toy car) or chairs when he's mad too.



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21 Sep 2012, 7:43 am

Last night my son drew a picture and showed it to me. I think this is the first time he's ever done this.



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22 Sep 2012, 12:49 am

Wreck-Gar wrote:
Last night my son drew a picture and showed it to me. I think this is the first time he's ever done this.


That's great! My son has drawn a few cryptic things before but his efforts are few and far between he mostly just refuses to try. He did however get into my acrylic craft paint recently and while I was obliviously making his lunch he was squirting considerable amounts of different colors of paint onto my bedroom carpet. It's a miracle I was able to get most of it out.



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22 Sep 2012, 1:39 pm

Washi wrote:
Wreck-Gar wrote:
Last night my son drew a picture and showed it to me. I think this is the first time he's ever done this.


That's great! My son has drawn a few cryptic things before but his efforts are few and far between he mostly just refuses to try. He did however get into my acrylic craft paint recently and while I was obliviously making his lunch he was squirting considerable amounts of different colors of paint onto my bedroom carpet. It's a miracle I was able to get most of it out.


I was mainly surprised that he actually showed it to me.



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01 Oct 2012, 4:27 am

nostromo wrote:
Hi all, we have decided to get an assistance dog for our boy. They provide a number of benefits, but I think one of the main things is they allow you to get out and about in the community safely and more easily with your child.
The child is tethered to the dog through a belt type harness.

Mainly this is going to be a help for my wife, for me its less of a problem as I'm able to lift James and carry him around on my back when needed and also run faster than him, but she can't do this as easily.

We have gone to visit a family with one and also had another family come around to our house with their son and their dog. Perhaps most interesting is looking at the other Autistic kids that use these dogs. Non-verbal and similar to my son.

Now we are going to start raising the funds, about $20,000 (it actually costs more than double that to raise and train the dogs) so we going to be doing fundraising. I'm hoping that won't be too hard, but its a lot of money!

Wow, we got there in 5 WEEKS! We thought it would take 18 months and we would have to do a lot of events and hard work, but people just kept donating money :D
http://www.fundraiseonline.co.nz/AssistanceDogforJames/



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01 Oct 2012, 7:40 am

nostromo wrote:
nostromo wrote:
Hi all, we have decided to get an assistance dog for our boy. They provide a number of benefits, but I think one of the main things is they allow you to get out and about in the community safely and more easily with your child.
The child is tethered to the dog through a belt type harness.

Mainly this is going to be a help for my wife, for me its less of a problem as I'm able to lift James and carry him around on my back when needed and also run faster than him, but she can't do this as easily.

We have gone to visit a family with one and also had another family come around to our house with their son and their dog. Perhaps most interesting is looking at the other Autistic kids that use these dogs. Non-verbal and similar to my son.

Now we are going to start raising the funds, about $20,000 (it actually costs more than double that to raise and train the dogs) so we going to be doing fundraising. I'm hoping that won't be too hard, but its a lot of money!

Wow, we got there in 5 WEEKS! We thought it would take 18 months and we would have to do a lot of events and hard work, but people just kept donating money :D
http://www.fundraiseonline.co.nz/AssistanceDogforJames/


That's awesome! Keep us updated as to everything goes.

How long will it be before the dog is in your house?



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01 Oct 2012, 7:57 pm

Thinking it will be about a year.