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RE: Kids w/ Classic Autism, PDD-NOS & Speech Delays

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cyberdad
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21 May 2014, 6:32 am

HisMom wrote:
CyberDad, was your child verbal when she learned to read ? I seem to remember you saying that she was hyperlexic ? Any tips on how to find out if a totally pre-verbal child could "read", even without comprehension ? As in, sound out the word ? Thanks !

My daughter was verbal (could say a multitude of words) but non-communicative till around 6. Between 6-8 she has been gaining skills in sentences but she is very selective when she uses communicative language. Her main issue is a lack of apparent comprehension but I suspect she is absorbing information/data (as do all of our kids) it's just she is not able to process the information quickly enough to form a reply.

Yes she was hyperlexic. My wife and I spent many weekends cleaning her writing and numbers from walls around the house. Nowadays she still finds writing and math very relaxing. The problem here again it's only stuff she likes rather than school syllabus but she is ahead of her NT classmates on any activity that does not require complex language or comprehension.

Tips? focus on things that your son is obsessed with or loves. If it's Disney then find video books with words as an incentive for him to either imitate the video or at least imitate you copying the video. Any strengths your son has would be a good place to start and just persevere from there,.



HisMom
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22 May 2014, 2:12 am

cyberdad wrote:
HisMom wrote:
CyberDad, was your child verbal when she learned to read ? I seem to remember you saying that she was hyperlexic ? Any tips on how to find out if a totally pre-verbal child could "read", even without comprehension ? As in, sound out the word ? Thanks !

My daughter was verbal (could say a multitude of words) but non-communicative till around 6. Between 6-8 she has been gaining skills in sentences but she is very selective when she uses communicative language. Her main issue is a lack of apparent comprehension but I suspect she is absorbing information/data (as do all of our kids) it's just she is not able to process the information quickly enough to form a reply.

Yes she was hyperlexic. My wife and I spent many weekends cleaning her writing and numbers from walls around the house. Nowadays she still finds writing and math very relaxing. The problem here again it's only stuff she likes rather than school syllabus but she is ahead of her NT classmates on any activity that does not require complex language or comprehension.

Tips? focus on things that your son is obsessed with or loves. If it's Disney then find video books with words as an incentive for him to either imitate the video or at least imitate you copying the video. Any strengths your son has would be a good place to start and just persevere from there,.


Thanks ! We are using his love for music to teach him to read. But, as a rule, he HATES books. We are just plodding along, hoping that somehow, some day, the dislike will turn to love. Hope springs eternal in the maternal heart :)


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O villain, villain, smiling, damnèd villain!
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That one may smile, and smile, and be a villain.
At least I'm sure it may be so in "Denmark".

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HisMom
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24 May 2014, 10:04 pm

Why does this thread occasionally go into hibernation ?????

Day 2 of potty training boot camp. One pee accident the entire day - we spent the day at a lakeside - and I guess that is considered a good day ?


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O villain, villain, smiling, damnèd villain!
My tables—meet it is I set it down
That one may smile, and smile, and be a villain.
At least I'm sure it may be so in "Denmark".

-- Hamlet, 1.5.113-116


Washi
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24 May 2014, 10:50 pm

Two reasons I think. Things are just going OK and we have nothing to say, or we're going through something miserable and for whatever reason don't want to talk about it.



HisMom
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24 May 2014, 11:18 pm

Washi wrote:
Two reasons I think. Things are just going OK and we have nothing to say, or we're going through something miserable and for whatever reason don't want to talk about it.


Ah, see, I tend to talk MORE when I am upset :) :) :)

But, yes, I get your point, Washi.

Today has been so-so. He began to visual stim as soon as we got home but no accidents so far and it will be bath time / bed time soon. Hope our TT luck lasts the weekend ! !


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O villain, villain, smiling, damnèd villain!
My tables—meet it is I set it down
That one may smile, and smile, and be a villain.
At least I'm sure it may be so in "Denmark".

-- Hamlet, 1.5.113-116


WelcomeToHolland
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25 May 2014, 9:30 am

About hyperlexia in a non-verbal child, one of my kids is hyperlexic. He started writing words when he was almost 2 (didn't start saying words until almost 5). At first, we thought it was a coincidence, because we had magnetic letters on the fridge and he wrote "fridge" with the letters. "Fridge" is even a bit of a tough word with the d and g, and so I thought his dad must have put the letters in that order or something. But then he took the letters to a lamp and did it again (several days later, possibly a week). I watched him spell "lamp", totally on purpose. This began the saga of him needing to label everything. Our entire house is labelled, LOL. He still doesn't use writing to communicate and seems to have little to no comprehension of sentences (although he now reads sentences aloud).

The only thing that I can say we did to foster this was he always spells with magnetic letters on the fridge when I'm cooking (I would read his nonsense words aloud before he was writing real words), and we have lots of "My First Words" books with a photo and a word in them that he likes to look at. Mostly I think it was a fluke though because we were in no way trying to teach him to read at the time.



HisMom
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25 May 2014, 10:58 am

WelcomeToHolland wrote:
About hyperlexia in a non-verbal child, one of my kids is hyperlexic. He started writing words when he was almost 2 (didn't start saying words until almost 5). At first, we thought it was a coincidence, because we had magnetic letters on the fridge and he wrote "fridge" with the letters. "Fridge" is even a bit of a tough word with the d and g, and so I thought his dad must have put the letters in that order or something. But then he took the letters to a lamp and did it again (several days later, possibly a week). I watched him spell "lamp", totally on purpose. This began the saga of him needing to label everything. Our entire house is labelled, LOL. He still doesn't use writing to communicate and seems to have little to no comprehension of sentences (although he now reads sentences aloud).

The only thing that I can say we did to foster this was he always spells with magnetic letters on the fridge when I'm cooking (I would read his nonsense words aloud before he was writing real words), and we have lots of "My First Words" books with a photo and a word in them that he likes to look at. Mostly I think it was a fluke though because we were in no way trying to teach him to read at the time.


Reminds me of this kid who was in my son's early intervention toddler class. He couldn't say a single word but could spell everything - including MACHINE. I remember asking myself how he was considered "low functioning" when he obvious had great receptive language and was already spelling at 2 ! ! The boys eventually went to the same intervention preschool -- he started about 6 months before mine. But within a year he had begun to talk while my son made no progress whatsoever. He is now in a mainstream kindergarten with an aide, while mine is at home with me.

We use interactive books to work with him. I no longer expect him to look at words when we read / sing to him. I just want him to look at the pictures in the book, which would be a start. He likes to really explore with his index finger now, so we bought him those poke-a-dot books and have him poke each "bubble" as we point and name the associated pictures. I haven't figured out how to make our own such books - the next thing on my agenda.

Day 2 of intensive TT. It is still quite early in the morning but my anxiety is already sky high. I am desperate to get this kid trained STAT.


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O villain, villain, smiling, damnèd villain!
My tables—meet it is I set it down
That one may smile, and smile, and be a villain.
At least I'm sure it may be so in "Denmark".

-- Hamlet, 1.5.113-116


nostromo
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25 May 2014, 1:58 pm

Yesterday was our day 2 of intensive TT we had less success than on the 1st day. Heartily sick of it TBH



HisMom
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25 May 2014, 2:56 pm

nostromo wrote:
Yesterday was our day 2 of intensive TT we had less success than on the 1st day. Heartily sick of it TBH


What happened ? Did he pee in the potty at all ?


_________________
O villain, villain, smiling, damnèd villain!
My tables—meet it is I set it down
That one may smile, and smile, and be a villain.
At least I'm sure it may be so in "Denmark".

-- Hamlet, 1.5.113-116


HisMom
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25 May 2014, 3:50 pm

UGH ! !! I turned my back for literally 30 seconds to type my post above and my son had a MASSIVE ACCIDENT. JUST STOOD THERE, AND PEED. CANT take my eyes off of him for half a minute.


_________________
O villain, villain, smiling, damnèd villain!
My tables—meet it is I set it down
That one may smile, and smile, and be a villain.
At least I'm sure it may be so in "Denmark".

-- Hamlet, 1.5.113-116


Washi
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28 May 2014, 11:50 am

At nearly 6 years old I think my son has finally realized getting his hair washed is no big deal if he just sits still and tilts his head back. Yay for little victories that make a big difference. He has always made hair washing a very challenging unpleasant task.



cyberdad
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29 May 2014, 6:57 am

HisMom wrote:
Why does this thread occasionally go into hibernation ?????

Day 2 of potty training boot camp. One pee accident the entire day - we spent the day at a lakeside - and I guess that is considered a good day ?


Hi Hismom,
I've been away on a trip and just got back.



HisMom
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31 May 2014, 2:43 am

Major regressions in toilet training this week -- multiple pee accidents per day and we almost had a poop accident today. Managed to get my sons ABA agency to finally agree to start working on teaching him to use PECS. Just been exhausting all around. Looking f/w to some peace next week, and maybe some reversal of TT regression ! !!


_________________
O villain, villain, smiling, damnèd villain!
My tables—meet it is I set it down
That one may smile, and smile, and be a villain.
At least I'm sure it may be so in "Denmark".

-- Hamlet, 1.5.113-116


nostromo
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31 May 2014, 4:38 am

Ditto. Sitting in the toilet with my boy doing a trial, and he leaps off the toilet and just starts urinating on the floor right next to it.



HisMom
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05 Jun 2014, 7:45 pm

Is this not in your neck of the woods, Cyber Dad ?

http://aca.ninemsn.com.au/article/88545 ... llegations


_________________
O villain, villain, smiling, damnèd villain!
My tables—meet it is I set it down
That one may smile, and smile, and be a villain.
At least I'm sure it may be so in "Denmark".

-- Hamlet, 1.5.113-116


cyberdad
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08 Jun 2014, 1:58 am

HisMom wrote:
Is this not in your neck of the woods, Cyber Dad ?

http://aca.ninemsn.com.au/article/88545 ... llegations


Yes this is one of the reasons I'm persevering with mainstream schooling for my daughter. In defense of the principal though, the idea of using sensory rooms for time out was actually the decision of some of the parents of children with severe behavioral issues. They should have, however conferred with other parents for permission before using them.